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    The Ehler Danlos Patient's Sourcebook
    The Ehler Danlos Patient's Sourcebook
    The Ehler Danlos Patient's Sourcebook
    Ebook74 pages30 minutes

    The Ehler Danlos Patient's Sourcebook

    By Paul Kalman

    2.5/5

    ()

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    About this ebook

    Ehlers-Danlos Syndrome (EDS) affects the connective tissues; the joint and skin problems are due to issues with collagen, proteins that stabilize the connective tissue and give it elasticity. Prior to 1997, there were 10 recognized types of EDS which were classified by Roman numerals (e.g. EDS I , II and III), but this has now been simplified to six major types. Each type has its own features. For example, the vascular type of Ehlers-Danlos syndrome carries an increased risk of organ rupture, including tearing of the aorta and rupture of the uterus (womb) during pregnancy. All types have some effect on the joints. Symptoms may first show up during the childhood years, although some newborns with certain subtypes are diagnosed with EDS. If symptoms are mild, the disorder may not be diagnosed until the adult years. This informative and concise book guides you through the causes, tests, and treatment options for EDS.

    LanguageEnglish
    PublisherAndale LLC
    Release dateNov 18, 2014
    ISBN9781310687143
    The Ehler Danlos Patient's Sourcebook

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    Reviews for The Ehler Danlos Patient's Sourcebook

    2.5/5

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    • 4/5
      Didn't like that I couldn't download it to print. But useful information.
    • 1/5
      Extremely basic and not enough information. Waste of time if you have any basic notion of it.

    Book preview

    The Ehler Danlos Patient's Sourcebook - Paul Kalman

    The Ehler Danlos Patient’s Sourcebook

    Paul Kalman, MA

    Johnson White, MD (Ed.)

    Smashwords Edition

    ****

    Copyright 2014 Paul Kalman, Johnson White

    Smashwords Edition, License Notes

    This ebook is licensed for your personal enjoyment only. This ebook may not be re-sold or given away to other people. If you would like to share this book with another person, please purchase an additional copy for each recipient. If you’re reading this book and did not purchase it, or it was not purchased for your use only, then please return to Smashwords.com and purchase your own copy. Thank you for respecting the hard work of this author.

    Contents

    INTRODUCTION

    TYPES

    Classical Type

    Hypermobility Type

    Vascular Type

    Kyphoscoliosis Type

    Arthrochalasia Type

    Dermatosparaxis Type

    Rare Types

    CAUSES

    Diagnosis

    Living with EDS

    Specific treatments/conditions

    Related disorders

    Clinical Trials

    Ehler Danlos Related Organizations

    REFERENCES

    INTRODUCTION

    Ehlers-Danlos Syndrome (EDS) affects the connective tissues; the joint and skin problems are due to issues with collagen, proteins that stabilize the connective tissue and give it elasticity. Prior to 1997, there were 10 recognized types of EDS which were classified by Roman numerals (e.g. EDS I , II and III), but this has now been simplified to six major types:

    • The arthrochalasia type

    • The classic type

    • The dermatosparaxis type

    • The hypermobility type

    • The kyphoscoliosis type

    • The vascular type.

    Each type has its own features. For example, the vascular type of Ehlers-Danlos syndrome carries an increased risk of organ rupture, including tearing of the aorta and rupture of the uterus (womb) during pregnancy. All types have some effect on the joints, with symptoms that typically include:

    • Ability to over extend joints (hyperextension)

    • Chronic pain in joints

    • Early onset osteoarthritis

    • Fragile skin, blood vessels, membranes and other tissues

    • Loose and elastic skin

    • Loose joints (laxity)

    • Poor wound healing

    • Prolonged bleeding following cuts or other trauma

    • Scars that are thinner than usual (parchment-like)

    • Tendency to bruise easily

    • Tendency to dislocate joints

    EDS is a hereditary disorder that runs in families. Each of the six subtypes is a distinct entity, so families will tend to only have one subtype. For example, parents with the classic type of EDS will not have children with the hypermobility type.

    Symptoms may first show up during the childhood years, although some newborns with certain subtypes are diagnosed with EDS. If symptoms are mild, the disorder may not be diagnosed until the adult years.

    Males and females are equally affected by EDS, with the exception of an X-linked EDS subtype which only affects males. It is thought that between one in 5,000 and one in 10,000 children are born with the condition. However, exact numbers are not known.

    Types

    Classical Type

    The classical type of EDS can be mild or it can be severe. The original Roman numeral system differentiated between mild (EDS I) and severe (EDS II) variations, but the

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