2017 Annual Report For The Utah Division of Services For People With Disabilities

2017
ANNUAL REPORT
Division of Services for

People with Disabilities
Table of Contents
Mission Statement 1
Message from the Director 2
Highlights of Fiscal Year 2017 3
Division Organization 4-5
Budget Overview 6
Legislative Appropriations 7
Community We Serve 8-21

Success Story 9
Home and Community Based Services 10
Demographics 11
Diagnoses 12
New Service Recipients 13
Waiting for Services 14-15
Service Groupings 17-21
Employment 22-24
Utah State Developmental Center 25-26
Additional Information and Resources 27-32
Provider Reviews 28-29
National Core Indicators 30
Awards 31
Resources 32
Appendix 33-34
Mission Statement
The mission of the Division of

Services for People with
Disabilities is to promote
opportunities and provide
supports for persons with
disabilities to lead self-
determined lives.
1 DSPD 2017 Annual Report

A Message from the
Director
We at the Division are pleased to present the 2017 Annual Report. This report aims to illustrate
the number of people who utilize the services provided by the Division, describe the services
being used, provide accountability to the citizens of Utah, and highlight the historical and current
need for these services as well as the initiatives to improve services for people with disabilities
across the State of Utah.
The mission of the Division is to promote opportunities and provide supports for persons with
disabilities to lead self-determined lives, which is the guiding ideology through which all our
decision making is based. The Division has accomplished much in the last fiscal year through
collaboration with stakeholders. Some highlights include: serving 5,650 individuals statewide,
bringing 278 people into services, implementing the school to work grant, partnering with
providers for transformation, providing training to law enforcement regarding people with
disabilities, and providing temporary supports to many people waiting for services. This year was
another example of outstanding collaboration and coordination between our many stakeholders,
partner organizations, advocacy groups, and contracted providers.
Going forward, the Division is working with the Department of Health and other stakeholders to
implement the "settings rule". We are committed to adjusting our policies to ensure people
receiving our services are fully integrated within the community they reside, and not systemically
limited in their ability to lead self-determined lives. The Division is also working on MySteps,
intended for individuals in services, people on the waiting list, and people interested in applying
for services. This application will provide people receiving services more control and awareness
about the supports they are receiving, will allow people to apply for services online, and many
other exciting features as requested by stakeholders. This is anticipated to be deployed during
2018.
I want to thank our staff, the Utah State Developmental Center, the Disability Advisory Council,
people we serve, their families, providers, support coordinators, and other stakeholders for an
exceptional year. We appreciate your trust and confidence in the Division and are committed to
continuing to improve upon our practices and provide the best possible supports for the people
we serve.
Sincerely,
Angella D. Pinna
DSPD 2017 Annual Report 2

Highlights of Fiscal Year 2017
5,650 1,757 1,131

People served through four People receiving residential care People receiving supported
Medicaid Waiver programs and in group homes or supervised employment services.
three Non-Medicaid Waiver apartments.
programs.
2,752 2,724 807

People with critical needs waiting People receiving day support People receiving supported
for services through the Division. services. living, host home, or
professional parent services.
278 449 98.6%

Individuals brought into services Individuals on the waiting list Of all service providers were
from the waiting list with FY17 participated in Supported Work in fiscal compliance.
attrition and other sources. Independence.
LEARN MORE! You can find more information about highlights from 2017 through
our many interactive dashboards found here: www.dspd.utah.gov/dashboard/

Division Organization
Utah State
Division of Services for Developmental Center
People with Disabilities
Resource Research and

Services Quality Finance and Development Business
Management Contracts and Technical Systems
Assistance Management
QUALITY
SERVICES MANAGEMENT
Reviews and approves initial budgets, Ensures contract standards are maintained
requests for additional funding for Persons with contracted providers through annual
in services, agency transfers, and crisis reviews
assistance Completes the National Core Indicator
Performs assessments for individuals with satisfaction surveys and visits people in
disabilities including the comprehensive their homes to assess service provisions
brain injury assessment, supports intensity and satisfaction
scale, annual eligibility, and level of care Reviews and follows up on incident
Manages three waivers for individuals with reporting and provides quarterly
disabilities including those with acquired newsletters for Division stakeholders
brain injuries, Physical disabilities, and Responds to constituent concerns
Intellectual Disabilities or related involving providers and support
conditions. coordinators to ensure needs are being
met

Division Organization
RESOURCE
FINANCE AND DEVELOPMENT AND
CONTRACTS TECHNICAL ASSISTANCE
Manages budgets, appropriation Supports people in services through
requests, and provider contracts and managing short-term limited respite,
payments supported employment, providing
Coordinate responses to inquiries from the guidance for assistive technology and
Governor's Office of Management and adaptive equipment, and certifying housing
Budget, the Office of Legislative Fiscal Manages intake, the waiting list, and
Analyst, the individual legislators, and eligibility determinations
other government entities Contributes technical assistance to private
Monitors financial controls on Person support coordinators and provides training
Centered Support Plan budgets and emergency management for the
Division and its contracted providers
RESEARCH AND UTAH STATE

BUSINESS SYSTEMS DEVELOPMENTAL
MANAGEMENT CENTER
Develops, manages, and provides training Provides an array of resources and
on the Utah System for Tracking Eligibility, supports for people with disabilities who
Planning, and Services (USTEPS) case have complex or acute needs
management system and USTEPS Provider The majority of people with disabilities
Interface (UPI) receiving services with USDC are adults
Analyzes data, creates reports and surveys, that reside in onsite residential buildings
collects data for a number of national with four to six others
reports, and reviews external research People residing at USDC are able to shop
involving vulnerable populations for their own groceries, cook their meals,
Manages and protects electronic case files and clean their living area with staff help.
and develop administrative rules for
internal policies and procedures for the
Division, and responds to GRAMA requests

