Professional Documents
Culture Documents
140
Care burden of parents having children with cancer at the
hospital and at home
C. Ceylan1 , E. Erdem1 , N. Altay1 , E. Kilicarslan Toruner1 . 1 Gazi
University Faculty of Health Sciences, Nursing, Ankara, Turkey
Introduction: Cancer is a disease which affects both children and
their families.
Objective: The purpose of this study was to determine the difference
between the burden cares of parents who have children aged 018
with cancer at the hospital and at home.
Material and Method: It was conducted as a descriptivecomparative type at a university hospital in Ankara/Turkey.
Sampling of this study was parents having children with cancer
(total = 31) who received a treatment at the hospital unit (n = 19)
and who was monitored at the polyclinics (n = 12) between 15
February and 25 March 2014. In the gathering of data, a descriptive
characteristics form related to the children and their parents, a data
form related to the childs disease and treatment and the Zarit
Burden Interview Scale was used. The scores received from the
Scale were evaluated by being ranked as (020) little/no burden,
(2140) moderate burden, (4160) high burden and (6188) severe
burden. Frequency and percentage distribution concerning the data
was collected. The Mann-Whitney U test and a Spearman correlation
analysis were conducted. Written assent was received from the
institution and parents.
Results and Discussion: The average ages of the children were
found to be 10.154.76 monitored at the hospital and 7.584.11
at the polyclinic. It was determined that the majority in both
groups was male, the diagnosis was ALL and their treatments
were chemotherapy. At the hospital and polyclinic group, age of
diagnosis respectively were 9.864.74 and 6.254.14, the period
of treatment were 4.173.60 and 15.0811.42 months. In both
groups, those caregivers were mostly the mothers, the types of
families were nuclear families and the mothers were housewives.
The Zarit Burden Interview Scale score was found to be 37.8413.38
at the hospital group, 35.0812.94 at the polyclinic group, but the
difference between them was not found to be statistically signicant
(U = 108.5; p = 0.82). It was determined that as the treatment period
of children increases, the burden care of parents increases (r = 0.395;
p = 0.02).
Conclusion: It was determined that the parents burden care was
moderate in both groups. It is recommended that parents of children
who having to receive long term treatment, should be observed in
terms of their burden care and should be supported.
No conict of interest.
141
The importance of nursing interventions for oral mucositis
and malnutrition with head and neck cancer
1 1
S45
142
Reliability and validity of the Turkish version of the Head and
Neck Information needs Questionnaire (HaNiQ) for patients
and their families
1 1
Head and neck cancer affects patients health status and wellbeing
negatively. In this process, patients with head and neck cancer
have detailed information needs but no tools exist that can
simultaneously assess the needs among these patients and their
caregivers in Turkish language. The purpose of this study was
to develop a Turkish version of The Head and Neck Information
Needs Questionnaire (HaNiQ) and assess its reliability and validity
for patients and their families. The approval of Akdeniz University
Faculty of Medicine Clinical Research Ethics Committee and Director
of Akdeniz University Hospital were taken for the study. 180
patient/caregiver volunteers were included in to the study that
met the inclusion criteria.
No conict of interest.
144
Advance directive in patients end of life decisions: the
health care providers knowledge, skills and attitude