Training Guide Professional Training Series No. 19 New York and Geneva !"1!
Note The designations employed and the presentation of the material in this publication do not imply the expression of any opinion whatsoever on the part of the Secretariat of the United Nations concerning the legal status of any country, territory, city or area, or of its authorities, or concerning the delimitation of its frontiers or boundaries. * * * Symbols of United Nations documents are composed of capital letters combined with figures. Mention of such a figure indicates a reference to a United Nations document. !"#"#T"$% & '($' United Nations )ll worldwide rights reserved Contents Page Professional Training Series No. 19........................................................................................ i New York and Geneva, 2012................................................................................................... i ABOUT T! T"A#N#NG GU#$!.............................................................................................% &O$U'! 1........................................................................................................................... 10 &O$U'! 2........................................................................................................................... 22 &O$U'! (........................................................................................................................... %1 &O$U'! %........................................................................................................................... )1 &O$U'! )........................................................................................................................... *( &O$U'! +........................................................................................................................... ,, &O$U'! *........................................................................................................................... 99 &O$U'! ,......................................................................................................................... 119
( #$%&T T'( TR#)N)NG G&)D( 1. $a*kground The United Nations *eneral )ssembly adopted the +onvention on the !ights of #ersons with ,isabilities and its -ptional #rotocol in '((. as a means of improving respect for the rights of persons with disabilities, who, according to the latest figures, comprise some $/ per cent of the world0s population. Since '((., ratification of the +onvention and -ptional #rotocol has proceeded at a rapid pace. owever, 1nowledge about the +onvention and how to implement and monitor it has not necessarily 1ept up. This in turn has led to an increase in re2uests for training courses to build capacities of national sta1eholders3 representatives of *overnment, civil society, national human rights institutions 4N!5s6 and others. The -ffice of the United Nations igh +ommissioner for uman !ights 4-+!6 has developed this Training Guide in response. 5t see1s to provide basic information on a rights7 based approach to disability, on the fundamental elements of the +onvention and its -ptional #rotocol, and on the processes and issues underlying their ratification, implementation and monitoring. +onse2uently, the materials are particularly appropriate for introductory courses on the +onvention. The materials were first prepared in '($( and revised over '($$. 5n )ugust '($$, -+! held a validation course comprising participants from United Nations human rights presences, the United Nations ,epartment of 8conomic and Social )ffairs and representatives of the 5nternational ,isability )lliance. -n this basis, the Guide was finali9ed and published. !. %verview of the Training Guide +a, -hat is this Training Guide. The Training Guide is for facilitators of training courses on the +onvention on the !ights of #ersons with ,isabilities and its -ptional #rotocol. 5t can be used to develop a training course on the +onvention and"or the -ptional #rotocol, but is also helpful as a general information resource on these instruments. The Training Guide promotes interactive training sessions, intended ideally for relatively small groups of maximum '( participants, and comprises a mix of computer slide presentations and group activities intended to encourage dialogue and exchange between facilitators and participants and among the participants themselves. +b, -ho/ is the Training Guide for. The Training Guide is primarily for training facilitators and others who already have 1nowledge of the international human rights system and are called upon to provide training on the +onvention on the !ights of #ersons with ,isabilities. 5n other words, the Guide assumes some 1nowledge of human rights standards, terminology and mechanisms but not necessarily 1nowledge of the +onvention itself. The Training Guide assumes that any training course will be underta1en by a lead facilitator, who would ideally be assisted. % +*, -ho is the target audien*e of the training /odules. The target audience of the training modules is broad. 5t could be any individual or representative of an organi9ation or institution that is involved in promoting, implementing and monitoring the +onvention. The principal beneficiaries of the training courses are therefore: *overnment representatives, particularly focal points and coordination mechanisms related to the +onvention #arliamentarians ;udges !epresentatives of United Nations speciali9ed agencies, funds and programmes !epresentatives of national human rights institutions #ersons with disabilities and their representative organi9ations +ivil society organi9ations Media representatives #rofessionals in related areas such as health, education, support services and so on. +d, 'ow to use this Training Guide The sessions are based on the training methodology adopted by the -+! Methodology, 8ducation and Training Section. 8ach module comprises four principal documents: The note for the facilitator explains the se2uence of the training session, the documents re2uired, bac1ground reading as well as tips for the presentation of the computer slides< The computer slide presentation provides a series of slides to help the facilitator present the various concepts in the module< The group activity note provides explanations of the group activity as well as the particular re2uirements for the activity, such as venue and materials. The sessions generally follow a se2uence of computer slide presentation incorporating 2uestions and answers, followed by a group activity. The methodology underlying the Training Guide is interactive and promotes a participatory approach. 5t is important to respect this approach throughout. =acilitators should use the computer slide presentation to encourage a discussion and exchange of information and experience with and among participants. The facilitator should avoid a one7way monologue presentation style where the facilitator imparts information and the participants ta1e note. The Training Guide see1s to fill in any 1nowledge gaps facilitators might face and in this sense is a support for facilitators before the session. owever, facilitators should avoid using ) the Training Guide as a prop during the sessions to ensure that the presentation does not turn into a lecture rather than a discussion with the participants. =acilitators should adapt the materials in the Training Guide to suit each specific audience. Not every training course needs to cover all eight modules, nor do the modules need to be presented in a particular order or all aspects of each module covered. The important issue to bear in mind is that the facilitator provides a training course that meets the needs of the participants. Similarly, the facilitator should prepare the course in advance with examples and materials which are relevant to the country and region where the course ta1es place. The facilitator therefore needs to learn about the region, identify the main advances and challenges facing the +onvention0s ratification, implementation and monitoring, and find locally relevant cases and situations. Sometimes materials and group activities may have to be changed completely to suit the context. 0. Planning 1our *ourse +a, Carr1 out a training needs assess/ent to find out what 2arti*i2ants need fro/ the *ourse 1 ) training needs assessment enables the facilitator to fully understand the needs of potential learners and the context in which they wor1, in order to ma1e informed decisions related to the design of the training course. ) training needs assessment will also help inform decisions about the most appropriate content, methods, techni2ues and time frame of the planned training course. 5t should enable the facilitator to gather the necessary information to build an ade2uate picture of the context of disability rights< develop a profile of potential learners< and identify capacity gaps or needs of learners in relation to promoting a rights7based approach to disability. ) pre7course 2uestionnaire should ideally be sent to the participants one month before the course. This information can help design and fine tune the course plan"agenda. The pre7 course 2uestionnaire serves multiple purposes. 5t: 5nforms course design and informs facilitators of their audience 8ncourages participants to engage with the course before their arrival and to do some preparatory homewor1 #rovides a baseline of participants0 capacities, which will their increase in 1nowledge, experience and confidence to be trac1ed +ontributes to the sharing of experience throughout the training course. The pre7course 2uestionnaire should include 2uestions such as: 1 =or more information on training needs assessment, see 82uitas > 5nternational +entre for uman !ights 8ducation and -+!, Evaluating Human Rights Training Activities: A Handbook for Human Rights Educators, #rofessional Training Series No. $? 4*eneva and Montreal, '($$6. + @hat do participants 1now about disability rights and the move to a rights7based approach to disabilityA @hat do participants 1now about the +onvention on the !ights of #ersons with ,isabilities and its -ptional #rotocolA =ind out how much experience the participants have, how confident they are and how comfortable they are with the subBect matter. ow do they expect to increase their 1nowledge and understanding of disability rightsA @hat practical s1ills do they want to developA @hat have they already done, what do they want to focus on now when it comes to disability rightsA @hat outputs3plans and analysis3do participants need from the courseA @hat level of detail is re2uired and what is achievableA @ho will be responsible for ta1ing the outputs forward and what is their capacityA +b, Sele*t the right sessions ) training course will always comprise an opening and closing session, but the rest of the agenda should reflect the participants0 specific needs. @hich modules to focus on will depend on the participants0 level of understanding of disability rights and the extent to which they have already developed their strategies to ratify, implement and"or monitor the +onvention. There will generally no be sufficient time to cover all eight modules so some will have to be left out. )t the same time, particular aspects of some modules might be left out 4if participants are already aware of the information6, while in other situations, additional slides and materials might be necessary or activities adapted. The facilitator should read through all the materials first to decide what to use and what to amend or tailor, depending on the participants0 needs. +*, Draw u2 a *ourse agenda -nce the facilitator has selected the modules relevant to the participants0 needs, he or she should develop the agenda. The notes for the facilitators in the Guide can help. They provide indicative times for the computer slide presentations and for the group activities, which the facilitator should adapt in the light of the participants0 capacities as gleaned from their responses to the 2uestionnaire. 5f the facilitator is wor1ing with interpreters, around C( per cent of extra time will be necessary and should be reflected in the agenda. +d, Sele*t the training tea/ The selection of trainers and resource persons should be based on the following criteria: 8xpertise in the subBect matter and experience with the target audience * )bility to apply the interactive training methodology of the training pac1age #rofessional credibility and appropriate reputation among other practitioners. 5n choosing the training team, consideration should be given to gender balance and to the participation of persons with different types of disability. 5n addition, when training a particular target audience, it is very helpful to include in the training team one of its members who is in a position to establish a good rapport with the learners. =inally, the training team should be complemented by experts in human rights and"or disability rights. +e, Gather additional infor/ation The facilitator should ensure he or she has: Sufficient bac1ground information about specific targets, policy processes and power structures 4which might include the use of local resource persons6 5nformation on the status of ratification, implementation and monitoring of the +onvention in the country and region 5nformation on challenges and opportunities facing the rights of persons with disabilities in the country and region 5nformation on domestic case law, legislation and media stories where relevant 5nformation on the institutional context in which the participants wor1 +f, S2e*ifi* language 2re2aration 5f the course is ta1ing place with interpretation, the facilitator should be sure to consult people who 1now the local terminology related to disability and how to translate some 1ey terms from 8nglish into local languages, as there is always a direct translation. +g, Conte3t4s2e*ifi* 2re2aration This Guide should be adapted to different socio7political contexts, including the most pressing developmental and human rights challenges. @here possible, local resource persons who are well prepared and briefed should be integrated in the course planning process and the agenda. +h, #**essibilit1 Thin1 about accessibility issues prior to the course. 5s the venue accessibleA 5s the lunch area accessibleA )re there accessible toiletsA )re course materials accessibleA )nd so on. @hen thin1ing about accessibility, remember to thin1 of different disabilities so that, for example, the course is accessible not only to persons with physical disabilities, but also those with visual or hearing impairments. +i, (valuation ' 2 =or detailed practical guidance on evaluating human rights training activities, see Evaluating Human Rights Training Activities: A Handbook for Human Rights Educators. , 8valuation provides the training team with information about the impact of the training in relation to the goals that the team set out to achieve. 8valuation should be incorporated throughout the training course, including during planning, design, delivery and follow7up. 8valuation can help facilitators answer some important 2uestions about the results of their training activities, for example: why are we offering this trainingA ,oes the content of the training respond to the needs of the learnersA @hat did the learners learnA @hat actions will the learners ta1e as a resultA @ill the learners apply what they have learned in their wor1A ow will their wor1 contribute to change in the broader community"societyA 9 5%D&6( 1 -'#T )S D)S#$)6)TY. )ntrodu*tion Module $ explains the concept of disability, a fundamental step in understanding why the +onvention on the !ights of #ersons with ,isabilities was necessary. The module identifies the modern concept of Dhow disability wor1sE and then places this in the historical context of various approaches to disability based on charity or on the medical diagnosis of impairments. The module examines some of the latter0s conse2uences and then introduces the human rights approach, which paves the way for module '. There is some duplication of slides in modules $ and ', because module $ could potentially be presented independently of module ' or similar concepts could be raised in both modules to reinforce them, depending on the training course and the participants. The facilitator can always pic1 the slides that fit the presentation. 'ow disabilit1 works Many people see disability as a condition that is inherent in the person3for example, a medical condition that re2uires the person to be in a wheelchair or to ta1e medication. owever,>as becomes clear in this module, the modern concept of disability perceives disability as an interaction between an individual0s personal condition 4such as being in a wheelchair or having a visual impairment6 and environmental factors 4such as negative attitudes or inaccessible buildings6 which together lead to disability and affect an individual0s participation in society. =or example: Feing in a wheelchair 4personal factor6 combined with living in a city with accessible buildings 4environmental factor6 leads to participation in the community on the same terms as someone who is not in a wheelchair: there is little or no disability. aving an intellectual impairment 4personal factor6 combined with a belief in the community that persons with intellectual disabilities lac1 the capacity to vote 4negative environmental factor6 leads to exclusion from society and denial of the right to vote: there is a disability. #ersonal factors are multilayered and can be both physical and socioeconomic. =or example: Physical factors: gender, ethnicity, impairment 4physical, visual, hearing, intellectual, mental6, si9e and weight, and so on< Socioeconomic factors: wealth, class, inclusion in society, education level and so on. #hysical factors can interact to exacerbate disability or alleviate it. =or example, someone with a physical disability who is wealthy might be able to access tertiary education and so find a Bob. This might increase participation in society and alleviate disability to an extent. 10 8nvironmental factors can relate to at least four sub7factors as follows: Accessibility: hilly or flat cities, accessibility of buildings 4ramps, toilets, braille signs etc.6, accessible information 4websites, documents in easy7to7read formats6, accessible public transport, etc. egal!policy: existence of protection from discrimination compared with denial of rights on the basis of disability, pro7poor policies, policies that refer explicitly to disability rights compared to policies that ignore persons with disabilities, etc. Socioeconomic: rural"urban 4present different accessibility issues6, rich"poor, positive community awareness of disability, openness of society to change, etc. Services: inclusive services or segregated services 4health, education, youth centres6, community7based rehabilitation 4+F!6 services, social support services, affordability of services, etc. 8nvironmental factors can also combine to exacerbate or alleviate disability. @ith the increasing awareness of disability, there is often a mix of both positive and negative environmental factors. =or example, a school might be made accessible by including ramp access. owever, public transport is still not accessible, which means that a child with a physical impairment cannot ma1e it to school, in spite of the openness of the school environment. )ll these factors combine to determine the extent to which an individual can participate in society and, as a result, the extent to which disability exists. Different a22roa*hes to disabilit1 ,ifferent approaches to disability exist in the world, some being more dominant in some parts of the world than in others. The charity approach The charity approach treats persons with disabilities as passive obBects of 1ind acts or of welfare payments rather than as empowered individuals with rights to participate in political and cultural life and in their development. @hat characteri9es this approach is that persons with disabilities are not considered able to provide for themselves because of their impairment. +onse2uently, society provides for them. No environmental conditions are considered under this approach< disability is an individual problem. =rom this perspective, persons with disabilities are the target of pity and they depend on the goodwill of society. 5n addition, persons with disabilities depend on duty bearers: charity houses, homes, foundations, churches, to which society delegates policies on disability and responsibility towards persons with disabilities. Under this model, persons with disabilities are disempowered, not in control of their lives and have little or no participation. They are considered a burden on society. Fecause charity comes from goodwill, the 2uality of DcareE is not necessarily consistent or even important. 5f society0s responses to disability are limited to care and assistance for persons with disabilities through charity and welfare programmes, opportunities for advancement are very limited. The ris13as with the medical approach3is that persons with 11 disabilities will remain at the margins of society. This approach does not support their participation. 5f persons with disabilities continue to be considered as DunfortunateE, re2uiring compassion, depending on contributions and assistance and on the goodwill of others, their opportunities for empowerment become very limited. The charity approach increases the distance between persons with disabilities and society rather than promoting e2uality and inclusion. The medical approach 5n the medical model, the focus is very much on the person0s impairment, which is represented as the source of ine2uality. The needs and rights of the person are absorbed or identified with the medical treatment provided to 4or imposed on6 the patient. 5n the medical model, individuals can be DfixedE through medicine or rehabilitation to get bac1 to society. #articularly for persons with mental impairments, the medical treatment can be an opportunity for a DbadE patient 4persons with mental disabilities are often considered dangerous6 to become a DgoodE patient. To be considered able to provide for themselves, persons with disabilities have to be DcuredE of the impairment or at least the impairment has to be reduced as much as possible. No environmental conditions are considered under this approach and disability is an individual problem. #ersons with disabilities are sic1 and have to be fixed to reach normality. 5f disability is handled primarily as a medical problem, experts such as doctors, psychiatrists and nurses have extensive power over persons with impairments< the institution0s staff ta1e decisions for the patients, whose aspirations will be dealt with within a medical framewor1. 5f complete rehabilitation is not possible, persons with disabilities will not be able to go bac1 to society and will remain in institutions. )chievements and failures experienced within the walls of the institution will be understood as related to the impairment and, as a result, Bustified. 5n the worst cases, such an approach can legitimate exploitation, violence and abuse. This model is often mixed with the charity approach. =or example, charities raise funds for and run rehabilitation facilities. The duty bearers in this model are the medical industry and the State. @hen combined with a charity approach, charity houses, homes, foundations and religious institutions also play an important role. Under this model, persons with disabilities are disempowered, not in control of their lives and have little or no participation. The medical industry, professionals and charities usually represent the interests of persons with disabilities as they are seen as possessing the 1nowledge of what is in the best interests of their patients. The social approach The social approach introduces a very different thin1ing: disability is recogni9ed as the conse2uence of the interaction of the individual with an environment that does not accommodate that individual0s differences. This lac1 of accommodation impedes the individual0s participation in society. 5ne2uality is not due to the impairment, but to the inability of society to eliminate barriers challenging persons with disabilities. This model puts the person at the centre, not his"her impairment, recogni9ing the values and rights of persons with disabilities as part of society. Moving from the medical to the social model does not in any way deny the importance of care, advice and assistance, sometimes prolonged, provided by medical experts and medical institutions. 5n many cases persons with disabilities re2uire medical treatment and 12 care, exams, constant monitoring and medicines. 5n the social model, they continue going to hospitals and centres providing specific treatment if re2uired. @hat is different is the overall approach to treatment: it responds to the expectations of the patient, not those of the institution. The social model attributes to nurses, doctors, psychiatrics and administrators new roles and identities. Their relation with persons with disabilities will be based on a dialogue. The doctor will not be on a pedestal, but on the side of the person with disabilities. 82uality starts in the hospital, not outside. =reedom, dignity, trust, evaluation and self7 evaluation are all features of the social model. @ith the social model, disability is not a Dmista1eE of society but an element of its diversity. ,isability is a social construct3the result of the interaction in society between personal factors and environmental factors. ,isability is not an individual problem but the outcome of a wrong organi9ation of society. )s a conse2uence, society should restructure policies, practices, attitudes, environmental accessibility, legal provisions and political organi9ations and therefore dismantle the social and economic barriers that prevent full participation of persons with disabilities. 5t opposes the charity and medical approach by establishing that all policies and laws should be designed with the involvement of persons with disabilities. The duty bearers under this model are the State3involving all ministries and branches of government3as well as society. Under this model, persons with disabilities are empowered, in control of their lives and enBoy full participation on an e2ual basis with others. The burden of disability is not on them but on society. Human rights approach The human rights approach to disability builds on the social approach by ac1nowledging persons with disabilities as subBects of rights and the State and others as having responsibilities to respect these persons. 5t treats the barriers in society as discriminatory and provides avenues for persons with disabilities to complain when they are faced with such barriers. +onsider the right to vote. ) person who is blind has the right to vote Bust as anyone else in society. Get, if voting material is not in accessible formats such as Fraille and the person cannot ta1e a trusted individual into the voting booth to help indicate her preferred candidate, the person who is blind cannot vote. ) human rights approach to disability recogni9es the lac1 of voting material and the inability to have assistance in voting as discriminatory, and places a responsibility on the State to ensure that such discriminatory barriers are removed. 5f not, the person should be able to ma1e an official complaint. ) rights7based approach to disability is not driven by compassion, but by dignity and freedom. 5t see1s ways to respect, support and celebrate human diversity by creating the conditions that allow meaningful participation by a wide range of persons, including persons with disabilities. 5nstead of focusing on persons with disabilities as passive obBects of charitable acts, it see1s to assist people to help themselves so that they can participate in society, in education, at the wor1place, in political and cultural life, and defend their rights through accessing Bustice. The human rights approach is an agreement and a commitment by persons with disabilities, States and the international human rights system to put into practice some primary aspects of the social approach. This approach is binding to all States that have ratified the +onvention on the !ights of #ersons with ,isabilities. States must eliminate and prevent discriminatory actions. The human rights approach establishes that all policies and laws should be designed with the involvement of persons with disability, mainstreaming disability in all aspects of political action. =ollowing this model, no DspecialE policies should be designed for persons with disabilities, notwithstanding the particularities needed to comply with the principle of full participation. 1( The main duty bearer under this model, in which society delegates the policies on disability, is the State > involving all of its ministries and branches. There are certain provisions that involve the private sector and there is a specific role for civil society, in particular persons with disability and the organi9ations that represent them. Under this model, persons with disabilities have rights and instruments that can empower them to claim their rights. They have the tools to be in control of their lives and fully participate on e2ual terms with others. The human rights approach provides that persons with disabilities are closely involved in policyma1ing by law. "hich approach is dominant today# The charity approach is the oldest of the four, followed by the medical approach. The social and human rights approaches are more recent. Get, all continue till today. 5n spite of the adoption of the +onvention, the charity and medical models are still very prevalent3even among the human rights community. The *onse7uen*es of the *harit1 and /edi*al a22roa*hes to disabilit1 Fy approaching persons with disabilities as DobBects of pityE or Dproblems to be fixedE, the burden of disability falls on the individual and, as a result, social transformation is virtually impossible. Moreover, it can give rise to certain social norms which can ma1e it even more difficult for persons with disabilities to participate in society and enBoy their rights. Perception that persons $ith disabilities are %special& The main difference between the medical"charity approach on the one hand and the social"human rights approach to disability on the other is reflected in the difference between DspecialE and DinclusiveE treatment. The term DspecialE often arises in connection with persons with disabilities: children with special needs, special schools, special services, special institutions. Get, DspecialtyE is exactly what the +onvention distances itself from. Feing special in the context of disability is not necessarily rewarding< it may lead to marginali9ation. Ta1e special schools for example: special schools enable persons with disabilities to interact only with other persons with disabilities or with certain DprofessionalsE. This forces them to live a situation which is not realistic since it does not reflect the diversity of the society. @hom does this benefit thenA #ersons with disabilitiesA #ersons without disabilitiesA 5t is difficult to see the benefits of actions"decisions aimed at 1eeping human beings separate. uman beings are social beings, and children have the right to study and play together. ,iversity and inclusion must be the norm. ) segregated school is not a genuine mirror of society. ,iversity is very limited there. #roblems discussed among DspecialE students and Dspeciali9edE teachers are influenced by a setting focused on disability. The confrontation of ideas and opinions lac1s a more diverse audience, including persons without disabilities not challenged by physical or attitudinal barriers. The right to education is an important right, interrelated with other human rights. )t school, persons with and without disabilities learn what society0s expectations and opportunities are. They learn theories, s1ills and discipline< they elaborate values they may have developed in their circle of family and friends< and they develop new values. The school itself is a community where children share the same timetables, venues and obligations. Fy interacting with teachers and others, pupils learn to live in a society independently and in constant interaction with other members. School represents an embryonic opportunity for 1% independent living that later in life will include gainful employment, participation in political and public life, home and family, access to Bustice, as well as business opportunities. The diversity of the classroom offers a uni2ue opportunity to discuss human rights and opinions. )nother example of how persons with disabilities have been perceived as DspecialE under the medical"charity approach concerns institutionali9ation. #ersons with disabilities3in particular persons with psychosocial and intellectual disabilities3have often been committed by force to psychiatric institutions, away from the community and without freedom to choose their medical treatments. Under the human rights approach, persons with disabilities have the right to liberty on an e2ual basis with others, and deprivation of liberty cannot be Bustified on the basis of disability. =orced institutionali9ation or hospitali9ation on the basis of disability is prohibited. No one should be institutionali9ed against his"her will unless the reasons for such institutionali9ation apply to others in the community without disabilities 4for example, imprisonment as a result of committing a crime and being sentenced by a Budge6. #ersons with disabilities have the right to live in the community, and to choose where and with whom to live, on an e2ual basis with others. 5ndependent living does not necessarily mean living alone. Many people live in constant contact with others, including in the same house. #eople live with other members of the same family, with friends and with colleagues. Such cohabitation is usually seen as independent living. -nce a person can ma1e his"her own decisions3including where and with whom to live3 and to be respected for these decisions, that person is living independently. The same goes for persons with disabilities. Support is still possible while living independently. #ersons with disabilities have the right to receive support if they re2uest it. 5ndependent living constitutes a frame for the enBoyment of several human rights: the right to ade2uate housing, the right to participate in public and political affairs, the right to privacy, the right to free movement, the right to vote, etc. Perception that persons $ith disabilities are dangerous istorically, persons with mental and intellectual disabilities have been mistreated and neglected in most societies. They have been subBected to such atrocities as *overnment7 sponsored hallucinogenic drug experiments on un1nowing individuals, forced treatment, electric as well as insulin shoc1 therapies, and even attempted genocide during the Second @orld @ar. Today, stigma and myths around mental illness persist and the result is often discrimination and exclusion. Stereotypes of persons with mental"intellectual disabilities ma1e them appear unintelligent, DweirdE, unable to wor1, with no chance of recovery, unpredictable and dangerous. News reporting on violent acts"crimes committed by Dmentally ill offendersE usually has a strong impact on readers< it reinforces the belief that persons with psychological disabilities are dangerous. Such generali9ations not only sustain a sense of ris1, lac1 of safety and general discomfort in society"the community, they also affect the self7perception of persons with mental and intellectual disabilities. Hac1 of self7esteem often exacerbates stigma and myths. )ccording to organi9ations such as the @orld Networ1 of Users and Survivors of #sychiatry, Done of the greatest losses we experience is the loss of our sense of who we are in the context of our 1) community. )n experience of forced treatment causes us to abandon our lives, and we return to a community that sees us as dangerous, vulnerable, volatile and Iill0.E C ,iscrimination against persons with mental and intellectual disabilities has created a class of people who have been systematically disempowered and impoverished. Fecause of the stigma surrounding mental illness, many persons with disabilities become homeless, unemployed, undereducated and socially isolated and lac1 ade2uate health care or they are 1ept secluded under strong medication. Most persons with mental and intellectual disabilities are not violent, nor are they more li1ely to commit violent actions or crimes than those without mental disabilities. #ersons with psychological disabilities are as intelligent as everyone else and are able to function li1e others in a wide variety of settings. Saying that persons with mental disabilities are not more violent than people without such disabilities recogni9es the existence of violence as a social problem, not as a mental"psychological one. 5t also ac1nowledges mental illness as being caused by environmental and social factors, and not merely by genetic and"or organic ones. Perception that persons $ith disabilities are superhuman The media often portray persons with disabilities as somehow superhuman. @hile ostensibly attempting to promote positive images of them 4which is of course welcome6, the result can be the same as with other myths, namely that persons with disabilities become one7 dimensional. They are courageous, powerful and somehow able to overcome a great difficulty3namely, a disability. @hen analysed more closely, this potentially positive image also implies that the maBority of persons with disabilities have difficult and miserable lives 4with most having to rely on charity6. ,isability becomes an 4almost6 insurmountable difficulty. The hero is presented as the person who was able to overcome the plight of many. The thing to bear in mind is that a person with a disability is a human being with strengths and wea1nesses, Bust li1e anyone else. 5t is important that persons with disabilities are portrayed in a positive way in public, particularly through the media, and this is referred to in the +onvention 4art. ?, awareness7raising6. This includes highlighting the lives of persons with disabilities that have achieved a significant level in politics, sport, literature or any other field of endeavour. owever, overcoming a disability need not be this person0s only achievement. 5nstead, the person has managed to overcome a whole range of barriers facing anyone see1ing the spotlight, e.g., excellence in education, competition from colleagues, expectations from the community or family and so on. Perception that persons $ith disabilities are a burden 5n contrast to the myth of the superhuman, persons with disabilities are often portrayed as a burden3to society, to family, to friends. This is the flip side of the superhuman approach and, again, intrinsically related to the charity approach to disability. This perception persists particularly in the media. ow many times have we seen an apparently sensitive documentary on television which concentrates on the parents of a child with a disability, the struggles those parents are going through, the difficulties they face due to the attitudes to their child, the way their lives have changed and so on. The focus on the parents0 struggles is generally not intended to promote a negative myth about persons with disabilities, but the immediate effect is three7fold. =irst, in this case the child with a disability, her concerns, struggles, interests and dreams tend to melt into the bac1ground and becomes secondary. Second, as a result, the child appears one7dimensional and the cause of her parents0 (
'mplementation (anual for the )nited *ations +onvention on the Rights of Persons $ith ,isabilities 4=ebruary '((?6, p. C'. 1+ distress. Third, there seems to be little way out for the child. +onse2uently, negative myths and stereotypes emerge. This can have negative implications for persons with disabilities. =or example: They might believe that they are indeed a burden< They might come to expect that they are not meant to live independently< #arents and teachers might not expect them to be self7sufficient and accept responsibility for carrying the burden< The combination of the beliefs of persons with disabilities and parents, teachers and other carers might then reinforce the myth that persons with disabilities are a burden. )ll of this can combine to prevent social change. 8e1 2rin*i2les of a hu/an rights a22roa*h to disabilit1 PR)NC)P6( D)SC&SS)%N !espect for the inherent dignity and individual autonomy, including the freedom to ma1e one0s own choices, and the independence of persons 5nherent dignity refers to the worth of every person. @hen the dignity of persons with disabilities is respected, his or her experiences and opinions are valued and are formed without fear of physical, psychological or emotional harm. 5ndividual autonomy means to be in charge of one0s own life and to have the freedom to ma1e one0s own choices. !espect for individual autonomy means that persons with disabilities have, on an e2ual basis with others, reasonable life choices, are subBect to minimum interference with their private life and can ma1e their own decisions, with ade2uate support if re2uired. Non7discrimination Non7discrimination is a fundamental principle of all human rights treaties and the basis of the +onvention on the !ights of #ersons with ,isabilities. 5t essentially prohibits discrimination against anyone on the basis of disability, given that discrimination prevents people enBoying their rights on an e2ual basis with others. owever, today, non7 discrimination is understood as a much broader principle which encompasses not only prohibiting discriminatory acts but also ta1ing steps to protect against potential future discrimination and hidden discrimination and promoting e2uality. =ull and effective participation and inclusion in society The concepts of full and effective participation and of inclusion mean that society, both in its public and in its private dimensions, is organi9ed so as to enable all people to ta1e part fully. They mean that society and relevant actors value persons with disabilities and recogni9e them as e2ual participants3for example, in processes related to 1* decisions that affect their lives or in the freedom to run for public office. #articipation goes beyond consultation and includes meaningful involvement in activities and decision7 ma1ing processes, the possibility to voice opinions, to influence and to complain when participation is denied. 5nclusion re2uires an accessible, barrier7free physical and social environment. 5t is a two7way process that promotes the acceptance of persons with disabilities and their participation, and encourages society to open up and be accessible to persons with disabilities. !espect for difference and acceptance of persons with disabilities as part of human diversity and humanity !espect for difference involves accepting others in a context of mutual understanding. ,espite some visible and apparent differences between people, all have the same rights and dignity. 5n relation to disability, it involves accepting persons with disabilities for who they are, rather than pitying them or seeing them as a problem that needs to be fixed. 82uality of opportunity 82uality of opportunity is closely lin1ed with non7 discrimination. 5t refers to a situation where society and the environment are made available to all, including persons with disabilities. 82uality of opportunity does not always mean that the exact same opportunities are made available to all, as treating everyone the same might result in ine2ualities. !ather it recogni9es difference between people and ensures that, despite this difference, everyone has the same opportunity to enBoy rights. )ccessibility Ma1ing accessibility 4and e2uality6 a reality means dismantling the barriers that hinder the effective enBoyment of human rights by persons with disabilities. )ccessibility enables persons with disabilities to live independently and to participate fully in all aspects of life. )ccessibility is important in all areas of life, but in particular in the physical environment, such as buildings, roads, housing and so on, transport, information and communications, and other facilities and services open to or provided to the public. 82uality between men and women The principle of e2uality between men and women indicates that the same rights should be expressly recogni9ed for men and women on an e2ual footing, and suitable measures should be ta1en to ensure that women have the opportunity to exercise their rights. ,espite the overlap with the principle of non7discrimination, the reiteration of e2uality between men and women is expressly included in treaties, especially because there are still many preBudices preventing its full application. !espect for the evolving !espect for the evolving capacities of children is a 1, capacities of children with disabilities and for their right to preserve their identities principle set out in the +onvention on the !ights of the +hild. 5t should be seen as a positive and enabling process that supports the child0s maturation, autonomy and self7 expression. Through this process, children progressively ac2uire 1nowledge, competences and understanding, including about their rights. Their participation in decision7 ma1ing processes that affect them, including their right to preserve their identities, should be expanded over time in step with this evolution. The Convention9s disabilit1 *on*e2t The +onvention preamble states that disabilit1 is an evolving *on*e2t. Nevertheless, it does reflect a social model of disability as it clarifies that disability results from the interaction between persons with impairments and external barriers that hinders their participation in society 4preambular para. 4e66. 5n this perspective, the framewor1 reflected in the +onvention is built on the understanding that it is the external environment, and the attitudes that are reflected in its construction, that plays a central role in creating the condition termed Ddisability.E This contrasts sharply with the medical model of disability, which is instead built on the concept of the Dbro1en bodyE, with disability being the obvious result of a physical, mental or sensory deficiency of the person. Fecause of this approach, the notion of :disabilit1; *annot be rigid but rather depends on the prevailing environment and varies from one society to the next. @hile the +onvention recogni9es disability as an evolving concept, it clearly endorses the understanding of it as a social construct, when it states that disability Dresults from the interaction between persons with impairments and attitudinal and environmental barriers that hinders their full and effective participation in society on an e2ual basis with othersE. 5n line with this understanding, the Convention does not 2rovide a *losed definition of who persons with disabilities are, but states that they DincludeE those who have long7term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an e2ual basis with others 4art. $, purpose6. Some important elements to consider are: 4a6 (volving v. fi3ed *on*e2t. The +onvention recogni9es that DdisabilityE is an evolving concept resulting from attitudinal and environmental barriers. +onse2uently, the notion of DdisabilityE is not rigid and can be adapted to the prevailing environment in a particular society 4the focus will be on the type of attitudinal and environmental barriers present in those societies and ways to overcome them6< 4b6 Disabilit1 not as a /edi*al 2roble/ but as an intera*tion between an i/2air/ent and the surrounding environ/ent. The focus of the +onvention is not on disability as a medical problem< for the +onvention, persons become disabled when they clash with an unwelcoming or inaccessible environment. #ersons with disabilities do not re2uired to be DfixedE before accessing an environment 4society6< it is instead the environment that needs to be uniformly open to all its members. 5t does 19 so by dismantling attitudinal and environmental barriers so that everyone can actively participate and enBoy the full range of rights. 4c6 The Convention in*ludes all disabilities. The +onvention does not restrict coverage to particular persons< rather, it identifies persons with long7term physical, mental, intellectual and sensory disabilities as its beneficiaries. The reference to DincludeE in article $ could therefore extend the application of the +onvention to all persons with disabilities, e.g., those with short7term disabilities or persons who are perceived to be part of such groups. 4d6 Categori<ing barriers rather than hu/an beings. +ategori9ing a person can be the first step towards excluding that person and violating his or her inherent dignity. The +onvention does not preclude the use of definitions in national legislation< definitions might be particularly necessary in some sectors, such as employment or social security. @hat is important is that definitions informing policies and laws reflect the social model of disability where the challenge facing a person with a disability is measured in terms of the existing barriers and not on the category or percentage of the impairment. The explicit reference to barriers e3ternal to the sub=e*t as *onstituting fa*tors of disabilit1 represents an important step away from notions that e2uated disability with functional limitations. # note on ter/inolog1 ,oes interaction $ith persons $ith disabilities re-uire special skills# 5nteraction with persons with disabilities is a matter of persons, not of disabilities. @hen interaction with persons with disabilities occurs under conditions of e2uality, no special s1ills are re2uired< persons with disabilities are not special persons< they may feel special 4or most li1ely discriminated6 when there is no accommodation in place to facilitate their interaction with others. owever, if the environment has been adBusted appropriately 4e.g., assistive devices, sign language interpreters, support persons6 and attitudes are in line with a social"human rights approach, interaction can be smooth. )rrangements should not be considered special but normal or, using a concept from the +onvention, universal. 5n the street, interaction with persons with disabilities re2uires common sense and respect< within a professional context, interaction with persons with disabilities re2uires professionalism. Nothing more and nothing less of what our clients or ac2uaintances without disabilities would expect. 5nteraction is easier when the rules are the same for everyone and everyone is welcome. ,epending on the person we need to meet, interview or wor1 with, some arrangements and"or preparation might be needed. This is something we should be used to as part of our daily wor1 and for all types of interviews and meetings. )re all physical and linguistic barriers eliminatedA @hat about the psychological onesA ,o not assume or act as if persons with disabilities are heroic or courageous Bust by virtue of having a disability. This emphasi9es difference. #ersons with disabilities have strengths and wea1nesses Bust as persons without disabilities. 20 Terminology Terminology that is used to refer to or interact with persons with disabilities is nonetheless important. +ertain words and phrases can be offensive, undermining and"or superficial. #eople are not definable on the basis of their disability. )ppropriate terminology promotes respect and reflects deeper understanding of disability. #roper communication is important with all types of interlocutors. This s1ill is 1ey for participants who develop daily contact with persons with disabilities, intervene with authorities advocating and reaffirming their rights, carry out interviews or draft reports. #ersons with disabilities and their representative organi9ations have chosen certain terminology, such as Dpersons with disabilitiesE, in which case it is important to use such terms. Get, when defining acceptable terminology there is always a ris1 of moving towards political correctness, which in turn can be a barrier to free and fluid speech. Nonetheless, be aware of the fact that some language can reinforce stereotypes and be offensive to persons with disabilities. 5f we do not use appropriate language, how can we expect credible attitudinal changeA )lways thin1 before you tal1. )s1 the person you are tal1ing to about anything you are unsure about. 5f a person prefers one term to another, then use that term. There is no need to be afraid of saying D5 see what you meanE to someone who is blind. This expression is perfectly understandable and conveys a clear message that goes beyond vision in the narrow sense< it is not offensive. 21 5%D&6( ! # S'%RT )NTR%D&CT)%N T% T'( C%N>(NT)%N $a*kground The United Nations *eneral )ssembly adopted the +onvention on the !ights of #ersons with ,isabilities and its -ptional #rotocol on $C ,ecember '((.. -n C( March '((J both were opened for signature at United Nations ead2uarters in New Gor1. )n unprecedented ?$ countries signed the +onvention on the opening day. Fut what led to this momentous eventA Fefore the adoption of the +onvention on the !ights of #ersons with ,isabilities, other human rights instruments already addressed disability, either as part of a general focus or more specifically. Some, such as the Universal ,eclaration of uman !ights, the 5nternational +ovenant on 8conomic, Social and +ultural !ights and the 5nternational +ovenant on +ivil and #olitical !ights3which together constitute the )nternational $ill of Rights3promote and protect the rights of everyone, including persons with disabilities, through the non7discrimination clause. 5n all three instruments, article ' obliges States to guarantee human rights without distinction of any 1ind, such as race, colour, sex, language, religion, political or other opinion, national or social origin, property, birth or other status. The reference to other status encompasses disability as grounds for protection from discrimination. S2e*iali<ed hu/an rights treaties li1e the +onvention against Torture, the +onvention on the 8limination of ,iscrimination against @omen, the +onvention on the !ights of the +hild and others, contain provisions protecting against discrimination. The +onvention on the !ights of the +hild specifically recogni9es the need to protect against discrimination on the grounds of disability. 