You are on page 1of 11

449301

2012
ANP46910.1177/0004867412449301Harvey etal.ANZJP Articles

Research

Australian & New Zealand Journal of Psychiatry

A place to live: Housing needs for 46(9) 840850


DOI: 10.1177/0004867412449301

people with psychotic disorders The Royal Australian and


New Zealand College of Psychiatrists 2012

identified in the second Australian Reprints and permission:


sagepub.co.uk/journalsPermissions.nav
anp.sagepub.com
national survey of psychosis

Carol Harvey1,2, Eoin Killackey3,4, Aaron Groves5 and


Helen Herrman3,4

Abstract
Objective: Access to adequate housing consistent with personal preferences and needs is a human right and supports
recovery from psychosis. This study aimed to: (1) describe people with psychosis living in different housing types, and
their preferences and needs; (2) explore selected demographic and social inclusion correlates in relation to housing; and
(3) compare two subgroups participants living in supported group accommodation and supported housing on key
demographic, functional, clinical and social inclusion variables.
Method: Current housing, preferences, needs and assistance, and housing-related social inclusion variables were
assessed in a two-phase prevalence survey conducted within seven catchment areas across five Australian states. Two
supported housing models were compared: supported group accommodation and supported housing (rental accommo-
dation with in-reach support). Descriptive statistics were used.
Results: Of the total participants (n = 1825), one half were living in public or private rented housing (48.6%) and 22.7%
were waiting for public housing. Despite being the preferred form of housing, only 13.1% were living in their own home.
One in 20 participants (5.2%) was currently homeless; 12.8% had been homeless in the previous 12 months. Residents
of supported group accommodation felt safer in their locality than those in supported housing, but experienced less
privacy and choice.
Conclusions: Although fewer participants were homeless compared with the first Australian survey of psychosis, the
proportion remains high. Housing difficulties are experienced by people with psychoses living in various accommoda-
tion and concern housing adequacy and safety as well as autonomy and choice. Access to public housing is restricted
compared with the identified need. Since residents of supported group accommodation felt safer in their locality than
those in supported housing, but experienced less privacy and choice, each supported housing model may offer different
advantages to people with psychosis, and contribute to services that support and maintain recovery.

Keywords
Community survey, homeless persons, housing, needs, psychotic disorders

Introduction
1Department of Psychiatry, University of Melbourne, Melbourne,
Australia
2North Western Mental Health, Melbourne, Australia
According to article 11 of the International Covenant on
3The Centre for Youth Mental Health, University of Melbourne,
Economic, Social and Cultural Rights (Office of the United
Melbourne, Australia
Nations High Commissioner for Human Rights, 1976), 4Orygen Research Centre, Melbourne, Australia
everyone has the right to an adequate standard of living, 5Queensland Health, Herston, Australia

including decent housing. Various factors are involved


Corresponding author:
in deciding whether housing is adequate, including legal Carol Harvey, Psychosocial Research Centre, 130 Bell Street, Coburg,
security of tenure, affordability, accessibility, habitability, VIC 3058, Australia.
location and cultural adequacy (Australian Human Rights Email: c.harvey@unimelb.edu.au

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015
Harvey etal. 841

Commission, 2011). In addition, as recovery from psycho- poor physical health, social isolation and exclusion, disabil-
sis is multidimensional (Herrman and Harvey, 2005), many ity, and poor access to effective treatment and rehabilitation
individual and environmental factors, including housing, (e.g. Scott, 1993). These problems are largely related to
affect the wellbeing of people living with severe mental ill- discontinuity of service provision (Chopra etal., 2011).
nesses (SMI), including psychoses (State Government of Supported housing that is, regular housing (i.e. available
Victoria, 2011). to the general population) coupled with separate in-reach
Research has increasingly demonstrated the therapeutic flexible mental health support has been developed, par-
benefits of adequate supported housing to people with SMI ticularly for people with mental illness who are homeless or
(Sylvestre etal., 2007). Increased choice, control and qual- at risk of becoming homeless (Ridgway and Zipple, 1990;
ity of housing and the extent to which housing creates Tsemberis etal., 2004). Supported housing (commonly
opportunities for people with psychoses to develop mean- referred to as the Housing First model) can reduce home-
ingful relationships in their dwellings and the community lessness and hospitalisation and enhance residential stabil-
(community integration) are associated with decreased ity (Rog, 2004; Rosenheck etal., 2003; Tsemberis etal.,
symptomatology, enhanced wellbeing and quality of life, 2004). Less consistent effects include symptom reduction
and decreased service use (Nelson etal., 2007; Sylvestre and improved functioning, physical health and quality of
etal., 2007). Few studies have considered the citizenship life (Ridgway and Rapp, 1997). Not only is this housing
dimension of housing for people with psychosis; that is, and support model effective for homeless people with men-
whether housing supports their participation in broader sys- tal illness (Nelson etal., 2007), it is also more consistent
tems such as programs, mental health systems and society with the preferences of most people with psychotic ill-
more generally (Sylvestre etal., 2007). However, assisting nesses and with the recovery model, although living in sup-
people to live in accordance with their values and prefer- ported housing may be associated with loneliness (Sylvestre
ences, and promoting their social inclusion and citizenship etal., 2007). Nonetheless, supported housing is increas-
is entirely consistent with a recovery-oriented approach ingly an integral component of mental health services.
to mental health care (Chopra etal., 2011; Common Most research on housing models has been carried out in
wealth Government of Australia, 2009a; Slade, 2009; State the USA, but there are similar findings in Australia (Chopra
Government of Victoria, 2011). and Herrman, 2011; Hobbs etal., 2000; Trauer etal., 2001).
People with a psychotic illness have always lived in a Thus, homeless Australians with mental illness suffer from
range of accommodation, including with their families of a high rate of physical and mental health problems and a
origin in the family home. Although early developments shortage of accessible and appropriate housing and support
in community-based mental health services included set- services (Grigg etal., 2004; Mental Health Council of
ting up group homes, hostels, and halfway houses (e.g. Australia, 2005).
Thornicroft and Bebbington, 1989), housing for people The first Australian survey of psychosis, conducted in
with psychotic disorders did not become a priority until the 19971998, reported high levels of persisting disability and
deinstitutionalisation of mental health services occurred in needs amongst homeless people living with psychotic dis-
many countries (Chopra etal., 2011). This led to the devel- orders (Herrman etal., 2004). Further, meaningful activity
opment of group housing with on-site support staff, often as and the social needs of people with psychotic disorders liv-
part of a residential rehabilitation continuum in the com- ing in group housing were often overlooked, according to
munity (Leff etal., 2009). Permanent, independent housing this first national survey and other Australian research
is usually positioned at the end point of this continuum (Freeman etal., 2004; Harvey etal., 2002). Consequently,
(Henwood etal., 2011). Former long-stay patients experi- the first national survey concluded that there was a need for
enced increased satisfaction and quality of life when mov- better access to public housing, flexible supports linked
ing to these forms of housing, although improvements in to accommodation, and a range of residential disability
symptomatology and functioning were less consistent support services (Jablensky etal., 2000).
(Chopra etal., 2011; Hobbs etal., 2000; Leff and Trieman, As deinstitutionalisation progressed around Australia,
2000; Trauer etal., 2001). However, both here and over- different programs have been developed that aim to provide
seas, concern has been expressed about the disruption to a partnership between housing, disability and mental health
recovery and risk of reinstitutionalisation that may be expe- service providers to enable people with psychosis to live
rienced by some residents following discharge to alterna- in society with greater access to the full range of opportuni-
tive housing (Carling, 1993; Chopra and Herrman, 2011). ties experienced by all Australians. From the mid-1990s,
A concerning subgroup of people with psychotic disor- Australian state and territory governments have expanded
ders is either homeless or living in marginal accommoda- these programs to keep pace with increasing need as
tion (insecure housing with shared bathroom and kitchen more people with psychosis live in the community. The
and living space) (Chamberlain, 1999). Homelessness Housing And Support Initiative (HASI) in New South
amongst people with psychotic disorders has been recog- Wales (New South Wales Health, 2006), Psychiatric
nised for some time and is associated with substance use, Disability Rehabilitation and Support Services (PDRSS) in

