Professional Documents
Culture Documents
INTRODUCTION
Muzammil pattasseri
PALLIATIVE CARE
Palliative care is the active total care of patient with life limiting disease, and their families by a multi professional team, when the disease is no longer responsive to
curative care. However in some countries, hospice care denotes community-based palliative care. palliative is derived from the Latin word pallium, a clock , in palliative care symptoms is cloaked with treatments whose primary aim is to promote comfort . However, palliative care extends far beyond physical symptom relief, that patient may come to times with their impending death as fully constructively as they can.
Palliative care is a kind of treatment focused on providing comfort and enhancing the quality of life during the last stage of life. Through extending and saving lives the medicines primary goal, a shift in focus must be affected when caring for patients with a serious and complex chronic illness. In these cases, care must be centered on relieving the symptoms of the diseases, especially in the real pain management. Palliative care is offered simultaneously with all other appropriate medical treatment.
1. Individuals firmly expressing their values, goal of care and preference regarding their care. 2. The communications of this wishes and preference to the health care professionals. 3. The health care profession providing treatment consistent with these values, benefits and goal. 4. Proper documentation of these preferences.
Affirms the patient life. Relieves symptoms: nausea, fatigue, breathlessness, anxiety, and depression weakness.
Emphasizes effective pain management. Provides the patients with the best quality possible at the end of their life retaining their dignity and respecting their values and preferences.
Providing disease management by offering relief from suffering. Helps to achieve a sense of control. Offers to address any spiritual issues.
Relieves some of the burden placed upon loved ones. Provides support system for family and friends.
5
Strengthens personal relationship. Establishes a mechanism for warning of potential medical crisis. Earlier intervention leads to better disease management, reduced hospital admission and improved patient comfort and satisfaction.
REHABILITATION
Add life to their days, not days to their life
Palliative is about quality of life and it includes rehabilitation. It seeks to help patients achieve and maintain their maximum potential physically, psychologically, socially and spiritually. However these have become limited as a result of disease explosion.
TEAM WORK
Together everyone Achieve more
Palliative care is best administrated by a group people working as a team. The team is collectively concerned with the total well- being of the patient and family.
6
In practice some or all of the following is involved. Doctors and nurses (the essential core clinical team). Physiotherapist, occupational therapist, other specific therapist. Social workers Volunteers.
As there is overlap of rules, co-ordination is an important part of team work. Conflict inevitable erupts from time to time in a team of highly motivated, skilled professionals. One of the challenges of team work is how to handle conflict constructively and creatively. Volunteers are integral part of most palliative care services, providing added values as a Result of their own life experiences and skills. They also form an important link with the winder community.
Cancer is an uncontrolled division of cells defying the logic of normal growth and division. This uncontrolled growth affects the function of the body to carry on normal metabolic activities. This manifests as disease. Though the precise causes of this phenomenon have not been conclusively identified, linkages to chemical pollutants, food habit etc have been clearly established. The connection between tobacco smoking and lung cancer has been conclusively proven. Depending on the manner of growth and area affected, cancer has been classified into more than 200 types.
1. Provided in a sustained and equitable way. 2. Linked to early detection. 3. Where to evidence based standards of care and a multidisciplinary approach.
DIAGNOSIS
The disease is diagnosed by taking out sample cells from the affected part and subjecting them to examination under the microscope. This method of examination is known as FNAC/biopsy.(FINE NEEDLE ASPIRATION CYCHOGY).
RADIATION
Radiation is an effective and comparatively low cost method of treatment for several types of cancers. Cancer of the mouth, through, lungs and uterus are effectively treated with radiation. Radiation is also resorted to treat cancer that has spread to the bones or the brain.
If radiation has been prescribed for patient, the part of the body that should be subjected to radiation is marked out and the dosage and duration is determined. The patient is then made to lie down on the bed attached to the machine and radiation is passed through the specified area only.
In the normal case, the treatment may last from 2 weeks to 6weeks. In certain case, radiation is applied once a week for 5 or 6 weeks.
CHEMOTHERAPY
Chemotherapy is the treatment of the disease by means of drugs. It is the injunction treatment in the common mens parlance. A variety of medicines are injected to destroy the cancerous cells. Chemotherapy is effective in the treatment of lymphoma and leukemia (blood cancer). And in the treatment of lung cancer and breast cancer, injection with radiation is done. The treatment may involve taking the drug for more than once over span of time.
RESEARCH METHODOLOGY
Research methodology is the procedure use in making systematic observation or otherwise obtaining data, evidence, or information as part of a research project or study. Hear the research method used in descriptive research. Descriptive research includes surveys and fact finding enquiries of different kinds. The major purposes of the state of affairs as it exist at present.
