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Sm. Sci. Med. Vol. 18, No. 9, pp. 737-744. 1984 0277-9536184 $3.00 + 0.

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Printed in Great Britain Pergamon Press Ltd

THE PATIENTS VIEW


DAVID ARMSTRONG
Unit of Sociology, Guys Hospital Medical School, London SEl, England

Abstract-Deference to the importance of the patients view has recently become a major feature of much
medical practice and social science research. This paper, however, argues that attempts to establish the
authentic version of what the patient says is misplaced as investigation can only reveal what is heard, not
what is said. The changes in perception which enable some things to be heard, and not others, are traced
through medicine and the social sciences during the last 50 years and it is suggested that recent interesl
in the validity of the patients view are no more than artefacts of these changes in perception.

In 1935, in the 10th edition of his teaching manual Some 40 years later, in 1975, the 16th edition of
Clinical Methods, Sir Robert Hutchison provided Hutchisons Clinical Methods was published under
details of how to go about case-taking [l]. The new editors [2]. Case-taking was not mentioned,
taking of any case, he pointed out, consists of two except in the chapter title, and in its place the student
parts: I. The interrogation of the patient. II. The was advised on how to take a history. At the same
physical examination. He further subdivided the time it was never suggested that history-taking was
former into the general and the special interrogation, other than a constant feature of clinical practice.
prefaced with some advice on the purpose and tech- History-taking is still and art, it was explained, and
niques of interrogation. it was a special form of the art of communication. it
The purpose of the interrogation was to elicit is necessarily a two-way business. Indeed itwas even
information regarding (the patients) present illness suggested that history-taking might be improved
and the state of his previous health and that of his by active participation in sensitivity groups as
family. Although the interrogation was directed by pioneered by, (the GP-psychoanalyst), Balint.
the doctor, the patient was to be allowed as far as In 1975, as in 1935, the patient was invited to speak
possible, to tell his story in his own words. Leading while the doctor listened; but it is clear that between
questions, which might force an opinion on the these two dates the form of the invitation had
patient, were strictly forbidden as was asking the changed. Did the reformulated exhortation to speak
same question twice (which only made the doctor have an effect on the words that were spoken? Did the
look foolish). newer methods more accurately establish the pa-
The general interrogation itself involved establish- tients view? Such questions are undoubtedly im-
ing the patients name, age, occupation, whether portant for a concerned social science or an enlight-
single or married and exact postal address before the ened medical practice but they are misplaced. What
two crucial questions, Of what does he complain? changed between 1935 and 1975 was not simply the
and How long have the symptoms been present? form of the incitement to speech but the very struc-
were asked. The answers to these were supplemented ture of perception: it was not what the patient said
by a family history on the state of health and cause but what the doctor heard which established the
of death of family members, a personal history- reality (and accuracy) of the patients view.
what together may be grouped together as the
patients environment or surroundings or habits- THE CLINICAL GAZE
and the patients previous history, which was to be
enquired after indirectly except for syphilis. In his seminal work, The Birth of the Clinic, Michel
It is, of course, quite possible that by 1935 this Foucault identifies a major shift in medical percep-
particular approach to case-taking had become tion, or what he calls the medical gaze, as occurring
quite dated but, in as much as the preceding editions at the end of the 18th century [3]. In its old form
of the book (first published in 1897) covered similar clinical reading implied an external, deciphering
ground. it is probably fair to say that these techniques subject, which . . . ordered and defined kinships.
elicited what might be described as a patients view in This medical gaze had been directed upon the two-
the earlier decades of this century. In countless dimensional areas of tissues and symptoms. In its new
meetings between doctors and patients up and down form, however, the gaze had to map the three-
the country. patients were constantly invited to dimensional volume of the human body because
report on their complaint, its longevity and its disease was seen to have a specific anatomical lo-
immediate context. cation: Disease is no longer a bundle of characters
disseminated here and there over the surface of the
body . . . ; it is a set of forms and accidents . . . bound
This paper is based on a contribution to a seminar series at together in a sequence according to a geography that
the Wellcome Institute for the History of Medicine, can be followed step by step. It is no longer a
London. on The patients view: lay attitudes to medi- pathological species inserting itself into the body . .
cine. disease and doctors. it is the body itself that has become ill [4].