5t also specifically recogni9es the right of the child with a disability to enBoy a full and decent life. The authoritative state/ents by the committees supervising the application of human rights treaties 4the United Nations treaty bodies6 are also important. The most relevant to persons with disabilities are general comments No. '( 4'((%6 of the +ommittee on 8conomic, Social and +ultural !ights, which includes disability among the grounds covered by Dother statusE, and No. / 4$%%K6, which defines factors causing discrimination against persons with disabilities< general recommendation No. $? 4$%%$6 of the +ommittee on the 8limination of ,iscrimination against @omen, which addresses the double discrimination affecting women with disabilities 4as women and as persons with disabilities6< and general comment No. % 4'((.6 of the +ommittee on the !ights of the +hild on the rights of children with disabilities. There have also been regional developments in )frica, the )mericas and 8urope, such as the 5nter7)merican +onvention on the 8limination of )ll =orms of ,iscrimination against #ersons with ,isabilities 4$%%%6. %ther relevant hu/an rights instru/ents are the ,eclaration on the !ights of ,isabled #ersons 4$%J/6< the @orld #rogramme of )ction concerning ,isabled #ersons 4$%?'6< and the Standard !ules on the 82uali9ation of -pportunities for #ersons with ,isabilities 4$%%C6. )lthough not legally binding, these instruments, adopted by the United Nations *eneral )ssembly, symboli9e the moral and political commitment of States to ta1e measures to protect persons with disabilities, including through national legislation and policies. 22 So, if an international legal framewor1 already existed, why was it necessary to have a convention on the rights of persons with disabilitiesA There were different reasons: The +onvention was necessary to reaffirm the human rights of persons with disabilities and to ensure their participation in society as e2ual members and subBects of rights. #ersons with disabilities continued to be perceived as passive recipients of assistance rather than rights holders. Foth progress and challenges related to the development agenda failed to ta1e into account the reality of persons with disabilities. 8conomic growth did not always result in social e2uality< and subsistence economies, such as in poor countries, sometimes marginali9ed groups with less power and fewer means. #ersons with disabilities faced numerous patterns of exclusion. @hile standard7setting led to some improvements, the overall situation remained very unbalanced. *enerally, persons with disabilities continued to be invisible in their societies and their marginali9ation often increased the ris1 of human rights abuse. The +onvention was necessary to address /ore *o/2rehensivel1 the *hallenges fa*ing 2ersons with disabilities and to better protect and promote their rights through a legall1 binding instru/ent. 5n '(($, -+! commissioned a study on the rights of persons with disabilities and the existing human rights system. The study concluded that existing instruments and mechanisms were not paying sufficient attention to the promotion and protection of the rights of persons with disabilities< that the absence of an explicit legal protection of persons with disabilities represented a gap< that a human rights approach re2uired reinforcing certain concepts to replace or clarify previous standards. =or example, the right to free and compulsory education for persons with disabilities means the right to an inclusive education, to be enBoyed with the other members of the society. 8xisting treaties did not ma1e this clear. 5t was therefore crucial to review some of the previous approaches and adopt a legally binding instrument that could provide clarity to human rights concepts and standards as well as set out clear legal obligations on States. The study also underlined that 2ersons with disabilities and their re2resentative organi<ations were not using existing human rights standards and mechanisms, such as petitions systems under human rights treaties, to protect and promote their rights. This reaffirmed the need for a disability7specific human rights treaty. The +onvention was the result of a strong advocacy strategy put in place by organi9ations of persons with disabilities, civil society and States. +ivil society, particularly organi9ations of persons with disabilities 4,#-s6, international organi9ations and academics supporting the disability movement were at the forefront of efforts to advocate and lobby for the +onvention. Their action defined the overall approach towards the +onvention, ma1ing it clear from the beginning that any development in the area of disability had to be fully comprehensive, which ensured the involvement of all relevant participants rather than States only. The participation of persons with disabilities in important international forums and activities which preceded the +onvention, such as the first international review of the implementation of the @orld #rogramme of )ction concerning ,isabled #ersons, was 1ey in preparing the path for a different approach. 2( -hat is the Convention. The +onvention on the !ights of #ersons with ,isabilities is a human rights treaty, i.e., an international agreement among States setting out human rights and the corresponding obligations on States. The +onvention recogni9es the rights of persons with disabilities3these are the same rights as everyone else3but reaffirms that persons with disabilities must also enBoy these rights. This in itself is significant as persons with disabilities are often denied their rights or are simply not aware that they have rights. The treaty underlines that persons with disabilities should enBoy those rights without discrimination and on an e2ual basis with others. The treaty sets out obligations on States to promote and protect the rights of persons with disabilities. @hile persons with disabilities have the same rights as persons without disabilities, sometimes States must ta1e different or additional steps to ensure the reali9ation of those rights. The +onvention sets out these obligations in considerable detail. The treaty also sets out the national and international institutions necessary for implementing and monitoring the +onvention. )t the national level, these could be *overnment focal points and coordination mechanisms as well as independent implementation and monitoring mechanisms. )t the international level, the +onvention establishes the +ommittee on the !ights of #ersons with ,isabilities to assist States in implementing the +onvention and a +onference of States #arties to consider any aspect of implementation. -hat is the 2ur2ose of the Convention. The purpose of the +onvention is set out in its article $: to promote. protect and ensure the full and e-ual en/oyment of all human rights and fundamental freedoms by all persons $ith disabilities. and to promote respect for their inherent dignity. Several elements merit further examination: Promote. protect and ensure rights: this underlines the multiple layers of State obligations under the +onvention which are to promote 4e.g., raise awareness about the rights of persons with disabilities6, protect 4e.g., adopt laws and policies that recogni9e the rights of persons with disabilities and provide remedies for violations6 and ensure rights 4e.g., promote physical and informational accessibility to services6. 0ull and e-ual en/oyment of all human rights: this asserts that persons with disabilities have the same rights as others and that they should be able to enBoy those rights on an e2ual basis with everyone in society. Respect for inherent dignity: this underlies all aspects of human rights as it emphasi9es the notion that respect for human rights is the bottom line which in many ways defines our humanity. ) failure to respect rights is a failure to respect an individual0s dignity and this is the experience of many people with disabilities around the world. )rticle $ also explains what is meant by Dpersons with disabilitiesE, which is examined below. 2% -h1 is the Convention i/2ortant. The +onvention: +larifies the rights of persons with disabilities. )s noted already, many persons with disabilities are unaware of their rights and these rights are often neglected. The +onvention recogni9es that persons with disabilities have the same rights as everyone else and that they should enBoy them on an e2ual basis with people without disabilities. Sets out responsibilities to respect those rights. 5t recogni9es that asserting rights is not enough on its own and that it is e2ually important to identify the various steps that States 4and others6 should ta1e to respect those rights. 5n this sense, the +onvention is very comprehensive as it sets out in some detail the responsibilities to respect, protect and fulfil the rights of persons with disabilities. !ecogni9es disability as a social construct and society should dismantle the barriers preventing persons with disabilities from participating fully in society. #romotes inclusive and accessible development. 5t is often described as a human rights treaty and a development tool. This continues a trend in human rights law that recogni9es the need for States to ta1e positive steps to guarantee rights and highlights the role of the international community in helping States to achieve those rights. 5ndeed, development is essential if the +onvention is to be implemented properly. =or example, many provisions re2uire improvements in access to goods and services which rely, in part, on having effective development strategies and policies. 5mportantly, development should be inclusive of and accessible to persons with disabilities 4art. C'6. This re2uires a twin7trac1 approach: specific programmes for persons with disabilities coupled with mainstreaming their rights into development proBects, programmes and other interventions. 8nsures national and international monitoring of rights. @hile this is not the same as ensuring legal enforceability, the fact that the +onvention establishes national and international mechanisms to support implementation and monitoring is a way to support rights as well as the implementation of the +onvention. :Disabilit1; and :2ersons with disabilities; The +onvention does not provide a closed definition of disability. 5ts preamble states that disabilit1 is an evolving *on*e2t. Nevertheless, the +onvention does reflect a social model of disability as it clarifies that disability results from the interaction between persons with impairments and external barriers that hinders their participation in society. 5n this perspective, the framewor1 reflected in the +onvention is built on the understanding that it is the external environment, and the attitudes that are reflected in its construction, that plays a central role in creating the condition termed Ddisability.E This contrasts sharply with the medical model of disability, which is instead built on the concept of the Dbro1en bodyE, with disability being the obvious result of a physical, mental or sensory deficiency of the person. Fecause of this approach, the notion of :disabilit1; *annot be rigid but rather depends on the prevailing environment and varies from one society to the next. @hile the +onvention recogni9es disability as an evolving concept, it clearly endorses the understanding of it as a social construct, when it states that disability Dresults from the interaction between persons with impairments and attitudinal and environmental barriers that hinders their full and effective participation in society on an e2ual basis with othersE. 2) 5n line with this understanding, the Convention does not 2rovide a *losed definition of who persons with disabilities are, but states that they DincludeE those who have long7term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an e2ual basis with others 4art. $, purpose6. Some important elements to consider are: 4a6 (volving v. fi3ed *on*e2t. The +onvention recogni9es that DdisabilityE is an evolving concept resulting from attitudinal and environmental barriers. +onse2uently, the notion of DdisabilityE is not rigid and can be adapted to the prevailing environment in a particular society 4the focus will be on the type of attitudinal and environmental barriers present in those societies and ways to overcome them6< 4b6 Disabilit1 not as a /edi*al 2roble/ but as an intera*tion between an i/2air/ent and the surrounding environ/ent. The focus of the +onvention is not on disability as a medical problem< for the +onvention, persons become disabled when they clash with an unwelcoming or inaccessible environment. #ersons with disabilities do not re2uired to be DfixedE before accessing an environment 4society6< it is instead the environment that needs to be uniformly open to all its members. 5t does so by dismantling attitudinal and environmental barriers so that everyone can actively participate and enBoy the full range of rights. 4c6 The Convention in*ludes all disabilities. The +onvention does not restrict coverage to particular persons< rather, it identifies persons with long7term physical, mental, intellectual and sensory disabilities as its beneficiaries. The reference to DincludeE in article $ could therefore extend the application of the +onvention to all persons with disabilities, e.g., those with short7term disabilities or persons who are perceived to be part of such groups. 4d6 Categori<ing barriers rather than hu/an beings. +ategori9ing a person can be the first step towards excluding that person and violating his or her inherent dignity. The +onvention does not preclude the use of definitions in national legislation< definitions might be particularly necessary in some sectors, such as employment or social security. @hat is important is that definitions informing policies and laws reflect the social model of disability where the challenge facing a person with a disability is measured in terms of the existing barriers and not on the category or percentage of the impairment. The explicit reference to barriers e3ternal to the sub=e*t as *onstituting fa*tors of disabilit1 represents an important step away from notions that e2uated disability with functional limitations. =or example, the United Nations Standard Rules on the E-uali1ation of 2pportunities for Persons $ith ,isabilities define disability as the Ddifferent functional limitations occurring in any population in any country of the world. #eople may be disabled by physical, intellectual or sensory impairment, medical conditions or mental illnessE. The +onvention upgrades this approach. 2+ The +onvention does not deny the existence of physical, mental, intellectual or sensory impairments 4art. $6< what it reBects is an approach which limits or deprives persons with disabilities from fully participating in society because of such impairments. The impairment 4limit or restriction6 has instead to be found in the various barriers, which might include physical barriers, but also attitudes leading to discriminatory legislation and policies. 5gnorance about disability can be deleterious and that is why wide awareness7 raising is one of the main goals of the +onvention. The +onvention identifies two categories of persons with disabilities who might be particularly vulnerable to discrimination and abuse of rights: women with disabilities and children with disabilities 4arts. . and J6. "omen $ith disabilities The +onvention recogni9es that women with disabilities often face multiple forms of discrimination on the basis not only of disability but also of sex 4art. .6. +onse2uently, specific attention might be needed to develop programmes ta1ing into account gender aspects as well as the rights of persons with disabilities, e.g., to boost the percentage of girls or women with disabilities enrolled in the school system in view of their right to education. -ne area where women and girls are vulnerable is gender7based violence. The United Nations #opulation =und 4UN=#)6 estimates that persons with disabilities are up to three times more susceptible to physical and sexual abuse and rape. @omen and children with disabilities are more li1ely to be victims of violence than their male counterparts. K
The +onvention on the 8limination of )ll =orms of ,iscrimination against @omen is the speciali9ed human rights treaty on women0s rights. 5t can be read together with the +onvention on the !ights of #ersons with ,isabilities to understand more fully the responsibilities of States to prevent discrimination and promote e2uality for women with disabilities. +hildren $ith disabilities ,isability itself cuts across all aspects of a child0s life and can have very different implications at different stages in life. 5t is very important to ensure that the rights of children with disabilities are ta1en into account in laws, policies, programmes and other interventions in a way that no child is left out. )rticle J of the +onvention on the !ights of #ersons with ,isabilities re2uires State parties to ta1e all necessary measures to ensure the full enBoyment by children with disabilities of all human rights and fundamental freedoms on an e2ual basis with other children. 5t borrows the term Dthe best interests of the childE from the +onvention on the !ights of the +hild and re2uires that this be a primary consideration in all actions concerning children with disabilities. The +ommittee on the !ights of the +hild0s general comment No. % 4'((.6 on the rights of children with disabilities provides comprehensive guidance on the rights of children with disabilities in the context of the +onvention on the !ights of the +hild. )dopted at the time of % =or more information, see ,epartment of 8conomic and Social )ffairs, UN=#), @ellesley +enters for @omen, ,isability Rights. Gender and ,evelopment: A Resource Tool for Action. )vailable from www.un.org"disabilities"documents"#ublication"UN@+@L'(M)NU)H.pdf 4accessed ? -ctober '($'6. 2* negotiations on the +onvention on the !ights of #ersons with ,isabilities, its guidance is relevant to article J. 2thers -ther persons with disabilities might also be subBect to multiple forms of discrimination, such as indigenous persons with disabilities or older persons with disabilities. # rights4based a22roa*h to disabilit1 The main concept behind the +onvention is the move away from a charity or a medical approach to disability to a social"human rights approach. 5f you understand this concept, you are in a position to understand the entire +onvention and what it see1s to achieve. =or a full explanation of the charity, medical, social and human rights approaches, see module $. The stru*ture and *ontent of the Convention The +onvention contains /( articles, which can be bro1en down as follows: /
#reamble Sets the general context and identifies important bac1ground issues, such as the relation between disability and development. )rt. $ Pur2ose Sets out the goal of the +onvention, which is to promote, protect and ensure the full and e2ual enBoyment of all human rights and fundamental freedoms by all persons with disabilities, and to promote respect for their inherent dignity. )rticle $ also explains who is included in the term Dpersons with disabilitiesE. )rt. ' Definitions ,efines the +onvention0s 1ey terms, namely communication, language, discrimination on the basis of disability, reasonable accommodation and universal design. @hen in doubt, it is useful to refer to the definitions. The terms Dpersons with disabilitiesE and DdisabilityE are not defined as such, because there was a conscious decision to treat them as evolving concepts. )rt. C General 2rin*i2les #rinciples are very important for interpreting and implementing the rights and other articles in the +onvention. @hen in doubt about the meaning of an article, you can refer to the principles and use them as guides, e.g., when building supported decision7ma1ing services, policyma1ers should be guided by respect for the autonomy of the person to ensure the individual has maximum autonomy in decision7 ma1ing. )rt. K General obligations )part from recogni9ing the rights of persons with disabilities, the +onvention also identifies who is responsible for meeting those rights and what they have to do and when 4e.g., immediately or progressively6. ) Ma1e sure that training participants have the +onvention in front of them and actually go through the text while you spea1 about this slide. 2, )ll the obligations are important. They are discussed in more detail below. ere are two examples: State parties must progressively ta1e measures to reali9e economic, social and cultural rights to the maximum extent of their available resources. This is an important recognition that a country0s development level can affect the rate at which it implements some articles in the +onvention. 5t serves as a built7in reality chec1. Note that the -ptional #rotocol to the +onvention rendered economic, social and cultural rights Busticiable, even before the adoption of the -ptional #rotocol to the 5nternational +ovenant on 8conomic, Social and +ultural !ights on $( ,ecember '((?. a6 There is also an obligation to consult persons with disabilities closely and actively involve them in the development and implementation of legislation and policies to implement the +onvention and in other decision7ma1ing processes that concern them. This reflects the general principle of participation and inclusion in article C and ma1es it stronger by placing an obligation on the State to respect it. Muestions for discussion are: ow can it be measuredA @hen did effective consultation occurA )rts. /> C( Cross4*utting issues The +onvention comprises a robust non7discrimination and e2uality framewor1, which applies across all its rights, civil, cultural, economic, political and social. )rticle / re2uires State parties to ensure the e2uality of individuals with disabilities, as well as prohibit any discrimination because of disability. This general prohibition is further detailed in the context of specific rights, which explain both what amounts to discrimination on the basis of disability in their respective contexts as well as measures, including positive measures, to achieve de facto e2uality. The +onvention further stipulates that such measures may not be deemed discriminatory. =ollowing article / are thematic articles of general application to be integrated across the +onvention. These include article . on women with disabilities and article J on children with disabilities. Muestions arise such as: @hy have children and women been referred to expresslyA )re there other cross7cutting issues that could be relevantA )re there other individuals or groups that are relevant, e.g., older persons, indigenous peoplesA S2e*ifi* rights The +onvention covers the full spectrum of human rights. 5n a clear expression of the interdependence and e2ual status of all human rights, it mixes civil and political with economic, social and cultural rights. 5ts substantive articles clarify the content and scope of the human rights to which all persons are entitled, as applicable to persons with disabilities. The +onvention is novel in that it sets out a range of measures that place obligations on States to do something which is necessary to guarantee rights< however, these measures are not directly related to any one right in particular. They include: )wareness7raising )ccessibility Situations of ris1 and humanitarian emergencies 29 )ccess to Bustice #ersonal mobility abilitation and rehabilitation ,ata and statistics 5nternational cooperation )rt. C' )nternational *oo2eration Underlining the importance of international cooperation, including development cooperation, to meet the rights set out in it, the +onvention has a stand7alone article on this subBect. This builds on the practice previous human rights treaties which referred to international cooperation, normally in articles related to the progressive reali9ation of economic, social and cultural rights. )rticle C' also spells out in greater detail the sorts of actions through which international cooperation can help promote the +onvention 4e.g., cooperation in research, ensuring that development cooperation is inclusive of and accessible to persons with disabilities6. Note that the article on international cooperation and the other articles are interrelated and interdependent. 5n other words, international cooperation, including development cooperation, is a way to reali9e rights and improve the +onvention0s implementation< development and human rights are not separate parts of the +onvention but interrelated. )rts. C$ and CC )/2le/entation and /onitoring /easures These articles set forth implementation and monitoring measures. )rticle C$ re2uires State parties to collect appropriate information, including statistical and research data, to enable them to formulate and implement policies to give effect to the +onvention. )rticle CC sets forth the various measures that State parties have to adopt to establish national implementation and monitoring framewor1s. )rts. CK> C% Co//ittee Starting from article CK, the +onvention details its institutional structure. 5t establishes the +ommittee on the !ights of #ersons with ,isabilities with authority to receive and review periodic reports from State parties. )rt. K( Conferen*e of States Parties The +onvention establishes a +onference of States #arties to meet regularly to consider any matter with regard to the +onvention0s implementation. =rom art. K$ onwards ?inal *lauses The +onvention sets out the procedures for signature, ratification, entry into force and other relevant re2uirements.
Under the %2tional Proto*ol to the Convention, individuals and groups of individuals may submit allegations of breaches of any of the provisions of the +onvention to the +ommittee. The -ptional #rotocol also permits the +ommittee, with the countries0 consent, to underta1e in2uiries in countries where there has been reliable evidence of grave or systematic violations of the rights of persons with disabilities. (0 Prin*i2les #rti*le 0 of the Convention identifies a set of general principles to assist States in understanding and implementing its provisions effectively. =or a fuller overview, see the table in module $. 'u/an rights in the Convention )rticle $( > !ight to life )rticle $' > 82ual recognition before the law )rticle $K > Hiberty and security of the person )rticle $/ > =reedom from torture or cruel, inhuman or degrading treatment or punishment )rticle $. > =reedom from exploitation, violence and abuse )rticle $J > 5ntegrity of the person )rticle $? > Hiberty of movement and nationality )rticle $% > To live independently and be included in the community )rticle '$ > =reedom of expression and opinion, and access to information )rticle '' > !espect for privacy )rticle 'C > ome and family )rticle 'K > 8ducation )rticle '/ > ealth )rticle 'J > @or1 and employment )rticle '? > )de2uate standard of living and social protection )rticle '% > #articipation in political and public life )rticle C( > #articipation in cultural life, recreation, leisure and sport @hile the +onvention does not create new rights, it does define with greater clarity the application of existing rights to the specific situation of persons with disabilities. =or example, some appropriate measures to ensure freedo/ of e32ression and o2inion and a**ess to infor/ation are: #roviding information in accessible formats and technologies appropriate to different 1inds of disabilities in a timely manner and without additional cost< and )ccepting and facilitating the use of sign languages, Fraille, augmentative and alternative communication, and all other accessible means of communication in official interaction. )n ade7uate standard of living and so*ial 2rote*tion re2uire, among other things: )ccess to appropriate and affordable services, devices and other assistance for disability7related needs< and )ccess by persons with disabilities and their families living in poverty to assistance from the State with disability7related expenses. The +onvention also includes a series of obligations on States in relation to a range of issues which are necessary for the full enBoyment of human rights. These are: 5easure (32lanation )wareness7raising 4art. ?6 )wareness7raising involves both increasing understanding of disability rights as well as combating stereotypes through public campaigns, education, encouraging responsible media reporting and training (1 )ccessibility 4art. %6 To enable independent living, accessibility is important in relation to the physical environment, transport, information and communications, and other facilities and services open or provided to the public Situations of ris1 and humanitarian emergencies 4art. $$6 5n recognition of the particular vulnerabilities of persons with disabilities during situations of ris1 and humanitarian emergencies, States underta1e to ensure their protection and safety )ccess to Bustice 4art. $C6 ) fundamental part of ensuring the enBoyment of rights is access to Bustice to enBoy the right to a remedy. This re2uires accommodations in the legal system as well as training for legal professionals. #ersonal mobility 4art. '(6 #ersonal mobility promotes independence and States can foster this by facilitating access to mobility aids and assistive technologies, providing training to specialist staff, encouraging producers of mobility devices to ta1e into account the needs of persons with disabilities and so on. abilitation and rehabilitation 4art. '.6 )gain, to attain maximum independence, States underta1e to strengthen and extend comprehensive habilitation and rehabilitation services, which go beyond health services and include employment, education and social services. Statistics and data collection 4art. C$6 5n order to help formulate and implement policies for the implementation of the +onvention, States should collect disaggregated information in a way that respects human rights and ethical standards of data collection and analysis. 5nternational cooperation 4art. C'6 The +onvention recogni9es that most States will benefit from international cooperation to meet their commitments. =or instance by ensuring that development cooperation is inclusive and accessible, through information exchange and training, through research and technology transfer, and technical and economic assistance. These measures focus on actions that States must ta1e to ensure an environment conducive to the fulfilment of specific rights of persons with disabilities. %bligations -bligations appear at two levels: article K sets out general obligations and each subse2uent article sets out obligations in relation to specific rights. ) first 2uestion to as1 is who is responsible for meeting these commitmentsA )s with all human rights treaties, the +onvention places obligations on States. owever, several articles also highlight the role of private enterprises in reali9ing the rights of persons with disabilities. @hile it is up to States to ensure that private enterprises respect the +onvention 4i.e., obligations are not placed directly on private enterprises6, it is important to ac1nowledge the role of private enterprises and underline the need to engage this part of society in partnerships to promote disability rights. -ther human rights treaties mention the private sector as well and the responsibility of business enterprises in relation to human rights is an area that has attracted considerable attention in recent years. owever, the +onvention certainly goes further than other treaties in identifying specific areas for action by the private sector. The private sector or private entities"enterprises are mentioned in the articles on: general obligations 4art. K 4$6 4e66< accessibility 4art. % 4'6 4b66< personal mobility 4art. '( 4d66< freedom of expression 4art. '$ 4c66< health 4art. '/ 4d66< and wor1 4art. 'J 4$6 4h66. (2 5n addition to private enterprises, it is possible to identify other actors, beyond States, with responsibilities to respect the rights of persons with disabilities. =or example, article '/ refers to health professionals. Several articles refer to support services and community services 4for example, art. $' in relation to support for exercising legal capacity and art. $% on independent living6. )rticle 'K refers to the employment of 2ualified teachers to promote inclusive education. So even though the legal responsibility to respect the +onvention lies with the State, many other actors have a role to play. -hat then are the obligations on StatesA ere is a summary of these obligations, which are discussed in greater detail in later modules: Revie$ e3isting la$s and policies3to ensure that they respect the +onvention and do not set out inconsistent rules and standards3and adopt new ones to ensure that the legal and policy framewor1 supports the +onvention0s implementation. Such laws could be anti7discrimination laws and comprehensive disability laws 4if they exist3it is not a re2uirement6 but also guardianship laws, education laws, mental health laws and so on. Secondary legislation and regulations are also covered. #olicies could be national development strategies, national disability strategies or social inclusion strategies, as well as departmental and ministerial strategies to improve disability rights. Provide funding3it is not enough simply to pass legislation. @hile some prohibitions on discrimination might not have financial implications, others will re2uire funding 4e.g., ma1ing public spaces accessible for persons with disabilities6. Haws and policies which are not funded are unli1ely to be fully implemented. (ake goods and services accessible3much of the +onvention relies on access to goods and services, such as assistive technologies and health care and education. Such services must be accessible to persons with disabilities if these persons are to enBoy their rights on an e2ual basis with others. This may re2uire disability7specific services, while at other times it may re2uire mainstream services 4e.g., education6 to be accessible to persons with disabilities. A$areness4raising3many of the barriers facing persons with disabilities are negative attitudes. !aising awareness of the rights of persons with disabilities, as well as the capabilities of persons with disabilities, is important to reduce such negative attitudes. Training3training on the +onvention for professionals, such as teachers and health professionals, is important to reali9e many of the rights of persons with disabilities, in particular those related to access to services. =or example, teachers need to have the 1nowledge necessary to support inclusive education and health professionals need to understand the shift to a social"human rights approach so that persons with disabilities can access health services on an e2ual basis with others. ,ata collection3good data are necessary to develop good laws and policies to implement the +onvention. +onse2uently, States should underta1e research and collect data so that the situation of persons with disabilities and the barriers they face to enBoy their rights are better understood. (( 5uild capacity3in 1eeping with a human rights approach to development, building the capacity of States to meet their obligations under the +onvention and that of persons with disabilities so that they can claim their rights is essential for the full implementation of the +onvention. There are several ways to present State obligations in relation to human rights treaties. The international human rights system is based on the identification of two broad obligations: *egative obligations3the obligation to refrain from doing something or freedom from the State Positive obligations3the obligation on the State to ta1e steps to promote rights or freedom through the State 5t is increasingly popular to rely on the formula Drespect, protect and fulfilE to present obligations on States. This is the formulation proposed to explain obligations here: The obligation to respect3States must refrain from interfering with the enBoyment of rights< The obligation to protect3States must prevent violations of rights by third parties such as private enterprises, medical professionals and so on< The obligation to fulfil3States must ta1e appropriate legislative, administrative, budgetary, Budicial and other action to reali9e rights. 5t is possible to go bac1 to the general obligations and fit each one into one of these three categories. =or example: !espect3refrain from any act that is inconsistent with the +onvention< #rotect3ta1e steps to eliminate discrimination in the private sector< =ulfil3introduce legislation that is compatible with the +onvention< ta1e steps to achieve the progressive reali9ation of economic, social and cultural rights. National and international /onitoring /e*hanis/s The +onvention explicitly provides for national and international monitoring mechanisms. $. )t the national level, the +onvention proposes three mechanisms: The establishment of a focal point or focal points within the *overnment to ensure coordination among different branches of the *overnment and different ministries and levels, i.e., local, provincial and federal, to progress on the implementation of the +onvention< The establishment or designation of a coordination mechanism within the *overnment to facilitate action in different sectors and at different levels< The establishment of a framewor1, such as a national human rights institution or ombudsperson0s office, to promote, protect and monitor the +onvention. This framewor1 (% should conform to the #aris #rinciples, which set out the standards for independence as well as the functions for such monitoring institutions as agreed by the *eneral )ssembly. =ocal points and coordination mechanisms potentially have strong and transformative roles in the promotion of the +onvention. Traditionally, disability issues have been within the remit of one ministry, such as the health or social affairs ministry. )t times, this has meant that some issues have been placed outside the ministry dealing with the general issue. This has created parallel approaches and segregation. =or example, the social affairs ministry might deal with the education of children with disabilities and not the ministry of education, thus placing children with disabilities outside the general education system. The cross7cutting nature of disability rights means that they involve many other issues, including Bustice, education, labour, foreign affairs, housing, finance, sports and culture. The focal points and coordination mechanisms provide a means to ensure that: There is one governmental body, or several, with responsibilities for disability rights 4focal points6< Narious ministries and departments 4and others6 are coordinating their wor1 4coordination mechanism6. The +onvention provides significant flexibility as to the form of these mechanisms and States can adapt them to national circumstances. =or instance, a coordination mechanism might also have civil society participation, as is already the case of many disability councils. The national framewor1 for implementation and monitoring that is compliant with the #aris #rinciples is very important as it provides an independent means of assisting and also verifying the implementation of the +onvention. 5ndependent national human rights institutions can play many roles: Monitoring the *overnment0s implementation of its commitments under the +onvention< Ma1ing recommendations to the *overnment on steps to improve implementation< !eviewing and promoting the harmoni9ation of national laws related to disability< Submitting opinions on legislative bills and proposals related to disability to ensure they are consistent with the +onvention< 8ncouraging the ratification of disability7related instruments, for example, encouraging the *overnment to ratify the -ptional #rotocol to the +onvention if it has not yet done so< !aising awareness about disability rights and about combating disability discrimination< !eceiving complaints from individuals and groups alleging breaches of the +onvention< =ormulating human rights education programmes< +ontributing to reports to the +ommittee of the !ights of #ersons with ,isabilities< +ooperating regionally and internationally with other N!5s. There are other ways of monitoring and enforcing the +onvention, beyond those outlined in it, such as courts, consumer tribunals and so on. +ourts provide legal protection of the rights of persons with disabilities. 5n other words, they provide legally enforceable remedies when abuse has been proven. They can be particularly relevant when an individual, a group of individuals or a civil society organi9ation decides to bring a test case. The court0s decision () can then have wide7ranging repercussions such as changes in the law or in attitudes. owever, courts can be slow and costly, and potential litigants might have to decide whether their case is worth the time and cost. '. )t the international level, the +onvention envisages two mechanisms: The establishment of an independent treaty7monitoring body 4the +ommittee on the !ights of #ersons with ,isabilities6 composed of $? members, whose primary function is to review implementation reports from State parties together with shadow reports from civil society, and to enter into a constructive dialogue with State parties to strengthen implementation of the +onvention. The +ommittee can also receive complaints under the -ptional #rotocol and launch investigations into possible grave and systematic violations of the +onvention. The +onference of States #arties meets at least biennially to consider any matter related to the implementation of the +onvention. -ther training modules will focus on these mechanisms. owever, it could be useful to discuss the reporting process and how the process as well as the +ommittee0s review of reports can help implementation. Such a discussion might have to be tailored to the audience at hand. =or example, if participants are principally *overnment representatives, the discussion could focus on ways that reporting can help them with implementation. #reparing the report can help State representatives to: !eview national legislation and policies to ascertain their compatibility with the +onvention as well as their impact on persons with disabilities< 5dentify gaps in the legal and policy framewor1< 8nsure that focal points and coordination mechanisms have been appointed within *overnment and are functioning ade2uately< 5dentify funding gaps in ministries and programmes that might be delaying implementation< Fuild partnerships with other actors such as ,#-s through the drafting process. -ther O 5f the participants are principally from civil society, the discussion could focus on how civil society can influence the State report as well as how it can prepare an alternative report for the +ommittee which can provide a broader view of the situation of persons with disabilities and the enBoyment of their rights than is available in the State report. 5f participants are from the United Nations, the participants can discuss how the United Nations country teams might prepare information for the +ommittee. United Nations participants might not be aware that information can be sent on a confidential basis to the +ommittee. ,iscussion could focus on how the +ommittee0s recommendations can strengthen United Nations programming and also feed into future United Nations programming, including future country analyses and country programmes. Parti*i2ation and in*lusion of 2ersons with disabilities and re2resentative organi<ations 8ffective participation and inclusion of persons with disabilities is only one of the general principles. owever, it is particularly significant given the traditional invisibility of many (+ persons with disabilities in decision7ma1ing that affects them. Therefore, it can be valuable to elaborate on this principle, time permitting. The concepts of full and effective participation and inclusion promote a reality where all people are able to ta1e part fully in the public and private dimensions of their society and in decisions that affect their lives. #articipation. To be effective, participation must go beyond Bust consultation before moving along a predetermined path or with a predetermined decision. To be effective, participation should be as active as possible so that persons with disabilities are involved in decision7 ma1ing processes and activities. 8ffective participation also involves an element of accountability. ,ecision ma1ers should ta1e account of the proposals and ideas put forward by persons with disabilities, either by modifying their action, activity or decision or, if that is not possible, explaining why they cannot do so. 5nclusion is not simply about physically placing persons with disabilities in the same space as persons without disabilities 4for example, in the classroom6. 5t is about mainstream society changing and adapting so that persons with disabilities can participate on an e2ual basis with others. =or example, in the classroom, it could involve changing the syllabus to accommodate persons who are deaf or changing activities so that they strengthen the abilities and capacities of each pupil, with or without a disability. Through participation and inclusion: The needs and concerns of persons with disabilities become clearer and solutions can be more effective< #ersons with disabilities have the opportunity to raise issues and hold decision ma1ers accountable< #ersons with disabilities become more visible and have the opportunity to learn and change from the experience of others and vice versa. #articipation and inclusion are not one7off experiences< they are lifetime experiences. =urthermore, 2ersons with disabilities should also have the o22ortunit1 to /ake de*isions not ne*essaril1 related to disabilit1 or related to 2ersons without disabilities. Sometimes, accessibility arrangements are made in relation to activities relating specifically to persons with disabilities 4for example, a meeting on disability rights6. owever, persons with disabilities have many interests Bust as anyone else in society. =or example, a person with a disability might wish to participate in meetings unrelated to disability and accessibility should extend to these activities as well. 5n this sense, the principle of participation and inclusion should be applied broadly. Since the beginning, the participation of a vibrant civil society, including persons with disabilities, and representatives of speciali9ed organi9ations of persons with disabilities 4,#-s6, general N*-s and N!5s, inspired the drafting process of the +onvention. 5n 1eeping with practice in human rights7related discussions, N*-s, including ,#-s, were accredited to the )d oc +ommittee that drafted the +onvention and participated in the (* related sessions and meetings. The *eneral )ssembly constantly supported the active involvement of disability organi9ations in the )d oc +ommittee0s wor1. ) broad coalition of ,#-s and allied N*-s formed the 5nternational ,isability +aucus 45,+6, the unified voice of organi9ations of people with disabilities from all regions of the world. -ne of its members stated that its goal was Dto open doors for positive change that will end discrimination and ensure our freedom and rightsE. The level of participation of ,#-s and N*-s in the drafting process was probably unprecedented in United Nations human rights treaty negotiations. Fy the )d oc +ommittee0s final session, some ?(( ,#- members were registered. Feyond the negotiations, ,#-s have been actively involved in the DlifeE of the +onvention. They were closely involved in the signing ceremony on C( March '((J and have been involved in the wor1 of the +onference of States #arties and the uman !ights +ouncil0s annual debates on the +onvention. @hat role then did ,#-s playA The 5nternational ,isability +aucus was a 1ey presence throughout and brought the concerns of international, regional and national civil society to the negotiating table. ,#-s had a crucial role in the drafting of the wor1ing group text, the basis for negotiations on the final +onvention, which was the result of the wor1 of 'J *overnments, $' N*-s",#-s and $ N!5. The final text of the +onvention was the product of truly inclusive negotiations. Many positions ta1en and suggestions provided by civil society, especially ,#-s and mainly through 5,+, were integrated in the text. Substantive proposals made by 5,+, e.g., on the need to ensure that persons with disabilities are consulted in policyma1ing and decision7 ma1ing, are integral parts of the +onvention. The role of 5,+ and N!5s in the negotiations was also 1ey to ensuring the inclusion of a provision on national implementation and monitoring re2uiring States to establish some form of independent national mechanism to protect, promote and monitor the +onvention. *othing about us $ithout us6 The motto DNothing )bout Us @ithout UsE relies on the principle of participation and is used by ,#-s as part of the global movement to achieve full participation and e2uali9ation of opportunities for b1 and with persons with disabilities. The main message is that persons with disabilities must always be directly involved when strategies and policies are being planned that will directly affect their lives. #ersons with disabilities are men, women or children with disabilities. )s an N!5 representative stated before the adoption of the +onvention, Des2e*iall1 the active involvement of civil society has helped to give this +onvention a sustained focus and relevance as well as bring its drafting to a speedy conclusion 4O6 This openness and inclusiveness has ensured that the fairly lengthy text of the +onvention nevertheless possesses a powerful electric current.E The 1ey role of civil society did not stop with the adoption of the +onvention< it continues with its implementation. #ersons with disabilities are 1ey in ensuring promotional activities and information about the +onvention. The new approach of the +onvention is very much about understanding and sharing the perspectives of persons with disabilities. These persons are also crucial in the process of reviewing and proposing national measures. -hat *an different a*tors do to 2ro/ote the Convention. (, State actors !atify the +onvention @hen the +onvention has been ratified, publici9e this fact Translate the +onvention into local languages 8nsure that a national focal point within the *overnment is appointed +onsider establishing a coordination mechanism ,esignate an independent monitoring and implementation mechanism !eview and reform laws and policies and start implementing the +onvention -therA 2rgani1ations of persons $ith disabilities 7,P2s8 #ersons with disabilities and their representative organi9ations can play many roles in promoting the +onvention, for instance: Using the +onvention as a benchmar1 to assess national laws, policies and activities of the *overnment and other actors to ensure compliance with the +onvention and its progressive implementation Using the +onvention as a benchmar1 to record and report on the current enBoyment of rights by persons with disabilities Using the +onvention as a tool for advocacy. =or example, using the signing, ratification and reporting to the +ommittee as media moments to attract attention to the situation of persons with disabilities nationally Using the +onvention as an obBective and internationally recogni9ed standard to alert States to their responsibilities towards persons with disabilities, underlining the fact that disability rights are not the responsibility of others 4private sector, international community, N*-s and so on6 but first and foremost the responsibility of States Using the +onvention as a tool to ensure the establishment of ade2uate national promotion and monitoring mechanisms as re2uired under article CC, so that there is a better chance that implementation will be successful and sustainable @or1ing with the *overnment to encourage it to report to the +ommittee on time and also participating in drafting the report #roviding alternative reports to the +ommittee so that the it has the fullest possible view of the situation of persons with disabilities in the country, as well as the areas where clear recommendations are most needed and are li1ely to be most effective -ther O +ivil society organi1ations 7other than ,P2s8 +ivil society organi9ations such as human rights or development N*-s have important roles to play in promoting and monitoring the +onvention. They can: (9 +onsider mainstreaming disability rights within their own programmes 8xamine whether they should establish a stand7alone programme on disability rights Fuild the capacity of ,#-s 5nclude information on the rights of persons with disabilities in their alternative reports to United Nations treaty bodies -ther O *ational human rights institutions National human rights institutions can: +larify which institution4s6 will be designated as the national implementation and monitoring framewor1 #ublici9e the +onvention Underta1e research related to disability rights 5nclude the +onvention in its annual activities and reports 5nclude information on the rights of persons with disabilities in their alternative reports to United Nations treaty bodies -ther O )nited *ations country teams United Nations country teams can also play a role in promoting the +onvention and can: Mainstream the +onvention in country programmes 8stablish a stand7alone programme to support the State in the ratification and implementation of the +onvention Fuild the capacity of ,#-s #rovide information to the +ommittee at the time of reporting +onsider establishing a programme and applying for funding through the Multi7donor Trust =und for the +onvention. The Multi7donor Trust =und was established in '($$ to support United Nations7led programmes, principally at the country level, but also at the regional and global levels, relating to the +onvention0s ratification and implementation. The founding agencies were the 5nternational Habour -rgani9ation 45H-6, -+!, the United Nations ,epartment for 8conomic and Social )ffairs 4UN,8S)6, the United Nations ,evelopment #rogramme 4UN,#6, the United Nations +hildren0s =und 4UN5+8=6 and the @orld ealth -rgani9ation 4@-6. .