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015
842 ANZJP Articles

Victoria (State Government of Victoria , 2003), Project 300 availability of both types of housing and support in
and Housing and Support Program (HASP) in Queensland Australia. However, their relative advantages in this con-
(State of Queensland (Queensland Health), 2011), text have not been examined.
Independent Living Program (ILP) in Western Australia
(Government of Western Australia, 2004) and Housing and
Accommodation Support Partnership (HASP) program in Materials and methods
South Australia (South Australia Health, 2010), represent Survey and participants
some of these programs. They typically consist of home-
based outreach support for people with severe mental ill- All participants took part in the Survey of High Impact
nesses and significant disability who are living in regular Psychosis (SHIP). This second Australian national survey of
housing. Access to clinical mental health services is from psychosis covered seven catchment areas with a total area of
Assertive Community Treatment (ACT) teams (Harvey 62,000 square kilometres and a population of 1.5 million
etal., 2011) or a range of disability and recovery-based people aged 1864 years, approximately 10% of the
support services may be provided by the non-government Australian population in this age group. A two-phase design
sector. In 2008, the National Mental Health Policy was was used (Pickles etal., 1995). In Phase 1, screening for
updated to reflect the changed service system, with greater psychosis took place in public specialised mental health ser-
emphasis placed on recovery as a core aim of mental vices and in non-government organisations supporting peo-
health services and the stronger partnership needed ple with a mental illness. In Phase 2, people who screened
for access to support and housing (Commonwealth positive for psychosis in Phase 1 were randomly selected,
Government of Australia, 2009a). Further, the federal gov- stratified by age group (1834 years and 3564 years), for
ernments national approach to reducing homelessness interview and assessment. The census month was March
(Commonwealth Government of Australia, 2008) included 2010. Of 7955 people who were screen positive for psycho-
an expansion of the Personal Helpers and Mentors (PHaMs) sis and eligible, 1825 were interviewed in Phase 2. Data
program to assist people with a mental illness who are were collected on symptomatology, substance use, cognitive
homeless or at risk of homelessness and a no discharge ability, functioning, disability, physical health, mental health
into homelessness policy. The latter aims to ensure that service utilisation, medication use, education, employment
appropriate accommodation and support plans are put and housing. The study was approved by institutional human
in place before a person is discharged from psychiatric research ethics committees at each of the seven study sites
care. The National Affordable Housing Agreement and all participants provided written, informed consent. Full
(Commonwealth Government of Australia, 2009b) is tack- details of the survey methodology are given in Morgan etal.
ling the provision of more affordable housing together with (2011; 2012).
support for people with mental illness, and new social
housing has been constructed under the current federal
Measures and data handling
governments National Building and Economic Stimulus
Plan funding. Thus, the expansion of supported housing Within the second national survey of psychosis, data
is one of the major changes in housing options for on current housing, changes of housing in the previous
Australians with psychosis in the last decade and, like 12 months, housing preferences, needs and assistance,
elsewhere (Carling, 1993), has led to increasing debate and housing-related social inclusion variables (e.g. acces-
about the value of the alternative supported group sibility of shops and public transport) were collected.
accommodation model (Chopra etal., 2011). Diagnoses were derived from the 10th edition of the
A second national survey of psychosis was conducted International Classification of Disease (ICD-10) (World
in 2010. It was designed to cover a wider range of aspects Health Organization, 2010).
of life than the aforementioned first survey. Within this Housing was categorised as: public rented house/unit/
second national survey, this study aimed to: (1) describe apartment (in Australia, public and private rented house/
the proportions of people with psychosis living in differ- unit/apartment is typically independent accommodation;
ent housing types, including the homeless and those living in-reach support may be provided, but this is allocated to
in marginal accommodation, together with their housing the individual and not the accommodation); private rented
preferences and needs; (2) explore selected demographic house/unit/apartment (as before); family home; own house/
and social inclusion correlates in relation to these housing unit (that is, owned by self or others and no rent paid); sup-
types; and (3) compare two subgroups participants liv- ported group accommodation (that is, group accommoda-
ing in supported group accommodation and supported tion with on-site support staff including hostels, group
housing (i.e. public or private rental accommodation with homes, non-government organisation (NGO)-operated
in-reach support) with respect to key demographic, residences and clinical residential rehabilitation settings
functional, clinical and social inclusion variables. This such as community care units; some group accommodation
comparison is important because of recent increased offers a permanent home those that do not typically offer

