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    Your Kid and Crohn's
    Your Kid and Crohn's
    Your Kid and Crohn's
    Ebook62 pages57 minutes

    Your Kid and Crohn's

    By William Sparke

    ()

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    About this ebook

    A handbook for parents facing all the issues arising from having a child with Crohn's Disease - written by a young sufferer, diagnosed at the age of 9

    LanguageEnglish
    PublisherAPS Publications
    Release dateDec 13, 2016
    ISBN9781911310129
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      Book preview

      Your Kid and Crohn's - William Sparke

      Your Kid and Crohn’s: A Parent’s Handbook

      ––––––––

      William Sparke

      Your Kid and Crohn’s: A Parent’s Handbook

      Copyright ©2015 APS Publications

      ––––––––

      All rights reserved.

      The moral right of the author William Sparke has been asserted.

      ––––––––

      No part of this publication may be reproduced, stored in or introduced into a retrieval system, or transmitted, in any form, or by any means (electronic, mechanical, photocopying, recording or otherwise) without the written permission of the publisher except that brief selections may be quoted or copied without permission, provided that full credit is given.

      ––––––––

      Kindle Edition

      ––––––––

      APS Publications,

      4 Oakleigh Road,

      Stourbridge,

      West Midlands,

      DY8 2JX

      www.andrewsparke.com

      e.mail: andrew.sparke@blueyonder.co.uk

      CONTENTS

      First Thoughts

      Diagnosis and Despair

      Symptoms

      Falling Ill

      Lifestyle Issues

      Food

      Bathrooms

      Hospital Time

      School

      School Toilets

      Social Anxiety

      Motivation

      Embarrassment

      Friends and Family

      Medical Issues

      Blood Tests and Needles

      Colonoscopy

      Barium X-Rays

      Wireless Capsule Endoscopy

      MRE and CT Scans

      Ultrasound

      Medication

      Steroids

      Liquid Diets

      Further Treatment

      Biological Therapies

      Surgery

      Compromising To Live

      Holistic Symptom Management

      Closing Comments On Nutrition

      Key Terms

      Further Information

      FIRST THOUGHTS

      As I enter the final year of my undergraduate degree I have found myself achieving just exactly what I wanted from my life at this point and I note that I am holding my own in relation to my peers. This might not sound like the loftiest of goals for a 24 year old but I am proud of where I am. The road has been a lot more difficult than it could have been. This is where the idea for writing this guide comes from. As someone diagnosed with Crohn's Disease at nine years of age, I have realised that I have some insights that can help others travelling the same road. I want to help you and your child get through a life changing event and give you some tips on how to adapt, how to cope and then how to thrive.

      Surprisingly enough I feel that, alongside the dark times, Crohn's has left me with some of the best memories I have as well as some of the closest relationships of anyone I know. I guess I’ve come to conclude that in some regards this curse has been a bit of a blessing.

      DIAGNOSIS AND DESPAIR

      It is my understanding that, at just nine years old, I was diagnosed very young. But in a lot of respects everything surrounding my diagnosis was conspicuously lucky. To start with I was diagnosed within one month of first falling ill. Probably a record for Crohn’s. Initially I presented with all of the standard symptoms of a pretty nasty stomach bug. I had stopped eating and was going to the toilet fifteen or more times a day and so was sent home from the GP with some Imodium and the friendly advice to my mother that I would be fine in a few days. Two weeks down the line I was still most definitely not fine, and was now in severe discomfort verging on pain. To top it all off I was beginning to lose weight quickly.

      Having never been a particularly robust or large child this obviously had my parents incredibly worried. Fortunately, instead of spending the next few months or even years bouncing between GP's looking for answers, as I am well aware can happen, my GP immediately referred me to a specialist team dedicated to treating children with Crohn's Disease and I passed into the care of the Royal Free Hospital in London. He did this for one simple reason. Two of his own children had Crohn's and he recognised the pattern.

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