+ =or more information, see http:""mdtf.undp.org"factsheet"fund"!#,(( 4accessed ? -ctober '($'6. %0 5%D&6( 0 R#T)?)C#T)%N )ntrodu*tion The +onvention has been widely ratified in only a few years. Fy $ -ctober '($', the +onvention had $'K parties and its -ptional #rotocol JK. This means that over half the world has indicated its consent to be bound by the +onvention. Get, there is still wor1 to be done to achieve universal acceptance. Module C introduces the main concepts and processes underlying ratification, which should help train and motivate representatives of States, civil society and national human rights institutions in countries that have not yet ratified the +onvention. 5n delivering a training session on ratification, it is important to highlight that ratification of an international treaty is a complicated process which changes from country to country. =irst of all, the term ratification is used in different ways and can cause some confusion. =or example, ratification can refer to the adoption of a treaty at the national level 4such as adoption by the national parliament6, but it can also refer to the international act of adhering to a treaty. =urthermore, some countries accede to a treaty rather than ratify it, so the term ratification might be less relevant than accession. )t the same time, the treaty is subBect to formal confirmation by regional integration organi9ations such as the 8uropean Union. @hile the term ratification tends to be used as a catch7all phrase, strictly spea1ing it might be more relevant to some Burisdictions than others. Second, the process underlying ratification tends to differ from county to country. Some countries have comprehensive national discussions prior to international ratification, while others ratify the treaty first and underta1e national discussions later. Some countries simply ratify the +onvention internationally and do not ta1e any further step at the national level. +onse2uently, in presenting module C, the facilitator should be aware of the relevant national processes and adapt the module accordingly. National /easures for ratifi*ation +onstitutional law and practice regulate the various aspects of the ratification process that generally, although not always, ta1es place at national level prior to ratification or accession at the international level. 5t is relevant to note that the +onvention does not indicate any specific national process that States should underta1e with regard to ratification.
-verall, there are two approaches to national ratification, which are defined by the role of the legislative branch. =irst, in civil law countries, ratification ta1es place through the approval of the treaty by the legislative branch. )fter the vote of approval, the act of ratification is sent to the executive for its promulgation, publication and deposit with its depositary. =or example, )rgentina, +hile, +roatia, 8cuador, ungary, Mali, Niger, #anama and Spain ratified the +onvention through an act of parliament. Mexico ratified it through approval by one of its legislative chambers. Second, in most countries with a common law tradition, as well as in other legal systems, ratification of the +onvention can ta1e place through an act of the executive. 5f parliament is involved, it is in a consultative capacity. 5n other words, a formal vote by parliament is not necessary. =or example ratification through executive decisions too1 place in Fangladesh, New Pealand and Thailand. %1 !egardless of the differences between the two approaches, and of the specificities of national systems, these domestic processes offer important opportunities for raising awareness and promoting understanding of the treaty under consideration. 5ndeed, the processes leading to and following ratification can influence the next step, i.e., implementation, for instance by identifying legal and other gaps and galvani9ing support. Some States assess the benefits and challenges of ratification with national analyses. Such reports follow a review of the national legislation and policies for compliance with the +onvention, and highlight issues such as the reasons and implications, in terms of obligations and costs, of becoming a party to a treaty and implementing it. National analyses accompany the proposal for ratification internally. )ny pre7ratification review should be part of the process that continues in the implementation phase to review existing and proposed legislation. 5deally, the findings of the national interest analysis carried out by the *overnment should eventually be made public. Similarly, States should engage in ade2uate consultation prior to ratification. 5ndeed, some support for this can be found in the +onvention itself. 5ts article K 4C6 states: 'n the development and implementation of legislation and policies to implement the present +onvention. and in other decision4making processes concerning issues relating to persons $ith disabilities. States Parties shall closely consult $ith and actively involve persons $ith disabilities. including children $ith disabilities. through their representative organi1ations9 @hile the State is not yet bound by article K 4C6, as it has not ratified the +onvention, underta1ing public consultations on ratification is a good practice that could influence implementation at a later stage. Through consultation, the act of ratification may become more than a political act directed towards the international community and actually improve standards on the ground. 5f consultations ta1e place, they should ta1e into account the full range of actors that have a role to play in ratification. *overnment representatives should be consulted. owever, many parts of the *overnment have a role to play in ensuring disability rights and consultations can include different levels, such as central, provincial and municipal government. Similarly, consultations can occur across *overnment, not only ministries of social affairs and health, which often have the disabilities portfolio, but also other ministries, such as education, Bustice, the interior or finance, that will be involved in implementing the +onvention. #ersons with disabilities should have a voice in the discussions about ratification, both directly and through their representative organi9ations 4,#-s6. Such consultations should reflect the diversity of disabilities. #ersons with disabilities are not a monolithic group, but comprise persons with different impairments 4psychosocial, intellectual, physical, sensory6 and also different people 4men and women, children with disabilities, indigenous peoples, older persons and so on6. +onsultations should attempt to reflect this diversity as much as possible. The need to support the participation of organi9ations of persons with disabilities in consultations, including financially, should be carefully considered. States engaged in ratification processes sometimes find it difficult to ensure wider consultation owing to a lac1 of funds, for example, for developing countries or those facing crises. 5n such cases, consultation processes have to ma1e the most of scarce resources. owever, consultation should nonetheless ta1e place, not only to ensure the participation and inclusion of persons with disabilities, but also because these persons might have proposals relating to the most effective use of scarce resources to ensure the progressive reali9ation of the +onvention. %2 -ther civil society actors, such as human rights or development N*-s, should also be consulted. 5f there is a national human rights institution, it should be consulted and could also have a role in underta1ing research on the rights of persons with disabilities and in analysing laws and policies. The ratification process should be inclusive and representative of society as a whole, including minority groups and political opposition, and not be guided by a political agenda. Such a genuine and inclusive process is in line with the principle of international law according to which a country0s subse2uent *overnments are e2ually bound by an international treaty previously ratified. The ris1 is that a *overnment in power might exclude certain actors, such as the political opposition, so as to ensure freer action in decision7 ma1ing. Get, in the longer term, this might thwart implementation and ma1e it unsustainable when there is a change in *overnment. The )ustralian ratification process offers a good example of the steps involved. )ustralia signed the +onvention in March '((J and ratified it in ;uly '((?. The national exercise involved a comprehensive review of all +ommonwealth, State and Territory legislation to ensure that )ustralia could comply with all the articles of the +onvention. The ,epartments of =amilies, ousing, +ommunity Services and 5ndigenous )ffairs, and of the )ttorney7 *eneral, in consultation with national ,#-s, disability advisory councils and the disability legal services networ1, presented a report on the impact of ratification to the *overnment. The report identified both the benefits and the disadvantages of ratifying the +onvention and its -ptional #rotocol< verified whether )ustralian laws complied with +onvention obligations< described the economic, environmental, social and cultural impact of ratification< established an appropriate means of directly incorporating the +onvention< and audited national laws, policies and programmes. #reparing for ratification is not only a *overnment7led process. +ivil society can also advocate ratification. 5ndeed, this can be one of the most effective triggers for the *overnment to ta1e action. To this end civil society and others can: Qnow the facts Hearn how the +onvention becomes part of national law Hearn about the effects and costs of ratification 5dentify ways in which ratification can help persons with disabilities 8ducate others 5ncluding decision ma1ers through meetings, e7mails, letters, telephone calls and visits, stressing disability as a human rights issue 5ncluding the community through encouraging national debates and tal1s in schools and the community Mobili9e partners and allies, such as other disability groups and human rights organi9ations and social movements ighlight the importance of the issue +reate a Boint ratification campaign Suggest concrete actions for them to become involved Fuild a networ1, including ways to exchange information and communicate 4such as creating a website6 Hobby @rite to the *overnment, urging it to sign and ratify %( ,iscuss the +onvention with Members of #arliament Meet your contacts in ministries, local and national agencies, etc. =ollow7up Send than1 you letters to officials and other partners )ssess the success of strategies and messages The United Nations Mine )ction Service and -+! prepared an Advocacy :it to help mine action centres advocate ratification of the +onvention. The box below reproduces a sample letter that could be sent to relevant sta1eholders to promote ratification. R;2)R A,,RESSS RRE+'P'E*T<S A,,RESSS R,ATES ,ear R*A(E 20 G2=ER*(E*T 200'+'AS, The +onvention on the !ights of #ersons with ,isabilities entered into force on C May '((?. @hen it was opened for signature on C( March '((J, there were ?' signatories to the +onvention, the highest number of signatories in history to a United Nations convention on its opening. =or the full text, please see www.un.org"disabilities. This +onvention: T 8stablishes international standards regarding the rights and freedoms of persons with disabilities< T +larifies human rights principles of inclusion, non7discrimination, accessibility and participation in the context of persons with disabilities< T #rovides an authoritative model for *overnments to use in shaping national law and policies< T +reates more effective mechanisms for monitoring the rights of persons with disabilities< and T #rescribes national implementation and monitoring mechanisms. The +onvention mar1s a paradigm shift in attitudes and approaches to persons with disabilities. 5t represents the movement from viewing persons with disabilities as DobBectsE of charity, medical treatment and social protection towards viewing persons with disabilities as DsubBectsE with rights, who are capable of ma1ing decisions and being active members of society. This is the first maBor human rights treaty of this century and it is a historic achievement for the ./( million persons with disabilities around the world. 5t certainly offers R*A(E 20 +2)*TR;S an important opportunity to fulfil its obligations towards citi9ens. @e loo1 forward to wor1ing with you on these matters and are available to provide support should you so re2uire. Gours sincerely, R*A(E 20 PERS2* ! 2RGA*'>AT'2*S )nternational /easures for ratifi*ation )t the international level, States or regional integration organi9ations 4such as the 8uropean Union6 that intend to become parties to the +onvention must express their consent to be %% bound by it. )rticle KC establishes that such consent can be expressed through ratification, accession or formal confirmation. ) regional integration organi9ation is an organi9ation constituted by sovereign States of a given region, to which its member States have transferred competence in respect of matters governed by the +onvention 4art. KK6. )t this stage, it is important to define certain terms. =or many States, expressing this consent comprises signature and ratification: 4a6 Signature of the +onvention is an act by which a State or regional integration organi9ation expresses its interest in the treaty and its intention to become a #arty. States and organi9ations are not bound by their signature. owever, they must refrain from acts that would defeat the obBect and purpose of the +onvention, according to the Nienna +onvention on the Haw of Treaties 4art. $?6< 4b6 Ratifi*ation consists of the deposit, through a formal letter, of the instrument of ratification with the Secretary7*eneral of the United Nations as the depositary of the +onvention, in accordance with article K$. @ith the deposit of the act of ratification, the DState establishes on the international plane its consent to be bound by a treatyE. !atification, li1e other acts of consent, ma1es the international human rights norms guaranteed in the treaty legally effective vis7U7vis the State and obliges it to report to the international community on measures adopted to align its legislation, policy and practice with international standards. The significance of this differs from country to country and will be discussed below. Some States have a one7step process to express their consent to be bound, namely a**ession. 5t consists of the deposit of an instrument of accession with the depositary and has the same legal effect as ratification< however, unli1e ratification, it is not preceded by signature. =or regional integration organi9ations, the process is similar to the two7step process referred to above, with signature by the organi9ation followed by for/al *onfir/ation. States and regional integration organi9ations can decide to ratify and"or accede to both the +onvention and its -ptional #rotocol or to the +onvention only. Such intention needs to be reflected in the instrument executed and deposited. ) precondition for signing and ratifying the -ptional #rotocol is having signed and ratified the +onvention, although the two may occur simultaneously at the same signing ceremony. Reservations and de*larations )t the moment of signature, ratification or accession of the +onvention, States and regional integration organi9ations may wish to adBust the application of the treaty by means of lodging a reservation. The Nienna +onvention on the Haw of Treaties 4art. ', para. $ 4d66 defines a reservation as follows: a unilateral statement. ho$ever phrased or named. made by a State $hen signing. ratifying. accepting. approving or acceding to a treaty. $hereby it purports to e3clude or to modify the legal effect of certain provisions of the treaty in their application to that State9 States can also lodge declarations at the moment of signature, ratification or accession. ,eclarations are statements of understanding of a matter contained in the +onvention or an interpretation of a particular provision. Unli1e reservations, declarations do not purport to exclude or modify the legal effects of a treaty but rather to clarify the meaning of certain provisions. owever, some declarations might amount to reservations. %) 5n some cases reservations and declarations could be the symptom of a State0s lac1 of will to implement the +onvention fully, e.g., a State may mas1 its lac1 of will by invo1ing conflicting cultural principles. 5n other cases reservations and declarations could be the expression of a State0s legitimate and serious concern related to the inade2uacy of its national resources to cope with the obligations derived from the +onvention. States may be tempted to lodge reservations to gain more time for implementation. States may decide to modify or limit some of the tougher provisions to avoid being blamed by the international community for not implementing the +onvention properly. 5f reservations are inevitable, it is important to limit their impact to the absolute minimum. Foth vague and specific reservations deserve attention when monitoring a treaty. =or example, through its authoritative interpretations, the +ommittee on the !ights of #ersons with ,isabilities can circumscribe reservations of apparent general and indeterminate scope. 5n any case, reservations are not to be encouraged and the facilitator should find ways to ma1e this clear when presenting this module, ta1ing into account the audience. )rticle K. of the +onvention allows parties to lodge reservations provided that these are not incompatible with its obBect and purpose. ) State that obBects may notify the United Nations Secretary7*eneral. The Secretary7*eneral circulates any obBection received. -bBections to declarations generally focus on whether the statement is merely an interpretative declaration or is, in fact, a reservation that would modify the legal effects of the treaty. )n obBecting State sometimes re2uests that the declaring State should clarify its intention. 5f the declaring State agrees that it has formulated a reservation instead of a declaration, it may withdraw its reservation or confirm that its statement is only a declaration. )fter a reservation is circulated, other State parties have $' months in which they can obBect to the reservation, beginning on the date the notification of reservation was deposited or the date on which the State or regional integration organi9ation expressed its consent to be bound by the treaty, whichever is later. @hen a State lodges an obBection to a reservation with the Secretary7*eneral after the end of the $'7month period, the Secretary7*eneral circulates it as a Dcommunication.E Hodging a complaint does not force a State to withdraw it. owever, it does put political pressure on the State ma1ing the reservation and could lead to the voluntary withdrawal of the reservation either immediately or over a period of time. =urthermore, as a result of obBecting to a reservation, a State might regard a treaty as not being in effect between itself and the State ma1ing the reservation3or at least not in relation to the provision to which the reservation has been made. Treaty7monitoring bodies have consistently sought to restrict the scope of reservations and encourage their withdrawal. The uman !ights +ommittee, for example, has set out its position in its general comment No. 'K 4$%%K6 on issues relating to reservations made upon ratification or accession to the +ovenant or the -ptional #rotocols thereto, or in relations to declarations under article K$ of the +ovenant. !elying on the test that reservations incompatible with the obBect and purpose of the treaty are not permitted, the +ommittee indicates areas where it believes reservations are inadmissible. These include articles considered peremptory norms. The +ommittee 2ueries whether reservations to non7 derogable rights are permissible. Similarly, the +ommittee holds that reservations to measures that create the supportive machinery for the enBoyment of rights, such as the right to a remedy, are not acceptable. The +ommittee considers that it falls on itself to determine whether a reservation is incompatible with the obBect and purpose of the treaty, partly because the +ommittee indicates that the nature of a human rights treaty ma1es it inappropriate for State parties to ma1e the decision and partly because the +ommittee cannot avoid ma1ing such an assessment in the performance of its functions. %+ Stakeholders involved in supporting treaty bodies. enhancing the universal periodic revie$ 7)PR8 and!or interacting $ith national authorities that are embarking on or completing the ratification process should advocate ratification $ithout reservations9 =inally, it is important to note that existing reservations may be modified. Such a modification may result in a partial withdrawal or could create new exemptions from, or modifications to, the legal effects of certain provisions 4resulting in a new reservation6. ) State or regional integration organi9ation may withdraw any reservation it has made to the +onvention or -ptional #rotocol at any time. The withdrawal must be in writing and signed by the ead of State, ead of *overnment or minister for foreign affairs, or a person having full powers for that purpose issued by one of those authorities. )s with reservations, it is possible to modify or withdraw declarations. State parties to the +onvention have lodged a range of reservations and declarations, some of which have attracted obBections from other State parties. @ith regard to the concept of DconsentE and its implications, )ustralia declared Dits understanding that the +onvention allows for compulsory assistance or treatment of persons, including measures ta1en for the treatment of mental disability, where such treatment is necessary, as a last resort and subBect to safeguardsE. Foth =rance and the Netherlands declared their understanding of the term VconsentV and its application: 4$6 consent given by a person who is able to consent< and 4'6 in the case of persons who are not able to give their consent, permission given by their representative or an authority or body provided for by law. Malta, Monaco and #oland made reservations and declarations stressing that the +onvention shall not be interpreted in a way conferring an individual right to abortion. The Syrian )rab !epublic DunderstandsE that being a signatory of the +onvention Ddoes not in any way imply recognition of 5srael or entry into relations with 5srael, in any shape or form, in connection with the +onvention.E )9erbaiBan declares that Dit is unable to guarantee the application of the provisions of the +onvention in the territories occupied by the !epublic of )rmenia until these territories are liberated from occupation.E =rance and several other States obBected to the declaration made by the 5slamic !epublic of 5ran to exclude the application of those provisions of the +onvention that are deemed incompatible with 5ranian laws. )ccording to =rance, the 5slamic !epublic of 5ran made a Dreservation of general and indeterminate scope. This reservation is vague, failing to specify the relevant provisions of the +onvention or the domestic laws to which the 5slamic !epublic of 5ran wishes to give preference. +onse2uently, it does not allow other States parties to 1now the extent of the commitment of the 5slamic !epublic of 5ran and could render the +onvention ineffective.E )ustria, the +9ech !epublic, the Netherlands, #ortugal, Slova1ia and Sweden obBected a reservation made by 8l Salvador to sign the +onvention Dto the extent that its provisions do not preBudice or violate the provisions of any of the precepts, principles and norms enshrined in the +onstitution of the !epublic of 8l Salvador, particularly in its enumeration of principles.E Fy not specifying the extent of the %* derogation, the reservation was incompatible with the obBect and purpose of the +onvention, according to these States. The +9ech !epublic, #ortugal, Spain and Sweden obBected to Thailand0s interpretative declaration subBecting article $? of the +onvention to conformity with Thai laws, regulations and practices. The reservation ma1es it unclear to what extent Thailand considers itself bound by the obligations of article $?, putting in 2uestion Thailand0s commitment to the obBect and purpose of the +onvention as regards the rights associated with liberty of movement and nationality.
