NPR

What Medicine Can Learn From Doctors And Researchers With Disabilities

Bonnielin Swenor has dedicated her life to helping vision-impaired patients. She also has low vision herself — and she's fighting to increase the presence of disabled people in science and medicine.
Bonnielin Swenor

Bonnielin Swenor has devoted her life to studying visual impairment in older adults. But for a long time, she didn't often discuss the motivation fueling her work — that she herself has low vision.

Swenor, an assistant professor of ophthalmology at the Wilmer Eye Institute at Johns Hopkins University, has myopic macular degeneration, a condition that leaves her with extremely limited vision. Basic tasks exhaust her visual processing power, so she has to manage her time with precision, which hasn't stopped her from having a prolific career as a researcher and epidemiologist. But until recently, she rarely discussed her disability with her peers; she worried that they would judge or dismiss her.

Then one day, during the course of a study Swenor was conducting, something happened.

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