Presentation title:

Data Visualisation and

Reporting Plans 2017/18
Mark Allan: IBD Registry Data Manager

@IBDRegistry

IBD Registry. All rights reserved http://ibdregistry.org.uk/

Presentation title:

Overview
Data Visualisation
Why data visualisation?
Example of DV from Web Tool

Reporting Plans for 2017/18

Examples of what to expect

IBD Registry. All rights reserved http://ibdregistry.org.uk/

Presentation title:

Data Visualisation: background

Piloted using the IBD Registry Web Tool
(InfoFlex platform)

Module went live on Web Tool at the end of May 2017

After the pilot and any changes, we will move on to

develop access from the InfoFlex PMS and EMIS
sites

IBD Registry. All rights reserved http://ibdregistry.org.uk/

Presentation title:

Why Data Visualisation tools?

Provides instant feedback on performance
against national standards
Highlights performance over time
Ability to track performance - identify ups and
downs
Prompts review of practice and improvement in
process
New in IBD well established in other diseases

IBD Registry. All rights reserved http://ibdregistry.org.uk/

Presentation title:

What does the Data Visualisation look like?

Summary Charts:

IBD Registry. All rights reserved http://ibdregistry.org.uk/

Presentation title:

What does the Data Visualisation look like?

Summary Charts:

IBD Registry. All rights reserved http://ibdregistry.org.uk/

Presentation title:

Data Visualisation: Biologics KPIs

The Biological Therapy KPIs:

Pre-treatment Checks
Was the patient screened before starting a biological therapy?
Was a formal assessment of disease activity recorded at the point the decision was made to
commence a biological therapy?
Is there a record of Registry consent being discussed with the patient?

Post-induction review (approximately 3 months after the date of the initial treatment)
Did a post-induction review take place?
Was a formal assessment of disease activity recorded at this time?

12-month review (approximately 12 months after the date of the initial treatment)
Did a 12-month review take place?
Was a formal assessment of disease activity recorded at this time?

IBD Registry. All rights reserved http://ibdregistry.org.uk/

Presentation title:

What does the Data Visualisation look like?

Biologics KPIs:

IBD Registry. All rights reserved http://ibdregistry.org.uk/

Presentation title:

IBD Registry: Reporting 2017/18

All sites will receive a summary report of the
data they have submitted every quarter

Biologics Audit:
Subscribing Trusts will receive a quarterly
feedback report detailing compliance with
biologics KPIs, comparison to national standards
and national average.

IBD Registry. All rights reserved http://ibdregistry.org.uk/