737
738 DAVID ARMSTRONG

It was at this point that the now familiar tech- mended that they were written down verbatim:
niques of clinical examination were embedded into notes, advised Gibson and Collier in 1927, should
medical practice. The clinician had to map the vol- be made during this recitation [12].
ume of the body by use of ear, touch and sight so as The patients own words, however, were not
to localise and identify the pathological lesion which necessarily free from background distortion; as
was inserted therein. Under the old medicine signs Horder and Gow observed this does not mean that
and symptoms are and say the same thing . . . every the observer is to set down words or phrases which
symptom was a potential sign and the sign was simply are meaningless or equivocal [13]. Indeed an addi-
a read symptom [5]. In the new perception sign and tional question was justified if the patient tends to
symptom were separated: the symptom might well stray into irrelevant matters [14]. If the patient was
remain silent, the truth of the disease was contained the intermediary who stood between the disease and
only in what the doctor found, in the form of the sign. the medical gaze then the doctor, of necessity, had to
Symptoms, what the patient said, could provide a look behind the words the patient spoke. Some
guide or a hint or a suspicion of which organ or common words such as the patients ready-made
system might be involved but were only preliminaries; diagnosis were never to be taken at face value [15];
the core task of medicine became not the elucidation others were only thought to be accessible by being
of what the patient said but what the doctor saw in dug up from the patients unconscious [16]; others
the depths of the body. were to be postponed if the history is completely
The teaching manuals which were published early disjointed or the patient be well set for a three hour
in the 20th century reflected the dominance of signs monologue [ 171.
in medical diagnosis. Stevens Medical Diagnosis of The patient as an idiosyncratic person was not
1910 offered 3 pages out of 1500 to the interrogation entirely absent from this dialogue between doctor and
of the patient [6]. Cabots Physical Diagnosis, from disease. The doctor could recognise in patients
its first edition in 1905 until its 12th in 1938, ignored different abilities to enunciate the lesions truth: as
even a token statement on interrogating the patient, Boume noted in 1931 The human being is a record-
concentrating entirely on the physical examination ing instrument of uncertain and variable power [IS].
[7]. Emersons Physical Diagnosis of 1928 could only Thus the doctor had to assess the competence of the
manage a one page outline of advice on the lay-out patient to speak for the pathology. As the patient
of the consultation room as a preliminary to the describes his complaint, Gibson and Collier ex-
details of the examination [8]. plained, his mentality will become clearer, whether
In the various texts which offered advice on inter- he is intelligent or dull, accurate or given to exagger-
rogating the patient the format was almost identical. ation, if his memory is good, or if there is evidence
The patients age, sex, occupation, address and mar- of mental aberration [19]. Noble Chamberlain sug-
ital status were noted before asking about the main gested that the interrogator should be alert to these
complaint and its duration. This was followed by possibilities and formulate specific questions for each
questions on the patients previous medical history, patients intelligence [20] while Hutchison went so far
family medical history and the so-called personal as to advocate leading questions for patients stupid
history which tended to be restricted to health either by nature or as the result of symptoms [21].