)n*or2oration into the legal s1ste/ of the ratif1ing State -nce international ratification has ta1en place, the State has expressed its consent to be bound by the treaty and the +onvention has entered into force for it. owever, it should not be assumed that the +onvention has automatically become part of its national law. There are two main approaches to incorporating treaties within the domestic legal system, usually as a result of legal traditions and often reflected in national constitutions. (onist countries assume that domestic law and international law form one system of law. 5nternational law does not need to be translated into national law. The act of ratifying an international agreement immediately incorporates it into national law. 5nternational law can be directly applied by a national Budge and directly invo1ed by citi9ens, Bust as if it were national law. ) Budge can declare a national rule invalid if it contradicts international rules. 5n some States, international law always has priority while others adopt the le3 posteriori rule. 5n some State parties to the +onvention, such as )rgentina, +hile, +osta !ica, +roatia, ungary, Mali, Niger, Matar, Slovenia and Spain, the provisions of the +onvention have direct legal effect on the national legal framewor1 and are in principle directly applicable, including in courts of law. 5n relation to other human rights treaties, such as the 5nternational +ovenant on 8conomic, Social and +ultural !ights, individuals have gone to court with allegations of breaches of treaty rights and won compensation or reparation. 5n dualist countries, the international and national legal systems are seen as separate. The international human rights treaties to which these States are a party have no force, as such, within their domestic legal systems and domestic legislation must be adopted to incorporate the treaty into the domestic legal order. @hile some State parties have made amendments to their legislation to ensure compliance with the +onvention, it appears that the steps ta1en so far fall short of giving direct effect to the +onvention in the domestic system. 5f a dualist country does not translate an international treaty into domestic law, for example, out of negligence or because the purpose of the ratification"accession was merely political, its implementation will remain uncertain. 5f the State does not translate the +onvention into national law once it has ratified it, those in most need of having its provisions applied might not be protected by it. 8xamples of dualist countries are )ustralia, +anada, 5ndia, Qenya, Malawi, South )frica, United Qingdom and Pambia. uman rights treaty bodies have often recommended incorporation of their treaties into the domestic legal order so as to reali9e their full potential. =or example, in its general comment No. C$ 4'((K6 on the nature of the general legal obligation imposed on States parties to the +ovenant, the uman !ights +ommittee, while noting that the 5nternational +ovenant on +ivil and #olitical !ights does not explicitly re2uire State parties to incorporate the +ovenant, expressed the view Dthat +ovenant guarantees may receive enhanced protection in those States where the +ovenant is automatically or through specific incorporation part of the domestic legal orderE and invited State parties to proceed accordingly. %, The +ommittee on 8conomic, Social and +ultural !ights expressed similar views in its general comment No. % 4$%%?6 on the domestic application of the +ovenant: Dlegally binding international human rights standards should operate directly and immediately within the domestic legal systemE and Dwhile the +ovenant does not formally oblige States to incorporate its provisions in domestic law, such an approach is desirableE. 8ven in countries where it is necessary for legislation to refer to or reproduce the content of a treaty, Budges have in some cases developed innovative ways of ma1ing use of international standards. =or example, although South )frica is not a party to the 5nternational +ovenant on 8conomic Social and +ultural !ights, its +onstitutional +ourt has used general comments of the +ommittee on 8conomic, Social and +ultural !ights to interpret the context of economic, social and cultural rights in the South )frican +onstitution. 'ierar*h1 of the Convention in the legal s1ste/ of States 5n States where the +onvention is directly applicable, it has been assigned different levels within the domestic hierarchy of laws. +osta !ica, for example, recogni9es conventions as being on the same level as the +onstitution. 5n )rgentina, a bill was presented to parliament so that the +onvention would be recogni9ed as being at constitutional level, similar to other human rights treaties. 5n several States, such as +roatia, Mali, Mexico and Niger, international human rights treaties to which they are a party are regarded as standing above national laws. uman rights treaty bodies have often re2uested clarity regarding the place of their treaties in the domestic legal hierarchy. They have also consistently expressed appreciation to States that have recogni9ed human rights treaties as holding constitutional status, which is not always the case. 5n its general comment No. C$ 4'((K6, the uman !ights +ommittee explicitly noted the important status of international human rights treaties, which Dflows directly from the principle contained in article 'J of the Nienna +onvention on the Haw of Treaties, according to which a State #arty Imay not invo1e the provisions of its internal law as Bustification for its failure to perform a treaty0E. 5t noted that this principle Doperates so as to prevent States parties from invo1ing provisions of the constitutional law or other aspects of domestic law to Bustify a failure to perform or give effect to obligations under the treatyE. !eservations lodged by States that do not recogni9e the predominance of the +onvention on the !ights of #ersons with ,isabilities if there is a conflict between it and their constitutional or national laws might present challenges in view of article 'J of the Nienna +onvention. +onse2uently, even a State with a dualist system should at the very least not invo1e national law as a reason not to respect the +onvention, even if the +onvention cannot be directly invo1ed in national courts without an additional act of parliament. Pro/oting ratifi*ation@ roles of different a*tors E3ecutive +onsult with line ministries 5dentify a focal point for ratification old a national consultation !eview laws and policies 5dentify any gaps in protection Underta1e a national interest analysis %9 Ma1e ratification a national obBective 5dentify good practices in the region !e2uest assistance from the United Nations 2ther steps# Parliament +hec1 if the *overnment intends to ratify Use parliamentary procedure to encourage ratification, such as 2uestions to the minister Submit a private member0s bill 8ncourage parliamentary debate Mobili9e public opinion ,iscourage reservations and declarations !aise awareness of the +onvention and the ratification process 8ncourage ratification of the +onvention and its -ptional #rotocol (ore# +ivil society =orm a coalition to support ratification +ontact international civil society organi9ations Set out a timeline and lobbying strategy Haunch a media awareness campaign old a national conference ,evelop and see1 funding for a programme on ratification Meet representatives of parliament, line ministries, national human rights institution, etc. !aise ratification with the donor community )s1 what the United Nations is doing *ational human rights institution Underta1e research on the rights of persons with disabilities !aise ratification in annual reports to parliament 5ssue press releases supporting ratification !aise awareness in the community +ooperate with ,#-s on ratification 8nsure own capacity related to the +onvention )nited *ations country team ,iscuss ratification with *overnment partners +ompile good practice from the region !aise awareness about the +onvention #rovide expert advice to the *overnment and civil society partners #rovide technical assistance to national focal points and N!5s !aise ratification with the international community Support ratification through media communications ,evelop a programme to support ratification )0 5%D&6( A 5(#S&R(S ?%R )5P6(5(NT#T)%N )NTR%D&CT)%N -hat i/2le/entation /easures does the Convention re7uire. )rticle K 4$6 4a6 indicates in broad terms the implementation measures needed for the full reali9ation of the rights of persons with disabilities, without discrimination. 5t re2uires States: To adopt all appropriate legislative. administrative and other measures for the implementation of the rights recogni1ed in the present +onvention9 )t least three aspects of this subparagraph need to be highlighted. =irst of all, the article refers to adopting DallE appropriate measures. This suggests that implementation should be comprehensive, in that it should cover all possible measures relevant to the +onvention. )rticle K sets out some of these measures, which will be explored in greater detail below. =urthermore, much of the +onvention sets out specific implementation measures in relation to specific rights. 5t is worth loo1ing at any article to understand the types of measures necessary to put the +onvention into practice. The reference to DallE appropriate measures can also be understood as a flexibility device: in other words, no options are left out and different States might identify different options for implementation, in 1eeping with their legal and cultural contexts. Secondly, the article refers to all DappropriateE measures. 5n other words, the measures must be appropriate in the light of the principles and obligations in the +onvention. They must respect the +onvention and promote its principles. They must be consistent with it. Thirdly, the article refers explicitly to legislative and administrative measures, but it also refers to DotherE measures. This is in 1eeping with the other human rights treaties. @hile legal and administrative measures are important to implement an international treaty, measures to implement human rights treaties fully go far beyond legal and administrative measures and cover education, funding, development, social programmes, institution7 building, Budicial measures and more. +onse2uently, such measures must be broad if implementation of the +onvention is to be effective. ) narrow understanding of the treaty as re2uiring only legal measures 4e.g., without funding measures6 ris1s leading to good laws that are not applied. ) whole range of implementation measures might be relevant, such as: 5dentifying focal points, coordination mechanisms and other institutions within the *overnment to support implementation 8nsuring that laws and budgets are in line with the +onvention Ma1ing sure that laws, policies and institutions are fully funded ,elivering services that are inclusive of persons with disabilities !aising awareness about the +onvention Training professionals Underta1ing research, data collection, analysis, surveys on disability rights !esearching and developing accessible technology 8nsuring that effective remedies exist when rights are not respected. )1 This module examines a range of implementation measures, such as law reform to ensure that laws and policies respect the +onvention through to the provision of ade2uate services and institution7building. Many of the implementation measures examined in this module ta1e time and resources. Many participants will want to 1now what practical steps they could ta1e immediately after ratification or even after the training. +onse2uently, before examining each implementation measure in greater detail, it is worth considering some more immediate steps that can be ta1en to start the implementation process. These include: 5dentify a +onvention focal point in the *overnment 5dentify focal points in line ministries Ma1e or Boin civil society coalitions for the +onvention 5ssue a press release on the +onvention0s ratification Ma1e the +onvention available in local languages and in accessible formats )dvocate for implementation at the national, regional and local levels !eview laws, policies and budgets !aise awareness with professionals 4service providers, lawyers, Budges, public servants, parliamentarians, O6 !eview the accessibility of public facilities"services Underta1e a baseline study of the situation of persons with disabilities in the country 5dentify gaps in understanding of or capacity related to the +onvention )NST)T&T)%N4$&)6D)NG ?%R )5P6(5(NT#T)%N )nstitutions re7uired under the Convention +art. 00, Fefore examining various implementation measures more closely, it is worth referring briefly to article CC, which sets out three particularly relevant ones 4see also module .6: focal points, coordination mechanisms and independent monitoring mechanisms. ?o*al 2oints@ )rticle CC, paragraph $, re2uires a focal point or focal points within the *overnment with responsibility for matters relating to the implementation of the +onvention. The +onvention does not specify who could act as focal point 4a ministry, a department in a ministry, a single person and so on6. Coordination /e*hanis/s@ The same paragraph re2uires States to give due consideration to the establishment or designation of a coordination mechanism within the *overnment to facilitate action related to the implementation of the +onvention. )lthough optional, such a coordination mechanism could be beneficial by ensuring that all ministries and all levels of government 4central, provincial and local6 are wor1ing together to implement the +onvention and disability issues do not remain stuc1 in one ministry 4such as health or social affairs6. =ocal points and coordination mechanisms ensure that there is an authority in the country with ongoing responsibility for implementation. Fy itself, this might not necessarily lead to effective implementation: the focal point and"or coordination mechanism also has to have financial bac1ing to follow up on implementation, as well as have the relevant expertise. 8ffective participation of persons with disabilities and their representative organi9ations should also help ma1e focal points and coordination mechanisms effective. @ithout effective focal points and"or coordination mechanisms, the ris1 is that no one will be responsible for moving the +onvention0s standards from the international level to the national level so that they have real meaning. )2 Some issues to bear in mind: 8nsure that the focal point and"or coordination mechanism is clearly established, e.g., in law 8nsure that the focal point and"or coordination mechanism is sufficiently staffed 8nsure that the focal point and"or coordination mechanism has funding to carry out its tas1s 8nsure that the focal point and"or coordination mechanism is sufficiently close to decision ma1ers with authority so that advice on implementation and coordination is acted upon 8nsure that the focal point and"or coordination mechanism is not relegated to a ministry or department with relatively little authority, and if it is, ensure that the focal point is sufficiently high up so that it has authority to act and is connected through an effective coordination mechanism with other relevant ministries so that +onvention> related action cuts across the *overnment +larify in the focal point0s terms of reference that it is there to facilitate implementation but not to be the sole *overnment institution responsible for the +onvention 4the effect of which could be to sideline the +onvention and implementation rather than mainstream disability rights6 #rovide the focal point and coordination mechanism with terms of reference so that their roles are clear Some li1ely initial tas1s of the focal point might be: Map laws and strategies as a first step in the legal reform 8nsure that other parts of government are aware of the ratification 4other ministries, parliament, etc.6 )lert civil society as a first step towards holding effective consultations on implementation 8stablish an interministerial tas1 force on the +onvention Ma1e contact with other levels of government, such as local or State ,raw up a list of actions and identify which ministries are responsible for which actions 8nsure that a budget is allocated to its wor1 in next year0s wor1plan old a national conference or consultation +ontact media organi9ations to highlight what the *overnment is doing to put the +onvention into practice Translate the +onvention into local languages Fe aware of the +ommittee0s reporting guidelines )nde2endent /onitoring /e*hanis/s@ )rticle CC, paragraph ', on the other hand, focuses on establishing a structure to oversee the implementation of the +onvention. 5t re2uires States to maintain, strengthen, designate or establish one or more independent mechanisms to promote, protect and monitor implementation of the +onvention. 5mportantly, in setting up such mechanisms, States have to ta1e into account Dthe principles relating to the status and functioning of national institutions for protection and promotion of human rightsE, otherwise 1nown as the #aris #rinciples. 5n other words, the mechanisms must meet internationally agreed standards of independence, plurality and operating. %ther institutions relevant to i/2le/entation Courts@ State parties are also re2uired to promote appropriate training on the +onvention for the Budiciary in accordance with article $C. D5n order to help to ensure effective access to )( Bustice for persons with disabilities, States #arties shall promote appropriate training for those wor1ing in the field of administration of Bustice, including police and prison staff.E Training should include training for Budges and lawyers on the rights of persons with disabilities and on the international commitments of States under the +onvention so that cases are dealt with in accordance with international law. 5n addition, courts should be physically accessible to persons with disabilities and their information must also be accessible 4documents in Fraille, websites using screen7readable formats, sign7language interpretation in court and so on6. Parlia/ents@ #arliaments have a crucial role to play in implementing the +onvention, by adopting legislation but also by holding the executive accountable for policies and strategies as well as service delivery. #arliaments also have an important role in the budget process. @hile the +onvention does not refer to parliaments, strengthening them, by ma1ing them accessible and raising awareness among parliamentarians about disability rights and persons with disabilities as 1ey constituents, can have a potentially strong impact on the +onvention0s implementation. Parti*i2ation of *ivil so*iet1 The +onvention also stipulates that *ivil so*iet1, particularly persons with disabilities and their representative organi9ations, should participate fully in all aspects of this monitoring process, Bust as they are to be involved in the development and implementation of policies, programmes and legislation to implement the +onvention, in line with article K. This reference to civil society raises at least two issues: 4a6 +ivil society, in particular persons with disabilities and their representative organi9ations, should be involved in the monitoring process underta1en by the independent monitoring mechanism established under article CC 4and ideally also in the wor1 of focal points and coordination mechanisms6< 4b6 +ivil society itself has a role to play in monitoring the +onvention, independently of the other mechanisms established under article CC. 6#-S P%6)C)(S #ND $&DG(TS 6aw refor/ A duty to reform la$s )rticle K 4$6 4b6 of the +onvention obliges State parties to Dta1e all appropriate measures, including legislation, to modify or abolish existing laws, regulations, customs and practices that constitute discrimination against persons with disabilitiesE. 5n addition, States underta1e to adopt appropriate legislative and administrative measures and, in article K 4$6 4c6, to ta1e into account the protection and promotion of the human rights of persons with disabilities in all policies. +onse2uently, an important step in implementing the +onvention is to review the national legislation and policy framewor1 comprehensive so as to: Modify or abolish discriminatory laws )dopt new legislative measures to ensure future implementation )% ) review of existing laws 4and policies6 is a duty that applies to all State parties. 8ven in States where the +onvention is automatically applicable, there will still be a need to ensure that all relevant domestic law, including regional or customary law, is brought into compliance with the +onvention. 'ngredients for compliance )spects of article K and other provisions in the +onvention identify some of the factors to bear in mind when reviewing and reforming laws: - Ma1e explicit references to the +onvention in domestic legislation so that there is a clear lin1 between the international and national standards, and the various standards in the +onvention become part of national law - Ma1e sure the understanding of DdisabilityE is in line with the social"human rights understanding of the term set out in the +onvention. 5n other words, ensure that DdisabilityE is seen as the result of the interaction between an individual0s DimpairmentE and an unwelcoming environment - ,efine Idiscrimination0 in 1eeping with the +onvention. )rticle ' defines Ddiscrimination on the basis of disabilityE in broad terms. 5t includes distinctions, exclusions or restrictions which have the purpose or the effect of impairing or nullifying the rights of persons with disabilities. This is a very broad understanding of discrimination which re2uires at the very least the prohibition of discrimination on the ground of disability in all areas but also legal measures that prevent discrimination in the first place as well as measures to promote e2uality between persons with and without disabilities - !eview all relevant legislation, not Bust legislation specifically or only related to disability rights. This is important, as many areas of law and policy can have an impact on the enBoyment of the rights of persons with disabilities, even when disabilities or persons with disabilities are not referred to. +onsider the following areas of law: o The constitution o Non7discrimination laws and regulations o +omprehensive disability law and regulations o *uardianship rules o +riminal law o 8ducation laws and policies o ealth laws and policies o Social protection laws and policies o +onstruction laws and regulations o Habour laws and policies o #rivacy laws and policies o 8lection laws and regulations o 5mmigration laws and policies o +hild protection laws and policies o 5ntellectual property laws - 5dentify rights7holders< in particular, ma1e sure that the diversity of disability is respected so that disability legislation does not exclude any Drights7holdersE. +onse2uently, it should be clear that domestic legislation and policy protect persons who have physical disabilities, mental or psychosocial disabilities, intellectual disabilities or sensory disabilities 4such as persons who are deaf, blind or deaf7blind6 - 5dentify duty7bearers, including different levels of government, and private actors and their clear responsibilities. Two aspects deserve to be underlined here: )) o 8nsure the reform covers all levels of government: local, provincial as well as central. )rticle K 4$6 4d6 re2uires States to ensure that public authorities and institutions act in conformity with the +onvention. #ublic authorities include not only central authorities but also provincial and local authorities, which often have important roles in areas such as service delivery for persons with disabilities o 8nsure that the private sector is regulated. )rticle K 4$6 4e6 re2uires States to ta1e all appropriate measures to eliminate discrimination on the basis of disability by any person. organi1ation or private enterprise. #rivate individuals as well as organi9ations"enterprises have duties in relation to persons with disabilities, at the very least, not to discriminate against them - 5dentify the institutional framewor1 for promoting and protecting the rights of persons with disabilities. )rticle CC sets out three mechanisms for implementation and monitoring: focal points in the *overnment, coordination mechanisms in the *overnment and independent mechanisms for the promotion, protection and monitoring of the +onvention. -ther institutions, such as parliamentary committees and the Budiciary, also have roles which legislation can identify - Ma1e provision for secondary legislation, administrative measures and budgetary measures. This is fundamental to the success of law reform. #rimary legislation without directives on how to implement it or without financial or human resources will, in many cases, be difficult if not impossible to implement 5t is relevant to note that higher standards of protection should prevail: if the +onvention0s provisions are wea1er on certain issues than the law currently applicable in the State, then the national standard should of course be applied. ,uring consultations with ,#-s in )ustralia, it was stated that the +onvention potentially establishes a different standard of compliance between State and non7State actors 4i.e., a lower standard for non7State actors6. *iven the extensive role of the private sector in the provision of public goods and services in )ustralia, such as in the development and provision of disability7specific services, aids and appliances, and in the shaping of social attitudes, ,#-s called on the )ustralian *overnment to declare that )ustralia would not limit itself to DfosteringE or DencouragingE or DpromotingE or DencouragingE non7State actors to observe the rights set out in the +onvention, but might in some situations re2uire the private sector to ta1e on responsibilities on a basis e2uivalent to that of State actors. Ensuring effective remedies =or rights to have meaning, effective remedies must be available to redress violations, and legislation should ensure that courts and other tribunals have the authority to receive complaints of non7compliance with rights. This re2uirement is implicit in the +onvention and consistently referred to in the context of the other maBor human rights treaties. 5mportantly, persons with disabilities who suffer discrimination in any field should have access to Bustice. +onse2uently, remedies should cover all human rights3civil and political rights as well as economic, social and cultural rights. The right to a remedy in the event of abuse of rights should be established in law and legislation should identify the means through which remedies are provided. @hen discussing remedies, Budicial remedies are often the first that come to mind. Monist approaches may have advantages in this respect. Fy ratifying the +onvention, a monist State will automatically be bound by its principles and obBectives. 5ndividuals in that State, including persons with disabilities, who have been denied specific rights for example because domestic legislation is wea1 on the matter can invo1e the +onvention in a national courtroom and as1 the Budge to apply the +onvention and decide that the national law is invalid. The Budge does not have to wait for the +onvention to be translated into national law: )+ the treaty has been ratified and its provisions are, in principle, directly applicable. -f course, the monist approach will have an advantage so long as the national Budges are competent and familiar with international standards and human rights. 8ven in States where the +onvention is not directly applicable, ratification of or accession to it encourages the Budiciary to apply domestic law in a manner that is consistent with it. Fy translating the +onvention into national law, dualist States enable their courts to apply the +onvention in their Budgements. owever, it is important to consider other remedies, too. =irst, other remedies might be more appropriate. =or example, problems arising in service delivery might be better dealt with by consumer tribunals or through administrative remedies national human rights commissions, ombudsmen, e2uality commissions, disability commissioners and so on. These can be much easier to access, even without a lawyer, and can be cheaper and less intimidating. Similarly, mediation and arbitration might be preferable in some cases as they can be less confrontational and rely on solutions 4remedies6 that are agreeable to all parties. Habour inspectors and school inspectors might provide a means of holding employers and education professionals accountable and, as a result, provide solutions 4remedies6 that are 2uic1er, cheaper and ultimately more effective than Budicial remedies. Second, other remedies might be shorter and more certain. 5n some countries, the Budiciary is dysfunctional or insufficiently resourced to ensure access to Bustice. 5n such situations, individuals might have little faith in the court system and be put off from filing a complaint for the denial of their rights. !emedies which are easier to access might provide alternatives to processes uncertain to bring relief. Third, traditional forms of Bustice might be preferable, particularly in poor, rural areas. 5n many countries there is a lac1 of tribunals and courts in the areas outside the capital district and main urban centres. This situation is particularly critical for persons with disabilities living in remote areas. #overty or extreme poverty can affect these areas, ma1ing it impossible to move around freely and reach urban areas for legal or other support. Nevertheless, for persons with disabilities, traditional systems are not always a panacea because of stigma and preBudice. ,ecisions could then reflect traditional approaches that isolate persons with disabilities or give them une2ual treatment. #rogrammes to raise awareness should therefore involve traditional authorities, including elders and community leaders, integrating elements of non7discrimination and participation in local remedies. Relevant actors @ho should be involved in law review and reformA This is a non7exhaustive list: - #arliamentary committees, such as human rights committees - Ministry of Bustice or attorney7general0s office - Sectoral ministries, such as social affairs, health, education, labour, interior, etc. - =ocal points and coordination mechanisms - National human rights institution, e2uality commission, ombudsman, etc. - -rgani9ations of persons with disabilities - -ther civil society organi9ations, such as human rights N*-s, development N*-s, etc. - United Nations agencies, regional human rights organi9ations, such as the +ouncil of 8urope, the )frican +ommission, 5nter7)merican +ommission, etc. - 5nternational experts on the +onvention - )cademics - 5nternational development agencies )* Process 8ach State will have its own process for underta1ing law and policy reform. owever, following certain principles will ensure that the process is inclusive of persons with disabilities and other relevant actors and is also effective. 5mportantly, article K 4C6 stresses that States should consult and actively involve persons with disabilities, through their representative organi9ations, in the development of legislation and policies to implement the +onvention and in other decision7ma1ing processes concerning them. Their participation should therefore underpin the entire law and policy reform. Some ste2s in law review and reform are: - 5dentify all laws directly or indirectly relevant to the +onvention 4see next section6 - !eview laws for consistency with the +onvention - Underta1e a national interest analysis, including an open consultation - old a public hearing in parliament - )ssess the types of legislation needed, e.g., comprehensive disability law and"or non7discrimination law and"or sectoral laws including disability rights provisions - ,raft amendments to legislation - ,ebate amendments in parliament - +onsider drafting a national human rights action plan for implementation - )dopt secondary legislation"regulations - 8nsure funding of new provisions - 5nclude process and amendments in the initial report to the +ommittee on the !ights of #ersons with ,isabilities. Poli*ies Haws translate international commitments into the domestic legal framewor1 and often lead to real improvements in the human rights situation on the ground. owever, in many cases, policies can be important to accelerate implementation. @hile laws set out rights and obligations, policies can set out steps to achieve time7bound goals so that obligations are met. #olicies are particularly relevant to the progressive reali9ation of economic, social and cultural rights. owever, policies are also relevant to civil and political rights 4for example, improving the administration of Bustice6. Many policies are relevant to the +onvention, such as: The national development strategy 4or poverty reduction strategy6 Sectoral development strategies 4health, education, social protection, vulnerable communities, etc.6 National human rights strategy and action plan ,isability rights strategy and action plan ,isaster preparedness and response plan #olicies are not a one7off< they have a lifespan: Diagnosis@ ) diagnosis is re2uired to identify strengths, wea1nesses, opportunities and threats. =or example, a national development strategy should be analysed to identify whether development programmes ta1e into account the rights of persons with disabilities, whether development is accessible to them, whether development ), programmes unintentionally create additional barriers 4e.g., by building inaccessible schools6 and so on. ?or/ulation@ -n the basis of the diagnosis, the policy should be formulated. )chievable benchmar1s and indicators should be identified. The formulation should be such that there as many connections as possible with specific provisions of the +onvention. )n education policy should refer to article 'K so that it explicitly recogni9es the right to inclusive education and provides for training for teachers on inclusion as well as specific education services to persons with disabilities such as support in the classroom or materials in Fraille and the teaching of sign language. #ersons with disabilities and their representative organi9ations should be involved at all stages of the policy formulation. #do2tion@ #olicyma1ers should adopt the policy and publish it. Transparency is very important. 5t enables civil society, including persons with disabilities, to identify the extent to which consultative processes have actually influenced the policy, and it encourages implementation because everyone is aware of it and can support it. )/2le/entation@ The policy should be implemented according to the strategies and action plan. 5mplementation should respect the +onvention0s principles: it should avoid discrimination 4include persons with disabilities, not create new barriers, respect the diversity of disability, e.g., physical, sensory, mental and intellectual6, it should be as participatory as possible< it should be transparent and accountable< it should promote e2uality between men and women and so on. (valuation. 5mplementation should be reviewed to examine whether benchmar1s have been met. 8valuation is important in and of itself to see what wor1ed and what did not wor1 so that the policy can be fine7tuned. Moreover, evaluation can feed into the State0s reporting process to the +ommittee. 5n many ways, this corresponds to what is 1nown as a human rights7based approach. This approach has three main elements: 5t stresses participation, non7discrimination, transparency and accountability. The +onvention reinforces these principles and adds others 4see art. C6, such as inclusion, respect for autonomy, accessibility, respect for difference and respect for the evolving capacities of children. 5t explicitly lin1s policies to meeting human rights standards 4e.g., promoting inclusive education, free and compulsory primary education6. 5ts aim is that policies should strengthen the capacity of rights7holders to claim their rights and duty7bearers to meet their obligations. The World Report on Disability9s re*o//endations on national strategies and 2lans of a*tion The "orld Report on ,isability J ma1es nine recommendations. They are reproduced here to illustrate how the +onvention could be implemented around the world. owever, they are not the only steps that States should ta1e to implement the +onvention. Some recommendations are relevant to law and policy reform. !ecommendation C: )dopt a national disability strategy and plan of action ?@A A national disability strategy sets out a consolidated and comprehensive long4 term vision for improving the $ell4being of persons $ith disabilities and should cover * @orld ealth -rgani9ation and @orld Fan1, "orld Report on ,isability 4*eneva, '($$6. )9 both mainstream policy and programme areas and specific services for persons $ith disabilities9 The development. implementation. and monitoring of a national strategy should bring together the full range of sectors and stakeholders ?@A9 The strategy and action plan should be informed by a situation analysis. taking into account such factors as the prevalence of disability. needs for services. social and economic status. effectiveness and gaps in current services. and environmental and social barriers9 ?@A The plan of action operationali1es the strategy in the short and medium terms by laying out concrete actions and timelines for implementation. defining targets. assigning responsible agencies. and planning and allocating needed resources9 (echanisms are needed to make it clear $here the responsibility lies for coordination. decision4making. regular monitoring and reporting. and control of resources9 !ecommendation K: 5nvolve people with disabilities People $ith disabilities often have uni-ue insights about their disability and their situation9 'n formulating and implementing policies. la$s. and services. people $ith disabilities should be consulted and actively involved9 ,isabled people<s organi1ations may need capacity4building and support to empo$er people $ith disabilities and advocate for their needs9 ?@A People $ith disabilities are entitled to control over their lives and therefore need to be consulted on issues that concern them directly B $hether in health. education. rehabilitation. or community living9 Supported decision4making may be necessary to enable some individuals to community their needs and choices9 $udgetar1 /easures in the *onte3t of law and 2oli*1 refor/ Fudgetary measures are essential aspects of most laws and policies. @hile some laws and policies3such as those prohibiting certain conduct, e.g., discrimination or torture3do not re2uire funding, most laws and policies related to human rights do, particularly in relation to economic, social and cultural rights. Qey factors to bear in mind are: Some provisions do not cost anything to implement 5mplementing some provisions can save money 4e.g., universal design saves money on retrofitting later6 Some provisions can be implemented by using existing funding differently 4funding inclusive education rather than segregated education could simply involve reallocating budgets6 Some provisions can be implemented by using existing funds better 4here, budget planning that is transparent and ensures accountability is important6 Some provisions can be implemented through the dedication of relatively few additional funds 4awareness7raising through public campaigns is relatively inexpensive but can be very effective6 5mplementing some provisions re2uires additional funds 4for example, rehabilitation services, home care services and so on6. +0 State duty to provide budgets ,ecision ma1ers must consider whether laws and policies have financial implications and then they must foresee ade2uate budgets. )s noted above, before adopting laws and policies, parliament and the executive should explicitly indicate the sums that will be provided for implementation. @hen budgets 4and human resources6 are made available, other measures have a much higher li1elihood of success. The +onvention0s 1ey provision on funding is article K 4'6 4general obligations6: "ith regard to economic. social and cultural rights. each State Party undertakes to take measures to the ma3imum of its available resources and. $here needed. $ithin the frame$ork of international cooperation. $ith a vie$ to achieving progressively the full reali1ation of these rights. $ithout pre/udice to those obligations contained in the present +onvention that are immediately applicable according to international la$9 This obligation is often misunderstood. 5t does not mean that aspects of economic, social and cultural rights that re2uire resources"funding can be put off indefinitely. 5ndeed, the +ommittee on 8conomic, Social and +ultural !ights has stated that economic, social and cultural rights comprise core obligations which must be implemented immediately, irrespective of the costs involved. -ne example is the duty to provide affordable essential medicines as part of the right to health. owever, where resources are re2uired and progressive reali9ation applies: The State must ta1e steps immediately to draw up the budget and a time7bound action plan Time7bound benchmar1s should be set so as to guide progressive implementation 5ndicators should be identified to measure whether those benchmar1s have been met or not =unding should be committed so that the measures necessary to meet those benchmar1s can be ta1en The action plan should be monitored, using the indicators, to assess whether implementation is on trac1 or not. 5n the light of the difficulties that poorer States have in implementing the +onvention 4as a result of resource re2uirements6, article K 4'6 as well as article C' highlight international cooperation as a means of helping States. )rticle C' 4$6 4d6 re2uires States to underta1e appropriate and effective international cooperation measures including by providing. as appropriate. technical and economic assistance. ,isability rights budgeting 5ncreasing attention is being placed on Dhuman rights budgetingE and related issues such as gender budgeting. The experience from these areas will be important to guide budgeting for the +onvention. The following 2uestions can help to decide whether budgets are aligned with laws and policies to implement it: . ow are national development policies aligned with the +onventionA . @hat is the alignment between policy and budget processesA . To what extent are budgets aligned with the +onvention0s priorities, standards and goals, including their desired and real impact 4tied to the progressive reali9ation of rights and maximum available resources6A . To what extent are budgets aligned with both the +onvention and nationally set prioritiesA +1 . To what extent are budgets aligned with inclusive, transparent and accountable processesA . To what extent does the budget process reflect the differing roles of rights7holders, civil society and the State as well as the dynamic relationship among themA -ne problem facing the alignment of budgeting with law and policy processes is the asymmetry of ownership. =or example, the asymmetries between ministries of finance, ministries of planning, sectoral ministries, parliament and civil society can have an impact on the ways in which budgets are aligned with policies as well as the extent to which policies and budgets incorporate human rights principles 4e.g., of the extent to which civil society is involved6. The World Report on Disability9s re*o//endation on funding The "orld Report on ,isability provides some illustrations of some funding measures that could be relevant as well as the areas where funding is needed. !ecommendation .: #rovide ade2uate funding and improve affordability ?@A Ade-uate and sustainable funding of publicly provided services is needed to ensure that they reach all targeted beneficiaries and that good -uality services are provided9 +ontracting out service provision. fostering public4private partnerships. ?@A and devolving budget to persons $ith disabilities for consumer4directed care can contribute to better service provision9 ,uring the development of the national disability strategy and related action plans. the affordability and sustainability of the proposed measures should be consider and ade-uately funded9 ?@A To improve the affordability of goods and services for people $ith disabilities and to offset the e3tra costs associated $ith disability. ?@A consideration should be given to e3panding health and social insurance coverage. ?@A ensuring that poor and vulnerable people $ith disabilities benefit from poverty4targeted safety net programmes. and introducing fee4$avers. reduced transport fares and reduced import ta3es and duties on assistive technologies9 )NC6&S)>( S(R>)C(S Servi*e deliver1 as a *o/2le/ent to law 2oli*1 and budget refor/ Haw and policy are very important elements in ensuring that the +onvention is translated into the national legal and political order. owever, they should be accompanied by practical measures to turn standards into reality for persons with disabilities. Through service delivery, State and non7State service providers can ensure that persons with disabilities have access to the facilities, goods and services that they are entitled to, according to the +onvention. Relevant se*tors Service delivery relates to many of the +onvention0s articles, including: - Situations of ris1 and humanitarian emergencies 4art. $$6 - Supported decision7ma1ing 4art. $'6 +2 - )dministration of Bustice 4art. $C6 - Support for victims of violence and abuse 4art. $.6 - Support for independent living 4art. $%6 - =acilitation of access to mobility aids, devices, technologies and live assistance 4art. '(6 - #rovision of information in accessible formats 4art. '$6 - #rovision of reproductive health services 4art. 'C6 - Support, including individuali9ed support, within the general education system 4art. 'K6 - #rovision of health services and health care 4art. '/6 - #rovision of habilitation and rehabilitation services and programmes 4art. '.6 - Support for inclusive employment and vocational training 4art. 'J6 - #rovision of access to services, devices and other assistance to ensure an ade2uate standard of living and social protection 4art. '?6 - Support for political participation, including voting 4art. '%6 - )ccess to recreational, tourism, leisure and sporting activities 4art. C(6 Servi*e deliver1 in the light of the Convention Service delivery existed well before the adoption of the +onvention. owever, it needs to comply with the principles and standards laid down in the +onvention if it is to contribute to the +onvention0s effective implementation. This means that service delivery must meet the general principles in article C of the +onvention: for example, services should not discriminate on the basis of disability, they should respect the e2uality between men and women, promote individual autonomy as well as ensure the participation and inclusion of persons with disabilities. Service delivery which reinforces the segregation of persons with disabilities would, on the face of it, not be in compliance with the +onvention. 5n addition, service delivery should comply with the specific standards in the +onvention0s substantive articles. =or example, under article '/ on the right to health, health professionals should provide health care to persons with disabilities on an e2ual basis with others, including on the basis of free and informed consent. =orced treatment for example, where this occurs on the basis of disability, would not be in compliance with the +onvention. #*hieving in*lusive servi*es for 2ersons with disabilities )chieving inclusive and non7discriminatory services for persons with disabilities in compliance with the +onvention does not necessarily mean that the same services are necessary for everyone at all times. )s with other aspects of the +onvention, service delivery re2uires a two7trac1 approach. )t times, the +onvention re2uires access to mainstream services on an e2ual basis with others. )t other times, specific support might be needed for persons with disabilities so that they can enBoy the same rights as persons without disabilities. Three forms of services are needed to implement the +onvention: T 5ainstrea/ servi*es: these refer to services that are used by and designed for the whole population. 5n such cases, it is important that the services are inclusive of and accessible to persons with disabilities. 5ndeed, accessibility is crucial: by ensuring that facilities, goods, services, transport, information and technology are accessible, many persons with disabilities can enBoy their rights and live independently in the community in the same way as persons without disabilities. Some examples of mainstream services are: > 5nclusive education +( > #rimary health care made fully accessible 4information, communication and physical environment6 T Su22ort servi*es: these refer to services that contribute directly to overcoming barriers facing persons with disabilities and are meant to strengthen their participation in mainstream society. 5n other words, while access to mainstream services ensures that the same services are accessible to all persons with or without a disability, access to support services re2uires services tailored to persons with disabilities 4but not persons without disabilities6. 8xamples include: > #rovision of wheelchairs and mobility aids to enable a person with a mobility impairment to access the community > #ersonal assistance to support someone in his or her daily tas1s > Support for legal decision7ma1ing to help persons with disabilities enter into contracts, write wills, etc. on an e2ual basis with others T S2e*ifi* servi*es: these services either prepare persons with disabilities for inclusion into mainstream society or at times replace mainstream or support services if the person cannot be fully accommodated in the community. 