STAT

Trump tweeted about a dying boy. Here’s what you need to know about his rare disease

The tragic story of Charlie Gard has focused a spotlight on a rare genetic disease called mitochondrial DNA depletion syndrome.
Charlie Gard

The tragic story of a 10-month old British baby who is on life support in a London hospital has focused a spotlight on an often-fatal rare genetic disease called mitochondrial DNA depletion syndrome. The case even caught the attention of President Trump on Monday, who tweeted that “if we can help” the boy, Charlie Gard, “we would be delighted to do so.”

Charlie’s parents have said they hoped to bring him to the United States for an experimental treatment, but a months-long legal battle gave Great Ormond Street Hospital for Children permission to withdraw life support, inciting condemnation from the Vatican to the White House

You're reading a preview, sign up to read more.

More from STAT

STAT3 min read
An Experimental AI System Can Predict When Pancreatic Cysts Will Become Cancerous
Pancreatic cancer is often deadly because it is detected too late. A new AI system outdoes humans at diagnosing which cysts are cancerous.
STAT5 min readSociety
WHO Declares Ebola Outbreak An International Health Emergency
The WHO declared the Ebola outbreak in the DRC a global health emergency, a move that is likely to escalate international attention on a crisis that has flared for a…
STAT5 min readSociety
Debate Over Whether To Test A Second Ebola Vaccine Turns Acrimonious
An aggressive push to use a second experimental Ebola vaccine to try to help stop the outbreak in the Democratic Republic of the Congo may have backfired.