hazards of the occupation, past residence abroad and The general proscription of leading questions in
habits such as consumption of tea, alcohol and these texts gives a further indication of the limited
tobacco. It is clear that the patient-construed as a identity accorded the patient. Hutchison only allowed
whole person [9]-was virtually absent from the them for stupid patients, to trap malingerers and to
advice on how to conduct clinical practice; indeed as elicit subjective symptoms (the morbid sensations
the body of the patient was seen as co-terminous with experienced by a patient as the result of the disease
the space of the illness [lo] it was impossible to of some organ or system) when the doctor felt he
conceptualise the patient and lesion as separable. In was engaging the pathology in dialogue [22]. In other
effect as the lesion could not communicate in words, circumstances leading questions were dangerous be-
the patients identity in the interrogation was pro- cause of the suggestibility of many patients [23]. If
vided by the ability to speak for the otherwise silent they were used, Horder and Gow argued, then a
pathology. The lesion spoke through the patient, record of their use should be kept and the patients
though it only finally yielded its secret in the physical reply appropriately qualified [24]. In effect patients
examination. had no independent views or autonomy, they spoke
To provoke the lesion to speech, through the on behalf of the pathology and, without precautions,
patient, was not an easy task. Indeed Keith, in his simply reflected back the leading question.
Clinical Case-Taking of 1918, while offering a schema At the beginning of this century the patients view
for case-taking, pointed out that it was exceedingly was, in essence, the unformed words of the disease.
difficult to reduce the skill of interrogatory method to The interrogation was concerned with the character-
print [ 1I]. Perhaps the commonest advice was that the istics and life history of the symptom. . . . To get a
patient should be allowed to tell his story in his own clear picture- of the symptom so that it stands out as
words when it came to identifying the main com- if it had a personality is the ideal to be sought for
plaint. Yet this did not signify the existence of a [25]. Beyond the disease, the patient only had exist-
patient identity or measuring system independent of ence as a good, bad or indifferent historian.
the lesion; the patients own words were only required
because they might express in purest form the com- AN INCHOATE PATIENT
munication of the pathological lesion itself. Such was
the importance of these words that it was recom- In the 12th edition of his Physical Diagnosis,
The patients view 739

published in 1938, Cabot made two additions: he Clinical Methods of 1949 extended the interrogation
introduced a new first chapter on history-taking (a of the patient [33]. In this case the patients personal
subject too often omitted from books on diagnosis*) history was replaced by a social history which
where before there had been none, and his chapter on includes the patients mental attitudes to his life and
the examination of the diseases of the nervous system work.. . . One should endeavour to visualise the life
for the first time included a two page discussion of the of ones patient, sharing his emotions and viewing
neuroses and the psychoses [26]. Similarly the 8th step by step his daily habits. . . . Sometimes one
edition of Elmer and Roses Physical Diagnosis (re- should inquire into a patients business affairs, his
vised by Walker) of 1940 added a chapter on history ambitions, anxieties, quarrels . , . his domestic re-
taking and a few pages on psychiatric examination lationships, his psychological make-up, his interests,
despite their total lack in the 1938 edition [27]. his hobbies, his hopes, his fears. . ..
There had been a hint in Boumes An Introduction The second element in the reconstruction of the
to Medical History and Case-Taking of 1931 that the patients view was the changes which were occurring
history was beginning to change its alignment in the within the field of psychological medicine. During the
cognitive map of medicine [28]. He noted, for exam- 1920s and 1930s the medical gaze had been focusing
ple, that history-taking receives scant attention in on the mind of everyone [34]. In the 19th century
other detailed books on physical examination. In when rationality had seemed all-important psychiatry
addition, he offered a discussion of the relative was concerned with those patients, few in number,
importance of history and physical examination and who were insane. During the 20th century the central
concluded that their importance in diagnosis or prog- problem of mental functioning had become coping
nosis varied greatly with different diseases. Although and medicine had discovered the generalised preva-
his advice on history-taking followed familiar lines lence of the neuroses-particularly anxiety and de-
his attempt to compare history and examination pression. By the 1930s many doctors were well aware
represented a fundamental challenge to the old cog- of the ubiquity of the neuroses and the need for
nitive ordering of medicine. This challenge was fur- a general mental hygiene. In consequence patient
thered in Noble Chamberlains text of 1938 which anxieties and personalities together with notions of
offered the observation that structural changes may psycho-somatic unity began to become important
exist without functional derangement and vice- features of much clinical practice. These concerns
versa. In other words the lesion might be unmarked made themselves felt in the gradual inclusion in
by the sign so that the patients words were not manuals on clinical methods of sections on
merely preliminaries but a primary access route to the psychiatric examination. Noble Chamberlain, for ex-
lesion-hence his statement on the importance of ample, first included a section on the diagnosis of the
history-taking [29]. neuroses in his chapter on the examination of the
This new analysis of disease and its indicators was nervous system in 1938 though it was somewhat
characterised by a reassessment both of the patients rudimentary [35]. He outlined the symptoms of the
view and of the importance of psychiatric illness,. In neuroses (hypochondria, neurasthenia, anxiety neu-
1940, Elmer and Rose had extended their list of roses, compulsion neuroses and hysteria) but devoted
patient questions by elaborating on the old personal most attention to the appropriate physical signs: in
history [30]. In the new schema, personal history- hysterics, he noted, the ear lobes were ill-formed and
which had been more concerned with the patients were fused to the skin near the mastoid process
physical environment and habits-was replaced by a instead of hanging freely.