10
AREA OF STUDY
Patient residing A R Nagar panchayath, Vengara panchayath, Kannamankalam panchayath andPallikkal panchayath
POLULATION
The total population of the study is 100.
10 /02 /2012
TO
24 /02 /2012
2. SAMPLING
Sampling is the process of selecting a representative portion of the population under study for analysis.
SAMPLING METHOD
The sampling methods used hear is the convenience sampling method.
11
Convenience sampling method is a non probability sampling technique where subjected are selected because of their and proximity to the researcher.
. SAMPLE SIZE
The sample size selected for the study was restricted to 40.
SAMPLE DESIGN
The process of extracting a sample from the respondent is called sampling process. The selection of the sample to conduct the research depends upon the nature and scope of study, along with the objective to be achieved.
The analysis is mainly conducted by using simple statistical tool, percentage. Also charts and tables are used wherever necessary.
1. Resources constrain, home care patients are scattered all over and so faced much difficulty in collecting information from them. 2. Time limitation is one of the major problems of this research. 3. Some of the respondents were not willing to share data completely.
13
CHAPTER-2
REVIEW OF LITERATURE
REVIEW OF LITERATURE
14
Primary caregivers usually provide primary support for the patients at all levels of need. They may be patents spouse, child, another family members or a friend. Although the primary caregiver may be supported by other caregivers, the generally assume primary responsibility for the coordination and provision of care and support to the patient.
(Christakis&Iwashyna, 2003
Within
Australian
health
policy
standards
it
is
explicitly
Caregivers and family members should be considered as an integral component in the provision of specialist palliative care
(P.Hudson&Payne, 2009). Furthermore, it is deemed best practice for this duty of care to extend into the phases of post- patient death and bereavement (palliative care
Australia, 2005: relf, Machin, &archer, 2008). In recent year, the importance of developing and identifying support intervention for care agencies and research bodies.
Harding &Higginson
15
What is the best way to help caregivers in cancer and palliative care a systematic literature review of intervention and their effectiveness?
1) Carlsson&rollison
Terminally ill patients occurs mostly when the patient lives with a spouse or partner
Given, given &kozachik (2001) Family support in advance cancer No limits stated
16
CHAPTER-3
ORGANIZATION PROFILE
17
This institution was inaugurated by Panchayath member PK KUNJUTY SAHIB on 1 MAY 2004.It is located on the heart of KUNNUMPURAM town, just opposite of Government hospital. As this is one of the satellite centre of PPCC under Calicut MEICAL COLLEGE was praised by World Health Organization (WHO).And the register number is 175/5. Trained persons (doctors, nurses and volunteers) deliver palliative care in this organization.
MISSION
Belief is that individual and families copying with a life threatening illness deserve efficient access to services that use designed to enhance their quality of life and enable them to receive care in the setting of their choice.
14 4. Offer a support system to help patients live as actively as possible until death.
18
1. Time for close communication 2. Expert management of pain and other symptoms 3. Help navigating the healthcare system 4. Guidance with difficult and complex treatment choices 5. Emotional and spiritual support for you and your family
AREA OF ACTIVITIES
1. Patient residing A R Nagar panchayath, Vengara panchayath, Kannamankalam panchayath andPallikkal panchayath were recommended to Calicut Medical College, Trivandrum Regional Cancer Centre (RCC) to receive better treatment like radiation, surgery and chemotherapy etc 2. Services are rendered by home care team which comprises doctor and nurses who are ready to serve the patients at any time even if the patients are at home. 3. Water bed is provided for patients who have scarce in their body like abscess. 4. They Provide tour for volunteers. 5. Service for community voluntaries network are available. 6. Medical aids are provided at free of cost for poor cancer patient if they are in need for that. 7. In case of emergency, the patients are provided free wards for their treatment. 8. Easy communication facilities between doctor and patient and nurse and patient and their relatives are provided
19
9. Provide employment opportunities, sheltering, supply food grain etc for weak patients.
The organization depends upon donation for smooth functioning .it donators are:-
Business man and merchants Members in palliative clinic Local governing bodies and other generous people Residence and non-residence of Kunnumpuram Schools and collages
Hear almost 68% are cancer patients. Patents are coming from different panchayath. Service are provided to them very effectively they avail their services to panchayath area as whole and partly to nearby areas.
OP UNIT
- MONDAY
20
HOME CARE
ORGANIZATION MEMBERS
21
1. SECRETARY
E.V SURESH
2. JOINT-SECRETARY
- P.SUBRAMANYAM K.SUBRAMANYAM
3. TREASURER
- PK. MUJEEB
4. CLINIC IN CHARGE
- HYDER
5. PAID STAFF
SECRETARY
22
JOINT-SECRETARY
JOINT-SECRETARY
TREASURER
CLINIC-IN CHARGE
PAID-STAFF
PAID-STAFF
VOLUNTEER
23
CHAPTER-4
TABLE NO-4.1
24
OPTIONS
Above 56 45-55 35-45 Below 25 25-35 TOTAL
NO:OF RESPONDENT
22 8 6 4 0 40
PERCENTAGE %
55% 20% 15% 10% 0% 100%
INTERPRETATION
From the above table it could be seen that 55%of the patients are the age group of 56 and above, 20%of the age fall in between 45-55, 15% of them fall in between 35-45; 10%of them are below the age25.
