Professional Documents
Culture Documents
at Mortimer Market Centre, which rooted on the idea of having an holistic approach. Tristan pointed
out how user involvement helps at individual level as well as at service provision/political level and
even at national/international political level and can supplement and enhance patient care. (See
attachment.)
Patient involvement and peer support in HIV, Dr Rachel Baggaley, World Health Organization, WHO
HIV Department together with Martin Christopher Donoghoe, WHO Europe, gave us their thoughts
on the importance of a greater user involvement, especially in reaching key populations, and they
confirmed that this was something that WHO held high on their agenda and that they were eager to
play an active role in facilitating and influencing this initiative.
The meeting ended with a brief sharing of ideas and immediate thoughts around the theme.
Here we will try to summarize the main line from the presentations and discussion:
1. User involvement, governance, and peer support is critical for HIV treatment and care.
2. User driven care is of relevance to all living with HIV and AIDS, and all health care systems
with treatment and care for this population, and a valuable addition and support the prevention
work on a broad scale.
3. This approach will enhance the synergetic effect between healthcare providers, patients,
community and research.
4. This is a cost efficient approach that can easily be customized any region and country, and can
easily be assessed
5. This is a hand on approach, there are various examples from many places around the world
were user involvement, user governance, and peer support is proving to be very successful.
6. This is pioneer work and needs to be explored and investigated at all levels, in combination
with robust research agenda.
In the aftermath of the meeting there are various ways to move forward, at different levels and with
different sets of stakeholders.
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How this can best be done should be a topic for early follow up dialogue
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