marital history (domestic relationship, whether By about 1950 the old medical gaze seemed to be
happy or unhappy, compatible or incompatible and in a state of transition [36]. An important component
the reasons for unpleasant relations, if they exist), of disease still existed within the human body and
an occupational history and a social history, which this, as of old, demanded interrogation through the
enquired after such personal experiences as worries, patient. But there was now a second strand to
adjustments and disappointments. medical perception which identified a part of illness
While Noble Chamberlain did not significantly as existing in the shifting social spaces between
alter his history-taking plan until the 6th edition of bodies, and clinical method required techniques to
his book in 1957 when The home life was introduced map and monitor this space. The patients view was
(Is the patient happy and contented or are there no longer a vicarious gaze to the silent pathology
sources of friction or worry?), the 1938 edition did within the body but the precise technique by which
suggest a new goal for the history [31]. Whereas the new space of disease could be established: illness
Horder and Gow in 1928 had in the main .. was being transformed from what was visible to what
followed the well-proven principle of endeavouring to was heard.
determine first the site of a lesion and then its The patients view was not, in this sense, a discov-
probable nature [32], some 10 years later Noble ery or the product of some humanistic enlightenment.
Chamberlain was suggesting that at the end of the It was a technique demanded by medicine to illu-
history the physician should have a mental picture minate the dark spaces of the mind and social
not only of the patients presenting symptoms, but of relationships. Whereas the pathological lesion could
the manner in which these developed and of the type be seen if it was given a neutral field, the illnesses of
of background of personal and family life upon which social spaces required the incitement of a patients
they have been grafted. Too often we are rightly view. At first the patients view was a fragile flower
accused of studying the disease rather than the which had to be gently cultivated: as Hutchison noted
patient. in his 1949 edition one may defeat ones own ends
In similar fashion, the 12th edition of Hutchisons by wounding the sentiments or conscience of the
740 DAVID ARMSTRONG

patient long before the physical examination starts of symptoms, that more refined techniques were
[37]. Later it was to move to the centre of the medical developed [39]. In the immediate post-war years,
gaze. surveys within a range of medical specialties-
paediatrics, general practice, psychiatry, geriatrics,
PATIENT SURVEYS
social medicine-become relatively commonplace.
Surveys such as those by Koos in 1954, Wadsworth
In 1954 Earl Koos published a book entitled The et al. in 1971, Dunnell and Cartwright in 1972, Banks
Health of Regionsville: What the People Thought and et al. in 1975 and Hannay in 1979 represent some of
Did About It which was hailed as the first systematic the social scientists contributions to the mapping of
explanation of what people think and why they symptom prevalence and the patients view in the
behave as they do in regards to health [38]. Koos community [40].