FIGURE -4.1
25
20%
26
GENDER OF PATIENTS
OPTIONS
Female Male TOTAL
NO:OF RESPONDENT
16 24 40
PERCENTAGE %
40% 60% 100%
INTERPRETATION The above tables shows that60% of the patients are male and remaining 40% of the patients are female
FIGURE NO -4.2
27
GENDER OF PATIENTS
70%
60%
60%
50%
40%
40%
30%
20%
10%
0% male female
28
OPTIONS
Home care Out patient TOTAL
NO:OF RESPONDENT
40 0 40
PERCENTAGE %
100% 0% 100%
INTERPRETATION
FIGURE-4.3
29
100%
30
OPTIONS
Health problem Personal problem Expensive TOTAL
INTERPRETATION The above table shown that 80%of the patient are not going to the clinic for treatment because of the health problem, and remaining 20% of them because of the personal problem.
31
FIGURE-4.4
80%
80%
70%
60%
50%
40%
30%
20%
20%
10%
0%
0% health problem personal problem expencive
32
OPTIONS
Satisfied Partly satisfied Dissatisfied TOTAL
NO:OF RESPONDENT
40 0 0 40
PERCENTAGE %
100% 0% 0% 100%
33
FIGURE-4.5
0%
100%
34
28
OPTIONS
Yes always getting To some extend Not getting TOTAL
NO:OF RESPONDENT
40 0 0 40
PERCENTAGE %
100% 0% 0% 100%
SOURCE: - Primary data INTERPRETATION:The above table shown that 100% of the patients are always getting mental relief.
35
FIGURE-4.6
0%
100%
OPTOINS
Partly relief Full relief No relief TOTAL
NO:OF RESPONDENT
40 0 0 40
PERCENTAGE %
100% 0% 0% 100%
INTERPRETATION:The above table shown that 100% of the patients said that they are getting partially relief, from pain and other physical problem
FIGURE-4.7
37
90%
80%
70%
60%
50%
40%
30%
20%
10%
0%
0%
38
OPTION
Poor class Very poor class Middle class Well-off TOTAL
NO:OF RASPONDENT
18 6 10 6 40
PERCENTAGE %
45% 15% 25% 15 100%
SOURCE: - Primary data INTERPRETATION:The above table shows that 45% of the patients are belonging to poor class, 15% of the patients are belonging to very poor class, 25% of the patients are belonging to middle class remaining 15% of the patients are belonging to well-off family.
FIGURE-4.8
39
15% 45%
poor class
25%
15%
TABLE NO: 4. 9
40
OPTIONS
Always To some extent never TOTAL
NO:OF RESPONDENT
40 0 0 40
PERCENTAGE %
100% 0% 0% 100%
INTERPRETATION;The above table shown that 100% of the patients always receiving medicines at free of cost.
FIGURE-4.9
41
90%
80%
70%
60%
50%
40%
30%
20%
0%
10%
0%
42
OPTONS
NO:OF RESPONDENT
PERCENTAGE %
Free rice Financial support Support for education of children No getting TOTAL SOURCE: - Primary data
20 4 6 10 40
INTERPRETATION:The above table show that 50% of the patients said that they are getting free rice,10% of patients said that they are getting financial support ,15% of the patients said that they are getting educational support for their childrens education, and 25% of the patient said that they are not getting welfare facilities.
FIGURE-4.10
43
25% 50%
free rice financial support support for education of chidren no getting
15% 10%
44
POTIONS
Satisfied Partially satisfied dissatisfied TOTAL
NO;OF RESPONDENT
36 4 0 40
PERCENTAGE%
90% 10% 0% 100%
INTERPRETATION:-
The above table shows that 90%of the patients are satisfied with the present welfare facilities and the remaining 10% of the patients are partially satisfied with the present welfare facilities.
FIGURE-4.11
45
80%
70%
60%
50%
40%
30%
20%
10% 0%
10%
46
OPTIONS
Monitory benefit Home care facility TOTAL SOURCE: - Primary data
NO:OF RESPONDENT
30 10 40
PERCENTAGE %
75% 25% 100%
INTERPRETATION:The above table shown that75% of the patients selected the palliative care because it is more beneficial to them on monitory basis and the remaining 25% of the patients selected it for its home care facility.
