Professional Documents
Culture Documents
Maria I. Martinez, PhD1,2, Kathleen Thomas, PhD2, Rob Christian, MD1, Rebecca Edmondson Pretzel, PhD 1 & Stephen R. Hooper, PhD1
1Carolina Institute for Developmental Disabilities, University of North Carolina, Chapel Hill; 2Sheps Center for Health Service Research
This research was made possible by a State Implementation Grant sponsored by the Maternal and Child Health Bureau, DHHS (MCH Grant No. H6MMC26248) and was partially supported by a National Research Service Award Post-Doctoral
Traineeship from the Agency for HealthCare Research and Quality sponsored by The Cecil G. Sheps Center for Health Services Research, The University of North Carolina at Chapel Hill, Grant No. 5T32-HS000032.
OBJECTIVE
SUMMARY
RESULTS
Pathways Model
(n=409)
Recogni(on:
Concerns
rst
recognized
by
Parent
versus
Pediatrician?
Provider
10%
(n=42)
Parent
90%
(n=362)
BACKGROUND
Families of children with an ASD have more difficulty accessing and using
services compared to families with children with other mental health care needs
(Vohra, Madhavan, Sambamoorthi & St. Peter, 2014). The Autism CARES Act of
2014 introduced legislation to reduce barriers to screening, diagnosis and
treatment however little is known about pathways that lead to earlier diagnosis
and intervention. The Anderson model of health care utilization (Aday &
Anderson, 1975) provides a framework to organize and examine factors
associated with earlier access to autism services.
Time
to
Diagnosis:
Quick
versus
Long?
Quick
57%
(n=207)
METHODS
Percentile
Mean(SD)
Race
White
Black
Asian
American Indian
Other Race
Ethnicity
Hispanic
Primary Language Spoken at Home
English
Spanish
Other
Early 0%
Late
100%
(n<5)
CONCLUSIONS
Variables in Model
Early
Who First
Recognition Recognized
Time to
Diagnosis
Early
Intervention
***
***
**
***
*
Minority Child
*
***
*
Maternal Education
89%
9%
2%
Late
26%
(n=10)
Late
62%
(n=102)
Logit Models of Family Characteristics Associated with Concerns, Diagnosis & Service Use
13%
Long
5%
(n<5)
ASD Screen
78%
13%
3%
1%
5%
Early
74%
(n=28)
Late
38%
(n=63)
Early
27%
(n=50)
Data from the 2014-2015 North Carolina Needs of Young Children with Autism
Survey are presented. Descriptive statistics and logit modeling analyzed deidentified information families provided about demographic, diagnostic and
service use history using the Anderson health care utilization framework.
Pathways to early intervention as well as models predicting of age of first
concerns, who first recognized concerns, time to diagnosis, and age of first
intervention are presented.
Quick
95%
(n=40)
Inclusion Criteria:
Ability to consent to study
Parent of a child <9 years of age diagnosed with autism in NC
Long
43%
(n=155)
Siblings w/ASD
HFA (vs. other ASD)
21.22(12.82)
40%
***
***
Distance to travel
Note: * p < .05, ** p < .01, p < .005
39.09(16.79)
3.63(1.48)
1.10(0.42)
Correspondence: maria.martinez@unc.edu
Poster Presented at the Autism CARES Conference, July 16, 2015, Bethesda, MD