and his colleagues interviewed more than 500 families A concomitant of the spread of morbidity surveys
over a 4 year period in an American town which they in the post-war years was the redefinition of the
gave the name Regionsville. Respondents received patient. Under the old regime the patient was no
some 16 interviews, each one with a different focus. more and no less than the body which enclosed the
For their views on illness patients were provided with lesion. The surveys on the other hand embraced
a checklist of 17 readily recognisable symtoms and everyone, and found that almost all experienced
asked which they thought should be brought to the physical symptoms or that most were mentally ill.
attention of the doctor. Those who reported no The concept of the clinical iceberg which described
disabling illness in the previous 12 months were also those under health care as only the tip of an enor-
asked whether they had experiencti any of the mous mass of morbidity in the community was first
symptoms from the list. In addition respondents were advanced in 1963 and was confirmed and reconfirmed
provided with a series of questions on some suggested in subsequent studies [41]. The conceptual and meth-
disadvantages of a national health insurance pro- odological correlation between the patients views
gramme (such as People would take advantage of the and the lesion began to fragment as a new referrent,
doctors time or Medical care would be impersonal) the social, made its appearance.
and asked whether they disagreed or not.
Most of the Regionsville interviews were concerned SOCIAL FRAMEWORKS
with use of services and the sub-title of the book
what the people thought and did about it perhaps The survey destroyed the old distinction between ill
overstates the extent to which peoples thoughts were and healthy bodies by generating a new form of
elicited. Nevertheless the analysis of what the people patienthood, namely the person at risk (as well as a
thought marked the beginning of an increasing inter- commensurate discourse on medicalisation which at-
est in the patients view by medical sociology during tempted a critical analysis of this process [42]). But if
the ensuing decades which almost exactly paralleled the survey could not measure the diseased body
the growth of the requirement for an extended through identification of the lesion then it required
history in medicine. Whether medicine or the human other concepts of health and illness. Koos in his
sciences had priority in this new discovery of the survey of 1954,had made an initial attempt to obtain
patients view is unimportant. The fact that in- a measure of illness through the use of the social body
vestigation of the patients view was conducted in as a referrent. Other attempts followed. In 1960
parallel by two or more distinct disciplines simply Mechanic and Volkart studied the propensity to visit
shows the irrelevance of traditional disciplinary the doctor by providing 614 college students with a
boundaries for structures of perception. After the checklist of symptoms and asking them whether-they
War the medical gaze was no longer an analytic would take them to the university health service
framework employed almost exclusively by medicine (certainly, probably, not very likely or very likely) if
but embraced a series of disciplines, many new, they had them [43]. In the same year Apples descrip-
which, by way of comprehensive health care delivery, tion of how laymen define illness involved giving 60
the health care team and socio-medical research respondents eight descriptions of people with health
sought to analyse a new configuration of disease and problems and asking Are these people sick?, What
illness with a variety of refined techniques. might the illness be? and What should be done
Under the old structure of perception illness had about it? By varying the degree of ambiguity and
been located to a specific point inside the body of an time of onset of the problem Apple was able to show
individual patient; in the new regime illness became the significance of various aspects of an illness for
distributed in the gap between bodies, in the inter- promoting patient action [44]. Similarly in 1961 Bau-
stices of the social, in the space which was to become mann invited 201 patients (and 262 medical students,
known as the community. The extended medical gaze acting as controls) to answer the question What do
therefore required the mapping of this social space you think most people mean when they say they are
just as a century and more earlier the medical gaze in very good physical condition? The replies were
had mapped the threedimensional depths of the subjected to content analysis to establish th.ree
human body by the techniques of physical exam- elements: general feeling of well-being, absence of
ination so as to locate the pathological lesion. general or specific symptoms of illness and what a fit
There had been rudimentary attempts in the inter- person would be able to do [45].
war years to map morbidity in the community, such While at one level these studies attempted to obtain
as the Pioneer Health Centre at Peckham, but it was a new definition of health through patient views, in
not until the war-time Social Survey, which involved terms of the new configuration of illness it had
asking a random population sample about prevalence already been decided. Illness was constituted by those
The patients view 741

experiences judged serious enough to warrant seeking depends on what patients think and feel about
formal medical advice. Illness was not defined by a doctors, nurses and hospitals [52].