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015
Harvey etal. 843

residential rehabilitation on a time-limited basis); homeless criteria (World Health Organization, 2010) for schizo-
(primary, secondary or tertiary); institution (such as lodges phrenia (46.7%), schizoaffective disorder (16.1%) and
or nursing homes) or hospital; other (including caravans or bipolar affective disorder (17.5%). Further details on
prison). Primary homelessness was defined as living on the demography, diagnosis, course of illness and recent ser-
streets, in parks, in deserted buildings; secondary home- vice usage of participants are provided in Morgan etal.
lessness was defined as living in temporary shelters such as (2011; 2012).
refuges, emergency accommodation or sleeping on a
friends couch; and tertiary homelessness was living in a
Current housing, housing preferences and
boarding room (Chamberlain, 1999).
satisfaction
As people with psychosis are known to move in and out
of homelessness, the survey collected detailed information Current and preferred housing of Australians living with
on periods of homelessness in the 12 months prior to inter- psychosis who were interviewed in the second national
view. Participants were asked about their housing over the survey are presented in Table 1. Comparing participants
previous 12 months as well as separately reporting any epi- current and preferred accommodation types, the main dis-
sodes of primary or secondary homelessness or residence in crepancies were: living in ones own home or unit (which
marginal housing. was the current form of housing for 13.1% compared with
In order to compare residents in supported group the preferred form of housing for 39.8%), living in a fam-
accommodation and supported housing, two subgroups ily residence (current housing for 19.1% and preferred
were created. Supported group accommodation was housing for 10.4%), and living in supported group accom-
defined as any group accommodation with on-site staff modation (current housing for 11.0% and preferred hous-
support. Supported housing was public or private rental ing for 2.8%). Examining the number and proportion of
accommodation combined with in-reach staff support, those not currently living in a particular accommodation
either in the form of ACT or home visits by an NGO at type but preferring to do so (column 3, Table 1), the largest
least weekly. We chose to exclude those living in their discrepancy in numerical terms again concerned those par-
family or own home from the supported housing subgroup, ticipants who were not living in their own home or unit but
since they were likely to differ with respect to other mate- expressed such a preference (n = 506). This examination
rial and personal support available to them. Since the vari- also revealed that amongst the relatively small numbers
able concerning housing type referred to current housing, preferring to be homeless (whether primary, secondary or
whereas the support variables concerned support received tertiary; 44 participants), three-quarters was not currently
in the preceding 12 months, participants were only selected homeless.
for their respective subgroups if they had been resident in Half the sample (52.6%) said they were very satisfied
the appropriate housing type for the preceding 365 days. with their current living situation, with a further three in ten
This had the added advantage of selecting only partici- somewhat satisfied (28.4%); 8.3% were somewhat dissatis-
pants who had been stably accommodated in their respec- fied and 4.4% very dissatisfied. Significantly more of the
tive housing in order that the comparison between these very dissatisfied group reported that they had no choice
subgroups was more likely to reflect real differences about their current residence (69.6% vs 28.9%, 2 = 58.76,
between them. These two subgroups were compared on p < 0.001) and did not have their own room (15.5% vs
selected demographic and clinical variables, together with 5.6%, 2 = 9.62, p = 0.002) as compared with other partici-
key variables (functioning, social inclusion and recovery) pants. They were more often living in publicly rented
consistent with the literature (Sylvestre etal., 2007). accommodation (34.2%) or were homeless (16.5%). The
Descriptive statistics were employed, and subgroup major reasons cited for dissatisfaction with their current
comparisons were assessed using the chi-squared test or housing were a preference for living independently (24.1%)
Students t-tests, as appropriate. All analyses were con- or unsatisfactory practical circumstances such as lack of
ducted with SPSS for Windows, version 19 (Chicago, IL: safety due to crime or vandalism (15.2%), unsuitability
SPSS Inc., 2009) (12.9%) or substandard conditions (12.5%) of their current
accommodation.

Results Housing needs and assistance


Demographic and diagnostic profile of participants A total of 414 participants (22.7%) were on a waiting list
Of the 1825 participants with psychotic disorders, most for public independent housing (see previous definition).
were male (59.6 %), not currently partnered (82.9%), born Compared with the rest of the participants, a higher propor-
in Australia (82.2%) and in the older group aged 3564 tion of those waiting for public housing was either living
years (57.6%). All participants met screening criteria for in privately rented accommodation (28.3%) or supported
psychosis. The majority met ICD-10 research diagnostic group accommodation (16.4%), or were homeless (11.1%).

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015
844 ANZJP Articles

Table 1. Current and preferred housing of Australians living with psychosis.

