Dystonia and Beyond
By Marg Revill
()
About this ebook
Marg Revill
I struggled with dystonia for more than twelve years before Jesus healed me. I want to encourage people and give them hope to believe for their own healing. I plan to donate a portion of the book sales to the Dystonia Foundation to further their research. I live in Kelowna, British Columbia, Canada, with my husband and our dog, Max. We have six wonderful grandchildren who also live in Kelowna, with my son and daughter and their spouses.
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Dystonia and Beyond - Marg Revill
Copyright © 2014 Marg Revill.
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The author of this book does not dispense medical advice or prescribe the use of any technique as a form of treatment for physical, emotional, or medical problems without the advice of a physician, either directly or indirectly. The intent of the author is only to offer information of a general nature to help you in your quest for emotional and spiritual well-being. In the event you use any of the information in this book for yourself, which is your constitutional right, the author and the publisher assume no responsibility for your actions.
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ISBN: 978-1-4525-9378-4 (sc)
ISBN: 978-1-4525-9379-1 (e)
Balboa Press rev. date: 04/29/2014
A portion of the sales of this book
will be donated to the Dystonia
Foundation for Dystonia research.
CONTENTS
Dedication
Introduction
Chapter 1: What is happening to me?
Chapter 2: My questionable family
Chapter 3: Shocked by reality
Chapter 4: Ravaged by an unknown disease
Chapter 5: My hospital stay in the psyche ward
Chapter 6: Diagnosis in the Psyche ward
Chapter 7: Outpatient care
Chapter 8: Treatment at UBC
Chapter 9: Our move to Westbank
Chapter 10: This story is about me!
Chapter 11: The ugly face of revenge
Chapter 12: Healing Miracle
Chapter 13: Four car accident
Chapter 14: Walking into my future
Chapter 15: I am Gods’ masterpiece
Summary
DEDICATION
I dedicate this book to the two people, who walked with me, and gave me the courage to take one day at a time. My children, who were the two greatest reasons for me to keep putting one foot in front of the other, to walk on with my life.
INTRODUCTION
A day in my life with Dystonia
I invite you to share how a typical day unfolds for me while I battle with Dystonia. Each morning as consciousness begins to filter in, my eyes commence to open and my mind screams NO!!!!! I want to push back what has become my reality of morning, not wanting to face another day. I cannot escape, or hide, by pulling the covers over my head. I force myself to leave the comfort of my warm bed at 7:00am.
My body begins to tremble and my hands shake, oh how I want it to stop! Knowing it is only the start of what’s to come. Soon I will not be able to control any of my upper body contortions. I begin to shake violently, my head, neck, and face start to perform their twisting and bobbing rituals. This will continue to increase in intensity, and the pain will make me want to scream!
My neck is beginning to tense and jerk faster, as I clench my teeth I feel it twist and lock into a painful spasm, turning my head so my face is forced, as far right as it will go…there it will stay, until I take medications to release the lock hold the spasm has on my neck, head, and shoulders.. When the drugs begin to take effect I will then be able to use my shaky hands to centre my head forward on my shoulders……GOOD MORNING WORLD!
If I start to scream, I will not be able to stop myself. I am so angry, I want to scream loud and long, until I have no breath left in me. I do not want to wake my children from their sleep. When, and if, I collapse, my two young children will be horrified. I muffle my screams, to avoid having the neighbour’s call 911 for the police to come, and take the children away.
The uncontrollable shaking intensifies and I reach for the medications in the cabinet. I desperately want the shaking to stop! I find a place to sit and rest my head in my hands. I know this will not stop the wild motions of my neck, as it locks with my shoulders, a strong, painful spasm continues to twist and tug it toward the right side of my body. I stand up and walk to the medicine cabinet to take my morning medications. Once I have taken all the pills, I will sit down again, still shaking, waiting for the pills to take