lesion so much as by a certain behaviour pattern. The reconstruction of patients views, from being
A further element in the new regime were the a measure of medical effectiveness, to become the
analytic frameworks which were deployed to inter- location of a major problem in its own right-
rogate illness. In his study, Koos established a check- through the notions of coping and adjust-
list to determine differences between respondents: merit-began to take effect from the late 196Os,
some people said they would report a loss of appetite though its beginnings can be identified in the exten-
or persistent headaches to the doctor while others sion of psychological medicine in the immediate
would not. Yet although individual responses were post-war years. The open door policy of the 1950s
noted-to the extent of providing some case-histories marked the symbolic end of the segregation of the
in the text-the analytic frame used to make sense of insane and their final eclipse by the more generalised
the data was social class. Supposed individual problem of the neuroses. Large American community
differences were not individual but had a meaning studies of psychiatric morbidity such as the Midtown
only within a particular social context which pre- Manhattan and Sterling County studies identified
sumably informed them. In effect, Koos did not hear upwards of 60% of the population as being mentally
individual respondents in his interviews-no more ill-with the remainder having many transient psy-
than the old doctor saw different pathologies in a chological disturbances [53]. Further research found
dozen patients with gastric ulcer. Social class was that between 30 and 90% of so-called organic com-
accessed through the patients view and conversely plaints had a psychiatric component [54].
the patients view was a product of social class. Psychiatric examination, as has been noted above,
Whereas before, illness had been located in the solid gradually found its way into the clinical method texts.
threedimensional space of the human body, in the At first it was simply an extension of the neurological
post-war years it began to be realigned in a multi- examination to embrace a perfunctory psychiatric
dimensional conceptual space whose axes were the overview as in Noble Chamberlains inter-war treat-
psycho-social determinants of attitudes, beliefs and ment [55]. By the 5th edition of his text in 1952 he
behaviour and which could only be monitored by offered a more sophisticated analysis: Something
constant elicitation of the patients view. more is required to establish this diagnosis (of the
If disease was increasingly located within a social neuroses). It is necessary to assess the patients per-
space it was matched by the growth of psycho-social sonality, a task which comes more easily with age.
models of causation. Social class became seen as a By 1967 the formal schema for conducting history
major determinant of ill-health and of patient behav- taking and clinical examination-for all patients-
iour. Stress, despite the paucity of empirical support, included a section of taking the psychiatric history
became the great hope of a socio-medical gaze (as did and, in 1974, the introductory chapter titled The
its antidote of social support) from the 1950s on- foundations of our art, which provided a potted
wards [46]. And not only did psycho-social factors history of the diagnostic process, was amended with
play a direct aetiological role but via a discourse on a new paragraph on Freud and Jung.
labeiling and stigma from the early 1960s the illness
state was held to arise at times without any physical A NEW MAP
mediation [47].
Under the old regime treatment success was evalu- In the 7th edition of his teaching manual published
ated by the disappearance of signs. In the new, the in 1961 Noble Chamberlain added a new section and
patients attitudes were important. In 1947, for exam- diagram in an attempt to show the complex re-
ple, Dukes carried out the first survey of patients with lationship between signs and symptoms. For some
permanent colostomy to see how they coped [48]. His diseases in different stages of their development
object was to examine patient response in the light of he acknowledged that symptoms could be more
the operative technique as otherwise, he noted, there important than signs. This reassessment of the
was no other means of establishing which was the significance of symptoms had been growing since the
best technique. Some 5 years later however two war. In the foreword for Sewards Be&de Diagnosis
papers had appeared which, though conducting of 1949 Cohen poured derision on the student who
similar surveys, had different objectives [49]. As diagnosed by structural resemblances [56]. Instead,
Sutherland noted: In the recent past, interest has Cohen claimed that disease was a disturbance of
extended from the colostomy to the problem of living function which may or may not be accomplished by
created by it and the methods by which the patient structural changes, the traditional mind-body di-
solves those problems [SO]. In effect the patients chotomy was largely artificial and both psycho-
view, from being a measure of effectiveness, was somatic disturbance and somatopsychic dysfunction
moving to be a problem in its own right. were real phenomena.