Preferred housing
(irrespective of Proportion not living
Housing types Current housing current housing) in preferred housing
n (%) n (%) n (%)

Public rented house/unit 490 (26.8) 472 (25.9) 187 (39.6)

Private rented house/unit 397 (21.8) 313 (17.2) 174 (55.6)

Family home 349 (19.1) 190 (10.4) 56 (29.5)

Own house/unit 239 (13.1) 726 (39.8) 506 (69.7)

Supported group accommodation 200 (11.0) 51 (2.8) 8 (15.7)

Homeless: primary, secondary or tertiary 94 (5.2) 44 (2.4) 33 (75.0)

Institution/hospital 36 (2.0) 2 (0.1) 0 (0.0)

Other, including caravan, prison 20 (1.1) 24 (1.3) 19 (79.2)

Totala 1825 (100) 1822 (100)


aTotals vary owing to missing data.

Just over one in five (21.9%) of participants reported the mean days homeless (170 days vs 117 days, t = 2.66,
receiving some assistance with their housing in the con- df = 231, p = 0.008). Significantly more of those aged
text of having moved house, such as acquiring and set- 1834 years (16.4%) experienced a period of homelessness
tling into their housing, in the previous 12 months. Of these, in the past year, compared with the older age group (3564
most (85.9%) reported their housing needs were adequately years; 10.1%, 2 = 16.15, p < 0.001). However, older par-
met. Only 41 individuals (2.2% of the total) expressed an ticipants were homeless for slightly (but not significantly)
unmet need for housing assistance. The majority of those longer than those who were younger (mean of 167 days vs
identifying unmet housing needs were either living in pri- 146 days, respectively). As expected, participants who
vately rented accommodation (15 individuals, 36.6%) or were never married were more likely to have experienced
were homeless (10 individuals, 24.4%). homelessness (15.0% vs 11.1% separated/divorced/wid-
Participants who had a psychiatric inpatient admission owed and 7.1% married/de facto, 2 = 14.91, p = 0.001).
in the year prior to interview were asked if staff had talked There were no differences according to whether partici-
to them about where they were going to stay on discharge. pants were born in Australia or not.
Over half (58.2%) recollected discussing accommodation Concerning changes of accommodation, over a quarter of
options with staff at the time. Two-thirds (69.4%) reported participants (27.4%) had changed accommodation at least
not needing further help as they already had somewhere to once in the past year, not including admissions in and out of
live, 23.2% needed and received help finding accommoda- hospital; 3.7% of all participants moved twice and 6.7%
tion, and 7.5% reported that they had not been given any moved three or more times. A range of reasons was identified
help and had nowhere to live on discharge. by participants for moving out of stable accommodation in
the past year. The most common main reason identified by
participants was: conflict with parents/partner or housemates
Homelessness and housing instability
(19.6%); desire for independence or adventure (12.1%); own
At the time of interview, 5.2% of participants were home- mental health problems (excluding anxiety or depression)
less. Further, 12.8% had experienced at least one period of (11.7%); non-renewal of lease or rental (10.9%); and finan-
homelessness in the past year and a quarter (25.2%) had cial troubles (6.3%). Almost 5% (4.6%) moved out of stable
been fearful of homelessness in the previous year. On aver- accommodation in the past year as a result of hospitalisation.
age, those who had been homeless reported 155 days of
homelessness in the past year (SD = 141 days; median = 98
days). Eight individuals (3.4%) had been homeless for
Comparison between residents in supported group
the entire year. The percentage of those experiencing
accommodation and supported housing
homelessness was significantly higher for males than for One hundred participants were living in supported group
females (15.4% vs 8.9%, 2 = 16.27, p < 0.001), as was accommodation and 98 were living in supported housing

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015
Harvey etal. 845

Table 2. Demographic and clinical characteristics of residents in supported group accommodation and supported housing.

Supported group accommodation Supported housing


(n = 100) (n = 98)
n (%) n (%)

Male 77 (77.0) 45 (45.9)

Aged 1834 years 30 (30.0) 31 (31.6)

Never married 78 (78.0) 53 (54.1)

Australian born 88 (88.0) 82 (83.7)

ICD-10 diagnosis
Schizophrenia 57 (57.0) 42 (42.9)
Schizoaffective disorder 11 (11.0) 20 (20.4)
Bipolar, mania 10 (10.0) 15 (15.3)
Othera 22 (22.0) 21 (21.4)

Course of illness
Single episode 7 (7.0) 5 (5.1)
Multiple episodes good recovery 17 (17.0) 28 (28.6)
Multiple episodes partial recovery 29 (29.0) 32 (32.7)
Continuous chronic illness 26 (26.0) 23 (23.5)
Continuous chronic illness with deterioration 21 (21.0) 10 (10.2)

Inpatient admissions for mental health in previous year 15 (15.0) 28 (28.6)


aIncludes depressive psychosis, delusional and other non-organic psychoses, severe depression, screened positive for psychosis but did not meet full

criteria for an ICD-10 non-organic psychotic disorder.