5n such cases, the services should always target inclusion and not isolation. =or example: > ,ay care for people with severe intellectual disabilities #*tors involved in servi*e deliver1 Many actors are involved in delivering services3mainstream, support or speciali9ed3to persons with disabilities: - *overnment service providers, including at the local or municipal level - Those wor1ing in the administration of Bustice, including lawyers, Budges, prison staff, the police, public interest litigators, etc. - #rivate enterprise service providers - Non7governmental service providers, e.g., not7for7profit organi9ations"N*-s - The media - ealth professionals - 8ducation professionals - Habour inspectors - Trade unions - 8mployers0 associations The role of the State =or law and policy reform, the State clearly has the lead role, but in service delivery the private sector, national and international civil society as well as the State are involved. )t the level of the State, the central *overnment has a regulatory role and also a service provision role, but other levels of government, particularly municipal"local, have a role to play, too. @hat then is the role of the StateA The duty of the State is paramount: uman rights law identifies the State as the primary duty7bearer to promote, protect and ensure the implementation of the +onvention. The State must: $. ?ulfil its duties as 2ri/ar1 dut14bearer@ The duties under the +onvention fall first and foremost on the State. The entire +onvention establishes duties on the State to promote, protect and ensure the rights of persons with disabilities. This does not mean that the State must provide services itself. =or this reason, the +onvention uses terms such as the State underta1es Dto promoteE or Dto encourageE or Dto +% facilitateE the provision of services. owever, at times, the State must provide services3for example, in outlying regions or unprofitable areas where private business might not be active or which the not7for7profit sector might be unable to reach. '. Regulate the 2rivate se*tor: @here private actors supply services, the State need not duplicate these services, however, it still has a duty to regulate the private organi9ations that supply services. The +onvention recogni9es this, especially in article K 4$6: States Parties undertake @ 7e8 to take all appropriate measures to eliminate discrimination on the basis of disability by any person. organi1ation or private enterprise9 The broad understanding of DdiscriminationE in the +onvention means that the State duty to regulate the private sector 4including private individuals6 goes beyond regulating only direct discrimination. 5t should also regulate indirect discrimination 4for example, where persons with disabilities are effectively excluded because facilities are inaccessible or relevant services are not offered6. The +onvention also refers to specific areas where the State should regulate the private sector: #**essibilit1 4art. %6: States Parties shall also take appropriate measures to: Ensure that private entities that offer facilities and services $hich are open or provided to the public take into account all aspects of accessibility for persons $ith disabilitiesC ?reedo/ of e32ression and a**ess to infor/ation 4art. '$6: States Parties shall take all appropriate measures to ensure that persons $ith disabilities can e3ercise the right to freedom of e3pression and opinion by urging private entities that provide services to the general public. including through the 'nternet. to provide information and services in accessible and usable formats for persons $ith disabilitiesC 'ealth 4art. '/6: States Parties shall re-uire health professionals to provide care of the same -uality to persons $ith disabilities as to others. including on the basis of free and informed consent by. inter alia. raising a$areness of the human rights. dignity. autonomy and needs of persons $ith disabilities through training and the promulgation of ethical standards for public and private health careC (/2lo1/ent 4art. 'J6: States Parties shall promote the employment of persons $ith disabilities in the private sector through appropriate policies and measures. $hich may include affirmative action programmes. incentives and other measures. C. Regulate different levels of govern/ent@ The central *overnment must also regulate its own service provision and that of other levels of government. )rticle K 4$6 4d6 re2uires the State to ensure that public authorities and institutions act in conformity $ith the present +onvention. #ublic authorities should be understood in broad terms to include authorities across different ministries in the central *overnment but also, as noted previously, to all parts of the State, including the provincial and local levels. +) The World Report on Disability9s re*o//endations on servi*es The Report includes two recommendations relevant to service delivery: !ecommendation $: 8nable access to all mainstream systems and services People $ith disabilities have ordinary needs B for health and $ell4being. for economic and social security. to learn and develop skills ?@A9 These needs can and should be met in mainstream programmes and services9 (ainstreaming not only fulfils the human rights of persons $ith disabilities. it is also more effective9 (ainstreaming is the process by $hich Governments and other stakeholders ensure that persons $ith disabilities participate e-ually $ith others in any activity and service intended for the general public. such as education. health. employment. and social services9 5arriers to participation need to be identified and removed. possibly re-uiring changes to la$s. policies. institutions. and environments9 (ainstreaming re-uires a commitment at all levels. and needs to be considered across all sectors and built into ne$ and e3isting legislation. standards. policies. strategies. and plans9 Adopting universal design and implementing reasonable accommodations are t$o important strategies9 (ainstreaming also re-uires effective planning. ade-uate human resources. and sufficient financial investment B accompanied by specific measures such as targeted programmes and services to ensure that the diverse needs of people $ith disabilities are ade-uately met9 !ecommendation ': 5nvest in specific programmes and services for people with disabilities 'n addition to mainstream services. some people $ith disabilities may re-uire access to specific measures. such as rehabilitation. support services. or training9 Rehabilitation B including assistive technologies such as $heelchairs. hearing aids ?@A B improves functioning and independence9 A range of $ell4regulated assistance and support services in the community can meet needs for care. enabling people to live independently and to participate in the economic. social. and cultural lives of their communities9 =ocational rehabilitation and training can open labour market opportunities9 "hile there is a need for more services. there is also a need for better. more accessible. fle3ible. integrated. and $ell4coordinated multidisciplinary services. particularly at times of transition such as bet$een child and adult services9 E3isting programmes and services need to be revie$ed to assess their performance and make changes to improve their coverage. effectiveness. and efficiency9 The changes should be based on sound evidence. appropriate in terms of culture and other local conte3ts. and tested locally9 #-#R(N(SS4R#)S)NG #ND TR#)N)NG )wareness7raising, including training, is another important implementation measure. )s disability is the result of the interaction between impairment and an unwelcoming environment3environment refers not only to the physical environment but also to unwelcoming attitudes and negative or inaccessible information in society3awareness7 raising and training about the +onvention are essential if the environment is to be changed. ++ #wareness4raising )rticle ? is specifically devoted to awareness7raising, setting out a whole range of measures that State parties should ta1e, in particular to : !aise awareness throughout society, including the family, to foster respect for rights +ombat stereotypes, preBudices and harmful practices #romote awareness of the capabilities and contributions of persons with disabilities. This can be done through public awareness campaigns, the education system, the media and awareness7training programmes. -ther articles re2uire State parties to provide information to persons with disabilities, which is also a form of awareness7raising. =or example, States underta1e to: #rovide accessible information to persons with disabilities about mobility aids, devices and assistive technologies as well as other forms of assistance, support services and facilities 4art. K6< #rovide to persons with disabilities information and education on how to avoid, recogni9e and report instances of exploitation, violence and abuse 4art. $.6< 8nsure access to age7appropriate information, reproductive and family planning education 4art. 'C6< #rovide early and comprehensive information to children with disabilities and their families to ensure that children with disabilities have e2ual rights with respect to family life 4art. 'C6. Training )rticle K underlines the importance of training. The State is re2uired to 2ro/ote the training of professionals and staff wor1ing with persons with disabilities in relation to the rights in the +onvention so as to provide better assistance and services. The +onvention promotes training in the broader community, for instance professionals as well as of persons with disabilities. =or the former, it promotes: Training for sta1eholders on accessibility issues 4art. %6 Training for those wor1ing in the field of administration of Bustice, including police and prison staff 4art. $C6 Training in mobility s1ills to specialist staff wor1ing with persons with disabilities 4art. '(6 Training to professionals and staff who wor1 at all levels of education 4including disability awareness and the use of appropriate augmentative and alternative modes of communication, educational techni2ues and materials to support persons with disabilities6 4art. 'K6 Training of health professionals and the promulgation of ethical standards for public and private health care 4art. '/6 Training for professionals and staff wor1ing in habilitation and rehabilitation services 4art. '.6 Training through international cooperation 4art. C'6. Training for the latter3beyond the right to education itself3is referred to as follows: +* Training in mobility s1ills 4art. '(6 Nocational and continuing training 4arts. 'K and 'J6 Training to ensure access to assistance by persons with disabilities and their families living in situations of poverty 4art. '?6 Training so that persons with disabilities have an opportunity to organi9e, develop and participate in disability7specific sporting and recreational activities 4art. C(6. The World Report on Disability9s re*o//endations on awareness4raising The Report identifies two recommendations which are relevant to implementing the +onvention0s provisions on awareness7raising and on training. !ecommendation /: 5mprove human resource capacity ?@A Human resource capacity can be improved through effective education. training. and recruitment9 A revie$ of the kno$ledge and competencies of staff in relevant areas can provide a starting point for developing appropriate measures to improve them9 Relevant training on disability. $hich incorporates human rights principles. should be integrated into current curricula and accreditation programmes9 'n4service training should be provided to current practitioners providing and managing services9 0or e3ample. strengthening the capacity of primary health4care $orkers. and ensuring availability of specialist staff $here re-uired. contribute to effective and affordable health care for people $ith disabilities9 (any countries have too fe$ staff $orking in fields such as rehabilitation ?@A9 ,eveloping standards in training for different types and levels of ?@A personnel can assist in addressing resource gaps9 ?@A (easures to improve staff retention may be relevant in some settings and sectors9 !ecommendation J: 5ncrease public awareness and understanding of disability (utual respect and understanding contribute to an inclusive society9 Therefore it is vital to improve public understanding of disability. confront negative perceptions. and represent disability fairly9 ?@A +ollecting information on kno$ledge. beliefs and attitudes about disability can help identify gaps in public understanding that can be bridged through education and public information9 Governments. voluntary organi1ations. and professional associations should consider running social marketing campaigns that change attitudes on stigmati1ed issues such as H'=. mental illness. and leprosy9 'nvolving the media is vital to the success of these campaigns and to ensuring the dissemination of positive stories about persons $ith disabilities and their families9 R(S(#RC' #ND D(>(6%P5(NT !esearch has had an important impact on the lives of persons with disabilities. Technological innovations based on the principle of universal design are helping them lead independent lives in the community. Statistics and data collection are helping the State and others to understand the barriers facing them so that implementation measures can be better targeted. The +onvention refers to research7related measures in several areas: +, &niversall1 designed goods servi*es e7ui2/ent and fa*ilities@ article K re2uires States to underta1e or promote research and development of universally designed goods, services, e2uipment and facilities, which should re2uire the minimum possible adaptation and the least cost to meet the specific needs of a person with disabilities. The obligation extends to promoting the availability and use of universally designed goods and services and the promotion of universal design through the development of standards and guidelines< New te*hnologies in*luding infor/ation and *o//uni*ation te*hnologies /obilit1 aids devi*es and assistive te*hnologies@ article K also re2uires States to underta1e or promote research and development of new technologies and to promote their availability and use< ?or 2oli*1 for/ulation@ article C$ 4statistics and data collection6 re2uires States to collect appropriate information, including statistical and research data, to enable them to formulate and implement policies to give effect to the +onvention. =inally, at the international level, State parties collectively have a duty to facilitate cooperation in research and access to scientific and technical 1nowledge 4art. C'6. The World Report on Disability9s re*o//endations on resear*h The "orld Report on ,isability includes two relevant recommendations in this regard: !ecommendation ?: 5mprove disability data collection 'nternationally. methodologies for collecting data on people $ith disabilities need to be developed. tested cross4culturally. and applied consistently9 ,ata need to be standardi1ed and internationally comparable for benchmarking and monitoring progress on disability policies. and for the implementation of the ?+onventionA nationally and internationally9 *ationally. disability should be included in data collection9 )niform definitions of disability. based on the ?'nternational +lassification of 0unctioningA. can allo$ for internationally comparable data9 ?@A As a first step. national population census data can be collected in line $ith recommendations from the )nited *ations "ashington Group on ,isability and the )nited *ations Statistical +ommission9 A cost4effective and efficient approach is to include disability -uestions B or a disability module B in e3isting sample surveys ?@ A9 ,ata need to be disaggregated by population features ?@A to uncover patterns. trends. and information about subgroups of persons $ith disabilities9 ,edicated disability surveys can also gain more comprehensive information on disability characteristics. such as prevalence. health conditions associated $ith disability. and use of and need for services including rehabilitation9 !ecommendation %: Strengthen and support research on disability Research is essential for increasing public understanding about disability issues. informing disability policy and programmes. and efficiently allocating resources9 ?The "orld Report on ,isabilityA recommends several areas for research on disability including: the impact of environmental factors 7policies. physical environment. attitudes8 on disability and ho$ to measure itC the -uality of life and $ell4being of people $ith disabilitiesC ?@A $hat $orks in overcoming ?barriersA in different conte3tsC ?@A9 +9 ?@A A critical mass of trained researchers on disability needs to be built9 Research skills should be strengthened in a range of disciplines. including epidemiology. disability studies. health and rehabilitation. ?@A education. economics. sociology. and public policy9 'nternational learning and research opportunities. linking universities in developing countries $ith those in high4income and middle4income countries. can also be useful9 5%N)T%R)NG @hile not always thought of as an implementation measure, monitoring too has a 1ey role. Through monitoring, it is possible to see which implementation measures have wor1ed and which have not. 5t helps to refine laws and policies and other implementation measures, and ensure that budgets are used optimally. 5t also helps to uncover human rights breaches so that remedies can be granted to victims and, it is hoped, further breaches prevented. #aramount is the process of State parties reporting to the +ommittee on the !ights of #ersons with ,isabilities. +ivil society and national human rights institutions can also provide information to the +ommittee through what are called alternative reports. Module J examines State reports and alternative reports in detail. 5n addition to monitoring at the international level, monitoring can also be national. )ccording to the -+! (anual on Human Rights (onitoring, ? Dhuman rights monitoringE is a broad term describing the active collection, verification, analysis and use of information to assess and address human rights concerns. Monitoring ta1es place over a protracted period of time. The term DmonitoringE also includes the collection, verification and use of information to address human rights problems raised in relation to laws, policies, programmes and budgets and other interventions. Several aspects of this definition are worth highlighting: . Monitoring is a process: from collection to verification to the use of information. . 5nformation collection can relate to many situations: one7off situations, such as incidents or events< or ongoing situations, such as service delivery in psychiatric hospitals, schools, an inaccessible wor1place and so on. . Monitoring is not Bust about situations, but also about laws, policies and budgets. *iven that the ratification of a human rights treaty re2uires changes to laws and policies, it is important that monitoring also includes the review of laws, policies and strategies as well as budgets to identify the extent to which they reflect the norms and standards in the treaty. . Monitoring involves several actors. uman rights monitoring concerns both the situation of rights and rights7holders, as well as the respect for duties and the situation of duty7bearers. +onse2uently, monitoring should involve not only persons with disabilities whose rights might be affected, but also *overnment actors 4staff at ministries, local authorities and others6 so that: 4a6 the level of respect for duties is understood< and 4b6 all sides of the story are examined and information is verified. . Monitoring has a purpose. The information gathered through monitoring should be used to improve the respect for rights and duties. 5f there has been a breach of a right, the information should see1 to provide solutions and remedies for the victim and help *overnment actors fulfil these rights in the future. . Monitoring can occur at different stages. Monitoring generally starts with the collection of primary information or information direct from the source. owever, , #rofessional Training Series No. J"!ev.$ 4United Nations publication, forthcoming6. *0 monitoring can also occur through the use of secondary sources. =or example, the +ommittee on the !ights of #ersons with ,isabilities underta1es monitoring on the basis of State parties0 periodic reports and the alternative reports submitted by civil society and national human rights institutions. Monitoring focuses mainly on: . 6aws 2oli*ies budgets 2rogra//es. The +onvention re2uires the review and, generally, the reform of a range of laws, policies and strategies: for example, ensuring that anti7discrimination laws protect against discrimination on the basis of disability and that other laws, such as those on health, education or construction, do not discriminate on the basis of disability. 5n addition, given that the +onvention re2uires the appropriate allocation of resources, budgets can also be monitored. 5n addition, programmes and strategies, such as national development strategies or strategies related to humanitarian emergencies, have great potential to affect the rights of persons with disabilities, depending on the extent to which they mainstream disabilities. )ll of these may be monitored. . )n*idents and events can lead to individual violations of human rights and it is important that these should be monitored. Such data might come directly from victims. ,ata might also come from media accounts and other sources, including legal proceedings. This is a traditional focus of human rights monitoring. . Situations and 2la*es. )t times, there are particular situations, such as service provision, or places, such as institutions, which could give rise to human rights problems. The level of accessibility of schools might be monitored to identify the principal barriers to inclusive education. Surveys of employers might identify the issues that need to be addressed to ensure inclusive employment and the provision of reasonable accommodation in the wor1place. 8ven where allegations of individual violations have not emerged 4events6, monitoring might uncover violations or help prevent them. )nyone can monitor the situation of the rights of persons with disabilities. owever, certain actors have particular responsibilities: States. )s noted above, the State has an obligation to report to the +ommittee on the measures it has adopted to implement the +onvention. N'R)s. Under article CC, N!5s have a role to promote, protect and monitor the provisions of the +onvention. This function is discussed in greater detail in module .. ere, it is important to underline that these institutions have to conform to the #aris #rinciples, which means that they have to have competency to submit reports to the *overnment, parliament and others on issues such as: conformity of laws to human rights standards< any situation where a human rights violation has occurred< the national human rights situation< its opinion on *overnment reactions to reports on the human rights situation. National preventive mechanisms under the -ptional #rotocol to the +onvention against Torture should consider including the rights of persons with disabilities within the scope of their monitoring activities. Civil so*iet1BDP%s. )ccording to article CC 4C6, civil society, and particularly persons with disabilities and their representative organi9ations, shall be involved and participate fully in monitoring the +onvention. This means that they should be involved in the monitoring organi9ed, for instance, by the independent mechanism or by the *overnment. 5n addition, civil society, particularly persons with disabilities and their representative organi9ation, should, in its own capacity, monitor and defend the rights of persons with disabilities. %ther *ivil so*iet1 a*tors. )rticle CC 4C6 refers to civil society generally. +ivil society organi9ations that are not ,#-s also have a role in monitoring. =or example, when *1 monitoring the broader human rights situation, human rights N*-s should ensure that they also monitor the rights of persons with disabilities. ) failure to do so could result in the exclusion of persons with disabilities from the post7monitoring phase as solutions and remedies are identified and implemented. )ntergovern/ental organi<ations. Some intergovernmental organi9ations have a monitoring role. This is particularly the case for stand7alone -+! field offices and human rights components of peace missions. Several field presences, such as those in Timor7Heste and Sierra Heone, are actively involved in monitoring aspects of the +onvention. 5n addition, regional organi9ations, such as -ffice for ,emocratic 5nstitutions and uman !ights of the -rgani9ation for Security and +o7operation in 8urope, monitor elections and it is important to ensure that these activities also ta1e into account the rights of persons with disabilities. )s set out in article C$ on data collection and statistics, by collecting appropriate information, including statistical and research data, States are enabled to formulate and implement policies to give effect to the +onvention. The +onvention0s implementation can be stepped up through evidence7based policy implementation, based on domestic monitoring and reporting, as well as on reports to the +ommittee and the +ommittee0s concluding observations. *2 5%D&6( C D)SCR)5)N#T)%N %N T'( $#S)S %? D)S#$)6)TY )ntrodu*tion ,iscrimination refers to the act of treating someone or something differently and is not necessarily negative. To say that someone is discriminating can mean that the person has good taste or Budgement. owever, discrimination can also mean that someone treats certain people unfairly because of that person0s characteristics. 5t is this second meaning of discrimination which concerns human rights law. The Universal ,eclaration of uman !ights recogni9es that: Everyone is entitled to all the rights and freedoms set forth in this ,eclaration. $ithout distinction of any kind. such as race. colour. se3. language. religion. political or other opinion. national or social origin. property. birth or other status9 This simple statement has been repeated in national laws and constitutions and regional and United Nations treaties. Fut what does it mean in practiceA ,iscrimination can occur in many forms: very open, laid down in law or hidden. 5t is often the result of preBudices, economic and social disparities, and religious and cultural misconceptions. 5f we are to combat discrimination, we have to combat these negative attitudes. Dis*ri/ination on the basis of disabilit1 today affects a large portion of the world0s population. 5t is one of the main problems persons with, or associated with, disabilities face. 5t manifests itself in different forms and can have disastrous effects on their lives and, by extension, on the rest of society. )ccording to the +ommittee on 8conomic, Social and +ultural !ights, in its general comment No. / 4$%%K6: ROS dis*ri/ination against 2ersons with disabilities RhasS a long history and Rta1esS various forms. They range from invidious discrimination, such as the denial of educational opportunities, to more DsubtleE forms of discrimination such as segregation and isolation achieved through the imposition of physical and social barriers. ROS Through neglect, ignorance, preBudice and false assumptions, as well as through exclusion, distinction or separation, persons with disabilities have very often been prevented from exercising their economic, social or cultural rights on an e2ual basis with persons without disabilities. The effe*ts of disabilit14based dis*ri/ination have been 2arti*ularl1 severe in the fields of edu*ation e/2lo1/ent housing trans2ort *ultural life and a**ess to 2ubli* 2la*es and servi*es. 4emphasis added6 @hile the general comment focused specifically on economic, social and cultural rights, the same is true for civil and political rights. =or example, in many countries, some persons with disabilities are still denied the right to vote as well as legal capacity to marry or enter into contracts to buy or sell property. 5t is difficult to discuss discrimination without also considering the concept of e2uality. 5n human rights law, non7discrimination and e2uality are really two sides of the same coin. Fy combating discrimination, we hope to combat the underlying factors in society that lead to ine2uality. )nd if deal with the factors leading to ine2uality, we hope to prevent discrimination. *( owever, the relationship between non7discrimination and e2uality raises confusion over what is meant by De2ualityE. @hen we refer to the term De2ualityE, we often thin1 of things that are the same, identical or e2uivalent. owever, when we tal1 about e2uality in the context of human rights, we are not necessarily saying that all people are identical or the same. !ather, we are saying that everyone has the same rights. 5n order to ensure that everyone has the same rights, two people might at times have to be treated differently because of their inherent difference 4such as different sex, different linguistic heritage, different minority status or different impairments6. Treating two people differently in this way can lead to confusion and also to claims of discrimination. Fut this is not discrimination. 5t is a merely an ac1nowledgement that people are different but that they have the same rights< to ma1e e2uality a reality, different strategies might be needed for different people. ?or/s of 2rohibited dis*ri/ination There are a range of concepts that underlie non7discrimination law which are important to understand. ,e Bure and de facto discrimination ,e /ure discrimination 7discrimination in la$8 uman rights law prohibits discrimination in law. 5n some countries, electoral legislation sets out that persons with mental disabilities placed under guardianship are not allowed to vote. Under international human rights law, this is an example of discrimination on the basis of disability. 5t is a distinction, in law, made on the basis of mental disability that has the purpose as well as the effect of nullifying the recognition of the right to vote for some persons with disabilities. ,e facto discrimination 7discrimination in practice8 #rotection against discrimination goes beyond only prohibiting discrimination in laws and includes protection from discrimination in practice. =or example, it protects against the actions of employers who ma1e decisions based on stereotypes or assumptions about the abilities or performance of staff with disabilities. )n employer who refuses to promote a person with a disability because of a belief that the disability will prevent the person from fulfilling the duties of the post without any evidence that this is in fact the case is, on the face of it, discriminating de facto. 5t is a distinction on the basis of disability which has the purpose and effect of impairing the right to wor1 4including career advancement6. ,irect and indirect discrimination ,irect discrimination ,irect discrimination occurs when an individual is treated less favourably than another person in a similar situation for a reason related to disability. Thus, a refusal to accept a student with a disability in the general education system amounts to direct discrimination. 5magine the following scenario: a company has a policy of not hiring anyone with a history of bac1 problems irrespective of the duties of a position. The policy unlawfully discriminates against people with a disability who can meet the inherent re2uirements of the Bob. They are being treated less fairly than other Bob applicants on the basis of a disability. *% 'ndirect discrimination 5ndirect discrimination refers to laws, policies or practices which appear neutral, but fail to ta1e into account the particular circumstances of persons with disabilities3which therefore causes direct harm or has a disproportionate impact on the exercise of their rights. =or example, an inflexible re2uirement in the wor1place that all employees have lunch at the same time might constitute discrimination against a person with a disability who has to ta1e medication at a certain time or ta1e periodic rests during the day. @hile the re2uirement, on the face of it, applies to all staff and does not refer to persons with disabilities, its effect is discriminatory. +ombating indirect discrimination helps get to the underlying biases within society that cause discrimination and exclusion in the first place. 5t is important to note that indirect discrimination can sometimes be hard to prove. Multiple forms of discrimination The +onvention0s preamble recalls the Ddifficult conditions faced by persons with disabilities who are subBect to multiple or aggravated forms of discrimination on the basis of race, colour, sex, language, religion, political or other opinion, national, ethnic, indigenous or social origin, property, birth, age or other statusE. =or example, a woman with disabilities might experience discrimination on the basis of sex as well as disability. 5magine an internally displaced woman fleeing a war. She is very poor, belongs to an ethnic minority and has a physical disability. 5n many countries affected by conflicts and humanitarian crises this scenario is familiar. The woman could be subBect to multiple forms of discrimination owing to her sex and social conditions as well as her disability. @omen are often vulnerable to sexual violence during conflict. #ersons with disabilities are also often subBect to sexual violence because they are hidden or ignored and might face greater challenges in communicating. )s a result, women with disabilities might face multiple ris1s of sexual violence during conflict, particularly if preparedness strategies fail to ta1e them into account. Systemic discrimination Unfortunately, much discrimination is systemic. The charity and medical approaches to disability are still very entrenched in all societies and at all levels. Systemic discrimination ta1es time to change. #artly as a means to tac1le systemic discrimination, article ? of the +onvention re2uires States to raise awareness about persons with disabilities and to foster respect for their rights and dignity. ,iscrimination by association #ersons without disabilities DassociatedE with a person with disabilities can also be victims of discrimination on the basis of disability. +onsider the case of a woman who was dismissed from her Bob when her employer discovered that she had a hearing7impaired son. The employer assumed that she would need time off wor1 to loo1 after him. 8ven though she does not have a disability herself, she suffers discrimination on the basis of her son0s disability. 5n other words, there was a distinction on the basis of disability which had the effect of nullifying the woman0s right to wor1. arassment arassment occurs when an individual is subBected to comments, ridicule or any other demeaning conduct on the basis of disability. Hegislation should protect against harassment. )rticle 'J 4b6 of the +onvention refers expressly to protection against harassment related to *) wor1 and employment. =or example, a supervisor who consistently ma1es someone with a disability do menial tas1s at wor1 while others with the same 2ualifications without a disability have more complicated and interesting tas1s could be subBecting the staff member with a disability to harassment. ;ustified differential treatment @hile all discrimination is prohibited, in some cases, it is permissible to treat two people differently on the basis of disability. +onsider the following case: a man who has severe bac1 pain and is unable to bend is reBected for a Bob as a carpet fitter as he cannot carry out the essential re2uirement of the Bob, which is to fit carpets. Not every differentiation of treatment constitutes discrimination. The criteria for assessing /ustified differential treatment are found in other areas of human rights law: 4a6 The criteria for such differentiation must be reasonable and ob/ective< and 4b6 The aim of the differential treatment must be to achieve a legitimate purpose, in other words, a purpose that is consistent with human rights principles. 5f a person cannot perform a Bob and no reasonable accommodation is possible, then differential treatment is Bustifiable. The definition of dis*ri/ination in the Convention The +onvention defines discrimination in article ' as follows: %,iscrimination on the basis of disability& means any distinction. e3clusion or restriction on the basis of disability $hich has the purpose or effect of impairing or nullifying the recognition. en/oyment or e3ercise. on an e-ual basis $ith others. of all human rights and fundamental freedoms in the political. economic. social. cultural. civil or any other field9 't includes all forms of discrimination. including denial of reasonable accommodation9 To help understand this definition, it is important to brea1 it down. ,istinction, exclusion or restriction ,iscrimination means any distinction, as well as e3clusion or restriction made on the basis of disability. +onse2uently, the acts that constitute discrimination can be 2uite varied. ) DdistinctionE might be an explicit differentiation between two people on the basis of disability. =or example, if children with certain intellectual impairments are subBect to forced sterili9ation while other children are not, this is a discriminatory distinction. )n DexclusionE refers to a situation where a person, on the basis of disability, cannot enter a particular space or participate in a particular activity. ) policy that does not allow a child with a disability to enter mainstream education is an exclusion which could amount to discrimination. ) DrestrictionE refers to a limitation on the right of people to participate in certain aspects of civil, cultural, economic, political or social life. =or example, a law stating that persons with intellectual disabilities cannot, prima facie, vote in national elections could amount to a discriminatory restriction. *+ -n the basis of disability The +onvention refers to Ddiscrimination on the basis of disabilityE. This goes further than Ddiscrimination against persons with disabilitiesE as the focus is not only on protecting persons with disabilities but on combating 4and ultimately eliminating6 discrimination itself, whether against persons with disabilities or anyone else. +onse2uently, discrimination on the basis of disability is not targeting only persons with disabilities but also people who, for different reasons, are associated with persons with disabilities 4discrimination by association6. This mirrors the +onvention0s social"human rights approach to disability. !ather than Dprotecting persons with disabilitiesE, which could be a charity approach in certain situations, the +onvention see1s to combat discrimination, i.e., the negative attitudes and environment that can put persons with disabilities in a vulnerable or marginali9ed situation. This is in order to get to the heart of the problem. 5f someone suffers discrimination on the basis of a perceived disability, this is evidence that preBudice exists and human rights law see1s to tac1le these negative attitudes. 5n doing so, we can imagine a world without discrimination. #urpose or effect )rticle ' clarifies that such distinctions, exclusions or restrictions are violations if they have: 4a6 The purpose 4discriminatory intention6< or 4b6 The effect 4the obBective outcome, $hether this $as the intention or not6, of impairing or nullifying the recognition, enBoyment or exercise of all rights for"by persons with disabilities. There does not need to be an intention to discriminate for discrimination to occur. The focus is on the experience of the person suffering the discrimination. Thoughtlessness and neglect can have the same or an even worse discriminatory effect than an intended discriminatory act. The reference to purpose and effect highlights the fact that the +onvention prohibits both direct and indirect discrimination. @hile some acts lead directly to discrimination3for example, restricting the right to vote for persons with intellectual disabilities3much discrimination occurs by treating two persons in different situations in the same way. So building a staircase at the entrance of a hospital is treating persons with and without disabilities in the same way, but the result is discriminatory, as a person in a wheelchair cannot enter the hospital while a person who can wal1 is able to enter. @hile on the surface there does not appear to have been any discrimination 4the hospital is open to all6 the effect can be discriminatory. The +onvention prevents this indirect discrimination as well. !ecognition, enBoyment or exercise #rotection from discrimination extends not only to the recognition of the rights of persons with disabilities, for example, in laws, but also the enBoyment of their rights 4such as the benefit of freedoms without hindrance, e.g., freedom from abuse or torture6 and their exercise 4such as the capacity to ta1e steps to attain a right, e.g., entering a school and getting an education or deciding to refuse certain medications6. This recalls the prohibition in other areas of human rights law of both de Bure 4discrimination in laws and policies6 as well as de facto discrimination 4discrimination in practice6. ** 8nBoyment of human rights Don an e2ual basis with othersE The +onvention does not see1 to create new rights for persons with disabilities. 5nstead, it see1s to combat discrimination, i.e., those barriers and attitudes that prevent persons with disabilities from enBoying their rights. The ultimate aim is that everyone, whether with or without disabilities, can enBoy the same human rights. )ll human rights and fundamental freedoms in the political, economic, social, cultural, civil or any other field The +onvention combats discrimination in relation to all human rights, whether civil, cultural, economic, political or social, and in any field. 5n the past and still today, some people and even States have tended to prioriti9e some rights over others. =or example, during the cold war, States with a mar1et economy often put greater emphasis on civil and political rights, while States with a centrally planned economy tended to focus on economic, social and cultural rights. 5n the context of disability, there has traditionally been a greater focus on protecting economic, social and cultural rights, and civil and political rights have been given less attention. The +onvention clearly states that the protection against discrimination covers all rights in all fields. ,enial of reasonable accommodation The definition recogni9es denial of reasonable accommodation as a form of discrimination. To promote e2uality and eliminate discrimination, State parties must ta1e all appropriate steps to ensure that reasonable accommodation is provided. D!easonable accommodationE means, for example, ma1ing adaptations to the organi9ation of a wor1 environment, an educational establishment, a health7care facility or transport service so as to remove the barriers that prevent an individual with a disability from participating in an activity or receiving services on an e2ual basis with others. )t wor1, this might involve physical changes to premises, ac2uiring or modifying e2uipment, providing a reader or interpreter, giving appropriate training or supervision, adapting testing or assessment procedures, altering standard wor1ing hours or allocating some of the duties of a position to another person. @hile the +onvention re2uires the particular needs of an individual with a disability to be accommodated, it refers to reasonable accommodation. 5f the accommodation imposes a disproportionate or undue burden on the person or entity expected to provide it, then failure to do so would not constitute discrimination. 5n a number of countries, legislation sets out the factors that should be ta1en into account when assessing whether the accommodation re2uested amounts to a disproportionate burden. These include: The practicability of the changes re2uired< The cost< The nature, si9e and resources of the entity expected to provide it< The availability of other financial support< -ccupational health and safety implications< and The impact on the entity0s operations. Reasonable a**o//odation is a /odifi*ation /ade in favour of and at the re7uest of an individual. Thus, an employee who has a car accident and re2uires certain modifications to continue wor1ing can re2uest reasonable accommodation of the employer. This is *, different from general accessibility measures under article D of the +onvention which are not necessarily targeted at individuals 4although individuals obviously benefit6 but at the community at large. @hile States must achieve general accessibility over time, an individual can re2uest reasonable accommodation immediately and lodge a complaint with a tribunal if it is not made. The +onvention imposes the burden to ensure reasonable accommodation on States. owever, given that much of it is needed in the private sector, States should oblige the private sector, through legislation, to provide reasonable accommodation. 5anifestations of dis*ri/ination #ersons with disabilities have long faced different forms of discrimination, but the hope is that the adoption of the +onvention will reduce this discrimination worldwide. #ersons with disabilities have been considered abnormal beings, manifestations of evil or unnatural curiosities. They have been executed, segregated or forced to undergo medical experiments. They have been subBected to ridicule and cruel amusement and seen as bad omens. 5n many cases, they have been considered inferior beings e2ual only in the eyes of *od and as such deserving sympathy and pity. ,iscrimination evolves but does not necessarily decrease. 5n '((., on the adoption of the +onvention, the United Nations Secretary7*eneral Qofi )nnan stated: VToo often, those living with disabilities have been seen as obBects of embarrassment, and at best, of condescending pity and charity. O -n paper, they have enBoyed the same rights as others< in real life, they have often been relegated to the margins and denied the opportunities that others ta1e for granted.V +onsider some examples: The annihilation of the %unfit&: discrimination and the right to life. -ne of the most serious forms of discrimination on the basis of disability was perpetrated in the twentieth century during the Na9i regime. 5t targeted persons with mental and physical disabilities, li1e other groups considered inferior, and subBected them to annihilation, experimentation, sterili9ation and other brutalities. Sterili9ation and euthanasia programmes were carried out against the mentally or physically DunfitE. 5ndividual cases were presented in front of public health officers, who decided whether or not to carry out forced sterili9ation. The 5nterior Ministry also re2uired doctors and midwives to report all cases of newborns with severe disabilities. +hildren under the age of three with illnesses or disabilities such as ,own0s syndrome, hydrocephalus, cerebral palsy or Dsuspected idiocyE among others were targeted. )round '/(,((( disabled people were 1illed and some K/(,((( sterili9ed during this period. -ther States, too, adopted legislation and policies authori9ing sterili9ation. Thousands of persons with disabilities were sterili9ed by force. Sterili9ation practices were based on eugenic theories, very popular at the beginning of the twentieth century, which promoted race 2uality control, reproduction of selected people and traits, and repression of undesired groups. *9 ,enial of legal capacity: discrimination and e-ual recognition before the la$9 Hegal systems around the world have considered disability as a lawful ground for not recogni9ing persons with intellectual, mental or sensory disabilities as persons before the law3and many still do. 5n practice this denies these persons a wide range of human rights such as the capacity to ma1e decisions, sign contracts, vote, get married, inherit property, administer personal goods, defend rights in court or choose medical treatments. *uardians sometimes fail to act in the interest of the persons with disabilities they are representing. They may even abuse their positions of authority and violate the rights of others. @hen legal capacity is lac1ing, forced medical interventions 4drugs, surgery, and sterili9ation6 and medical experiments can be carried out without free and informed consent. @omen and girls with intellectual disabilities, for example, are often subBected to forced sterili9ation. ,eprivation of liberty on the basis of disability. ,isability has been considered as a lawful ground to deprive persons with disabilities of their liberty. Fy declaring that they may be dangerous to themselves or others or be in need of care, the State can commit them, sometimes for their entire lives. Haws and policies have been enacted on the assumption that persons with disabilities are better off in institutions. 5n other cases persons with disabilities are segregated from society and 1ept at home. ,isability and gender: multiple forms of discrimination9 Men and women have different experiences of disability< women with disabilities can be discriminated against on two grounds: sex and disability. =or instance, in rural areas women and girls with disabilities sometimes have very limited access to education at any level and few opportunities to earn a living. Schools, roads and transport are often inaccessible. #arents might therefore not be able to send children with disabilities to school. 