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    Thoughts On Blindness: One Spouse's Perspective On Losing Vision and Living Life
    Thoughts On Blindness: One Spouse's Perspective On Losing Vision and Living Life
    Thoughts On Blindness: One Spouse's Perspective On Losing Vision and Living Life
    Ebook54 pages43 minutes

    Thoughts On Blindness: One Spouse's Perspective On Losing Vision and Living Life

    By Becky LeBlanc

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    About this ebook

    There are a lot of books out there that will tell you about blindness from a medical perspective. It's tougher to find books that talk first hand about what living with blindness is like and tougher still to find books that describe blindness from a sighted family member's perspective. This book describes the true impact of blindness on day to day life.
    “Thoughts on Blindness” provides a glimpse into the lives of a husband - who is slowly losing vision - and his sighted spouse. Above all, this book is about living with hope and striving to keep a healthy perspective and sense of humor even when it seems impossible.

    LanguageEnglish
    PublisherBecky LeBlanc
    Release dateJun 25, 2011
    ISBN9780975925812
    Thoughts On Blindness: One Spouse's Perspective On Losing Vision and Living Life

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      Book preview

      Thoughts On Blindness - Becky LeBlanc

      Thoughts on Blindness

      One Spouse’s Perspective On Losing Vision

      And Living Life

      By Becky LeBlanc

      Copyright 2004 Becky LeBlanc

      Smashwords Edition

      For Joe

      There is no one I would rather wait for the sun with

      Wedding Day - September 6, 1997

      There are things I can’t promise you, because I am only a man

      I can’t promise you all sunny days

      I can’t promise you that the sun will always come up

      I can’t pull the sun over the horizon

      But what I can promise

      And what I do promise

      Is that I will stand by your side

      And wait for the sun

      TABLE OF CONTENTS

      INTRODUCTION

      WHAT IS BLIND ANYWAY?

      WHAT IS LIFE LIKE?

      SHOULDN’T YOU LOOK BLINDER?

      WHAT TO MAKE OF IT ALL

      A WORD ABOUT RELATIONSHIPS

      CONCLUSION

      APPENDIX

      INTRODUCTION

      Have you ever been misunderstood? Have you ever said something only to have it completely misinterpreted or only partially understood? Worse yet…have you ever said nothing at all only to have assumptions made about your silence? Have you ever tried to explain something you don’t fully understand yourself? Going blind is like that.

      My husband is going to be blind. Actually, he’s blind now but not in the way that most people think of blindness. He has a condition called Retinitis Pigmentosa (RP) that is destroying his vision over a period of time. There is no cure and no treatment thus far. The rods in his eyes – which are used to distinguish light from darkness – are gone. The cones in his eyes – which distinguish color – are going quickly. What he has left today is tunnel vision and that tunnel is getting smaller every day. In fact, his left tunnel is closed. Lately, the destruction is progressing really fast. It’s been 16 years since Joe sat in the doctor’s office and learned that RP had rendered him legally blind. It’s been 12 years since we met and almost five that we’ve been married. There is a lot of love in our lives and a lot of laughter as well. That is what is going to get us through what is ahead and what has already started.

      This project began with just poems…specifically with the first one called Many Times. As it says, I had tried many times to put words onto paper that would express something about what it’s like when someone you love is losing vision. But it took a while for the words to come. What resulted is a mixture of poetry, basic information about blindness, and specific life examples that describe how blindness has affected us. This project is not done. I don’t know that it ever could be. How does one write an appropriate ending to a story that is still being written? Still, I hope that you find the information helpful. I hope that these writings will reach you.

      Blindness is just like you think it is and nothing like you think it is. So much time is spent explaining what help is needed and not needed. So much mental space is taken up by addressing assumptions. I can tell you that with progressive vision loss comes progressive adaptation. In fact, the one thing that might be more difficult than going through a progressive loss such as this is trying to explain each stage accurately to those who care to know. The words that follow are my attempt to expand the definition of what it means to be blind. The trouble with me trying to explain what it is like to go blind

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