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Orthostatic Tremor: Am I the Only One?
Orthostatic Tremor: Am I the Only One?
Orthostatic Tremor: Am I the Only One?
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Orthostatic Tremor: Am I the Only One?

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Do your legs tremble when you stand in place? Do you find yourself needing to sit down, so you wont fall? Then you have as many questions as I do. What is wrong with me? How do I cope with this? Is there medicine to help? What about physical therapy? What is this new brain surgery known as deep brain stimulation? Will it help me? Am I the only one to have this problem?

In my twenty-two-year trek with orthostatic tremor, I have found some of the answers. A rare neurological movement disorder, OT continues to baffle medical science. I am sharing my experiences in order to: 1) help identify orthostatic tremor symptoms , 2) explain the alternative of deep brain stimulation, 3) describe practical ways to manage the unique challenges of OT, 4) teach how to cope with an HMOs process of securing outside referral, and 5) offer hope for living with a disorder that currently has no cure.

LanguageEnglish
Release dateNov 11, 2013
ISBN9781489700452
Orthostatic Tremor: Am I the Only One?
Author

Jane Baker Conner

Jane Baker Conner was reared in Decatur, Illinois. She graduated summa cum laude from Indiana University in 1960. Jane taught a variety of grades in elementary education for twelve years, then spent twenty-five years as a personal lines insurance agent. Mother of two, grandmother of five, Jane lives in Walnut Creek, California, with her four cats.

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    Orthostatic Tremor - Jane Baker Conner

    Copyright © 2013 Jane Baker Conner.

    All rights reserved. No part of this book may be used or reproduced by any means, graphic, electronic, or mechanical, including photocopying, recording, taping or by any information storage retrieval system without the written permission of the publisher except in the case of brief quotations embodied in critical articles and reviews.

    LifeRich Publishing books may be ordered through booksellers or by contacting:

    LifeRich Publishing

    1663 Liberty Drive

    Bloomington, IN 47403

    www.liferichpublishing.com

    1 (888) 238-8637

    Because of the dynamic nature of the Internet, any web addresses or links contained in this book may have changed since publication and may no longer be valid. The views expressed in this work are solely those of the author and do not necessarily reflect the views of the publisher, and the publisher hereby disclaims any responsibility for them.

    Any people depicted in stock imagery provided by Thinkstock are models, and such images are being used for illustrative purposes only.

    Certain stock imagery © Thinkstock.

    ISBN: 978-1-4897-0044-5 (sc)

    ISBN: 978-1-4897-0045-2 (e)

    LifeRich Publishing rev. date: 11/03/2013

    TABLE OF CONTENTS

    Chapter One: What in the Sam Hill?

    Chapter Two: Bingo!

    Chapter Three: Coping (or not?)

    Chapter Four: A New Venture: Is DBS for You?

    Chapter Five: Nine Months to Go Before New Birth

    Chapter Six: Are We There Yet?

    Chapter Seven: A Moment of Truth"

    Chapter Eight: It Takes a Village to the Rescue

    Chapter Nine: Success Story Number Five

    Chapter Ten: Jane Wraps It Up, Still Learning

    Author’s Note:

    Author’s Bio

    Dedicated to: Doris of Modesto,

    my beacon of hope for the journey

    Preface: Imagine having an ailment that no one can diagnose? Once named, it can’t be cured.

    And yet, if only one reader finds help and hope from my story, I will be ecstatic.

    CHAPTER ONE:

    What in the Sam Hill?

    I T STARTS IN MY EARLY FIFTIES. AN INSURANCE AGENT, I FIND MYSELF IN THE backyard of a favorite insured’s home in Sausalito. Armed with notebook and Polaroid camera, I’ve come to update the renewal data. Now it’s time to leave through the grassy steps, up the slope, through the gate. It was easy coming down, but suddenly my knees go weak and shaky, like they won’t support me. My client is still at work, so I’m on my own. In desperation, I get down on all fours and claw my way up. Once safely back in my car, I ask myself What just happened ? and answer Jane, you really need to start Jazzercise or something to get your muscles stronger.

    Then begins a period of new awareness of occasions when my legs fail me. When standing

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