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‘Mom leaves parting to sons -Naton |The Star Online
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Mom leaves parting gift to sons
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KUALA LUMPUR: A mother dying from a rare disease decided to write her
‘memoirs so that her sons will have something to remember her by.
“This book is the legacy | will leave behind in the hope that | will be remembered by
‘the people | touched, especially my sons” wrote Azlena Abdul Hamid in The
Shadow of Me,
‘Azlena died in her sleep aged 59 in the early morning of Sept 7 last year, a week
after she finished writing the book,
Released posthumously last week, The Shadow of Me tells the story of Azlena, her
family, and her battle with the disease, ataxia, a disorder that results in the loss of
‘motor functions,
Ataxia is a neurological disease caused by damage to the nervous system, such.
as the cerebellum, resulting in the lack of voluntary coordination of muscle
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Writing as a woman, a mother and a daughter, Azlena‘s words mirrored her journey,
sometimes frustrating, sometimes filled with regret, but mostly, filled with
happiness and love
On her disease, with which she was one of the only two people in Malaysia who
have been diagnosed, Azlena reflected how it showed her the different side of her
two sons, Azzedin and Aris Rusland.
Precious moments: Alen wth famllymembars tthe hosp
"Getting ataxia has opened my eyes to many things. For one, | got to see the love
and care that my sons have for me.
“Ittook me some time to realise this because I have always been giving the love
and care, being the mother and breadwinner and all” she wrote,
Azzedin, 32, felt that it was his mother’s last gift to those she loved
"She told us that she was writing a book, and we felt relieved because she would
have something to do with her time,
"When she wrote her book, we felt that it made us understand her more,’ he told
The Star, adding that he and Aris helped with the proofreading,
Both Azzedin and Aris, 28, were glad that they were able to spend valuable time
with Azlena before her death
"She made a conscious effort to be involved with us. She tried, She liked to go for
drives in the middle of the night. Randomly, we would take her around Kuala
‘Mom leaves parting to sons -Naton |The Star Online
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hp ww thestar.com mylnewsaton 2017/05 4/mom-leaves-partng.af-o-sors-womar-withrare-disease-frished-memots-one-wook-bufre-she-ciod! 215“| dont think her illness robbed her (time) as our mother. | think it made us closer
to her’ added Aris
The brothers said it was difficult at times to see Azlena struggling with her
disease,
“Going from someone who jogged on the treadmill regularly and driving and
having to use a walker and ending up in a wheelchair, it was hard for all of us. But
we tried to not let it show" said Azzedin.
The only word Azzedin could use to describe his mother was “beautiful”
“To me, she was just absolutely beautiful’ he said
"Irreplaceable? said the younger brother.
"I know everyone says that about their mother, but for my late mother, being a
career woman, then going through a divorce in her late 40s, becoming a single
parent, supporting us through our degrees overseas, it takes a lot out of a person.
"So, she was irreplaceable to us, added Aris,
‘The Shadow of Me was launched on May 4 by Perak princess Raja Datuk Seri
Eleena Sultan Azlan Shah, who said that she felt connected to the late Azlena after
reading the book
“Icould relate to her as a working mother, her dedication to family and friends, her
desire to excel in a man's world, striving to balance between family and career, her
frustrations and triumphs, her strengths and weaknesses,” said the princess in her
speech, adding that the memoir was a “tremendous” gift to everyone.
For Azzedin and Aris, one of Azlena’s last wishes was recorded in the memoir.
"My greatest wish is for them to be happy and that they always know how much
love I have for them,” she wrote.
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