(regular housing with in-reach support) for the entire year episodes with good inter-episode recovery (17.0% vs
prior to interview. In the latter subgroup, 53 participants 28.6%). Fewer residents in supported group accommoda-
received ACT and 54 were visited by an NGO case man- tion, however, had inpatient admissions for mental health in
ager and saw their case manager at least weekly. Thus, nine the previous year (15.0% vs 28.6%, 2 = 5.36, p = 0.02).
participants in the supported housing group received both Selected social functioning indicators were examined
types of outreach support service. across the two subgroups. Those in supported group accom-
Participants living in supported group accommodation modation were significantly more disabled according to the
and those living in supported housing were similar con- Personal and Social Performance (PSP) scale (Morosini
cerning proportions of Australian-born individuals (88.0% etal., 2000) (Table 3). There were 22.0% classified as hav-
vs 83.7%, 2 = 0.76, p = 0.38) and the younger group (aged ing poor functioning sufficient to require intensive support
1834 years) (30.0% vs 31.6%, 2 = 0.06, p = 0.80). and supervision, compared with only 6.1% in supported
However, residents in supported group accommodation housing (Fishers exact test, 2 = 13.23, p = 0.001).
were more likely to be male (77.0% vs 45.9%, 2 = 20.22, Residents of supported housing reported significantly
p < 0.001) and to have never married (78.0% vs 54.1%, greater frequency of face-to-face contact with family and
2 = 17.94, p < 0.001) (Table 2). other relatives (daily/almost daily: 41.2% vs 8.0%, 2 =
Overall, participants in these two housing types did not 31.67, p < 0.001), yet were rather more isolated and lonely
vary significantly by diagnostic category (2 = 5.89, p = (43.6% vs 34.3%, 2 = 1.75, p = 0.186).
0.12), duration (t = 1.92, p = 0.06) or course (2 = 7.24, The two subgroups were compared on key social
p = 0.12) of illness (see Table 2). Nonetheless, more partici- inclusion and recovery indicators related to their housing
pants living in supported group accommodation were diag- (Table 3). Whether in supported group accommodation or
nosed with schizophrenia (57.0% vs 42.9%) and fewer with supported housing, most individuals had easy access to a
schizoaffective disorder (11.0% vs 20.4%) and bipolar supermarket (87.9% and 88.7%, respectively) and public
affective disorder (10.0% vs 15.3%). On average, this sub- transport (88.0% and 92.8%, respectively). However, more
group also had longer illness duration (19.7 vs 16.9 years) supported housing residents felt unsafe in their locality
and more participants with continuous chronic illness (23.5% vs 1.0%, 2 = 22.74, p < 0.001). In contrast, fewer
with deterioration (21.0% vs 10.2%) rather than multiple residents of supported group accommodation were likely to

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015
846 ANZJP Articles

Table 3. Comparison of residents in supported group accommodation and supported housing: social functioning, social inclusion
and recovery indicators.

Supported group accommodation Supported housing


(n = 100) (n = 98)
n (%) n (%)

PSP Scale (last 12 months)


Poor functioning requiring intensive support/supervision 22 (22.0) 6 (6.1)
Varying degrees of disability 76 (76.0) 84 (84.5)
Absence of disability or only mild difficulties 2 (2.0) 8 (8.2)

Face-to-face contact with family (last 12 months)


Not at all 15 (15.0) 9 (9.3)
Less than once per month 30 (30.0) 18 (18.6)
At least monthly 27 (27.0) 12 (12.4)
At least weekly 20 (20.0) 18 (18.6)
Daily/almost daily 8 (8.0) 40 (41.2)

Isolated and lonely 34 (34.3) 41 (43.6)

Has access to supermarket 87 (87.9) 86 (88.7)

Has access to public transport 88 (88.0) 90 (92.8)

Unsafe in locality 1 (1.0) 23 (23.5)

Have own room (if living with others) 72 (80.0) 33 (94.3)

Have choice about housing 53 (53.5) 74 (77.1)

have their own room if living with others (80.0% vs 94.3%, welcome improvements are likely to be linked with mental
2 = 3.83, p = 0.05) or reported having a choice about where health service delivery changes such as deinstitutionalisa-
they currently lived (53.5% vs 77.1%, 2 = 11.90, p = tion, and the further development of community-based
0.001). Finally, the majority in both supported housing and mental health services including treatment and support pro-
supported group accommodation preferred to live in rental vided through ACT (Harvey etal., 2011) and disability and
accommodation (61.2% and 43.4%, respectively) or their recovery-based support services provided by NGOs within
own home (31.6% and 21.2%, respectively); however, one peoples homes. They are also likely to have resulted from
in four (25.3%) of those in supported group accommoda- broader policy developments that have targeted homeless-
tion preferred to live there. ness and the increased provision of affordable housing and
support services for people with severe mental illnesses,
such as psychoses, so that they may gain and maintain
housing (Commonwealth Government of Australia, 2008,
Discussion 2009b).
Our key findings are that many Australians living with psy- Need is complex and difficult to adequately define and
chosis continue to experience homelessness, a mismatch elicit. A particular strength of this second national survey
between their actual and preferred form of housing and was that various enquiries were made of participants con-
unaddressed housing needs. However, comparisons of cerning their housing needs. Notwithstanding the above
those receiving services through state-run specialised men- positive findings, these revealed unaddressed housing
tal health services in a given month have revealed impor- issues. Further, our findings suggest that housing difficul-
tant improvements in their housing circumstances since the ties are experienced by people with psychoses living in a
first survey in 19971998 (see Jablensky etal., 1999, 2000; variety of accommodation types. As expected, the subgroup
Morgan etal., 2011 for further details). These include an of participants who were very dissatisfied with their current
increased proportion of people living in rented accommo- living situation contained a higher proportion of the home-
dation (from 34.2% to 49.2%) and supported group housing less, although those in publicly rented accommodation
(from 5.2% to 10.9%) and a drop in homelessness (from were also over-represented. In line with existing literature
13.0% to 5.0%) (Morgan etal., 2011; 2012). These about beneficial housing features as well as consumer

