People

Saving Our Sons

WHEN THEIR SONS BENNY AND JOSH WERE DIAGNOSED WITH A FATAL GENETIC DISORDER, JENNIE AND GARY LANDSMAN RAISED MORE THAN $1.1 MILLION TO FIND A CURE
A Family’s Fight Jennie and Gary Landsman with (from left) Michael, Josh and Benny at home in Brooklyn. “They’re these beautiful little boys,” says Jennie. “Whatever time we get with them, we’ll enjoy it and appreciate it.”

For Jennie Landsman every waking minute with her two younger sons—Benny, 2, and Josh, 11 months—is special. Whether she’s cuddling with Benny during story time or coaxing Josh through a colicky tantrum, “they’re both these delicious little guys,” says Jennie, 34. “It’s good to just enjoy them.”

But, sadly, Jennie knows all too well how precious—and fleeting—those moments might be. Last August she and her husband, Gary Landsman, 44, learned that both boys suffer from Canavan disease—a rare, incurable and fatal genetic neurological disorder that eventually robs its young victims of the ability to see, walk, talk, even swallow. With their sons facing a life expectancy of

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