2012 EMERGING KNOWLEDGE PODIUM PRESENTATION ABSTRACTS

NAPNAP 2012 ANNUAL CONFERENCE EMERGING KNOWLEDGE PODIUM PRESENTATION ABSTRACTS list comparison families subsequently completed the CST sessions. To evaluate the effectiveness of the CST intervention children completed quantitative instruments including a demographic form, Child Health Questionnaire (CHQ-87) for global and physical health, Child Depression Inventory (CDI), and Child Attitude Toward Illness Scale (CATIS) for psychosocial, health, and self-management efcacy (SME). Differences in experimental and control group at onset were assessed by Chi Square or t-test. Repeated measures analysis of variance (ANOVA) with multiple comparisons correction was used to identify changes from baseline. Results: All children were able to complete study instruments. Internal reliabilities were strong for all instruments. Demographics revealed that 63% were female with an average age of 9.8 (SD = 1.7), 71% came from two-parent households, and 66% had family incomes greater than or equal to $50.000. Study participants CHC included 31% asthma, 26% rheumatic illnesses, 23% epilepsy, and 18% spina bida. CST participants reported higher overall general health (p = 0.025), lower behavior problems (p = 0.014), and lower depression (p = 0.047) at 12 months; however there were no significant differences between groups. Children and the parents evaluated the program very positively. Study staff found that it was feasible to conduct the CST intervention with children 8-12 years of age who had different CHC. Evaluation information from children and parents revealed three program benet themes: connection with others, sharing common information, and developing new skills and new discoveries. Clinical Implications: The CST was feasible, had participant support and preliminary efcacy data. If the goal of future studies is stress reduction and problemsolving then this curriculum may be useful in CHC. However if increasing self-management skills is the goal, additional condition-specic content/instruments should be considered. In the future we would consider instruments that more closely captured the three themes participants identied as program benets.

Coping Skills Training (CST) for Children With Chronic Health Conditions (CHC) and Their Parents: Outcomes From a Pilot Study
Betsy Roth-Wojcicki, RN, MS, CPNP-PC, Kathleen Sawin, DSN, CPNP-PC, Heidi Miranda, MS, Ke Yan, PhD, & Raymond Hoffmann, PhD Emerging Knowledge Podium Presentations at the 33rd Annual NAPNAP Conference, March 2012, San Antonio, TX Purpose: The purpose of this IRB-approved randomized clinical study was to pilot an adapted Coping Skills Training (CST) intervention for feasibility and efcacy with a sample of children 8-12 years of and age who have various chronic health conditions (CHC) and their parents. Background/Signicance: Families of a child with a CHC are at an increased risk for economic, social, and emotional challenges due to their childs health needs. Many children with CHC are at increased risk for poor adaptation such as psychosocial problems, behavioral disturbances, and decreased quality of life. Effective coping has been shown to moderate the negative impact of CHC. Research Questions: 1. What is the impact of CST on physical and psychosocial outcomes by group? 2. What is the impact of CST on self-management, selfefcacy by group? Method/Design: The CST intervention used a 6-session format for both child and parents adapted from Grey et al.s work with children who had diabetics. Survey data was collected in face-to-face interviews from study participants at Childrens Hospital of Wisconsin at baseline, 3 months and 6 months post-baseline. Sample: 38 children were enrolled in the study, with 19 intervention families completing CST sessions and 16 wait-list comparison families. Ten of the waitwww.jpedhc.org

The Experiences of Medically Fragile Adolescents Who Require Respiratory Assistance

Regena Spratling, PhD, RN, CPNP-PC
September/October 2012 e37