FIGURE-4.12
47
25%
75%
48
OPTIONS
Yes ,I tell every thing Only some information TOTAL
NO:OF RESPONDENT
40 0 40
PERCENTAGE %
100% 0% 100%
INTRPRETATION:The above table shown that 100%of the patients tell everything when volunteers ask about their problems.
FIGURE-4.13
49
100%
100% 90% 80% 70% 60% 50% 40% 30% 20% 10%
0%
0% yes,I tell everything only some information
NO:OF RESPONDENT
40 40
PERCENTAGE %
100% 100%
INTERPRETATION:-
The above table shown that doctors, nurses, volunteers have a tendency to care them.
FIGURE-4.14
51
52
NO:OF RESPONDENT
28 6 6 0 40
PERCENTAGE %
70% 15% 15% 0% 100%
INTERPRETATION:The above table shown that 70%of the patients said that the service provided by the clinic is excellent, 15% of the patients are of the opinion that the services provided by the clinic are good and satisfactory respectively.
FIGURE-4.15
53
15%
70%
54
CHAPTER 5
55
SUMMERY
The first chapters include the introductions of pain and palliative care clinic. This include definition of pain and palliative, needs of palliative, effectiveness of palliative, highlights of palliative, and cancer disease, objectives of palliative, scope of palliative, research methodology The second chapter includes review of literature of pain and palliative care clinic. It contains important information of famous people. The third chapters include organization profile of the Kunnumpuram pain and palliative care clinic. It gives all information with organization The forth chapters include data analysis of Kunnumpuram pain and palliative care clinic. The fifth chapters include findings, suggestion, conclusion, summary, annexure, bibliography.
FINDINGS
56
1. The 55% of the patients are coming in the age group of 56 and above. 2. 100% of the cancer patients are home care patients. 3. 80% of the patients are not going to clinic because of the health problem. 4. 100% of the patients are getting mental relief from the clinic. 5. 100% of the patients are getting only partial relief from pain and other physical problem. 6. 45% of the patients are coming under poor class. 7. 100% of the patients are receiving medicine at free of cost. 8. 50% of the patients are getting the free rice 9. 90% of the patients are satisfied with the present welfare facility provided by the clinic. 10. 75% of the patients are selecting palliative care because it is more beneficial to them on monitory basis. 11. 100% of the patients tell everything when the volunteers ask them about their problems. 12. 100% of the patients said that the approach of the doctor, nurses and volunteers are caring. 13. 70% of the patients said that the services provided by the Kunnumpuram Pain and Palliative care clinic are excellent.
57
SUGGESTION
2. More volunteers are needed to work for the organization. So it is suggested to take initiative increasing the number of volunteers.
3. Kunnumpuram Pain and Palliative conducting weakened class for every relative of patients.
4. Volunteers should make regular home visit for giving psychological assistance to the patients.
5. Community volunteers should try to identify problem of the chronically ill people in their area and should organize appropriate intervention.
6. They should study about the problem of very poor patients and give more facilities for the financial support of the families and education of their children
CONCLUSION
58
The project report found that generally the services provided in Pain and Palliative Care Clinic Kunnumpuram was satisfactory, Pain and Palliative Care Clinic giving almost care for the mental relief of the cancer patients. A volunteer in Pain and Palliative clinic deserves special appreciation for their sincere efforts at the center.
However for improved performance of the Pain and Palliative Clinic Kunnumpuram, active workers should be included in the organization body and other less active fund providers.
59
BIBILIOGRAPHY
BIBILIOGRAPHY
60
INSTITUTION
Kunnumpuram Palliative clinic profile. Kunnumpuram Pain and Palliative Care Clinic Guide.
61
ANNEXURE
Marital status:
a) Married
b) Unmarried
c) divorced
1. What health problem do you have? Specify.. 2. What are the facilities provided by the clinic to you?
a) Home care
b) Out patient
a) Health problem
4. Are you satisfied with the environment that the clinic have?
a) Satisfied
b) Partly satisfied
c) Dissatisfied
c) Not getting
6. Are you getting complete relief from pain and other physical problem?
a) Full relief
b) Partly relief
c) No relief
a) Well-off
b)Middle class
a) Always
b) To some extent
c) never
a) Free rice
10. Are you satisfied with the present welfare facilities provided by this clinic? a) Satisfied b) partly satisfied C) dissatisfied
11. What is the reason for selecting pain and palliative care?
a) Monitory benefits
c)
12. When volunteers ask you about your problem, do you tell everything? b) No I dont tell c) Only some information
a) Caring
b)Not caring
c)Harsh
14. How do you rate due services provided by Kunnumpuram Pain and Palliative care society?
a) Excellent
b) Satisfactory
c)Good
d)Non-satisfactory
65