In similar fashion some of the earlier sociology Perhaps one of the most successful attempts at a
surveys were concerned with patient satisfaction as new integrated medicine was that of Balint in the
measures of medical effectiveness. Freidson, in 1961, mid-1950s [57]. He reconstructed the field of medicine
in his Patients Views of Medical Practice contended by arguing that the traditional search for a localised
that performance of staff could not be understood pathological lesion was only a part-and often a
very clearly without reference to the expectations of small part-of clinical practice. The role of the
patients [51] while Cartwright in her large survey of doctor, he suggested, was to organise unorganised
patient attitudes to hospital care of 1964 observed illness: the doctor had to reorganise the patients
that the successful application of medical knowledge problems, symptoms and worries so as to make sense
742 DAVID ARMSTRONG

of them. This might require symptoms being linked lay behind the words and further refinement of
with pathological lesions in the classical triangulation technique was necessary to make it accessible. At
method but it also required the construction of a first, in the 1960s and 1970s it was through non-
dense web of interconnections between feelings, verbal communication: the eyes sometimes convey
symptoms and social context such that the lesion was more information than words; the clenched fist
reduced to a single nodal point within a network of may demonstrate latent tension, and touch may be
more abstract relationships. equally important [66]. By the late 1970s the gaze
This reconstruction had various implications for beyond that which was spoken, began to focus
the patients view. First, it established a series of with more intensity on the subjectivity behind the
different needs which required expression. Thus for words.
example, in her study of patients and their GPs Pain had been the archetypal symptom, the direct
published in 1967 Cartwright could think of the record of a lesion based on stimulation of sensory
effectiveness of general practice in terms of meeting nerve endings; some reassessment of this view had
patients clinical, social and emotional needs [58]. occurred in the early 1960s with the increasing im-
Second, the patients view was not only a part of the portance ascribed central processing in the percep-
diagnostic process but also part of the therapeutic. At tion of pain [67], and by the late 1970s McLeod
the very least, patient talk helped adjustment through suggested that pain was a purely subjective com-
the organisation of problems while, as a form of plaint and that, moreover, Its subjective nature is
psychotherapy, it acted as a more formal treatment such that it is only through personal experience of
regime. pain that a doctor can have insight into the meaning
In this new theoretical context the patients view in of the descriptions given by patients [68]. This
the consultation underwent further changes. In the reliance on self-experience to grasp the meaning of
inter-war years the patients view on anything, in- symptoms was also found in a book published in
cluding the possible diagnosis, not directly related to 1977 of sociologists accounts of their own illnesses
the lesion was excluded; thirty years later it had [69]. The authors criticised previous sociological stud-
changed. Patience is necessary, suggested Noble ies of illness as being too formal, objectified, de-
Chamberlain in 1967, when.the patient tries to make tached and scientifically rigorous . . . each illness
his own diagnosis. This may be irritating but not experience and encounter with organised care is
unreasonable as it stems from a natural desire to find unique; the only means of transcending the inter-
a cause for the illness which perhaps can be. avoided pretation of meanings, of achieving authenticity, was
in future. . . [59]. A decade later it was not simply to observe not the illness of others but the illness of
tolerance which was required as it was possible, self. The patients view, caught in a dense web of
suggested Kleinman and his colleagues, that the subjectivity, was becoming a reflection, another man-
patients views-which were so coherent as to form ifestation even, of the self-view.
lay theories*ould be valuable diagnostic and ther- It was therefore no longer possible to distinguish
apeutic tools [60]. A flurry of work in the early 1980s separate realms of experience for doctor and patient.