5n addition, these barriers might be exacerbated by gender7based discrimination in communities where attitudes already discourage girls from going to school. The result can be high illiteracy among girls with disabilities and a missed childhood, since they have no interaction with other children in an educational environment. ,iscrimination and the right to education9 +hildren with disabilities have been excluded from education and may even be considered uneducable. Some have argued that people with certain disabilities 4mental, learning and even physical6 cannot be educated in mainstream schools. -ften these decisions are ta1en without investing in experts or teachers able to support or ensure peer learning between children with and without disabilities. The result is that children with disabilities are put in special schools, where expectations for excellence are unsatisfactory. *iven the preBudice that children with disabilities supposedly obstruct the education of other children, parents of children with disabilities may decide to put their children in special schools or 1eep them at home. 5f discrimination is pervasive, ta1ing decisions that go against the overall discriminatory mentality can be seen as ris1y and ultimately detrimental to the child with disabilities. Get, giving in only reinforces stigma and discrimination. ,0 Specific cultural settings and stigma: discrimination and the right to cultural life. 5n some cultural settings, disability can be perceived as a punishment from *od, the result of witchcraft or as a shameful failure on the part of the family. This can entail social disapproval, marginali9ation and even frustration leading to domestic violence. #ersons with disabilities, including children, may decide to leave their communities and go to urban areas to gain some independence. owever, they may end up begging or being exploited in other ways because they are illiterate or have few Bob opportunities. Those who cannot move freely may be hidden by their family members or live in the community in very precarious conditions. 5n some rural villages in aiti, parents giving birth to a child with mental or physical disabilities feel that they have been punished for a sin they committed. The implications are grave: the father may impregnate other women to show he was not responsible for the disability. The child may be 1ept at home, hidden from the rest of the community. 5n +ambodia many children and adults have lost limbs in landmine explosions, mainly in rural areas. aving a disability is considered socially unfortunate and often forces persons to live on the margins of society. 8ven today persons with disabilities may be ignored by vendors in the mar1etplace and have to as1 the assistance of someone else to get served. 'naccessibility: discrimination and freedom of movement!independent living. #hysical, informational and technological barriers prevent persons with disabilities from fully participating in society on an e2ual basis with others. 5naccessibility also relates to negative attitudes in society that perpetuate images of persons with disabilities as being slow, less intelligent or unable to ma1e decisions, for example. ) 1ey element to ensure e2ual rights for persons with disabilities is improving the accessibility of the built environment, information and communications technology, transport and other facilities, goods and services open to the public. 6inking non4dis*ri/ination with e7ualit1@ s2e*ifi* /easures +ombating discrimination re2uires more than merely prohibiting it. 5t also re2uires getting to the heart of indirect discrimination > changing the underlying biases in society that lead to discrimination in the first place > by promoting e2uality. =or this reason, specific measures are often needed to help achieve e2uality for persons facing discrimination, including persons with disabilities. Specific measures in favour of a person with a disability are not considered discriminatory< they amount to Bustified differential treatment. This is recogni9ed in the +onvention. )rticle / 4K6 states: Specific measures $hich are necessary to accelerate or achieve de facto e-uality of persons $ith disabilities shall not be considered discrimination under the terms of the present +onvention9 The +onvention therefore recogni9es that to ensure de facto e2uality with others, it may sometimes be necessary to adopt measures that are specific to persons with disabilities. Such measures can be permanent3for example, building accessible car par1s in urban areas for vehicles carrying persons with disabilities3or temporary3such as employment 2uotas for wor1ers with disabilities. Foth are permissible under the +onvention and do not constitute discrimination as defined in its article '. )t times, specific measures in favour of a particular individual or group might be resented by others, who see them as being unfair or even discriminatory. Get such measures are ,1 permissible only to the extent that they redress the imbalance in the enBoyment of human rights between persons with and without disabilities. -nce e2uality between them is achieved, specific measures are no longer necessary. The formula provided in article / must be read in conBunction with the specific non7 discrimination and e2uality measures that are attached to the broad range of rights contained in the +onvention, such as in matters of marriage, family, parenthood and relationships 4art. 'C6, education 4art. 'K6, health 4art. '/6, employment 4art. 'J6, standard of living and social protection 4art. '?6, and participation in public and political life 4art. '%6. Ta1e the right to wor1 in article 'J. State parties to the +onvention have committed to employing persons with disabilities in the public sector and to promoting their employment in the private sector, including through affirmative action programmes. These are specific measures that see1 to redress the under7employment of persons with disabilities in an area where the State has direct influence, namely its employment policies. Fy actively see1ing to employ persons with disabilities, the State can promote e2ual enBoyment of the right to wor1. Fy re2uiring or encouraging the private sector to introduce affirmative action programmes, the State can influence employment indirectly. -ne type of affirmative action programme is the introduction of 2uotas3e.g., a re2uirement that / per cent of employees have a disability and the imposition of a fine on the employer who does not respect the 2uota. The +onvention does not re2uire 2uotas. Muotas have advantages and disadvantages. They might lead to to1enism, with employers recruiting any person with a disability at any level simply to meet the 2uota or paying the fine to avoid the measure all together. -n the other hand, 2uotas might be a way to get persons with disabilities into the wor1place, which in turn can lead to economic empowerment and the enBoyment of other rights. *iven that the +onvention refers to affirmative action programmes without specifying what they are, it is advisable to examine what programmes are most li1ely to lead to sustainable improvements for persons with disabilities and their right to wor1. 5n some cases 2uotas might wor1, in others not. The +ommittee on the 8limination of ,iscrimination against @omen, in its general comment No. '/ 4'((K6 on temporary special measures 4art. K 4$66, identified some measures which could be relevant to identifying specific measures in favour of persons with disabilities. These include: -utreach and support programmes )llocation and"or reallocation of resources #referential treatment Targeted recruitment, iring and promotion measures Numerical goals connected with time frames Muota systems. -ho is res2onsible. @hen discrimination on the basis of disability occursA @ho is actually perpetrating itA )nd who is responsibleA ere are some examples: ,2 ) passenger changes compartment because she feels uncomfortable sitting close to a passenger with ,own0s syndrome< ) family 1eeps a small child with autism at home because there are no inclusive education opportunities at the local school< ) private ban1 denies a loan to a person who has a mental impairment< )n employee with cerebral palsy re2uests a change of position in a large corporation and the employer refuses to accommodate her without giving reasons< ) person with a physical disability is abused at home and reports it to the police, but the police refuse to ta1e action< ) United Nations humanitarian preparedness plan fails to mention persons with disabilities in a disaster7prone country< ) person with a visual impairment cannot apply for a position of human rights officer because the vacancy re2uires a driving licence. +onsidering the examples above, who, if anyone, is responsibleA The passenger, the family, the ban1, management, the human resources sectionA @hen it comes to discrimination, different layers of responsibility emerge, but the State is the primary duty bearer. States Foth States and regional integration organi9ations, which are made up of sovereign States, can sign up to the +onvention. The +onvention lays down specific obligations on State parties to protect, promote and ensure the rights of persons with disabilities. Moreover, under article C', States commit to underta1ing appropriate and effective measures of international cooperation in support of national efforts for the reali9ation of the +onvention. @hile States have primary responsibility for implementing the rights of persons with disabilities in their Burisdiction, they also have to cooperate with other States. This highlights their extraterritorial responsibilities to promote, protect and ensure the rights of persons with disabilities. 5nternational and regional organi9ations This, in turn, raises the 2uestion of the responsibility of international and regional organi9ations, such as the United Nations, the @orld Fan1, the +ouncil of 8urope and so on. )rticle C' refers to them as partners in international cooperation. Similarly, the speciali9ed agencies and other United Nations organs are entitled to be represented before the +ommittee on the !ights of #ersons with ,isabilities. This clearly shows that they have a role in international cooperation to promote the +onvention. owever, international organi9ations might themselves discriminate. @hile their member States are ultimately responsible for avoiding such discrimination, these organi9ations also have a role to play to support the +onvention, even if this role is not clearly defined. #rivate enterprises !ights can be violated through the direct action or omission by State parties, including their national and local institutions or agencies. owever, while States are the main duty bearers under the +onvention, those implementing many of its provisions are not State actors but ,( private enterprises. The private sector plays a very important role in the delivery of relevant services 4e.g., education, sign translation, mobile telephones with voice7over systems6. )ccording to article K, State parties must ensure that the private sector respects the rights of persons with disabilities. +onse2uently, States must ensure that appropriate mechanisms are in place to monitor the private sector and that State policies related to, for instance, education, employment and health integrate the principle of non7discrimination and are adopted by private providers. Service providers The +onvention also refers to specific services such as support for decision7ma1ing 4art. $'6, personal assistance for independent living 4art. $%6, teachers 4art. 'K6, health professionals 4art. '/6. Service providers have an important role in providing the conditions needed by persons with disabilities to fully enBoy their human rights. )t the same time, service providers themselves might discriminate against persons with disabilities3intentionally or otherwise. Thus, the State must also ta1e steps to ensure that service providers are aware of and support the +onvention, for example, by ta1ing appropriate measures to employ teachers, including teachers with disabilities, who are 2ualified in sign language and"or Fraille and to train professionals and staff who wor1 at all levels of education. 5ndividuals and families )rticle K also re2uires States to ta1e steps to eliminate discrimination by any person. This includes ensuring ade2uate penalties and other Budicial measures to protect against discrimination. 5t also re2uires DraisRingS awareness throughout society, including at the family level, regarding persons with disabilities, and to foster respect for the rights and dignity of persons with disabilitiesE, as set out in article ?. -hat *an these a*tors do to *o/bat dis*ri/ination. Module K sets out the range of measures that assist in the implementation of the +onvention: developing laws and policies< ensuring allocation of ade2uate resources< providing inclusive services< raising awareness and training professionals and others< underta1ing research and development< providing remedies< and building institutions. @hen we consider the various examples outlined in the previous section, it is possible to identify some of the actions these actors can ta1e to combat discrimination. A passenger changes compartment because she feels uncomfortable sitting close to a passenger $ith ,o$n<s syndrome9 @hile the negative attitude of this woman is potentially creating barriers to the participation of the person with ,own0s syndrome, this is not strictly spea1ing discrimination. There has been a distinction on the basis of disability, but this has not impaired the enBoyment of any right of the passenger with ,own0s syndrome. owever, the State might consider raising awareness to promote more inclusive societies and to combat fear of persons who are different< A family keeps a small child $ith autism at home because there are no inclusive education opportunities at the local school9 The failure to provide inclusive education opportunities has the effect of nullifying the right to education of the child. The State has a duty to ensure inclusive education services are available in the area and also to raise awareness about inclusion. The State should also ensure that laws and policies reflect principles of inclusive education. )t the same time, the school board and teachers might have responsibilities to ensure that inclusive education is ,% effective and that parents are aware that such services are in place 4if indeed they are6< A private bank denies a loan to a person $ho has a mental impairment9 @hether there has been discrimination here is open to 2uestion. 5n reality, the ban1 may not specify that the refusal is based on disability, but put forward another excuse to Bustify the refusal. Moreover, there is no human right to a ban1 loan. owever, the State has a duty to legislate to ensure that private ban1s do not discriminate on the basis of disability. 5t should also provide support services so that the person can exercise his or her legal capacity. 5n such cases, the provision of support might be sufficient to prevent such a situation in the first place, as it would underscore the ability of the person to exercise legal capacity and repay the loan< An employee $ith cerebral palsy re-uests a change of position in a large corporation and the employer refuses to accommodate her $ithout giving reasons9 #otentially, there has been a denial of reasonable accommodation that would amount to discrimination. The State has a duty to legislate to ensure that the private sector does not deny reasonable accommodation to the person with a disability. The employer must ensure that accommodation is provided unless it is unreasonable 4a undue burden6< A person $ith a physical disability is abused at home and reports it to the police. but the police refuse to take action9 There has been an exclusion on the basis of disability by the police which impairs the right to be free from violence and abuse. The State has a duty to pass laws re2uiring the police to protect persons with disabilities from violence and abuse and to raise awareness and train the police so that persons with disabilities can access Bustice< A )nited *ations humanitarian preparedness plan fails to mention persons $ith disabilities in a disaster4prone country9 This exclusion could impair or nullify the exercise of a range of human rights in the event of a disaster and has already impaired the right to ta1e part in the conduct of public affairs. States, acting internationally, underta1e to ensure that international cooperation is accessible to and inclusive of persons with disabilities. This should include the development of policies that re2uire the United Nations to respect the rights of persons with disabilities through international cooperation programmes< A person $ith a visual impairment cannot apply for a position of human rights officer because the vacancy re-uires a driving licence9 This could amount to Bustifiable differential treatment if driving is a 1ey element of the Bob and a driver0s licence is therefore necessary. 5t is reasonable treatment based on obBective criteria 4Bob re2uirements applied to all applicants6 which see1s to respect the right to wor1 of all applicants. 'n all these cases. it is also important to think not only $hat the State should do but $hat the individual concerned should do9 =or example, the individual might see1 a remedy through courts, national human rights institutions or informal conflict resolution systems, or might see1 help from a non7governmental organi9ation or lobby the *overnment or others directly to ta1e action 4writing letters to local parliamentarians for example6. Disabilit1 as 2rohibited grounds of dis*ri/ination in other hu/an rights treaties ,) The Universal ,eclaration on uman !ights, the 5nternational +ovenant on 8conomic, Social and +ultural !ights and the 5nternational +ovenant on #olitical and +ivil !ights, all protect individuals from discrimination. ,iscrimination on the basis of disability is covered in their articles ' under Dother statusE: Everyone is entitled to all the rights and freedoms set forth in this ,eclaration. $ithout distinction of any kind. such as race. colour. se3. language. religion. political or other opinion. national or social origin. property. birth or other status 4Universal ,eclaration6 The States Parties to the present +ovenant undertake to guarantee that the rights enunciated in the present +ovenant $ill be e3ercised $ithout discrimination of any kind as to race. colour. se3. language. religion. political or other opinion. national or social origin. property. birth or other status 45nternational +ovenant on 8conomic, Social and +ultural !ights6 The 5nternational +onvention on the 8limination of )ll =orms of !acial ,iscrimination, the +onvention on the 8limination of )ll =orms of ,iscrimination against @omen, the +onvention on the !ights of the +hild, the 5nternational +onvention on the #rotection of the !ights of )ll Migrant @or1ers and Members of Their =amilies also set out States0 obligations to combat and eliminate discrimination. -f these, only the +onvention on the !ights of the +hild explicitly mentions DdisabilityE among the prohibited grounds of discrimination: States Parties shall respect and ensure the rights set forth in the present +onvention to each child $ithin their /urisdiction $ithout discrimination of any kind. irrespective of the childEs or his or her parentEs or legal guardianEs race. colour. se3. language. religion. political or other opinion. national. ethnic or social origin. property. disability. birth or other status9 4art. '6 The +ommittee on 8conomic, Social and +ultural !ights, in its general comment No. '( 4'((%6, explained that Dother statusE covered among other things: Disabilit1 )ge Nationality Marital and family status Sexual orientation and gender identity ealth status #lace of residency 8conomic and social status 5ts general comment No. / 4$%%K6 provides a definition of discrimination against persons with disabilities. The +ommittee against Torture includes Dmental or other disabilityE among the ground for discrimination in its general comment No. ' 4'((J6. The +ommittee on the 8limination of ,iscrimination against @omen, in its general recommendation No. $? 4$%%$6, points out the problem of Idouble discrimination0 affecting women with disabilities. 5n the preamble to the +onvention on the !ights of #ersons with ,isabilities it is recogni9ed that Dchildren with disabilities should have full enBoyment of all human rights and fundamental freedoms on an e2ual basis with other childrenE and recalled that Dobligations to that end underta1en by States #arties to the +onvention on the !ights of the +hildE. The 5nternational Habour -rgani9ation0s +onvention No. $/% 4$%?C6 concerning Nocational !ehabilitation and 8mployment 4,isabled #ersons6 addresses e2ual opportunity, e2ual treatment and non7discrimination. The United Nations 8ducational, Scientific and +ultural -rgani9ation0s +onvention against ,iscrimination in 8ducation also deserves attention, ,+ particularly if complemented with the principles of inclusive education adopted at the $%%K @orld +onference on Special Needs 8ducation: )ccess and Muality. Some relevant regional instruments are the 5nter7)merican +onvention on the 8limination of )ll =orms of ,iscrimination against #ersons with ,isabilities of the -rgani9ation of )merican States, the +ouncil of 8urope0s +onvention on the !ecognition of Mualifications concerning igher 8ducation in the 8uropean !egion and its )ction #lan to promote the rights and full participation of people with disabilities in society: improving the 2uality of life of people with disabilities in 8urope 4'((.>'($/6. The +onvention on the !ights of #ersons with ,isabilities is a new tool to ma1e the fight against discrimination on the basis of disability more informed and determined. 5f a specific State has not yet ratified the treaty, it still has obligations to prohibit discrimination against persons with disabilities under other human rights treaties that it has ratified. ,* 5%D&6( D N#T)%N#6 )5P6(5(NT#T)%N #ND 5%N)T%R)NG ?R#5(-%R8S National i/2le/entation and /onitoring /e*hanis/s The +onvention on the !ights of #ersons with ,isabilities provides for the establishment of national mechanisms and institutions for the implementation and monitoring of the +onvention both at the international and at the national level. National i/2le/entation and /onitoring /e*hanis/s, the focus of this module are set out in article CC of the +onvention. These are: ?o*al 2oints@ )rticle CC, paragraph $, introduces domestic implementation through the designation of a focal point or focal points within the *overnment. The +onvention does not specify who could act as focal point 4a ministry, a department in a ministry, a single person and so on6. )t the very least, having a focal point means that the +onvention should not remain only in the ministry of foreign affairs, as an international issue, but should have a dedicated entity focused on national implementation. Coordination /e*hanis/@ The same paragraph re2uires States to give due consideration to the establishment or designation of a coordination mechanism within the *overnment to facilitate action related to the implementation of the +onvention. )lthough optional, such a coordination mechanism could be beneficial. Traditionally, disability issues have been dealt with by one ministry, such as the ministry of health or of social affairs. The ris1 has been that the education of children with disabilities was sometimes dealt with by the ministry of social affairs rather than that of education. Such an arrangement tends to exacerbate exclusion and promote segregation. The +onvention spans all rights and, therefore, a range of ministries should have responsibilities such as the ministry of the interior, of Bustice, of education, of labour and so on. ) coordination mechanism can help ensure that the +onvention does not remain stuc1 in one ministry but that responsibilities are shared. )nde2endent i/2le/entation and /onitoring /e*hanis/@ )rticle CC, paragraph ', on the other hand, focuses on establishing a structure to oversee the implementation of the +onvention. 5t re2uires States to maintain, strengthen, designate or establish one or more independent mechanisms to promote, protect and monitor implementation of the +onvention. 5mportantly, in setting up such mechanisms, States have to ta1e into account Dthe principles relating to the status and functioning of national institutions for protection and promotion of human rightsE, otherwise 1nown as the #aris #rinciples. These are dealt with in greater detail below. )t this stage, it is important to highlight the relevance of these #rinciples to ensuring a truly independent and well7functioning national independent monitoring mechanism as re2uired by the +onvention. The +onvention also stipulates that *ivil so*iet1, particularly persons with disabilities and their representative organi9ations, should participate fully in all aspects of this monitoring process, Bust as they are to be involved in the development and implementation of policies, programmes and legislation to implement the +onvention, in line with article K. This reference to civil society raises at least two issues: ,, 4a6 +ivil society, in particular persons with disabilities and their representative organi9ations, should be involved in the monitoring process underta1en by the independent monitoring mechanism established under article CC 4and ideally also in the wor1 of focal points and coordination mechanisms6< 4b6 +ivil society itself has a role to play in monitoring the +onvention, independently of the other mechanisms established under article CC. 5n addition to the specific monitoring, promotion and protection framewor1 set up under the +onvention, 2arlia/ents as well as national *ourts and tribunals can also play a 1ey role in promoting and protecting the rights in the +onvention. -ther relevant mechanisms include labour ins2e*torates s*hool ins2e*tors and any other mechanisms that have a role in monitoring rights. They should monitor the rights of persons with disabilities as part of their general monitoring functions. The inclusion of an article detailing national implementation and monitoring structures and their functions continues a trend in human rights treaties towards strengthening the national monitoring of human rights. #rior to the +onvention on the !ights of #ersons with ,isabilities, the -ptional #rotocol to the +onvention against Torture and -ther +ruel, 5nhuman or ,egrading Treatment or #unishment also re2uired State parties to set up national preventive mechanisms. ?o*al 2oints and *oordination /e*hanis/s in the Govern/ent *iven that State parties to the +onvention have different forms of government and are organi9ed differently, the article relating to focal points and coordination mechanisms is flexible and therefore adaptable. owever, since other international instruments, such as the @orld #rogramme of )ction concerning ,isabled #ersons and the Standard !ules on the 82uali9ation of -pportunities for #ersons with ,isabilities, have also called for the establishment of similar entities, it is worth reflecting on their experience to orient the implementation of article CC. The focal point7s8 @here focal points on disability exist, it is nonetheless important to give such mechanisms an explicit mandate in relation to the +onvention. 5n addition, this mandate should be revised to ensure that it is sufficiently broad to cover the implementation of the +onvention in full. =or the effective implementation of the +onvention, it might be advisable to adopt a two7pronged approach and appoint focal points in each or most governmental departments"ministries as well as designate one overall focal point within the *overnment responsible for implementation. Fesides functional focal points in the ministries concerned, the State might establish focal points at different levels of government, e.g., local, regional and national"federal. The mandate of the focal point4s6 should ideally include promoting awareness of the +onvention within the ministry designated as focal point, participation in the development of an action plan on the +onvention, and monitoring and reporting on implementation within their functional lines 4but remember. this monitoring does not replace the one foreseen in paragraph F6. 5f a decision is ta1en to appoint one overall focal point, the following considerations are relevant: ,9 o =irst, the +onvention0s shift in approach to disability, away from a medical and charity approach to one based on human rights, needs to be reflected in the choice of focal point. The ministry of health should not be designated as the *overnment focal point, because that would reinforce the understanding of disability as a medical condition. Similarly, placing the focal point within the ministries of welfare or labour as is the practice in the maBority of State parties may also need to be reviewed to ensure that a human rights approach is adopted. )n alternative could be placing the focal point in ministries with responsibility for Bustice and human rights 4which in some countries is, in any case, the ministry of social affairs6. o Second, implementation of the +onvention re2uires traction at the most senior level. #lacing the focal point close to the heart of the *overnment, such as in the office of the president or the prime minister, or the cabinet office, would be ideal. Some State parties have already done this. owever, if a ministry is appointed focal point and that minister is not part of the cabinet, this might hamper effectiveness. o Third, the mandate of the focal point should clearly focus on developing and coordinating a coherent national policy on the +onvention. )s such, the focal point should promote, guide, inform and advise the *overnment on matters related to the implementation of the +onvention but not necessarily implement it by delivering disability support services. The mandate could also include coordinating *overnment action on the +onvention in respect of reporting, monitoring, awareness7raising and liaising with the independent monitoring framewor1 designated under article CC, paragraph ', of the +onvention. o =ourth, the focal point should represent the channel for civil society and organi9ations of persons with disabilities to communicate with the *overnment on the +onvention0s implementation. o =ifth, the focal point should have ade2uate technical staff and resources. #lacing the focal point within a large ministry could ensure this. The Handbook for Parliamentarians on the +onvention on the Rights of Persons $ith ,isabilities and its 2ptional Protocol D identifies possible tas1s of the national focal point4s6 as follows: )dvise the ead of State"*overnment, policyma1ers and programme planners on the development of policies, legislation, programmes and proBects with respect to their impact on people with disabilities< +oordinate the activities of various ministries and departments on human rights and disability< +oordinate activities on human rights and disability at federal, national, regional, State, provincial and local levels of government< !evise strategies and policies to ensure that the rights of persons with disabilities are respected< +oordinate the drafting, revision or amendment of relevant legislation< !aise awareness about the +onvention and its -ptional #rotocol within the *overnment< 8nsure that the +onvention and its -ptional #rotocol are translated into local languages and issued in accessible formats< 8stablish an action plan for the +onvention0s implementation< Monitor the implementation of the action plan on human rights and disabilities< +oordinate the preparation of the State0s initial and periodic reports< 9 0rom E3clusion to E-uality: Reali1ing the rights of persons $ith disabilities 4'((J6. 90 !aise public awareness on disability7related issues and the rights of persons with disabilities< Fuild capacity within the *overnment on disability7related issues< 8nsure and coordinate the collection of data and statistics for effective policy programming and evaluation of implementation< 8nsure that persons with disabilities participate in the development of policies and laws that affect them< 8ncourage persons with disabilities to participate in organi9ations and civil society, and encourage the creation of organi9ations of persons with disabilities The coordination mechanism )lthough optional, the establishment of a coordination mechanism at governmental level in addition to focal points is encouraged under the +onvention. ) coordination mechanism could, for example, ta1e the shape of an interministerial group, i.e., representatives from the ministries concerned tas1ed with coordinating the +onvention0s implementation across departments"sectors or levels of government. *iven the breadth of the +onvention, all ministries will have some responsibilities for implementing parts of it. Some coordinating mechanisms include representatives of various ministries as well as of organi9ations of persons with disabilities, other civil society organi9ations, the private sector and trade unions. Their mandate often focuses on policy development, the promotion of dialogue on disability, awareness7raising and similar functions. Note that coordination mechanism could prove particularly beneficial in countries with systems of devolved administration, such as federal States. Trainers should endeavour to identify national and regional mechanisms that are relevant to the context of the training so that participants are provided with sufficient examples of existing mechanisms. National inde2endent /e*hanis/s for i/2le/entation and /onitoring 5n addition to designating the above institutions, the +onvention re2uires States to maintain, strengthen, designate or establish a framewor1 to Dpromote, protect and monitorE the implementation of the +onvention. State parties may choose to set up specific disability mechanisms or assign the monitoring function to existing entities. =urthermore, article CC does not prescribe a particular organi9ational form for the national monitoring framewor1 and State parties are free to determine the appropriate structure for their political and organi9ational context. @hatever the organi9ational structure, article CC sets out three 1ey re2uirements for the monitoring framewor1: $. The State must /aintain strengthen designate or establish a framewor1 with one or /ore /e*hanis/sE '. The mechanism4s6 shall ta1e into account the Paris Prin*i2les. This does not mean that only entities that comply with the #aris #rinciples should be included in the framewor1, but the framewor1 should have at least one such entity< 91 C. Civil so*iet1 and in particular persons with disabilities and their representative organi9ations need to be involved and fully participate in the monitoring process 4art. CC 4C66. The organi<ational stru*ture of the /onitoring fra/ework@ alternatives and 2referen*es F one or /ore /e*hanis/s )n initial consideration for the State party is whether it should designate 4and maintain or even strengthen6 an existing mechanism or establish an entirely new framewor1. 5n this regard, the following factors are particularly relevant: Human and financial resources9 The decision by a State to either modify and"or add functions to an existing framewor1 or, instead, establish a new one will naturally be affected by financial and human resource considerations. 5n some cases creating a new structure shaped on the +onvention0s expectations could be more cost7effective than reconceptuali9ing the mandate, the expertise and the mentality of an existing institution< in others, the N!5, ombudsperson or speciali9ed agency could be sufficiently flexible to adapt to additional tas1s. +ommitment to the +onvention9 To have a fully functioning framewor1, commitment to the +onvention0s innovative approach is as important as resources. The national framewor1 should represent a ground7brea1ing human rights body, with its promotion, protection and monitoring duties reflecting the +onvention0s principles. The nomination of commissioners and"or staff needs to involve persons with disabilities. The body has to be open to the participation of persons with disabilities and their representative organi9ations 4see below6, and have sufficient credentials of integrity, independence and expertise in human rights monitoring. A t$in7track approach9 5n the context of development cooperation, it is recogni9ed that, at times, disability7specific development measures are necessary while, at other times, disability rights should be mainstreamed into general development programmes, proBects and other interventions. The same logic can be applied to the monitoring of the +onvention. )t times, specific 1nowledge of the +onvention, its social"human rights approach and its general principles is essential to ensure that monitoring respects the +onvention. =or example, in mainstream human rights wor1, the #rinciples for the protection of persons with mental illness and the improvement of mental health care are still commonly applied, while disability rights experts 2uestion these #rinciples, which are sometimes in conflict with the +onvention. +onse2uently, either ensuring full participation of disability rights experts or, alternatively, having a stand7alone disability rights commissioner or other mechanism might be preferable to having an existing human rights mechanism ta1e over the monitoring role foreseen under article CC. 5n addition, the State must consider whether its national framewor1 will have one or more mechanisms. ere are some options: $. )ttribute the monitoring function to a single entit1, i.e., one independent mechanism The explicit lin1 in article CC 4'6 between the framewor1 and the #aris #rinciples suggests a preference for attributing the monitoring function to a national human rights institution. Such attribution would certainly comply with the +onvention. Nowadays, over $(( national human rights institutions have been established worldwide. They may be called human rights commissions, ombudsmen or institutes. 92 '. )ttribute the function to a framewor1 consisting of more than one independent mechanism The +onvention also foresees the possibility of more than one independent mechanism being appointed. The Paris Prin*i2les in the *onte3t of the Convention )n international wor1shop of national human rights institutions, held in #aris in $%%$, first drafted the #rinciples relating to the status and functioning of national institutions for the protection and promotion of human rights, 1nown today as the #aris #rinciples. )rticle CC 4'6 of the +onvention re2uires State parties to ta1e these #rinciples into account when designating or establishing mechanisms to promote, protect and monitor its implementation. @ith reference to the +onvention, the #aris #rinciples would raise the following 2uestions: +ompetence and responsibilities 5n general terms: as the mechanism been vested with competence to promote and protect the +onvention0s provisionsA 5s the mandate as broad as possibleA 5s the mandate set forth in a legislative act or in the constitutionA ,oes the law establishing the mechanism set out the mechanism0s composition and competence"mandateA 5n relation to specific responsibilities: ,oes the mandate include the possibility to hear any matter, without referral, relating to the promotion and protection of the rights of persons with disabilitiesA +an the mechanism promote and ensure the harmoni9ation of national laws and policies with the +onventionA +an the mechanism encourage ratification of other human rights instruments, such as the -ptional #rotocol to the +onventionA +an the mechanism contribute to State reports to United Nations and regional bodies, such as the +ommittee on the !ights of #ersons with ,isabilities or the +onference of States #arties, and express its opinion on the subBectA +an the mechanism assist in the formulation of programmes for disability rights educationA +an the mechanism publici9e the rights of persons with disabilities and raise awareness about the +onvention, including through combating all forms of discrimination based on disabilityA +omposition and guarantees of independence and pluralism 5s the composition of the mechanism pluralistic< in particular, does it have experts that reflect the diversity of disabilityA 9( ,oes the composition of the mechanism include and"or reflect: civil society, trends in philosophical or religious thought, universities and 2ualified experts, parliamentA @hile optional, does the composition of the mechanism include government departments participating in the mechanism0s deliberations in an advisory capacityA ,oes the mechanism have sufficient powers to enable effective cooperation with non7governmental organi9ations, including organi9ations of persons with disabilitiesA 5s the mechanism funded so that it has its own staff and premises, so that the *overnment cannot subBect it to financial control in a way that might affect its independenceA 5s the membership of the mechanism established by an official act which sets out the specific duration of the mandateA (ethods of operation +an the mechanism freely consider any 2uestion falling within its competenceA +an the mechanism hear any person and obtain any information necessary for assessing situations falling within its competenceA +an the mechanism address public opinion, including through publication of its opinions and recommendationsA +an the mechanism meet on a regular basisA +an the mechanism establish wor1ing groups and set up local or regional sectionsA +an the mechanism maintain consultation with other bodies responsible for the promotion and protection of human rightsA +an the mechanism establish and maintain relations with persons with disabilities and their representative organi9ationsA Additional principles concerning the status of commissions $ith -uasi4/urisdictional competence )n optional principle relates to the authori9ation of a mechanism to hear and consider complaints and petitions concerning individual situations, such as claims that the rights of a person with a disability have been breached. @here this option is granted, the power of the mechanism should be based on four principles: See1ing an amicable resolution through conciliation 5nforming petitioners of their rights and remedies earing complaints or petitions and transmitting them to the competent authorities Ma1ing recommendations to the competent authorities. =or the #aris #rinciples to apply fully to the national framewor1 under article CC, it is essential to ensure access to Bustice. 5n this connection, article $C re2uires States to: 8nsure effective access to Bustice for persons with disabilities on an e2ual basis with others, including through the provision of procedural and age7appropriate accommodations< and #romote appropriate training for those wor1ing in the field of administration of Bustice, including police and prison staff. )ccessibility considerations and accommodation can relate for instance to: )ccess to the building that houses the mechanism 9% #ublication of reports, awareness7raising materials, recommendations, training materials and so on in accessible formats )ccess to the mechanism0s website )ffirmative action policies to promote the employment of persons with disabilities #rovision of reasonable accommodation to individual employees of the mechanism #rovision of accessibility measures such as sign language interpretation during public hearings. ?un*tions of the national /onitoring fra/ework The independent monitoring framewor1 is expected to 2ro/ote 2rote*t and /onitor the implementation of the +onvention. Slide $( in the computer slide presentation sets out some examples of tas1s to promote, protect and monitor the rights of persons with disabilities. Parti*i2ation and involve/ent of *ivil so*iet1 and 2ersons with disabilities )rticle K 4C6 re2uires State #arties to ensure consultation with and active involvement of persons with disabilities and their representative organi9ations in the development and implementation of legislation and policies to implement the +onvention and in other decision7ma1ing on the rights of persons with disabilities. )rticle CC 4C6 re2uires civil society, in particular persons with disabilities and their representative organi9ations, to be involved and participate fully in the monitoring process. )t the very least, this means that national structures established under article CC should endeavour to involve and ensure the participation of persons with disabilities and their representative organi9ations. No guidance is provided on how this participation could and should ta1e place. The trainer could open the floor for discussion among course participants on areas for involvement, such as: Membership of the national framewor1, focal points and coordination mechanisms +onsultation with representative organi9ations in the drafting of laws and regulations establishing the various mechanisms +onsultation with representative organi9ations on the appointment of 1ey figures +onsultation with representative organi9ations in the development of annual wor1plans !egular hearings on the wor1 of national mechanisms for persons with disabilities and their representative organi9ations ,esignation of an advisory group including representative organi9ations #roduction of reports, recommendations and other documents relating to monitoring in accessible formats -pen facilities, goods and services through maintaining high accessibility standards !eflection of the diversity of disabilities in activities to promote consultation and participation. There could be many other areas to promote consultation with and participation of persons with disabilities and their representative organi9ations in the implementation and monitoring of the +onvention. The group activity will provide a means to identify more. Parlia/ents 5n addition to the specific monitoring arrangement set up by the +onvention, #arliament, through its oversight function, plays a 1ey role in ensuring respect for the human rights of 9) persons with disabilities. Narious #arliamentary mechanisms that could be relied upon include: 9+ Parliamentary committees #arliamentary committees oversee the executive. To be effective, they must be able to set their own agendas and have the power to oblige ministers and civil servants to appear and answer 2uestions. #arliamentary committees can as1 ministers and civil servants 2uestions relating to the establishment of national framewor1s or any other matter relating to the implementation and monitoring of the +onvention. +ommissions of in-uiry +ommissions of in2uiry are established when a maBor public concern arises involving aspects not limited to the remit of specific parliamentary committees. This might be the case where certain violations of the rights of persons with disabilities come to light, such as forced institutionali9ation and forced treatment of persons with mental disabilities or systematic exclusion of persons with disabilities from the general education system. ,irect -uestioning of ministers ,irect 2uestioning of ministers is relevant in countries where ministers are members of the legislature. Muestioning might be oral or in writing and helps to maintain *overnment accountability. #ersons with disabilities, their representative organi9ations or independent mechanisms under article CC might contact local members or members of parliamentary committees related to human rights in order to raise 2uestions for ministers with responsibility for implementing the +onvention. Scrutiny of e3ecutive appointments Scrutiny of executive appointments is particularly relevant in countries where ministers are not members of the legislature. =or example, for the appointments of ombudsmen, human rights commissioners and cabinet members, it would be entirely appropriate for parliament to verify the appointee0s 1nowledge of and attitude towards disability issues. 2versight over non4governmental public agencies #arliament also monitors independent agencies to which the *overnment may have devolved public functions, such as agencies involved in regulatory activities or the delivery of front7line services. These include regulatory bodies for health and safety, service7delivery agencies, public utilities and other agencies whose activities might have a direct impact on the rights of persons with disabilities. 5udgetary scrutiny and financial control #arliament holds considerable influence over policies through its control of the *overnment0s budget, during the stages of formulation as well as expenditure. )s part of this process, parliament can ensure that the impact of the proposed budget on different social groups, such as persons with disabilities, is discussed and monitored. National *ourts and tribunals National courts can also play an important role in the implementation and monitoring of the +onvention. National courts have a role to protect the rights set out in the +onvention. @hile persons with disabilities claiming a violation of their rights should be able to access national human rights institutions and other mechanisms under article CC, they 9* should also have the opportunity to see1 a legally enforceable remedy through courts. National courts have a role in interpreting and applying the +onvention nationally. +ases that come before national Budges provide a means of testing the application of the +onvention in national circumstances. ;udgements can help to clarify what global standards mean in the national context. National courts can complement the article CC mechanisms. 