Transforming Care

Easy Read - Questionnaire

Transforming Care is about making health and
care services better for people with learning
disabilities who have mental health conditions or
behaviour which challenges.
Transforming Care is about helping people live
the best lives possible, in the right place and
with the support they need. NHS England wants
to ask people with learning disabilities and/or
autism and their family carers what they know
about Transforming Care. There are 5 parts to this
questionnaire.
If you could fill out this questionnaire and send it
back to Speakup. By the 18th of March

Good Information
Local people with learning disabilities and family
carers should know about Transforming Care
and the role that Local Authorities and Clinical
Commissioning Groups have to play in making
sure it happens.

Q1. Do you know about Transforming Care? Please tick

Yes

No

Dont
know

Q2. Do you know who is leading Transforming Care locally?

Please tick
Yes

No

Dont
know
1

Q3. Do you know how many people with learning disabilities are in your
local Assessment and Treatment Unit? Please tick
Yes

No

Dont
know

Q4. If you think people dont know about Transforming Care why do you
think this is? Please write your answer in the box

Local people working together

Local self advocacy and family carer groups
should be linked into their Transforming Care
work-plan. They should be working in partnership
to plan what needs to be done locally to make
sure Transforming Care really happens.
Q5. Are local self advocacy and family carer groups partners in
planning what local services and support should look like? Please tick
Yes

No

Dont
know

Q6. Does this include people who have a learning disability or autism
and a mental health problem or the label of challenging behaviour?
Please tick
Yes

No

Dont
know

Q7. Does it include their family carers? Please tick

Yes

No

Dont
know
2

Q8. If you think that people are not being properly included, then why
might that be? Please write your answer in the box

Good care in hospital

Local self advocacy and family
carer groups should know about the plans
for people who are living in Assessment
and Treatment or secure units when they leave.
These are called discharge plans.
Q9. Do local groups know about whether or not people who are in
assessment and treatment or secure units have discharge plans,
including a discharge date? Please tick
Yes

No

Dont
know

Q10. Do local groups know whether everyone living in an

assessment and treatment or secure units has a Care Coordinator to
make sure this happens? Please tick
Yes

No

Dont
know

Q11. Do local groups know about Care and Treatment Reviews? Please
tick
No
Dont
Yes
know

Q12. Do local groups know about who is having Care and Treatment
Reviews? Please tick
Yes

No

Dont
know

Q13. Do local groups know that Experts by Experience are part of Care
and Treatment Reviews? Please tick
Yes

No

Dont
know

Q14. If you think that people dont know about peoples discharge
plans, then why might that be? Please write your answer in the box

Stopping people going into hospital if they

dont need to
Local self advocacy and family carer groups
should be working with the Transforming
Care Partnership and local Health and
Wellbeing Boards. Their job is to make sure
that services are being planned to stop
people needing to go into hospital.
Q15. Are local self advocacy and family carer groups really partners in
planning what local services and support should look like? Please tick
Yes

No

Dont
know

Q16. Does this include people who have a learning disability and/
or autism and a mental health problem or the label of challenging
behaviour? Please tick
No
Dont
Yes
know
4

Q17. Does it include their family carers? Please tick

No

Yes

Dont
know

Q18. Do local self advocacy and family carer groups know about the
risk of admission register and how it is working locally? Please tick
No

Yes

Dont
know

Q19. If you think that people are not involved properly in planning local
services, then why might that be? Please write your answer in the box

Keeping people safe

Local self advocacy and family carer groups
should be working with their Safeguarding Board
to make sure that they are thinking about how to
keep people safe.
Q20. Are local self advocacy and family carer groups really working
with their local Safeguarding Board as equal partners? Please tick
Yes

No

Dont
know

Q21. Does this include people who have a learning disability and/or autism and a mental health problem or the label of challenging
behaviour? Please tick
No
Dont
Yes
know
5

Q22. Does it include their family carers? Please tick

Yes

No

Dont
know

Q23. If you think that people are not involved properly with their local
Safeguarding Board, then why might that be? Please write your answer
in the box

Changing how care and support happens

Local self advocacy and family carer
groups should be able to see a real change
in how services are being designed and
delivered.
They should be able to see how care and
support is getting more person centred, so
that people really can get the support they want.
Q24. Do local self advocacy and family carer groups know that the
care and support people get is more person centred? Please tick
Yes

No

Dont
know

Q25. Are more people getting personal budgets so they can really plan
the support they want? Please tick
Yes

No

Dont
know

Q26.If you think that care and support is not getting more person
centred then why might that be? Please write your answer in the box

Thank your for all you hard work

in making this important work
happen!
Please send your questionnaire back to:
Sally
Speakup
Galax Business Centre
Fitzwilliam Road
Eastwood
Rotherham
S65 1SL
For more information please call
01709 720462

Sally@speakup.org.uk