on patients lay theories and of their importance for The meeting between doctor and patient was not
a penetrating medical gaze, was further evidence of between an enquiring gaze and a passive object but
the elevation of the patients view from an irrelevance an interaction between two subjects. In many ways
to a theory [61]. The patients view had been elicited the notion of a doctor-patient relationship failed to
in the interrogation; in the post-war years a less capture the essentially contingent and precarious
threatening term, history-taking, became more com- scenario contained within the term doctor-patient
mon while in many recent texts the even more secular interaction [70]. The patients view and the doctors
medical interview has been employed. Clinicians view were shadows of each other. On the medical side
are likely to consider the term medical interview as Browne and Freeling likened the interaction to a
synonymous with which is called history-taking game (drawing on transactional analysis) [71] while,
wrote Enelow and Swisher in 1972 1621.The medical in the same year, from the sociological side, Wads-
interview is much broader than that. worth and his colleagues set out to investigate the
The medical gaze had engaged with a new problem: rules, routines and procedures that doctors and pa-
the patients view itself. The patients words were tients use to organise consultations [72]. Perhaps
therefore more robust and the dangers of leading McLeod, in his Clinical Examination of 1976 spoke
questions were minimised; by and large they should for both sides when he wrote: In addition to the
not be used but the student may observe an experi- patients response to his problem the interactions
enced clinician will sometimes disregard this rule between the patient and the doctor have also to be
[63]. Whereas before, the patients words which did considered. This relationship is very complex as a
not signify the lesion were dismissed as irrelevant or result of the interplay between different personalities
suspected of representing malingering, the new advice in potentially unstable situations [73]. The claim of
was that it was important to realise that apparent Locker, in his 1981 study of patients interpretation
evasiveness on the part of the patient is almost never of symptoms, that illness is a social phenomenon
deliberate [64]. The doctors first task was to listen constituted by the meanings actors employ to make
and to observe, not only to obtain information about sense of observed or experienced events could be
the current problem but also to understand the applied to either patient or doctor [74].
patient as a person [65]. The doctors opening question Whar is your
It rapidly became apparent however that the pa- complaint? was replaced by Now please tell me
tients view was not constituted simply by the words your trouble [75]. Illness, which had been consti-
themselves as words were merely signifiers. The view tuted by the lesion deep in the body, was transformed
The patients view 743

into the idiosyncratic meanings of the patients (and somewhat less than perfect setting for pathology;
doctors) biographical space. when the doctor enquired of patient meanings, the
view became the lay theory and the patient a subjec-
tive being.
CODES OF PERCEPTION
This does not mean that the discourse which is the
What then is the patients view? What is it that the vehicle for this new perception necessarily has imme-
patient says? The problem is one of perception, of the diate or real effects on clinical practice. Despite the
difference between hearing and saying. The patients widespread endorsement of an extended patients
view cannot be described or isolated simply as what view in the literature reviewed above, most clinical
is said, fundamentally the patients view is bound up practice today-particularly hospital-based-
with what is heard. In this sense the patients view is probably relies on an older scheme of interpretation.
an artefact of socio-medical perception. There are of course tensions between a perception
In his discussion of the massive changes which and a practice, some due to a cohort effect as older
occurred in medicine at the end of the 18th century, clinicians (and possibly older patients too) reject the
Foucault argues that it was neither the conception of new methods, others due to a more fundamental
disease nor the signs which indicated its presence conflict between levels of theory and of experience.
which were changed first; both field and gaze were Nevertheless the conditions of possibility for an
bound together by codes of knowledge [76]. Thus the extended patients view, whatever its empirical sup-
developments of the late 18th century were not the port, have begun to occur over the last few decades
product of enlightenment, of better methods, of finer and this of itself (besides its ramifications into patient
perceptions: new objections were to present them- representation, community politics, patients rights,
selves to the medical gaze in the sense that, and at the and so on) signifies a change in the status of patient-
same time as, the knowing subject reorganises him- hood.
self, changes himself, and begins to function in a new
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144 DAVID ARMSTRONG

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