5n particular, if a case is particularly important or complicated, the national mechanism might refer it to the national courts to ensure the fullest consideration as well as a legally enforceable solution. )s a result of national court cases: 5t is possible to reflect upon areas where progress in the reali9ation of disability rights has been possible as well as problem areas 4particularly where the same complaint arises in several cases6< !espect for the rights of persons with disabilities is strengthened. Not only does a court case provide a remedy for the complainant, a court case can often provide the trigger for law reform as well as clarity on the law. 5n addition, a case supporting disability rights can help to raise awareness on the rights of persons with disabilities and the +onvention. 5n doing so, similar violations can be prevented. The trainer might consider researching national case law to identify disability7related cases. The trainer could provide a summary of the case and then encourage participants to discuss the various ways in which the Budiciary has been able to strengthen and protect the rights of persons with disabilities. 9, 5%D&6( G R(P%RT)NG T% T'( C%55)TT(( %N T'( R)G'TS %? P(RS%NS -)T' D)S#$)6)T)(S@ ST#T( #ND #6T(RN#T)>( R(P%RTS )NTR%D&CT)%N The purpose of this module is to provide detail for States, civil society and national human rights institutions on the process of reporting to the +ommittee on the !ights of #ersons with ,isabilities. States have an obligation to submit an initial report within two years of ratification and to submit periodic reports thereafter. +ivil society and N!5s have a crucial role to play in the reporting process by complementing information provided by the State party. This module covers the content of State and alternative reports as well as the process of drafting them, submitting them to the +ommittee and following up on the +ommittee0s concluding observations and recommendations. ST#T( R(P%RTS The Co//ittee on the Rights of Persons with Disabilities Fefore discussing reports, it is important to understand the nature and role of the +ommittee on the !ights of #ersons with ,isabilities, the +ommittee that receives reports from States and other sta1eholders. )rticle CK establishes the +ommittee. 5t is a treaty body of $? independent experts acting in their personal capacity. They are elected by State parties to the +onvention at the +onference of States #arties and possess certain characteristics, such as: igh moral standing !ecogni9ed competence and standing in the field covered by the +onvention. @hen electing these experts, State parties should give consideration to a range of issues explicitly referred to in article CK, including: 82uitable geographic distribution !epresentation of different forms of civili9ation !epresentation of the principal legal systems *ender balance #articipation of experts with disabilities. This last criterion3the participation of experts with disabilities3is a novelty in the +onvention and attests to the fact that persons with disabilities have often been excluded from decision7ma1ing processes that affect them. 5n a similar vein, State parties are invited to give due consideration to article K 4C6 when nominating experts. )rticle K 4C6 re2uires States to consult closely with and actively involve persons with disabilities, including children 99 with disabilities, and their representative organi9ations in decision7ma1ing processes that affect them 4and specifically in relation to decisions on laws and policies6. @hile the call to participation is relatively wea13States are only invited to consider this in nominating experts 3it nonetheless provides an indication that the nomination process should not be a purely *overnment concern but that other parts of society also have a role to play and an interest in the +ommittee0s membership. The +ommittee0s experts are elected for a four7year term, renewable once. The +ommittee0s main responsibility is to receive comprehensive reports from each State party to the +onvention 4see below6. 5n addition, under the -ptional #rotocol, the +ommittee can: !eceive communications 4complaints6 and issue recommendations on these communications 4see module ?6< Underta1e in2uiries into countries when there is reliable information indicating grave or systematic violations of the +onvention 4see module ?6. The +ommittee also underta1es thematic wor1. 5t: olds days of general discussion on various themes, such as legal capacity and accessibility< )dopts general comments. ) general comment is an authoritative statement of the +ommittee on particular themes or articles in the +onvention and can help State parties in their tas1 of reporting to the +ommittee by identifying in greater detail what specific provisions mean. The +ommittee is currently considering drafting general comments on accessibility and on legal capacity. =inally, the +ommittee has authority in relation to its own administration. =or example: 5t elects its +hair, adopts its wor1ing methods and rules of procedure and so on< 5t meets with representatives of civil society, national human rights institutions and United Nations agencies to discuss issues related to the implementation and monitoring of the +onvention< 5t coordinates with other treaty bodies to strengthen the treaty body system and harmoni9e wor1ing methods. The re7uire/ent on States to re2ort )ccording to article C/ 4$6, DReSach State #arty shall submit to the +ommittee, through the Secretary7*eneral of the United Nations, a comprehensive report on measures ta1en to give effect to its obligations under the present +onvention and on the progress made in that regard, within two years after the entry into force of the present +onvention for the State #arty concerned. )fter the initial report, the State party must submit subse2uent reports at least every four years and whenever the +ommittee re2uests it. The subse2uent report is often referred to as 100 a periodic report. The possibility of the +ommittee re2uesting reports at any time was added so that it can respond to particular situations that re2uire its attention outside the four7year cycle. The re2orting *1*le The reporting cycle is similar to that under any human rights treaty. The important factor to remember is that it is a cycle. 5t is not, or at least it should not be, a one7off event, but rather a process that comprises the following steps: ,rafting the report through a consultative process both within the *overnment and with counterparts such as civil society and N!5s, and submitting it< #reparing and responding to the list of issues< Meeting the +ommittee and having a constructive dialogue on implementation< =ollowing up to the views and recommendations of the +ommittee< #reparing for the next cycle on challenges since the previous dialogue with the +ommittee and on implementation of the +ommittee0s recommendations. ) potentially significant difference compared to other treaties is the fact that State parties are invited to consider adopting an open and transparent process in drafting the report, ta1ing into account article K 4C6. )s noted above, this article re2uires States to consult closely with and actively involve persons with disabilities, including children with disabilities, and their representative organi9ations in decision7ma1ing processes that affect them 4and specifically in relation to decisions on laws and policies6. )gain, the re2uirement on States is only to give due consideration to the participation of persons with disabilities in the preparation of the report. Nonetheless, it provides a further indication that this drafting process 4and indeed the whole reporting cycle6 should not be a purely *overnment concern but also a legitimate interest of other parts of society. Do*u/ents to 2re2are There are two main documents for the State to prepare: The *o//on *ore do*u/ent should contain general information about the reporting State, the general framewor1 for the protection and promotion of human rights, disaggregated according to sex, age, main population groups and disability, as well as information on non7discrimination and e2uality, and effective remedies, in accordance with the harmoni9ed guidelines. The treat14s2e*ifi* do*u/ent submitted to the +ommittee on the !ights of #ersons with ,isabilities should not repeat the information included in the common core document or merely list or describe the legislation adopted by the State party. !ather, it should contain specific information relating to the implementation, in law and in fact, of articles $ to CC of the +onvention, ta1ing into account analytical information on recent developments in law and practice affecting the full reali9ation of the rights recogni9ed in the +onvention by all persons, with all forms of disabilities within the territory or Burisdiction of the State party. 5t should also contain detailed information on substantive measures ta1en towards the aforementioned goals and 101 the resulting progress achieved. @here applicable, this information should be presented in relation to policy and legislation of persons without disabilities. 5n all cases, it should indicate data sources. 5ethodolog1 There is no strict methodology that States have to follow for the preparation of their reports, but the following steps are relevant: 5dentifying a reporting group< normally, the focal point or the coordination mechanism will have a role to play in drafting the report to the +ommittee. 8arly in the drafting stage, the focal point and"or coordination mechanism should identify the ministries and departments that have a role in implementing the +onvention, as they should be on board. 5t is also useful to include civil society representatives in the group, bearing in mind the importance of participation. The reporting group might identify a smaller drafting group to prepare the first draft. 5nitial review of 1ey issues< at this stage, the reporting group should review the +onvention as well as documents such as laws and policies as well as any studies that have been done so as to identify the issues that are relevant to the report. Hegal analysis and data collection< at this stage, the drafters should first of all review laws, policies and strategies to examine the extent to which they comply with the +onvention. 5n addition, studies, surveys, statistics and other materials should be collected to bac1 up the legal analysis with facts and figures that reflect the current situation of persons with disabilities. )nalysis and preparation of the draft report< on the basis of the legal analysis and data collection, a first draft can be prepared. The data collected should not simply be reproduced, but be analysed by reference to the provisions of the +onvention to identify the extent to which they are being implemented and also reveal the challenges. +onsultation within the *overnment and finali9ation of the report< the draft report should be circulated to the broader reporting group to ensure that it reflects the position of all relevant *overnment representatives. The *overnment should also consider ways to circulate the draft to civil society so as to respect article CC, which re2uires participation of persons with disabilities in monitoring the +onvention. The draft might also be shared with the N!5 or independent framewor1 established under article CC. Content@ the re2orting guidelines 1" The +ommittee has prepared reporting guidelines to advise States parties on the form and content of their reports, so as to facilitate the preparation of reports and ensure that these are comprehensive and presented in a uniform manner by States parties. +ompliance with the reporting guidelines will also reduce the need for the +ommittee to re2uest further information under article C. and under rule C., paragraph C, of its rules of procedure. 10 +!#,"+"'C. 102 5n relation to the rights recogni9ed in the +onvention, the treaty7specific document should indicate: @hether the State party has adopted policies, strategies and a national legal framewor1 for the implementation of each +onvention right, identifying the resources available for that purpose and the most cost7effective ways of using such resources< @hether the State party has adopted comprehensive disability anti7discrimination legislation to put into effect provisions of the +onvention in this regard< )ny mechanisms in place to monitor progress towards the full reali9ation of the +onvention rights, including recognition of indicators and related national benchmar1s in relation to each +onvention right, in addition to the information provided under appendix C of the harmoni9ed guidelines and ta1ing into account the framewor1 and tables of illustrative indicators outlined by -+! 4!5"M+"'((?"C6< Mechanisms in place to ensure that a State #arty0s obligations under the +onvention are fully integrated in its actions as a member of international organi9ations< The incorporation and direct applicability of each +onvention right in the domestic legal order, with reference to specific examples of relevant legal cases< The Budicial and other appropriate remedies in place enabling victims to obtain redress in the case their +onvention rights have been violated< Structural or other significant obstacles arising from factors beyond the State party0s control which impede the full reali9ation of the +onvention rights, including details of the steps being ta1en to overcome them< Statistical data on the reali9ation of each +onvention right, disaggregated by sex, age, type of disability 4physical, sensory, intellectual and mental6, ethnic origin, urban"rural population and other relevant categories, on an annual comparative basis over the past four years. The treaty7specific document should be delivered in accessible electronic format and in print. The report should follow paragraphs 'K to '. and '% of the harmoni9ed reporting guidelines. The format of the +onvention7specific document should be in accordance with paragraphs $% to 'C of the harmoni9ed reporting guidelines 4!5"*8N"'"!ev./, chap. 56. The initial report should not exceed .( pages, and subse2uent +onvention7specific documents should be limited to K( pages. #aragraphs should be numbered se2uentially. The reporting guidelines suggest the following broad structure: $. )rticles $7K '. Specific provisions: 4a6 82uality and non7discrimination 4b6 )wareness7raising 4c6 )ccessibility 4d6 !ight to life 4e6 Situation of ris1 and humanitarian emergencies 4f6 82ual recognition before the law 4g6 )ccess to Bustice 4h6 Hiberty and security of the person 4i6 =reedom from torture 4B6 =reedom from exploitation, violence and abuse 416 #rotecting the integrity of the person 4l6 Hiberty of movement and nationality 4m6 Hiving independently and being included in the community 4n6 #ersonal mobility 4o6 =reedom of expression 10( 4p6 !espect for privacy 426 !espect for home and family 4r6 8ducation 4s6 ealth 4t6 abilitation and rehabilitation 4u6 @or1 and employment 4v6 )de2uate standard of living and social protection 4w6 #articipation in political and public life 4x6 #articipation in cultural life C. Specific situation of boys, girls and women with disabilities K. Specific obligations 4a6 Statistics and data collection 4b6 5nternational cooperation 4c6 National framewor1 for implementation and monitoring The +ommittee0s reporting guidelines set out specific issues that State parties should report on, provision by provision. The initial report submitted by #eru 4+!#,"+"#8!"$6, part of which is reproduced below, provides a good example as the State party reported on each of the guidelines identified by the +ommittee. =or article '%, for instance, table below sets out the +ommittee0s guidelines in the left7hand column and the measures underta1en in the right7hand column. The example is interesting for at least two reasons: =irst, the State party ma1es the effort to report on each of the 2uestions identified in the reporting guidelines< Second, the information provided does not appear to answer the 2uestions posed by the +ommittee. =or example, the first response to the re2uest for legislation and measures to guarantee political rights mentions only the legal framewor1 but does not refer explicitly to persons with mental or intellectual disabilities, nor does it clarify whether the act does in fact guarantee political rights to persons with disabilities. 5nstead, it only mentions facilitating voting by persons with disabilities 4which is not exactly the same thing6. This demonstrates the importance of the constructive dialogue with the +ommittee to clarify such ambiguities. !0.#rti*le !9@ Parti*i2ation in 2oliti*al and 2ubli* life ?$. This article guarantees political rights to persons with disabilities. Report on Progress Hegislation and measures to guarantee to persons with disabilities, in particular persons with mental or intellectual disability, political rights, including, if it is the case, existing limitations and actions ta1en to overcome them Since the adoption of )ct No. '%KJ? by +ongress in ,ecember '((%, the National 8lection #rocedures -ffice has had the necessary legal framewor1 to facilitate voting by persons with disabilities. Measures ta1en to ensure the right to vote of all persons with disabilities, on their own or to be assisted by a person of their choice The national identity card also serves as the one and only type of voter registration card. 5ts use is compulsory for all citi9ens, and the National 5dentity and +ivil Status !egistry has 10% Report on Progress issued an administrative decision under which national identity cards are to be issued free of charge to persons with disabilities, following verification of eligibility. Measures ta1en to ensure the full accessibility of the voting procedures, facilities and materials Under )ct No. '%KJ?, the National 8lection #rocedures -ffice maintains a register of citi9ens with disabilities in order to facilitate their access to the ballot box by: 4a6 preparing ballot papers in Fraille 4Fraille templates6 for citi9ens with visual disabilities< 4b6 setting up voting booths at ground7floor level in polling stations< 4c6 temporarily moving voting booths from upper floors in polling stations to ensure that persons with disabilities do not have to climb stairs< 4d6 putting up signs in polling stations to guide citi9ens with disabilities and publici9ing the measures ta1en to facilitate their access to voting booths. The register can be consulted on the -ffice0s website. 5ndicators measuring the full enBoyment of the right to participate in political and public life of persons with disabilities 5n '((K>'((J, $(,J/? persons with disabilities exercised their right to vote. T Nationally, the total number of identity cards issued free of charge to persons with disabilities between '((C and / March '($( was .J,J'%, of which C?,?(/ were issued to adults and '?,%'K to minors. Support provided, if any, to persons with disabilities for the establishment and maintenance of organi9ations to represent their rights and interests at local, regional and national level Since '(($, the National +ouncil for the 5ntegration of #ersons with ,isabilities 4+-N),5S6 has maintained a register of associations, N*-s and other organi9ations that wor1 to benefit persons with disabilities and to address the problems they face< in a number of those organi9ations, parents and relatives of persons with disabilities sit on the board of directors. +urrently, C$( institutions have been entered on the roster maintained by the National !egistry< this authori9es them to enter into cooperative arrangements, gives them access to international cooperation funding and enables them to promote the social integration of their members.
6ist of issues -nce the +ommittee has received the State party0s report, its country rapporteur 4a member of the +ommittee6 will examine it, and the +ommittee with the assistance of the rapporteur 10) will decide if there is any information missing from the report. -n this basis, the +ommittee forwards a list of issues to the State party with a view to completing the information in the report. *enerally, State parties will respond to the list of issues in writing prior to the constructive dialogue with the +ommittee. The list of issues is normally decided by the +ommittee at the session before the constructive dialogue with the State party. This allows the State party sufficient time to respond. 5t also gives the +ommittee time to reflect on the additional information provided by the State and decide whether it now has enough information or whether further follow7up is necessary during the constructive dialogue. The report of Tunisia provides an example of how the list of issues wor1s. The State party, in its initial report, provided information on the rights of children with disabilities, although this focused primarily on health and education. Tunisia did not provide information on the protection of children from violence and exploitation. The +ommittee therefore re2uested this information. 5n its response 4+!#,"+"TUN"M"$")dd.$6, Tunisia noted: $.. )ssociations have called for increased efforts in legislative, administrative, social, educational, cultural and other spheres to prevent such practices. $J. 5n this regard we should li1e to mention that the +hild #rotection +ode promulgated by )ct No. %' of % November $%%/ guarantees children in general and children with disabilities in particular freedom from various forms of exploitation, violence and abuse. Under the said +ode, sexual or economic exploitation and habitual mistreatment of children are considered as difficult situations that re2uire swift intervention by both child protection officers and family Budges in order to protect children. +hild protection officers $?. +hild protection officers are experts on social issues and intervene in all situations in which the physical or mental health and safety of children could be at ris1 as a result of the environment in which they live or because they are vulnerable to various forms of abuse and exploitation. $%. +hild protection officers are one of the most important social protection mechanisms for children at ris1< there is one child protection officer in every province, although there can be more than one, if needed, in order to ensure swift and effective intervention and to protect children from all possible harm. '(. *iven the importance of reporting mechanisms in strengthening society0s role in protecting children from various forms of violence, abuse and exploitation, the +hild #rotection +ode provides that all situations in which children are living in difficult circumstances must be reported to a child protection officer, focusing on threats to children0s physical, mental and economic health and safety. '$. To underscore the importance of this mechanism in the protection of children at ris1, although persons bound by professional secrecy do not have a duty to report, those who do so enBoy legal 10+ protection through impunity as they are acting in good faith by reporting, even if the report proves to be incorrect. 0amily /udges ''. =amily Budges in cases involving children with disabilities at ris1 of exploitation, violence or abuse are re2uired to ta1e the appropriate decision in order to remove them from the difficult situation in which they are living, ta1ing into account their best interests, which all courts, administrative authorities and public or private social welfare establishments must ta1e into consideration when ta1ing any action relating to children. 'C. @hen the source of the violence, exploitation or abuse is the child0s family, a family Budge can decide to remove the child from his family and place him in a foster family, a speciali9ed social or educational institution or a training or educational centre. e may also send a child who has suffered physical or mental harm as a result of exploitation, abuse or violence for medical treatment, in order to ensure the child0s reintegration in society. 'K. ) child who is the victim of a crime of violence is in a difficult situation that re2uires the intervention of a family Budge to address the underlying causes and the conditions in which the child was subBected to such a crime. 5t is interesting to note that the State party provides little information on the protection of children with disabilities specifically, but more on its child protection system more generally. @hile this of course should apply to children with disabilities, too, there are a range of reasons why laws and policies should specifically mention the protection of children with disabilities. =or example, adults might have difficulty communicating with children who are deaf, which in turn might ma1e them more susceptible to violence and abuse as they might not be able to see1 protection. )lthough the State party did not fully address the +ommittee0s 2uestion, it nonetheless helped the +ommittee to identify that there is a child protection system in place, allowing for more specific 2uestioning during the +ommittee0s session and hence ensuring the optimal use of the +ommittee0s limited time. The Co//ittee9s session The next step is for the State party to come before the +ommittee to enter into a constructive dialogue. -n that basis, the +ommittee will issue concluding observations and recommendations for the State party. The +ommittee currently has two sessions a year with many items on its agenda. The first day will typically begin with opening speeches by its +hair and a representative of -+!. This will be followed by discussions in plenary session with representatives of United Nations organi9ations such as the @orld ealth -rgani9ation 4@-6 and the 5nternational Habour -rgani9ation 45H-6 as well as -+! and then by representatives of civil society. 5n the afternoon, the +ommittee continues to meet representatives to hear about specific initiatives related to accessibility or the national implementation of the +onvention. The +ommittee might also meet in private session to prepare the dialogue with a State party. 10* The +ommittee will then meet with the State party. The +ommittee0s dialogue with Spain lasted a full day, i.e., two sessions of three hours each. The session begins with the presentation by the State representative and then an introduction by the +ommittee0s country rapporteur. The +ommittee0s members then ta1e the floor to reflect on the State party0s report and as1 additional 2uestions. The dialogue proceeds in stages, in accordance with the reporting guidelines: general discussion< articles $>K< then discussions on rights< then rights of women and children with disabilities< and specific obligations 4national framewor1s, data collection and international cooperation6. The State representatives are given time to respond at intermittent stages throughout the day. The +ommittee will then meet in private session to discuss its concluding observations and recommendations, which also ta1es some time. 5n addition to the constructive dialogue, the +ommittee discusses communications under the -ptional #rotocol, as well as other topical issues such as its report to the *eneral )ssembly 4if relevant at that particular session6, treaty body strengthening, its methods of wor1, the drafting of any general comments or the preparation of future days of general discussion. 5ts concluding observations follow the format of those of other treaty bodies. They begin with the positive aspects of implementation by the State party. They then move onto Dfactors and difficulties impeding implementationE and Dprincipal areas of concern and recommendationsE. The latter are expressed in terms of observations followed by recommendations and follow the format of the report, namely articles $>K, specific rights, and specific obligations. To continue with the example of Tunisia, it is interesting to see that the preoccupations of the +ommittee at the list7of7issues stage appeared to have continued and the responses of the State party were insufficient to allay these concerns. 5n the concluding observations 4+!#,"+"TUN"+-"$6, the +ommittee noted: Children with disabilities +art. G, $.. The +ommittee is particularly concerned at the low rate of reporting 4signalement6 of cases of habitual mistreatment of children, including children with disabilities, which may amount to situations of danger, in view of the results of the Multiple 5ndicator +luster Survey 4M5+S '((.6 which indicated that %K per cent of children aged between ' and $K years are disciplined in the home through violent means, whether verbal, physical, or through deprivation. $J. The Co//ittee re*o//ends that the State 2art1@ +a, (valuate the 2heno/enon of violen*e against bo1s and girls with disabilities and *o/2ile s1ste/ati* disaggregated data +see 2ara. 09 below, with a view to better *o/bating it< +b, (nsure that institutions 2roviding *are for *hildren with disabilities are staffed with s2e*iall1 trained 2ersonnel sub=e*t to a22ro2riate standards regularl1 /onitored and evaluated and establish *o/2laint 2ro*edures a**essible to *hildren with disabilitiesE +*, (stablish inde2endent follow4u2 /e*hanis/sE and +d, Take ste2s to re2la*e institutional *are for bo1s and girls with disabilities with *o//unit14based *are. 10, ?ollow4u2 -nce the concluding observations have been adopted, they are posted almost immediately on the -+! website 4www.ohchr.org6. owever, the State party has a 1ey role in the follow7up. )ccording to article C. 4K6 of the +onvention: States Parties shall make their reports $idely available to the public in their o$n countries and facilitate access to the suggestions and general recommendations relating to these reports9 So States should at the very least publici9e concluding observations. 5n addition, they should see1 ways to follow up on recommendations as they will have to report on implementation four years later. Fearing these responsibilities in mind, the State might: 5ssue a press release about the dialogue and concluding observations< old a press conference about the concluding observations< 8nsure that the focal point, coordination mechanism and national independent framewor1 receive copies of the concluding observations< old a round table with civil society and N!5s to discuss the concluding observations< ,raw up an implementation plan that includes deadlines for the implementation of the recommendations and specifies the entities responsible for implementation< See1 the assistance of the United Nations country team for implementation, where necessary. The fun*tions of re2orting 5t is important to remember that reporting is not a one7off event or something that has to be done merely to fulfil an obligation under the +onvention. 5t is a fundamental part of the whole implementation process. So reporting to the +ommittee is both an end in itself, but also a way to strengthen implementation. Some of the functions of reporting can be summari9ed as follows: !eviewing implementation to date 5dentifying strengths and challenges in implementation See1ing assistance from international experts with implementation 5mproving data collection and analysis in relation to persons with disabilities 5mproving understanding of the +onvention through drafting the report 109 Strengthening coordination in the *overnment 4the coordination re2uired for reporting can also strengthen internal coordination mechanisms for ongoing implementation6 Strengthening dialogue and partnerships with civil society and N!5s on implementation Sharing experience on implementation with other countries through publication of the national report -therA #6T(RN#T)>( R(P%RTS Civil so*iet1BN'R) in2ut into the re2orting *1*le !eporting to the +onvention is not a single or isolated event. 5nstead, it is a process and civil society organi9ations and National uman !ights 5nstitutions 4N!5s6 can contribute to the various stages of the process. The overall process is as follows 4indicating where civil society organi9ations and N!5s can influence6: Drafting the State 2art1 re2ort > the State is responsible for preparing its initial and periodic reports. 5n some countries, the State reaches out to civil society and National uman !ights 5nstitutions when preparing the report. They might hold a consultation with 1ey organi9ations or circulate the report for review. Some countries annex the views of civil society to the report. 8ven where these practices are not present, civil society organi9ations and N!5s can attempt to have their say in the preparation and content of the report by contacting +onvention focal points in *overnment or, where it exists, the coordination mechanism. Pre2aring the list of issues > the +onvention will develop a list of issues on the basis of the State party report to send to the State party in order for the State party to prepare for the constructive dialogue. The State party should also provide answers to the list of issues prior to the session > which helps to focus the discussion. +ivil society organi9ations can provide information at the time of submission of the State party report and, in this way, influence the list of issues that are provided to the State for clarification in preparation of the interactive dialogue. 5n addition, civil society organi9ations can provide answers to the list of issues which will ensure the +ommittee has the widest possible information before it. The Co//ittee session > during the +ommittee0s session, civil society organi9ations and N!5s can play an active role. The +ommittee will generally meet with civil society organi9ations and N!5s related to the reporting country to hear issues of interest and concern. 5ndividuals can also use the opportunity of being in *eneva to meet with +ommittee members to discuss various implementation issues they face nationally. +ivil society organi9ations and N!5s can also be present during the dialogue with the State party. =ollowing the dialogue in this way can clarify how the +ommittee identified its various concluding observations which in turn can help with follow7up later at the country7level. 110 ?ollow4u2 to *on*luding observations > civil society organi9ations and N!5s have crucial roles in ensuring follow7up. @hile the ultimate responsibility for implementing concluding observations rests with the *overnment, civil society organi9ations and N!5s can also play their part. This is considered in greater detail below. -'#T #R( #6T(RN#T)>( R(P%RTS. )lternative reports are one way3and a significant one3in which civil society and N!5s can have their say in the reporting process. There is no strict definition of an alternative report and there is no strict format to follow as such. 5n general, an alternative report provides the +ommittee with complementary information to that provided by the State party with a view to ensuring the +ommittee has the fullest information before it. )n alternative report will not necessarily contradict the State report, but simply add to it or provide an alternative perspective on issues raised in the State report. owever, if a State report does not provide the most accurate or up7to7date information, the alternative report can alert the +ommittee to such information. Fy providing complementary information, the ultimate aim of alternative reports is to ensure the most relevant concluding observations and recommendations to assist with future implementation. STR&CT&R( %? T'( R(P%RT There is no re2uirement to structure alternative reports in a particular way< however, drafters should consider a methodological approach that assists the +ommittee to understand how the report was compiled and that identifies in as clear a manner as possible the issues civil society and N!5s wish to raise with the +ommittee as well as possible solutions. The following is one possible structure, drawn in large part from the +ommittee0s reporting guidelines: $. 8xecutive summary setting out the principal concerns, advances and recommendations '. Table of contents C. Methodology for preparing the report, including the process of data collection and which organi9ations have been involved in preparing and finali9ing the report K. ,iscussion of the general bac1ground3political, economic, social, cultural3that might help the +ommittee better understand the context of the report /. Qey issues: 4a6 )rticles $7K: purpose, definitions, general principles and general obligations 4b6 )rticles />C(: in relation to specific rights 4c6 )rticles . and J: boys, girls and women with disabilities 111 4d6 )rticles C$>CC: specific obligations in relation to data and statistics, international cooperation and national implementation and monitoring framewor1s .. !ecommendations, to be as precise and directed as possible. There is no need to include many. 5(T'%D%6%GY@ ?%R5)NG # C%#6)T)%N ?%R #N #6T(RN#T)>( R(P%RT )lthough not a re2uirement, it can be useful to form a coalition of national sta1eholders to prepare the alternative report. This helps the +ommittee by providing it with one document covering the various concerns of civil society across the country. 5n addition: =orming a coalition to draft the report also helps to form national civil society coalitions to wor1 on issues beyond the alternative report. =or example, the coalition might not only prepare the alternative report but wor1 together on implementing the +ommittee0s recommendations. Similarly, it allows sta1eholders to understand issues of concern in areas beyond their own focus. =or example, one organi9ation focusing on service delivery for persons with physical disabilities might learn about the concerns of another that is wor1ing to protect the rights of persons with psychosocial disabilities in prisons. This provides an opportunity to learn about the wor1 of other disability groups and identify common areas of activities such as advocacy. =urthermore, forming coalitions allows groups to capitali9e on 1nowledge and expertise. =or example, a ,#- might have extensive experience on protecting disability rights nationally and could pair up with the more general human rights organi9ation with extensive experience in treaty body reporting. Foth organi9ations bring something to the table and can ma1e for an effective process and useful alternative report. Some issues to consider in forming coalitions are: )re all disability constituencies representedA 5s the diversity of society reflected as much as possible, e.g., men and women, a child perspective, older persons, racial and ethnic minorities, indigenous persons and so on. 5s there sufficient 1nowledge about the treaty body reporting systemA 5s there sufficient capacity to consult with as wide a group as possibleA C%NT(NT@ SP(C)?)C R)G'TS 5t is advisable for alternative reports to follow the +ommittee0s reporting guidelines. This means that the report aligns with the +ommittee0s practice and also with the State report, assuming that the State has followed the reporting guidelines when preparing its report. )s noted above, the +ommittee groups the rights and obligations in the +onvention as follows: 112 ,efinitions, general principles and general obligations< Specific rights< The rights of women, boys and girls with disabilities< Specific obligations, namely data and statistics, international cooperation and national implementation and monitoring framewor1s. The reporting guidelines also provide a list of 2uestions that should be addressed in relation to the various provisions under these headings. =or example, the +ommittee0s guidelines for article / on non7discrimination and e2uality are: This article recogni1es that all persons are e-ual before the la$ $ith entitlement to e-ual protection and benefit of the la$ on e-ual grounds $ithout any discrimination9 States parties should report on: "hether persons $ith disabilities are able to use the la$ to protect or pursue their interests on an e-ual basis $ith others Effective measures taken to guarantee persons $ith disabilities e-ual and effective legal protection against all types of discrimination. including the provision of reasonable accommodation Policies and programmes. including affirmative action measures. to achieve the de facto e-uality of persons $ith disabilities. taking into account their diversity9 Spain provided the following information in response to these 2uestions in its initial report 4+!#,"+"8S#"$, paras. $/>$., emphasis added6: GH9 'n the sphere of disability. full compliance with this article is ensured by the GDIJ +onstitution and '2*,A) ?Act *o9 HG!FKKL on e-uality of opportunity. non4discrimination and universal accessibility for persons $ith disabilitiesA mentioned earlier9 +hapter '' of the latter is devoted to e-uality of opportunityC specifically. it defines infringements of the right to e-uality of opportunity 7as defined in art9 G8 and specifies t$o types of measure $hich the public authorities must take to guarantee that right. namely anti4 discrimination and affirmative action measures9 'n addition. article GK of '2*,A) re-uires the Government to regulate the basic conditions to govern accessibility and non4discrimination in a number of spheres and areas9 However, in view of the entry into force of the Convention, steps are being taken to revise existing legislationC there is already a proposal to amend articles GK and GJ of the General Health Act *o9 GM!GDJN to include a mention of disability as one of the grounds on $hich no person may be discriminated against9 GN9 The entry into force of !"#D$% and its enabling regulations, together with the mechanisms for supervision and 11( the imposition of penalties, is a basis for the achievement and guaranteeing of e&uality and non'discrimination9 'n addition. it offers the system effective safeguards against discrimination of any kind9 The establishment of specific regulations and action plans and programmes in the different areas is the responsibility of the ministerial departments concerned. $hich $ill in any case have to adapt to the ne$ standards9 5n summary: Spanish legislation ensures full compliance with article /< Some legislation nevertheless re2uires revision in the light of the +onvention, such as the *eneral ealth )ct< Hegislation together with the supervisory mechanisms and sanctions imposed for breaches of the law provide an effective regime to guarantee e2uality and non7 discrimination. The alternative report provides the +ommittee with a longer response to its 2uestions as well as complementary information. 5t notes that: #rotection against discrimination in Spanish legislation is not in line with the +onvention as it is restricted to persons with a certificate indicating a degree of disability above CC per cent 4although the *overnment has expressed its intention to repeal this re2uirement6< )dministrative and legal protection against discrimination is not effective. There are supervisory and sanctions mechanisms but these face two obstacles: / There is no data to demonstrate that the infraction system is being applied and so its efficacy is un1nown. -n the $( complaints filed there has been no action. / The procedures are slow 4ta1ing $$ to '. months6, which can lead to irreparable damage. R(C%55(ND#T)%NS 5t is important for alternative reports to propose action that the +ommittee can ta1e, such as 2uestions that the +ommittee could put to the State representatives. )lternatively, it could propose recommendations to be included in the concluding observations. The important thing to remember is that recommendations should be as clear and targeted as possible so that they can be implemented and reflected in the next periodic report. Nague or general recommendations might be confusing for the State party to implement or lead to non7 implementation or ineffective implementation. Some guidelines for recommendations are: They should be clear 8ach one should contain only one action 11% They should specify who should implement them 5f possible, they should be measureable @here relevant, they should specify a time frame for implementation They should be lin1ed to a particular implementation challenge They should not be vague or general Still in connection with article /, the alternative report on Spain0s implementation ma1es two sets of recommendations. 5n relation to the claim that protection against discrimination fails to protect certain persons with disabilities, it proposes a focus not on percentages of disability but on vulnerability: 't is important. not only to e3tend protection against discrimination in line $ith the +onvention. but also to consider the situation of those persons $ho. despite having a permanent disability and obvious difficulty in accessing and e3ercising their rights 7this can be clearly. although not e3clusively. seen $ith regard to the right to $ork. or education8 do not meet the re-uirements of the administrative concept of disability9 'n this regard. +ER(' ?Spanish +ommittee of Representatives of Persons $ith ,isabilitiesA have already proposed that certain particularly vulnerable groups $ho are in a situation of legal neglect 7persons $ith limited intelligence. for e3ample8 should receive administrative recognition. and it is necessary that the Spanish State identify situations of great vulnerability and adopt the measures needed to $iden the protection of the rights of persons in a situation of disability in accordance $ith the ?+onventionA9 5n relation to the claim that the supervisory and sanctions mechanisms were not completely effective, the alternative report recommends: 'nclude indicators monitoring the efficacy of the protection systems follo$ing up matters both in the administrative disciplinary area and follo$4up indicators in the legal area "ith regard to the legal protection on fundamental rights. principally in the contentious4administrative and civil areas. it is necessary to hasten processes or establish immediate protection measures 7similar to in/unction proceedings8 Ensure that the system of infractions and sanctions of '2*,A) is developed on a regional level and started effectively Promote the arbitration system covered by '2*,A) E3tend the benefit of free (ustice to all situations $here protection has been re-uested of a fundamental right $hich has been violated on the grounds of disability. $ith no financial restrictions to its application9 11) The recommendations are helpful, although not all of them meet the suggestions listed above. +onsider the following recommendation: 'nclude indicators monitoring the efficacy of the protection systems follo$ing up matters both in the administrative disciplinary area and follo$4up indicators in the legal area 5n general terms, the recommendation is helpful: 5t is clear 5t is measureable 5t lin1s with and responds to an implementation challenge 5t is not vague or general. 5t could be improved by: Specifying which governmental authority should develop the indicators Setting a time frame for this to occur. D#T# C%66(CT)%N #ND #N#6YS)S There are several data sources that could be helpful for the alternative report: Haws and policies. The alternative report, as with the State report, should provide the +ommittee with information on the legal and policy context as it relates to the +onvention0s implementation. This re2uires a mapping of laws and a gap analysis. See the forthcoming -+! handboo1 on legislation, which should assist in identifying legal compliance with the +onvention. !eview of secondary materials. +ivil society organi9ations might not have the time or the resources to collect new data. -ne way to overcome this situation is to rely on trustworthy secondary sources of information. =or instance: !eports, such as census data or ad hoc reports, from the national statistical institute ,ata from ministries of education, health, social affairs, transport !eports from the United Nations and the @orld Fan1 might either include information on persons with disabilities or even focus specifically on disabilities National human rights institutions might have information such as research reports )cademic institutions might have underta1en research or surveys on the rights of persons with disabilities. 11+ 5nformation on complaints 4such as court cases, complaints to the ombudsman and so on6 can show whether individuals are using complaints mechanisms and whether such mechanisms are effective. )n analysis of complaints can also identify challenging and recurring issues in implementation. 5t might be possible for civil society organi9ations to underta1e their own research for the alternative report. Techni2ues such as household surveys can provide 2uantitative information, while interviews with 1ey experts and interviews with groups reflecting the diversity of disability can provide important 2ualitative information that could add depth to the report, for example, by reflecting an individual0s actual experience of human rights in the national context. S&$5)TT)NG T'( R(P%RT T% T'( C%55)TT(( The drafters should submit their alternative report to the +ommittee in time for it to be considered in full. This could be done: )t the time of submission of the State report. owever, given the delays in the +ommittee0s review of State reports, this might re2uire updating the report prior to the constructive dialogue. #rior to the +ommittee0s session preceding its review of the State party report. =or example, if the State party will be reviewed at the tenth session, the +ommittee0s secretariat should receive the alternative report before the ninth session, so the report can influence the list of issues. #rior to the session itself. 5n this way, the alternative report can still influence the constructive dialogue with the State and will be fully up to date. The report should be sent to the -ffice of the United Nations igh +ommissioner for uman !ights, secretariat of the +ommittee on the !ights of #ersons with ,isabilities, at crpdWohchr.org. +ivil society organi9ations might also consider attending the +ommittee0s sessions either: )t the session prior to the constructive dialogue with the State. The 5nternational ,isability )lliance holds a lunchtime session for the +ommittee0s members, which is open to the public, to discuss issues relating to the State party whose report will be reviewed at the next session. or )t the session of the constructive dialogue. The +ommittee will set aside time to meet civil society organi9ations and N!5s prior to the constructive dialogue to have their views. These sessions are normally closed. ?