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015
Harvey etal. 847

preferences (e.g. Sylvestre etal., 2007), underlying reasons (Zhang etal., 2011), it is imperative that the housing needs
concerned practical issues of housing adequacy and safety of inpatients are better addressed.
as well as preferences for greater choice, privacy and inde- Although fewer participants were homeless compared
pendence. Whilst access to regular housing such as pub- with the first survey of Australians with psychosis, the pro-
licly rented property is broadly consistent with citizenship portion remains high and is a matter of public concern.
rights and a recovery-oriented approach to mental health Homelessness affects the lives of a substantial minority of
(Chopra etal., 2011; Commonwealth Government of people with psychoses, with one in eight having experi-
Australia, 2009a; Slade, 2009), our findings suggest that enced homelessness and one in four fearful of this pos-
not all such accommodation can be defined as being of sibility. Our data also highlight the linked phenomenon of
adequate quality. Further, although few of the participants housing instability, which is more prevalent than in a com-
(2.2%) expressed unmet needs for housing assistance, per- parable group of the general population (18.6% of those
haps because housing needs may not be readily identified aged 1564 years) (Australian Bureau of Statistics, 2007).
or expressed by this group, those who did express needs Further, although homelessness is often considered an older
were predominantly homeless or living in privately rented persons problem, our data underscore the importance of
housing. In addition, underscoring the complexity of the growing recognition of youth homelessness (16.4% of
expressed preferences and needs with regard to housing, participants aged 1834 years in this survey) (e.g. Victorian
only 10 (of 94) homeless participants expressed an unmet Homelessness Strategy Ministerial Advisory Committee,
need for housing assistance and an additional 33 individu- 2001) and the corresponding need for youth-specific inter-
als were not homeless (however defined) but expressed ventions (National Youth Commission, 2008). As a more
such a preference. These data challenge the common general response to homelessness, the ACT model, and par-
assumption that no one wants to be homeless and suggest ticularly the supported housing model (which similarly
that some people with psychosis may prefer to live on the incorporates home-based support), have been shown to be
streets, in temporary shelters or in a boarding room rather effective (Rog, 2004; Rosenheck etal., 2003; Tsemberis
than in some other types of accommodation. This finding etal., 2004) and could be made more widely available for
warrants closer examination in future analyses. A plausible people with psychoses who are homeless or at risk of home-
explanation may be perceived advantages with respect to lessness. In addition, it may be useful for mental health ser-
greater independence compared with institutional and sup- vices to identify and target frequent movers for outreach
ported group accommodation, as identified within the first interventions where available. Further, since moving out of
national survey (Harvey etal., 2002). stable accommodation was commonly precipitated by
Almost one-quarter of all survey participants was on the interpersonal conflict at home, wider availability of effec-
public housing waiting list. This suggests that, whilst sub- tive interventions to improve relationships with significant
stantial progress has been made in improving the access of others, such as family interventions, is warranted (Pharaoh
people living with psychoses to adequate housing, there is etal., 2006).
still more that could be done. In particular, considerably Our findings highlight that many people with psychosis
more investment is needed to meet unmet preferences for experience a mismatch between their housing preference
own housing as well as alternatives to institutional living and their current living situation. From a rights perspective,
and living in the family home. Availability of housing stock this suggests that the development of a full range of
is a general issue (Grigg etal., 2004; Herrman etal., 2004). services is needed to adequately address this disparity.
However, wider availability of, and access to, services This would also be consistent with existing evidence
offering housing assistance could be helpful (New South concerning the therapeutic value of attending to housing
Wales Health, 2006). Only one in five survey participants choice (e.g. Sylvestre etal., 2007) as part of the recovery
were asked if they received these services if they had paradigm (Commonwealth Government of Australia,
moved house in the previous 12 months, but most of these 2009a). However, as suggested by Sylvestre etal., further
reported that their needs were adequately met. A particu- work is required to understand how programs and policies
larly important gap is identified by the participants (7.5%) can be re-modelled to adequately address choice, take
who reported that they had not been offered any help with appropriate account of factors such as diminished expecta-
accommodation when inpatients and yet had nowhere to tions and adaptation among people with psychosis (Herrman
live on discharge. This finding is concerning given the etal., 2002), titrate support to changing needs, and balance
agreement by all states and territories to adopt a policy of the best interests of the individual and community.
no discharge into homelessness as part of the National Supported housing is not only an effective interven-
Affordable Housing Agreement (Commonwealth tion for homelessness, but also has wider benefits for people
Government of Australia, 2008). With continuing pressure with psychoses (Nelson etal., 2007; Sylvestre etal., 2007).
on inpatient beds and emergency departments and clear These have led to growing adoption of this model both in
evidence that lack of appropriate and affordable supported Australia and overseas. This study compared two participant
accommodation is a significant contributor to length of stay subgroups within the national survey with different types of

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015
848 ANZJP Articles

housing and support: supported group accommodation and unknown. Finally, although the subgroups were restricted
supported housing (regular housing with in-reach support). to participants residing for the previous year in the relevant
The subgroups resembled each other with respect to diagno- housing in order to select well-defined and stable sub-
sis and course of illness, although there was a tendency for groups, participants could have spent brief unaccounted-for
greater disability among those in supported group accommo- periods of time elsewhere, such as in transitional accom-
dation that was also reflected in their social functioning rat- modation or respite. Further, this approach may have intro-
ings. This may be a selection effect due to residential duced selection bias due to differential rates of housing
assignments being matched with applicants characteristics tenure in these two housing models.
(Wong and Solomon, 2002) and cannot be used to draw con-
clusions about the relative effectiveness of the models. Key Acknowledgements
differences emerged between the two subgroups with respect This publication is based on data collected in the framework of the
to social inclusion and recovery indicators that are consistent 2010 Australian National Survey of High Impact Psychosis. The
with the literature (Leff etal., 2009; Sylvestre etal., 2007). members of the Survey of High Impact Psychosis Study Group
Whilst supported housing appears more consistent with are: V. Morgan (National Project Director), A. Jablensky (Chief
recovery-oriented practice, it may exact a cost in the Scientific Advisor), A. Waterreus (National Project Coordinator),
increased likelihood that participants feel unsafe in their R. Bush, V. Carr, D. Castle, M. Cohen, C. Galletly, C. Harvey, B.
locality as well as more isolated and lonely, despite greater Hocking, A. Mackinnon, P. McGorry, J. McGrath, A. Neil, S. Saw
contact with relatives. Conversely, the opportunity to live in and H. Stain. Ethics approvals for the study were obtained from
the relevant institutional human research ethics committees.
housing of choice is still an unmet need for a greater propor-
This report acknowledges, with thanks, the hundreds of men-
tion of those in supported group accommodation. Given that tal health professionals who participated in the preparation and
recovery is a complex and individualised process (Slade, conduct of the survey and the many Australians with psychotic
2009), it may be better to view these two models as comple- disorders who gave their time and whose responses form the basis
mentary, rather than one leading to or replacing the other. of this publication..
Whilst not as overtly consistent with recovery values, there is
evidence that supported group accommodation can support
Funding
peoples recovery and may be required to maintain this
recovery (Chopra and Herrman, 2011). Without sufficient The study was funded by the Australian Government Department
diversity of housing types available to support and maintain of Health and Ageing.
recovery, and sufficient flexibility of policy and practice,
some of the most disadvantaged groups among those living Declaration of interest
with psychosis will become or remain socially isolated, and The authors report no conflicts of interest. The authors alone are
more rather than less disabled, over time. responsible for the content and writing of the paper.

