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    Mom's Story, a Child Learns about MS
    Mom's Story, a Child Learns about MS
    Mom's Story, a Child Learns about MS
    Ebook54 pages31 minutes

    Mom's Story, a Child Learns about MS

    By Mary Jo Nickum

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    About this ebook

    Mom’s Story; A Child Learns About MS tells the story of a young girl who sees her mother with some frightening health problems and learns she has MS but she will not die from it. This book is a compassionate, accessible and easy to understand account of symptoms, search for help, diagnosis and adaptation to this heart-wrenching disease. Amy fears the worst, which is common when one is confronted by the unknown. Her best friend, Kayla, doesn’t quite understand why Amy is so worried. Amy’s older sister, Kelly is concerned and does her best to help, while older brother, Tony, tries to deny the whole situation. Information is the key to allaying much of her fear along with understanding from parents, adult friends and her older sister.

    LanguageEnglish
    PublisherSaguaro Books, LLC
    Release dateSep 11, 2015
    ISBN9781478358190
    Mom's Story, a Child Learns about MS
    Author

    Mary Jo Nickum

    Mary Jo Nickum is a retired librarian, teacher, writer and editor. She is also a biologist, specializing in fish and other aquatic as well as terrestrial life. She enjoys writing about biological subjects for kids. Visit her website www.asktheanimallady.com for more about animals.

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      Book preview

      Mom's Story, a Child Learns about MS - Mary Jo Nickum

      To John

      My loving husband,

      closest friend,

      and

      patient MS caregiver

      Acknowledgments

      My gratitude to all who have helped make this book a reality, especially Mr. Phil Carll and his staff of the MS Society, Arizona Chapter; Dr. Jonathan Carter and his nurse, Lynn Boyer, of the Mayo Clinic Scottsdale; Dr. Jesse Bracamonte, formerly Mayo Clinic Family Medicine; Dr. Philip Barry of Desert Horizon Psychiatric Services; Dr. Manuel Barrera, Jr., Arizona State University Professor of Psychology and Director of Clinical Training; the Scottsdale Writing for Children Critique Group; and, my sister, Elaine Westphal.

      Table of Contents

      Letter to Parents

      Chapter 113THUMP

      Chapter 217The Broken Dish

      Chapter 320Waiting for Daddy

      Chapter 425The Trip to the Hospital

      Chapter 530The Special Doctor

      Chapter 640An Answer at Last

      Chapter747What Can We Do Now?

      Chapter 8  53What Can I Tell my   Friends?

      Author’s  Note

      Glossary

      What is an MRI?

      Information Sources for Families

      A Letter to Parents

      Children are far less fragile than you think and more able to accept painful realities than we generally assume. Parents often try to protect their children by hiding painful issues, but open and honest communication among family members is valuable and important. It builds trust in the long run.

      Illness and disability don’t just happen to individuals in isolation. They affect everyone around too. This book is written to encourage parents with multiple sclerosis (MS) to begin the conversation about the diagnosis and ongoing implications of MS with their children.

      There are many unanswered questions about multiple sclerosis. While it may be frustrating to you and your child, sharing this frustration can actually reassure the child. Information can be an effective antidote to the anxiety and frustration caused by the unpredictability of MS. This book provides a list of resources in various formats to assist you in finding information. I hope that readers will use this book to guide their children in understanding multiple sclerosis, helping to reduce any fear or anxiety, while showing them the importance of loving and caring for one another. If you find your family is having serious difficulty, you may want to seek family counseling or other assistance.

      ––––––––

      Jonathan L. Carter, MD

      Multiple Sclerosis Center

      Neurology

      Mayo Clinic Scottsdale

      Chapter One 

      ♥

      THUMP

      I had just finished practicing piano when I heard a loud noise in the kitchen. It wasn’t like a pan hitting the floor with a BANG or the CRACK of glass breaking.

      It was a THUMP.

      I’d never heard that sound coming from the kitchen before.

      I found Mom sitting on the floor and I rushed to her as she started to get up.

      Mommy, Mommy, what happened?

      Nothing, Amy,

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