%66%-4&P T% T'( C%55)TT((9S S(SS)%N There are many ways in which civil society organi9ations, either separately or in partnership with the authorities, can follow up on the +ommittee0s concluding observations and recommendations. =or example, they may: 11* 5ssue a press release to raise awareness of the concluding observations and recommendations +ontinue the coalition that drafted the alternative report, meet and strategi9e on ways to move forward on the concluding observations Meet staff in the relevant ministries to ensure that a wor1plan for the implementation of the concluding observations is developed Meet parliamentarians to raise awareness of specific recommendations that re2uire law and policy reform Meet the United Nations country team to encourage United Nations agencies to advocate implementation of the concluding observations and to align programming with the +ommittee0s recommendations old a national conference to raise awareness of the concluding observations old wor1shops on specific issues 5dentify recommendations that civil society could assist in implementing =ollow implementation of recommendations over time to maintain focus !eport on implementation to the +ommittee as well as to other international processes such as the universal periodic review. 11, 5%D&6( H T'( %PT)%N#6 PR%T%C%6 )ntrodu*tion This module sets out the basic parameters of the two procedures under the -ptional #rotocol to the +onvention on the !ights of #ersons with ,isabilities: communications and in2uiries. 5t explains the steps involved in each procedure and identifies some of the benefits of the -ptional #rotocol as a means of strengthening the rights of persons with disabilities. The Co//ittee on the Rights of Persons with Disabilities )rticle CK of the +onvention establishes a +ommittee on the !ights of #ersons with ,isabilities, an international committee of independent experts with several functions 4the +ommittee6. 5ts members are elected during the +onference of States #arties, which ta1es place in New Gor1. Unli1e the +onferences of States #arties of other human rights treaties, that of the +onvention on the !ights of #ersons with ,isabilities also holds substantive discussions on issues related to the +onvention0s implementation. State parties elect the experts by secret ballot on the basis of candidatures put forward by the State parties themselves. The State parties elect the expert members on the basis of their competence and experience in the field of human rights and disability, and also in consideration of e2uitable geographic representation, representation of different forms of civili9ation and legal systems, gender balance, and participation of experts with disabilities. The experts serve in their personal capacity: they do not represent the State that put forward their candidature or that elected them. They are independent. The Co//ittee9s duties under the Convention Fy becoming parties to the +onvention, States commit to providing the +ommittee with 2eriodi* re2orts on the steps they have ta1en to implement it 4art. C/6. State parties shall submit their initial reports within two years of the +onvention0s entry into force for them and subse2uent reports at least every four years thereafter and further whenever the +ommittee re2uests them to do so. The +ommittee engages in a *onstru*tive dialogue with State parties and issues concluding observations and recommendations for follow7up action to improve and strengthen the +onvention0s implementation. -ther interested parties, such as national human rights institutions and civil society organi9ations, can also be part of this dialogue. ,#-s for example can submit alternative reports to the +ommittee. )lternative reports can be very valuable, as they provide a civil society perspective on implementation and thus give the +ommittee a fuller view of the status of the +onvention0s implementation. The +ommittee may also hold da1s of general dis*ussion, open to the public, during which it discusses issues of general interest arising from the +onvention. The +ommittee has already held days of discussion on legal capacity and accessibility. The +ommittee issues general *o//ents on specific provisions in the +onvention or on specific issues. These are authoritative statements that clarify issues arising from the implementation of the +onvention. *eneral comments have been particularly important in the context of other treaty bodies, as they provide a summary guide for the implementation 119 of specific treaty provisions. =or example, the general comments of the +ommittee on 8conomic, Social and +ultural !ights have had a significant impact at the national level, fleshing out the +ovenant0s provisions, which are 2uite general. National courts in several Burisdictions on different continents have referred to these general comments as a means of applying the +ovenant to individual cases. The Co//ittee9s duties under the %2tional Proto*ol The -ptional #rotocol is a separate international legal instrument attached to the +onvention on the !ights of #ersons with ,isabilities 4+onvention6. 5t was adopted together with the +onvention on $C ,ecember '((.. The -ptional #rotocol is subBect to separate ratification or accession. 5n order to become a party to the -ptional #rotocol, a State already needs to be a State party to the +onvention. !eservations to the -ptional #rotocol are permitted so long as they are not incompatible with the obBect and purpose of the +onvention and the #rotocol. The #rotocol is optional in the sense that States are not obliged to ratify it. owever, the right to remedy or redress is fundamental for the full enBoyment of all rights, as recogni9ed, for instance, in the 5nternational +ovenant on +ivil and #olitical !ights and in the +onvention on the !ights of #ersons with ,isabilities. 5t applies to persons with disabilities as it does to anyone else. Treaty bodies always recommend the ratification of optional protocols to ensure the comprehensive protection of rights. Fy becoming parties to the -ptional #rotocol, States recogni9e the competence of the +ommittee to receive complaints from individuals 41nown as communications6 alleging violations of any of the provisions of the +onvention. The -ptional #rotocol 4art. .6 also provides the +ommittee with the opportunity to underta1e in2uiries if it receives reliable information indicating grave or systematic violations of the +onvention in a particular State party. States can opt out of the in2uiry procedure by ma1ing a declaration to this effect at the time of signing or ratifying the -ptional #rotocol 4art. ?6. $asi* infor/ation on the *o//uni*ations 2ro*edure The procedure for individual communications set out in the -ptional #rotocol is similar to that under other international human rights treaties. 5t allows individuals and groups of individuals claiming be have suffered violations of any of the provisions of the +onvention to present complaints before the +ommittee. 5t is worth pointing out from the outset some basic information on what the -ptional #rotocol is and what it is not so as to avoid confusion. The communications procedure is what is 1nown as a 2uasi7Budicial procedure. 5n many ways the procedure parallels Budicial consideration of complaints but there are also some important differences: The procedure is in writing and there is no oral hearing as in court cases. The parties are not represented before the +ommittee by lawyers, nor is it necessary for the parties to come to the +ommittee. 8verything is done in writing, through correspondence. The +ommittee0s experts are independent experts but they are not Budges. The +ommittee offers views and recommendations on communications but unli1e a court decision these are not legally enforceable. Their implementation will depend on the political will of the State party and the pressure brought to bear through various actors at the national level. The +ommittee cannot compel implementation. 120 5t is also interesting to note that there have already been many communications sent to the +ommittee. owever, most of these have not been registered as they do not meet even the basic re2uirements for admissibility 4for example, many communications have been brought against the United States, which is not a party to either the +onvention or its -ptional #rotocol6. The *o//uni*ation 2ro*edure@ fro/ *o/2laint to resolution The overall procedure is as follows: 5ndividuals can complain to the +ommittee if they believe that they have been treated contrary to any of the articles of the +onvention. The complaint is sent to the petitions team of -+!, +7$'$$ *eneva $(, tb7petitionsWohchr.org or by fax 4for urgent matters6 XK$ '' %$J %( ''. The communication is registered. 5n order to be registered, the communication must meet the basic re2uirements for admissibility, such as identification of the State as a State party to the -ptional #rotocol. -therwise, the communication is not registered or the petitions team may re2uest additional information. )ny communication received is then brought to the attention of the State party concerned. The State party may submit written explanations within six months, clarifying the matter and outlining possible remedies that may have been ta1en. The +ommittee should transmit the information provided by the parties to the other parties and shall afford each party the opportunity to comment on submissions within fixed time limits. 5f necessary, the +ommittee may order interim measures to prevent any irreparable damage occurring to the individual or group. owever, this does not imply that the +ommittee believes the communication is either admissible or founded. The +ommittee could order interim measures but then decide that the communication inadmissible and ta1e no further action. The +ommittee will consider whether the communication is admissible. 5f the communication is admissible, the +ommittee will consider the merits of the communication. 5n other words, it will assess whether there has been a violation of the +onvention or not. 5f the communication is inadmissible, the parties are informed and that is the end of the matter. -ther committees decide on admissibility and on the merits together as this can save time. The +ommittee on the !ights on #ersons with ,isabilities has not yet developed a practice in this regard. )fter examining the communication, the +ommittee will forward its views and recommendations, if any, to the State party and the petitioner. The views on admissibility and the merits are made public. 5f the +ommittee ma1es a finding of a violation, it will follow up on action ta1en by the State, for example, through future periodic reports. The +ommittee has not yet decided any case on the merits. owever, communications related to the rights of persons with disabilities have been considered by regional human rights mechanisms as well as by other United Nations human rights treaty bodies, such as the uman !ights +ommittee. ere are two examples: one from the +ouncil of 8urope0s +ommittee of Social !ights and another from the uman !ights +ommittee: (uro2ean Co//ittee of So*ial Rights $utism )urope v. *rance Co/2laint No. 10B!""! 121 $. 0acts: )ccording to State legislation, people with autism were able to attend mainstream schools, either individually 4individual mainstreaming6 in ordinary classes with the assistance of special auxiliary staff, or as part of a group 4collective mainstreaming6 through school integration classes 4primary level6 or educational integration units 4secondary level6. #eople who, due to the severity of their autism, were unable to integrate into the ordinary school system, were able to receive special education in a speciali9ed institution. 5ndividual mainstreaming was financed through the general education budget, while collective mainstreaming was financed through the sic1ness7insurance benefit. )utism78urope argued that the State did not, in practice, ma1e sufficient provision for the education of children and adults with autism due to identifiable shortfalls3both 2uantitative and 2ualitative3in the provision of both mainstream education as well as so7called special education. '. +laim: )utism78urope claimed that the failure to ta1e the necessary steps to ensure the right to education of children and adults with autism resulted in violations of the right of persons with disabilities to independence, social integration and participation in the life of the community, the right of children and young persons to social, legal and economic protection and the prohibition on discrimination. C. ,ecision: The +ommittee recalled that the implementation of the 8uropean Social +harter re2uired State parties to ta1e not merely legal action but also practical action to give full effect to the rights recogni9ed in the +harter. @hen the achievement of one of the rights in 2uestion was exceptionally complex and particularly expensive to resolve, a State party had to ta1e measures that allowed it to achieve the obBectives of the +harter within a reasonable time, with measurable progress and to an extent consistent with the maximum use of available resources. 5n doing so, States should be mindful of the impact that choices of measures might have on groups with heightened vulnerabilities as well as for others affected, especially the families of vulnerable people. 5n the light of the facts of the case, the +ommittee noted that the State continued to use a more restrictive definition of autism than that adopted by the @orld ealth -rgani9ation and that there were still insufficient official statistics that would rationally measure progress through time. =urther, the proportion of children with autism being educated in either general or specialist schools was much lower than that of other children3whether disabled or not3and there was a chronic shortage of care and support facilities for autistic adults. =or these reasons, the State had failed to achieve sufficient progress in advancing the provision of education for people with autism. The +ommittee also noted that establishments speciali9ing in the education and care of disabled children, particularly those with autism, were not in general financed from the same budget as normal schools< however, this did not amount to discrimination as it was for the States themselves to decide the modalities of funding. K. 0inding: The +ommittee stated that the State did not conform with the +harter. 'u/an Rights Co//ittee +,-, v. -ermany *o//uni*ation No. 1AH!B!""D $. 0acts: Three members of the author0s family filed lawsuits against the author in family law and civil matters. The author made fre2uent and voluminous submissions in court proceeding and appealed every single decision that she considered disadvantageous. The members of her family sought an order compelling her to desist from ma1ing certain statements and see1ing pecuniary damages. The court, without hearing or seeing the author in person, ordered a medical examination of the author to assess whether she was capable of ta1ing part in the legal proceedings. The court reasoned that the behaviour of the author in the proceedings, including her many very voluminous submissions to the court, raised doubts as to her capacity to ta1e part in proceedings. The author challenged the court0s decision re2uiring a medical examination, claiming that there were no obBective reasons for ordering the examination and challenging the absence of an oral hearing prior to issuing the order. aving lost that challenge, she too1 122 her challenge to two higher courts, including the =ederal +onstitutional +ourt, both of which reBected it. '. +laim: The author claimed to be victim of violations of articles J 4freedom from torture or cruel, inhuman or degrading treatment6, $J 4right to privacy6 and $K 4$6 4right to a fair trial6 of the 5nternational +ovenant on +ivil and #olitical !ights. 5n relation to article J, she argued that re2uiring the medical treatment was DdegradingE as it would cause feelings of fear or anguish and inferiority capable of debasing the victim. 5n relation to article $J, she argued that involuntary medical examination would interfere with her privacy and integrity, arguing that only in exceptional circumstances and for compelling reasons may a person be subBected to medical or psychiatric examinations without explicit consent. =inally, in relation to article $K 4$6, she argued that the refusal of the court to hear or see here in person prior to ordering her medical examination violated her right to a fair trial as an oral hearing is an essential element of the due process guarantees. C. The State party<s submissions on admissibility and on the merits: The State challenged the admissibility of the communication, arguing that it constituted an abuse of the right of submission on various grounds, including the fact that she did not disclose that the order of the court to determine her capacity concerned only proceedings against members of her family and not her legal capacity in other respects. 5n relation to the merits of the case, the State considered the claim to be Dmanifestly ill7foundedE. The State argued that the author was not compelled to undergo the examination as she could refuse to see the expert, in which case the opinion would be prepared on the basis of the files. Moreover, the State said that the author would have had the occasion to be heard by the court when the court came around to evaluating the expert opinion< however, that stage had not been reached in the proceedings. K. ,ecision: The +ommittee considered admissibility and the merits together. -n admissibility, the +ommittee found that the author had failed to substantiate that the invitation to undergo an expert examination by itself failed to raise issues related to article J so this part of the submission was inadmissible. Similarly, the +ommittee found that the author had not sufficiently substantiated the claim in relation to article $K 4$6. 5n relation to article $J, the +ommittee found that the author had substantiated these claims for purposes of admissibility and the State had not challenged this. /. 0inding: The +ommittee found that to order a person to undergo medical treatment or examination without the consent or against the will of that person constitutes interference with privacy, and may amount to an unlawful attac1 on his or her honour and reputation. =or such an interference to be permissible, it must meet certain conditions, i.e., it must be provided for by law, be in accordance with the provisions, aims and obBectives of the +ovenant and be reasonable under the circumstances. The +ommittee found the court0s actions not to be reasonable, as the author would either have to undergo the examination or, alternatively, the expert would prepare the opinion on the basis of the file without the author being heard e. 5t found a violation of article $J in conBunction with article $K 4$6. The +ommittee noted the State was under an obligation to provide the author with an effective remedy and to prevent similar violations in the future. The +ommittee re2uested information about measures ta1en to follow up on its views within $?( days. The +ommittee also re2uested the State to publish the +ommittee0s views. 5t is interesting to review these two cases, which precede the +onvention, in the light of the +onvention0s norms and standards. 5n particular, the second case raises particularly complicated issues. 5mportantly, the court0s actions, calling into 2uestion the legal capacity of the author, would be 2uestionable under the +onvention for failing to respect legal capacity on an e2ual basis with others 4using mental disability as a possible distinction for denying her legal capacity in relation to the case6. ow would this case have been decided by the +ommittee on the !ights of #ersons with ,isabilities under the -ptional #rotocol to the +onventionA 12( Che*klist for sub/itting a *o//uni*ation The +ommittee has provided helpful guidance on the issues that must be reflected in a communication for it to be registered 4+!#,"+"/"C"!ev.$6. These are produced in the box below: 12% Guidelines for sub/ission of *o//uni*ations to the Co//ittee on the Rights of Persons with Disabilities under the %2tional Proto*ol to the Convention 1. )nfor/ation *on*erning the author+s, of the *o//uni*ation =amily name =irst name4s6 ,ate and place of birth Nationality"citi9enship Sex -ther relevant personal identification data 4if any of the above details are not available6 #resent address #ostal address for confidential correspondence 4if other than present address6 Telephone or mobile number 4if any6 87mail address 4if any6 =ax number 4if any6 5f you are submitting the communication on behalf of the alleged victim4s6, please provide evidence showing the consent of the victim4s6, or reasons that Bustify submitting the communication without such consent !. )nfor/ation *on*erning the alleged vi*ti/+s, =amily name =irst name4s6 ,ate and place of birth Nationality"citi9enship Sex 5f you consider it appropriate, please indicate whether the alleged victim4s6 has a disability and, if so, the nature of that disability -ther relevant personal identification data 4if any of the above details are not available6 #resent address #ostal address for confidential correspondence 4if other than present address6 Telephone or mobile number 4if any6 87mail address 4if any6 =ax number 4if any6 5f the communication concerns a group of individuals claiming to be victims, please provide basic information about each individual, in line with the above list 0. )nfor/ation on the State 2art1 *on*erned 12) )ll ten points are important. 5t is relevant to draw attention to some specific issues: "ho can apply# )ny individual under the Burisdiction of a State party that has accepted the competence of the +ommittee can submit a communication to the +ommittee0s secretariat. 5n addition, groups of individuals can also submit communications. 5n other words, two or more individuals can Boin together and send a communication to the +ommittee claiming a breach of their rights. =urthermore, a communication can be brought on behalf of an individual or group. That means, for example, a family member, an N*- or a public interest law centre or other entity could bring a communication on behalf of someone. The +ommittee0s rules of procedure simply specify that communications may be submitted on behalf of an individual or a group of individuals 4rule .%6. )s is clear from the information, an author submitting a communication on behalf of alleged victim4s6 must provide evidence of the consent of the victim4s6 4such as a power of attorney6, or reasons that Bustify submitting the communication without such consent. Against $hom# The defendant State must have accepted the competence of the +ommittee by ratifying the -ptional #rotocol. "hat is the communication about# The communication must include an allegation of a violation of any provision in the +onvention. 5t is important to note that the communication can concern any DprovisionE. The authors should ma1e sure that they clarify which provisions have allegedly been breached and how that alleged breach has affected them. 12+ Ho$A The communications procedure is a confidential written procedure< there are no oral hearings. owever, the -ptional #rotocol does not rule out oral hearings and the +ommittee could receive oral submissions, although this is unli1ely. Re*eivabilit1 and ad/issibilit1 The -ptional #rotocol sets out strict admissibility criteria 4arts. $>'6, which must be met before the +ommittee can decide on the merits. )rticle $ sets out the basic re2uirements that a communication must meet for the +ommittee to receive and consider it. 5f these re2uirements are clearly not met, the +ommittee0s secretariat cannot register the communication and it does not even get to the admissibility stage. The +ommittee might have to consider some of these criteria itself at the stage of admissibility, if they were not clear at the registration stage. These criteria are set out here in 2uestion form: 5s the communication from an individual or a group of individualsA 5n other words, does the author have standing to bring the communication under the -ptional #rotocolA 5f not, the +ommittee will reBect it on formal grounds. =or instance, if an author brings a complaint without demonstrating that it is on behalf of an individual or a group of individuals3for example, without furnishing a power of attorney3then the author will not have standing. ,oes the individual or group claim to be a victim of a violation of the +onventionA This is the vi*ti/ re2uirement. The communication must identify an individual or a group of individuals whose rights have suffered. 5t is not possible to bring a general claim against a State, e.g., on behalf of the broader community for failure to fulfil its obligations but without demonstrating that someone has been victim of this failure. 5s the claimant subBect to the State0s BurisdictionA There must be a connection between the victim and the State party against which the allegation is made. as the State ratified the -ptional #rotocolA 5f the State has not accepted the +ommittee0s Burisdiction to receive and consider communications, the +ommittee cannot consider any communication against that State. )rticle ' sets out the re2uirements for admissibility. These apply to those communications that are registered and that the +ommittee considers. )s noted above, the +ommittee could decide that the communication does not meet the admissibility re2uirements after all and so there is no need to consider its merits. 5s the alleged victim anonymousA 5f so, the +ommittee cannot admit the communication. 5t should be noted that for all communications the identity of the author can nevertheless remain confidential, if the author so re2uests. as the communication come before another international procedure of investigation or settlementA This criterion aims at ensuring that a given international or regional body does not examine a communication if the same matter is being 4simultaneous procedures6 or has already been 4successive procedures6 examined by another international procedure. )re domestic remedies exhaustedA The exhaustion of domestic remedies is an important rule of law, which applies to other dispute mechanisms, too. 5ts purpose is to give national authorities, generally courts, an opportunity to deal with allegations of human rights violations first. 5ndeed, an important aim of communications procedures 12* is to strengthen national human rights protection mechanisms, which are more easily accessed and li1ely to provide 2uic1er and legally enforceable remedies to victims. aving exhausted domestic remedies is a 1ey admissibility criterion under the -ptional #rotocol. =or this reason, it is important for authors to include as much information as possible in their submissions on how they have exhausted domestic remedies. )s noted above, the submission can indicate the type of action ta1en, the authority to which it was addressed, when the action was ta1en, the final decision and so on. The +ommittee has also as1ed why domestic remedies were not exhausted. 5ndeed, according to article ' 4d6, this re2uirement can be waived in some cases: where the application of the remedy is unreasonably prolonged or unli1ely to bring effective relief. This mirrors developments in other areas of international law. =or example, the 8uropean +ourt of uman !ights re2uires domestic remedies to have been exhausted where remedies are DavailableE and DeffectiveE. The inter7 )merican system has identified three exceptions to the rule: 4$6 the domestic legislation of the State does not afford due process of law for this rule< 4'6 the party alleging violation of rights has been denied access to remedies under domestic law or has been prevented from exhausting them< 4C6 there has been unwarranted delay in rendering a final Budgement under the aforementioned remedies. 5s the communication manifestly unfounded or unsubstantiatedA This allows the +ommittee to exclude communications which are contrary to the obBects and purposes of the +onvention. ,id the alleged conduct occur after the entry into force of the -ptional #rotocol for the StateA The State cannot be held to account by the +ommittee for an action that occurred prior to its acceptance of the communications procedure. =ew communications are ever registered. )s of $% November '($', the +ommittee has registered a total of nine individual communications in relation to seven State parties to the -ptional #rotocol. -ut of these nine, one has already been examined by the +ommittee on the merits 4communication No. C"'($$, H9(9 v. S$eden6 and one has been found inadmissible 4communication No. ."'($$, (cAlpine v. )nited :ingdom6. $$
)nteri/ /easures 5n urgent situations, the +ommittee may, after receipt of the communication and before adopting its views, re2uest a State party to ta1e certain interim measures to avoid irreparable damage to the victim of the alleged violation. 5nterim measures are designed to respond to exceptional or life7threatening situations. =or example, in the vast maBority of cases before the uman !ights +ommittee, interim measures have been used in cases concerning the death penalty or deportation that ris1ed violating provisions relating to the right to live and freedom from torture. 5f the +ommittee grants interim measures, the final decision may confirm or revo1e them. Consideration of the /erits and 2ubli*ation of the Co//ittee9s views and re*o//endations The +ommittee considers the merits either after or simultaneously with a communication0s admissibility. Some treaty bodies consider accessibility and the merits at the same time, while others consider one after the other. The advantage of considering accessibility and merits together is that it saves time. The general process can be summari9ed as follows. 11 The +ommitteeYs views and decisions are available in full in all six official United Nations languages from www.ohchr.org"8N"!Fodies"+!#,"#ages";urisprudence.aspx 4accessed $% November '($'6. 12, The next stage is the +ommittee0s adoption of its decision or views on a communication. This is done on the basis of the written information provided by the two parties and the application of the +onvention to the facts as determined by the +ommittee. The +ommittee then forwards its views and recommendations, if any, to the State party concerned and to the petitioner. 5n there has been a violation, the +ommittee would normally re2uest the State party to ta1e appropriate steps to remedy it. The practice of the +ommittee in this regard is of course not yet developed. 5n the experience of other treaty bodies, these steps might be limited to recommendations that a State party should provide an Dappropriate remedyE, or they might be more specific, such as recommending the review of policies or the repeal of a law, the payment of compensation or the prevention of future violations. !ule J/ of the +ommittee0s rules of procedure sets out that, within six months of transmission of its views, the State party must submit a written response with information on any follow7up action. The +ommittee may then re2uest further information from the State party and it may also re2uest the State party to include information in its periodic report to the +ommittee. 5nterestingly, there is a focal point to follow up on the implementation of the +ommittee0s views. The rule establishes that the +ommittee may appoint a special rapporteur or wor1ing group to ascertain the measures ta1en by State parties to implement views and recommendations. The special rapporteur or wor1ing group may ma1e contacts and ta1e action as appropriate to follow up on views and can also recommend action to the +ommittee. 5f the +ommittee and the State party agree, the special rapporteur or wor1ing group can visit the country and report bac1 to the +ommittee. The in7uir1 The second procedure established by the -ptional #rotocol is the in7uir1. 5t allows the +ommittee to examine reliable information indicating grave or systematic violations of the +onvention by a State party. State parties may opt out this procedure, through a declaration and reservation, and still ratify the -ptional #rotocol 4art. ?6. States can decide to lift reservations at a later date. The main features of an in2uiry compared to a complaint are: =irst, that to launch an in2uiry, the +ommittee does not have to receive a formal complaint. 5t is up to the +ommittee to decide to initiate the procedure 4which may include a visit to the State party, subBect to the latter0s consent6< Second, an in2uiry is permitted only in cases indicating grave or systematic violations of the rights set forth in the +onvention< and Third, there is no re2uirement for a victim to come forward. ) grave violation refers to a severe abuse of one or more provisions of the +onvention, such as discrimination that threatens someone0s life, integrity or personal security. ) systematic violation refers to a pattern of abuse, the scale and fre2uency of which are significant regardless of intention. The abuse may result from laws, policies or practices. The term DsystematicE may include violations which might not be considered DgraveE. 129 The process is as follows: Receipt of reliable information on grave or systematic violations: the +ommittee receives information, which in the experience of other treaty bodies is generally provided by N*-s although treaty bodies may on their own initiative compile information available to it, including from United Nations bodies 4see rule J% of the +ommittee0s rules of procedure6. )t this stage, the +ommittee should see1 further information to establish that the information received is reliable. 'nvitation to State party to cooperate: if the +ommittee finds that the information is reliable, it invites the State party to cooperate in the examination of the information, including through the submission of information to the +ommittee. ,esignation of one or more +ommittee members to conduct the in-uiry: the +ommittee considers the submission of the State party as well as any additional information provided by governmental organi9ations, the United Nations system, N*-s and individuals, and designates one or more members to conduct the in2uiry. The +ommittee must see1 the cooperation of the State party at all stages if it decides to proceed. +ountry visit: where warranted, the +ommittee may conduct a visit to the territory concerned, provided the State party agrees. Nisits may, again, with the consent of the State party, including hearings. owever, a country visit is not mandatory and the +ommittee may underta1e the in2uiry without it. 0indings. comments and recommendations submitted to State party: the +ommittee must draft a report and transmit it to the State party confidentially. 2bservations from the State party to be transmitted $ithin si3 months: the State party has six months to submit its observations to the +ommittee. 5t is worth noting that the +ommittee on the 8limination of ,iscrimination against @omen can ma1e its final report public. Neither the +onvention on the !ights of #ersons with ,isabilities nor the +ommittee0s rules of procedure refers to such an option, which suggests it is open. 'nvitation transmitted to State party to report on action taken: the +ommittee may invite the State party to include in its periodic report details of any measures it has ta1en to implement the findings. The +ommittee includes a summary of the procedure in its annual report. )s with the individual communications procedure, it could be helpful for participants to hear about an in2uiry. Unfortunately, there are relatively few public in2uiry reports owing to the confidential nature of the procedure. =acilitators might wish to discuss the +ommittee on the 8limination of ,iscrimination against @omen0s in2uiry into the abduction, rape and murder of women in +uidad ;uZre9, Mexico 4+8,)@"+"'((/"-#.?"M8[5+-6. $enefits of the %2tional Proto*ol
Foth procedurally and substantially, the -ptional #rotocol represents a potentially important mechanism for protecting persons with disabilities and for strengthening national capacities. 1(0 There are benefits not only for victims of human rights violations but also for States. 5t is true that, on first glance, States might have little enthusiasm for a complaints or in2uiries procedure. Get, over half the States that have ratified the +onvention have also ratified its -ptional #rotocol, because the -ptional #rotocol can also be helpful for them. The -ptional #rotocol can be a means to strengthen national protection mechanisms. 5f domestic remedies are prompt and effective, individuals are less li1ely to need to petition the +ommittee once they have exhausted domestic remedies. The -ptional #rotocol can also provide a means to confirm State policy. Not all communications are decided in favour of the alleged victim. The application of international standards to specific individuals is not necessarily always clear, as their situations do not always fit into neat compartments. ) State party may be convinced it is meeting its obligations under the +onvention and a decision of the +ommittee in relation to an individual communication or an in2uiry can confirm the State0s position. 5n the same vein, the -ptional #rotocol mandates the +ommittee to validate or 2uery national court decisions. 5t will offer guidance to domestic courts and other human rights protection mechanisms by developing further the substantive content of the rights under the +onvention and related obligations of States. 5nternational case law can also promote national Burisprudence. The -ptional #rotocol can also help State parties bring about change. The uman !ights +ommittee0s decision on Toonen v. Australia is a case in point. The uman !ights +ommittee considered that legislation in the )ustralian State of Tasmania concerning homosexuality was incompatible with the provisions of the 5nternational +ovenant on +ivil and #olitical !ights. The =ederal *overnment in )ustralia then used this decision to bring about law reform in the State. The in2uiry procedure under the -ptional #rotocol can provide an opportunity to benefit from international expertise to solve difficult or protracted problems. 5n particular, country visits by the +ommittee0s members can help analyse problems from a more obBective and independent perspective and provide solutions to problems. -n the one hand, these experts can draw on the experience of other countries. -n the other, the international and independent bac1ground of the experts can ma1e the in2uiry less politically charged, e.g., because it is not lin1ed to the *overnment or another political force in the country. The -ptional #rotocol0s procedures also clarify how to apply the +onvention in specific cases. Fy examining its application through the prism of an individual complaint or in2uiry, the +ommittee may broaden and deepen its understanding of the +onvention and its meaning and so refine its recommendations to States 4all States, not only the defendant State6 and clarify the steps they need to ta1e. The procedures help to incorporate the +onvention into domestic law. The +ommittee0s views and recommendations could trigger for law reform as a step in bringing State practice into line with the +onvention. The -ptional #rotocol provides a mechanism for strategic litigation by civil society to support 1ey changes. Hitigation can be costly and the outcomes are invariably uncertain. Hitigation is therefore not always the preferred option. owever, it can be helpful in certain cases, one of these being strategic litigation. +ivil society organi9ations and public interest advocates can use litigation as a strategic tool in various ways. =or example, litigants can bring a test case as a means of clarifying the law. The law is then clarified not only for the litigants in the particular case, but also for others facing similar situations. Fringing one such case and clarifying the law can prevent many problems 4and more litigation6 in the future. 5n this way, organi9ations can use the -ptional #rotocol as a means of engaging the views of the +ommittee on 1ey issues in domestic implementation or interpretation of the +onvention. 1(1 The -ptional #rotocol can protect victims and potential victims. )s an international accountability mechanism for addressing violations of the rights under the +onvention, 5t can provide alleged victims with interim measures if the situation is critical and their rights are seriously under threat. The complaints procedure is relatively easy to use for victims. There is no time limit for bringing complaints 4apart from the re2uirement that the alleged violation should not have occurred prior to the entry into force of the -ptional #rotocol for the State party6 and the procedure can be relatively fast and simple, although much depends on the capacity of the +ommittee. There is no re2uirement to have legal representation and decisions are made in writing. The role of States *ivil so*iet1 and &nited Nations *ountr1 tea/s )ll three can play a role in promoting the -ptional #rotocol and can benefit from it. 5n particular, States can: Ratify the 2ptional Protocol9 +learly, States should consider ratifying the -ptional #rotocol. Strengthen implementation9 !atifying the -ptional #rotocol exposes States to individual complaints and in2uiries. This can deter them from not complying with the +onvention. Niews on communications and in2uiries can also indicate the steps that a State should ta1e to comply. Strengthen domestic remedies9 The fact that alleged victims can appeal to the +ommittee can act as a trigger for strengthening domestic remedies 4e.g., ensuring that all rights are Busticiable at the national level6 so that cases do not need to go to the +ommittee in the first place. Provide timely information to the +ommittee9 States should participate actively in the communication and in2uiry processes by providing up7to7date and accurate information so that the +ommittee can act with full 1nowledge of the facts. 0ollo$ up on recommendations9 States should ensure that they follow up on recommendations to provide a remedy to victims, but also to ensure that the treaty body system is respected and is effective. 5t was, after all, created by States, so States have an interest in ensuring that it wor1s. ,isseminate the +ommittee<s vie$s9 States should, at the very least, publish its views on individual communications relating to individuals under their Burisdiction. States should also consider publishing the results of in2uiries under the -ptional #rotocol as this will trigger national debate, which in turn should help the implementation of recommendations and ultimately improve the enBoyment of rights. Report on follo$4up9 States should ensure that they conscientiously report on follow7 up to recommendations in subse2uent periodic reports to the +ommittee. +ivil society and ,#-s have a crucial role in strengthening the national implementation of the +onvention through promoting the ratification of the -ptional #rotocol and advocating the implementation of the +ommittee0s recommendations. 5n particular, civil society can: Promote ratification of the 2ptional Protocol9 -rgani9ations of persons with disabilities and civil society organi9ations have an important role in encouraging States to ratify treaties, including optional protocols. 5t is often through such lobbying that States ta1e the decision to ratify. 5n promoting ratification, ,#-s and civil society organi9ations can also advocate acceptance of the in2uiry procedure 4i.e., no declaration to the contrary upon either signature or ratification6. 1(2 Assist individuals in bringing complaints9 -rgani9ations of persons with disabilities and civil society can play an important role in creating awareness about the communication and in2uiry procedures, and provide victims with the 1nowledge and often the resources to file a complaint. Submit communications9 -rgani9ations of persons with disabilities can act on behalf of victims. )t times, persons with disabilities who are victims of violations are denied legal capacity, lac1 education, live in poverty and so on. 5n such circumstances, the role of ,#-s is even more important. )s noted above, normally a ,#- will have to demonstrate that it has the consent of the victim on whose behalf it is acting. 'nform in-uiries9 @hen violations are grave or systematic, it is often ,#-s that have the broad7ranging information available to spot the patterns and provide the +ommittee with the information it needs. +an monitor compliance by State parties $ith recommendations9 -rgani9ations of persons with disabilities can be the eyes and ears of monitoring. They can witness changes 4or lac1 of action6 following the +ommittee0s recommendations. 5f nothing is done, they can communicate this to the +ommittee 4through communications or alternative reports6. ,isseminate /urisprudence9 -rgani9ations of persons with disabilities can disseminate decisions ta1en by domestic courts to satisfy the rights of victims as well as the +ommittee0s recommendations and observations related to communications and in2uiries. Report on follo$4up9 +ivil society organi9ations preparing alternative reports to the +ommittee should consider including information on follow7up to views and recommendations under the -ptional #rotocol. United Nations country teams 4UNT+s6 can support ratification of the -ptional #rotocol and also implementation of the +ommittee0s suggestions and recommendations relating to individual communications and in2uiries. 5n particular, UNT+s can: Promote ratification9 The United Nations country teams can use advocacy with partner ministries to encourage ratification of the -ptional #rotocol. -ne way would be for UN+Ts to collect recommendations of other human rights bodies encouraging ratification of the -ptional #rotocol and use this in discussions with their *overnment counterparts. 5t is li1ely that the +ommittee 4similar to other treaty bodies6 will recommend ratification of the -ptional #rotocol in its regular reviews of State party reports. Similarly, the universal periodic review of the uman !ights +ouncil, the special procedures during country missions or the igh +ommissioner and even regional human rights bodies will recommend that specific States should ratify the -ptional #rotocol. United Nations country teams can draw on these recommendations to promote ratification. +ollect information on domestic case la$ and e3perience $ith optional protocols of other treaties9 5n countries where domestic courts or N!5s have already dealt with complaints in relation to disabilities, States might be more willing to accept the Busticiability of the +onvention0s rights. United Nations country teams can collect and analyse information on such experience to demonstrate how Budicial and 2uasi7 Budicial procedures can improve the reali9ation of human rights, including the rights of persons with disabilities. Raise a$areness and train relevant actors. such as Budges, law students, civil servants and ,#-s"civil society organi9ations so that they are aware of the -ptional #rotocol and its relevance to their wor1 so that they can support and advocate ratification. 5f the +ommittee has issued recommendations related to a communication or in2uiry, training can help these actors identify ways to promote implementation. )lternatively, the UN+T could issue a press release on the 1(( anniversary of the entering into force of the two instruments 4C May6 or the anniversary of ratification of the +onvention by the State to encourage the State party to ratify the -ptional #rotocol. @hen the +ommittee issues suggestions and recommendations related to an in2uiry or communication, the UN+T can encourage the *overnment to issue a press release or consider issuing a press release itself. Provide reliable information to the +ommittee9 The United Nations country team can use the in2uiry mechanism as a means of highlighting a country situation which might be too sensitive for the UN+T to do itself. 5n this way, the UN+T can rely on the +ommittee to underta1e an independent investigation so that the issue is dealt with ade2uately, without the UN+T being placed in a difficult position vis7U7vis the *overnment. Assist $ith follo$4up9 ,epending on the nature of the views and recommendations and the 1nowledge and experience in the UN+T, it could help the State party implement the +ommittee0s views and recommendations. This could be particularly relevant for in2uiries where the views and recommendations are li1ely to be comprehensive, covering a range of different interrelated issues concerning implementation 4as opposed to views on a communication, which might simply be about providing compensation to an individual victim6. ,isseminate the +ommittee<s vie$s and recommendations9 The United Nations country team could publish the +ommittee0s views and recommendations on its website and also issue a press release when decisions are published. Report on follo$4up9 The United Nations country team can also provide information to the +ommittee, either publicly or confidentially, when a State party presents its periodic report. 5t can provide the +ommittee with invaluable information on follow7up to its views and recommendations under the -ptional #rotocol. 5n this way, the +ommittee has information from a trusted source. 1(%