Limitations References
The survey method was likely to underestimate the home- Australian Bureau of Statistics (2007) 2006 census tables.
less with psychosis. This is because they are less often in Available at: www.censusdata.abs.gov.au (accessed 2
December 2011).
contact with services and were not specifically targeted for
Australian Human Rights Commission (2011) Housing, home-
this survey (Harvey etal., 2002; Herrman etal., 2004). The lessness and human rights. Available at: www.humanrights.
survey was cross-sectional and so cannot be used to draw gov.au/human_rights/housing/index.html (accessed 26
conclusions about effectiveness of housing models. There November 2011).
was relatively little data collected on neighbourhood char- Carling PJ (1993) Housing and supports for persons with men-
acteristics in this survey despite growing recognition of tal illness: Emerging approaches to research and practice.
the importance of neighbourhood characteristics in relation Hospital & Community Psychiatry 44: 439449.
to housing outcomes and satisfaction. The limitations of Chamberlain C (1999) Counting the homeless: Implications for
satisfaction data in this population are also noted given the policy development 1996. Canberra: Australian Bureau of
possibility of diminished expectations or adaptive prefer- Statistics.
ences. Some of the variables used to inform the subgroup Chopra P and Herrman H (2011) The long-term outcomes and unmet
needs of a cohort of former long-stay patients in Melbourne,
comparison may have been imprecisely rated: for example,
Australia. Community Mental Health Journal 47: 531541.
ACT is a complex service model which is difficult to define Chopra P, Harvey C and Herrman H (2011) Continuing accom-
briefly in the context of a lengthy survey interview and may modation and support needs of long-term patients with
have been poorly understood by participants. In addition, severe mental illness in the era of community care. Current
this survey did not collect data on model fidelity of ACT Psychiatry Reviews 7: 5783.
and other outreach support and the extent and content Commonwealth Government of Australia (2008) The road home.
of NGO outreach support provided to participants was A national approach to reducing homelessness. Canberra:

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015
Harvey etal. 849

Department of Families, Housing, Community Services and models for persons with mental illness. Psychiatric Services
Indigenous Affairs. 60: 473482.
Commonwealth Government of Australia (2009a) National Leff J and Trieman N (2000) Long-stay patients discharged from
Mental Health Policy 2008. Canberra: Department of Health psychiatric hospitals. Social and clinical outcomes after five
and Ageing. years in the community. The TAPS Project 46. British Journal
Commonwealth Government of Australia (2009b) National of Psychiatry 176: 217223.
Affordable Housing Agreement. Canberra: Department of Mental Health Council of Australia (2005) Not for service:
Families, Housing, Community Services and Indigenous Experiences of injustice and despair in mental health care in
Affairs (FaHCSIA) Available at: www.facs.gov.au/sa/housing/ Australia. Canberra: Mental Health Council of Australia.
progserv/affordability/affordablehousing/Pages/default.aspx Morgan V, Waterreus A, Jablensky A, etal. (2011) People living
(accessed 26 November 2011). with psychotic illness 2010: Report on the second Australian
Freeman A, Malone J and Hunt GE (2004) A statewide survey of national survey. Canberra: Commonwealth of Australia.
high-support services for people with chronic mental illness: Morgan VA, Waterreus A, Jablensky A et al. (2012) People living
Assessment of needs for care, level of functioning and satis- with psychotic illness in 2010. The second Australian national
faction. Australian and New Zealand Journal of Psychiatry survey of psychosis. Australian and New Zealand Journal of
38: 811818. Psychiatry 735752.
Government of Western Australia (2004) A recovery vision for Morosini PL, Magliano L, Brambilla L, etal. (2000) Develop
rehabilitation: Psychiatric Rehabilitation Policy and Strategic ment, reliability and acceptability of a new version of the
Framework. Perth: Department of Health. DSM-IV Social and Occupational Functioning Assessment
Grigg M, Judd F, Ryan L, etal. (2004) Identifying marginal hous- Scale (SOFAS) to assess routine social functioning. Acta
ing for people with a mental illness living in rural and regional Psychiatrica Scandinavica 101: 323329.
areas. Australasian Psychiatry 12: 3641. National Youth Commission (2008) Australias homeless youth:
Harvey C, Evert H, Herrman H, etal. (2002) Low prevalence A report of the National Youth Commission Inquiry into youth
disorder component of the National Study of Mental Health homelessness. Brunswick: National Youth Commission.
and Wellbeing. Bulletin 5: Disability, homelessness and social Nelson G, Sylvestre J, Aubry T, etal. (2007) Housing choice
relationships among people living with psychosis in Australia. and control, housing quality and control over professional
Canberra: Commonwealth Department of Health and Ageing. support as contributors to the subjective quality of life and
Harvey C, Killaspy H, Martino S, etal. (2011) Implementation community adaptation of people with severe mental illness.
of assertive community treatment in Australia: Model fidel- Administration and Policy in Mental Health and Mental
ity, patient characteristics and staff experiences. Community Health Service Research 34: 89100.
Mental Health Journal Epub ahead of print 17 Nov 2011. New South Wales Health (2006) Housing and Accommodation
Henwood B, Stanhope V and Padgett D (2011) The role of hous- Support Initiative (HASI) for people with mental illness.
ing: A comparison of front-line provider views in housing Sydney: State Government of New South Wales.
first and traditional programs. Administration and Policy in Office of the United Nations High Commissioner for Human
Mental Health 38: 7785. Rights (1976) International covenant on economic, social and
Herrman H and Harvey C (2005) Community care for people with cultural rights. Available at: www2.ohchr.org/english/law/
psychosis: Outcomes and needs for care. International Review cescr.htm#art11 (accessed 26 November 2011).
of Psychiatry 17: 8995. Pharoah FM, Mari J, Rathbone J, etal. (2006) Family intervention
Herrman H, Evert H, Harvey C, etal. (2004) Disability and ser- for schizophrenia (Cochrane Review). Chichester, UK: John
vice use among homeless people living with psychotic disor- Wiley & Sons Ltd.
ders. Australian and New Zealand Journal of Psychiatry 38: Pickles A, Dunn G and Vzquez-Barquero JL (1995) Screening
965974. for stratification in two phase (two-stage) epidemiologi-
Herrman H, Hawthorne G and Thomas R (2002) Quality of life cal surveys. Statistical Methods in Medical Research 4:
assessment in people living with psychosis. Social Psychiatry 7389.
and Psychiatric Epidemiology 37: 510518. Ridgway P and Rapp CA (1997) The active ingredients of effec-
Hobbs C, Tennant C, Rosen A, etal. (2000) Deinstitutionalisation tive supported housing: A research synthesis. University of
for long-term mental illness: A 2-year clinical evaluation. Kansas, School of Social Welfare, Kansas.
Australian and New Zealand Journal of Psychiatry 34: Ridgway P and Zipple AM (1990) The paradigm shift in residen-
476483. tial services: From the linear continuum to supported housing
Jablensky A, McGrath J, Herrman H, etal. (1999) National Survey approaches. Psychosocial Rehabilitation Journal 13: 1131.
of Mental Health and Wellbeing Report 4: People living with Rog DJ (2004) The evidence on supported housing. Psychiatric
psychotic illness: An Australian study 199798. Canberra: Rehabilitation Journal 27: 334344.
Mental Health Branch, Commonwealth Department of Health Rosenheck R, Kasprow W, Frisman L, etal. (2003) Cost-
and Aged Care. effectiveness of supported housing for homeless persons with
Jablensky A, McGrath J, Herrman H, etal. (2000) Psychotic mental illness. Archives of General Psychiatry 60: 940951.
disorders in urban areas: An overview of the Study on Low Scott J (1993) Homelessness and mental illness. British Journal of
Prevalence Disorders. Australian and New Zealand Journal Psychiatry 162: 314324.
of Psychiatry 34: 221236. Slade M (2009) 100 ways to support recovery: A guide for men-
Leff HS, Chow CM, Pepin R, etal. (2009) Does one size fit all? tal health professionals. Rethink Recovery Series, volume 1.
What we can and cant learn from a meta-analysis of housing London: Rethink.

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015
850 ANZJP Articles

South Australia Health (2010) Housing and Accommodation Tsemberis S, Gulcur L and Nakae M (2004) Housing First, con-
Support Partnership (HASP Program): Program guidelines. sumer choice, and harm reduction for homeless individuals
Adelaide: Government of South Australia. with a dual diagnosis. American Journal of Public Health
State Government of Victoria (2003) Victorias mental health 94: 651656.
services. Psychiatric disability rehabilitation and support ser- Victorian Homelessness Strategy Ministerial Advisory Committee
vices: Guidelines for service delivery. Melbourne: Department (2001) Building solutions for individuals and families who
of Human Services. experience homelessness Working report of the Victorian
State Government of Victoria (2011) Framework for recovery- Homelessness Strategy. Melbourne: Victorian Government
oriented practice. Melbourne: State Government of Victoria. Department of Human Services.
State of Queensland (Queensland Health) (2011) Queensland Wong YC and Solomon P (2002) Community integration of per-
Plan for Mental Health 20072017. Four year report, sons with psychiatric disabilities in supportive independent
October 2011. Queensland: Mental Health Alcohol and Other housing: A conceptual model and methodological considera-
Drugs Directorate. tions. Mental Health Services Research 4: 1328.
Sylvestre J, Nelson G, Sabloff A, etal. (2007) Housing for people World Health Organization (2010) International Statistical
with serious mental illness: A comparison of values and research. Classification of Diseases and Related Health Problems, 10th
American Journal of Community Psychology 40: 125137. Revision. Available at: www.apps.who.int/classifications/
Thornicroft G and Bebbington P (1989) Deinstitutionalisation icd10/browse/2010/en (accessed 26 November 2011).
from hospital closure to service development. British Journal Zhang J, Harvey C and Andrew C (2011) Factors associ-
of Psychiatry 155: 739753. ated with length of stay and the risk of readmission in an
Trauer T, Farhall J, Newton R, etal. (2001) From long-stay psy- acute psychiatric inpatient facility: A retrospective study.
chiatric hospital to community care unit: Evaluation at 1 year. Australian and New Zealand Journal of Psychiatry 45:
Social Psychiatry and Psychiatric Epidemiology 36: 416419. 578585.

Australian & New Zealand Journal of Psychiatry, 46(9)


Downloaded from anp.sagepub.com at UNIV OF CONNECTICUT on June 4, 2015

You might also like