Budget Overview
The Federal Medical Assistance Percentage (FMAP) rate is used to determine the matching
federal fund rate for people receiving services from the Division. This rate changes yearly by small
amounts and assists the Division in serving more people with limited state funding. In FY 2017,
the FMAP was 30.015%, meaning for every $1 general fund spent on services, the Federal
government contributed $2.33.
Total Budget in FY 2017

$297,969,073
Private Contractors
$236.2 M (79.3%)
Operating Budgets
COMMUNITY SUPPORTS WAIVER
Private Contractors
$2.5 M (0.8%) Support Coordination

NON-WAIVER SERVICES $12.4 M (5.0%)
$2.1 M (0.7%)
PHYSICAL DISABILITIES WAIVER
$5.8 M (2.0%) $212.7 M (86.3%)

$21.5 M (8.7%)
ACQUIRED BRAIN INJURY WAIVER Traditional Providers
Self-Administered
Services
$4.6 M (1.6%)
ADMINISTRATION
$6.2 M (2.1%)
STATE SERVICE DELIVERY
$40.4 M (13.5%)
UTAH STATE DEVELOPMENTAL CENTER (USDC)
$297,969,073
$270,878,269
$243,774,872
$225,358,786
$214,915,096
2013 2014 2015 2016 2017
Total Budget by Fiscal Year

Legislative Appropriations
During the 2016 General Legislative Session, the Division of Services for People with Disabilities
was appropriated additional funding for people currently receiving ongoing services. Legislative
appropriations were given to (1) youth transitioning out of Division of Child and Family Services
(DCFS) and Division of Juvenile Justice Services (DJJS), (2) direct care staff wage increases (3)
additional services to help maintain the health and safety for people in services, and (4)
maintaining services for people previously brought off the waiting list in FY 2016.
One-Time Transitioning Out Ongoing Direct Care

of DCFS/DJJS Custody Youth Staff Wage Increase
$897,000 $5,000,000
When a child is eligible for both DSPD and Since the 2015 General Legislative Session,
DCFS/DJJS services, DCFS/DJJS will pay the Division has received ongoing
for the state-funded portion of the waiver appropriations to help improve wages for
services needed for the child to receive the direct care staff. Through comparative
federal match. This continues until the child study, DSPD determined that wages for
is 18 years of age and funding is direct care staff were insufficient to retain
transitioned from DCFS/DJJS to DSPD. For and attract high-quality staff compared to
FY 2017, DSPD identified 41 people aging entry wages in other service industries.
out and was appropriated $897,000 in These workers are responsible for the
funding. provision of services to protect the health
and safety of the vulnerable people served
by DSPD.
Ongoing Mandated Additional Ongoing Funds to Transition

Needs off Waiting List
$1,734,600 $1,250,000
In order for DSPD to receive the federal For two years, DSPD received one-time
match for service providers under the waiting list appropriations for ongoing
Medicaid waiver programs, additional services. In FY 2017, DSPD was
health and safety service needs of appropriated $1,250,000 in ongoing funds
individuals already receiving DSPD services to maintain the services for the 223 people.
must be met. For FY 2017, DSPD was No new people were funded with this
appropriated $1,734,600 ongoing to meet appropriation, it only corrected the
additional service needs for this fiscal year. structural imbalance from one-time funding
Each request for services (RFS) undergoes a in FY 2015 and FY 2016.
comprehensive review by the DSPD RFS
committee before being approved.
LEARN MORE! You can find out more
information on DSPD's Legislative
Appropriations by visiting:
www.dspd.utah.gov/legislative-info/

The Community We
Serve

Success Story
George's Story
George is a 62 year old man who suffered a traumatic brain injury in 1975. Prior to the injury, he
lived in another state, worked full time for Public Works in construction, and lived on his own in an
apartment. After the injury, George lost his job and had to apply for social security benefits which
took two years to obtain. He lost his apartment during this period and found himself homeless. He
slept in tents on the street and moved from state to state. While he was experiencing
homelessness, he was attacked two different times which required hospitalization. He also had his
personal items stolen while he slept, including his identification and social security cards. George
was afraid most of the time, in addition to being hungry and cold.
After being homeless for eight years, George moved to Utah and sought help from the Division. It
was determined that he was eligible for services, and with help from several DSPD employees, he
was approved for supports. Shortly after, he moved into his own apartment. George is happy to be
settled in his own place and feels safe. He stated, "people do not understand how important the
basics like food and shelter are for someone to be able to have self-worth and dignity."
When asked what he was looking forward to in his future he said, "I just want to take time to
appreciate the things I have now. I want to start another stamp collection and I enjoy reading. I
would like to get a passport someday and travel. But for now, I want to volunteer and give back to
the community for all the things I have received. Life is good."

Home and Community
Based Services
Home and community-based services (HCBS) provide opportunities for people with disabilities to
receive services in their own home or community rather than an institutional setting. These
programs serve a variety of population groups, including people with intellectual or
developmental disabilities, physical disabilities, and/or acquired brain injuries.
Community Supports Waiver Acquired Brain Injury Waiver

5,094 people served 129 people served
The Community Supports Waiver helps The Acquired Brain Injury Waiver assists
people of all ages with intellectual disabilities people 18 years or older who have a brain
or related conditions receive services in their injury diagnosis and would need a level of care
communities, and avoid institutional settings. provided by an intermediate care facility or
skilled nursing facility.
Physical Disabilities Waiver
Autism Waiver
112 people served
132 people served
The Physical Disabilities Waiver assists
people 18 years or older who have a The Autism Waiver helps provide intensive
physical disability which results in the individual support to help improve the social,
functional loss of two or more limbs. physical, and educational development of
young children and to assist families to help
Non-Medicaid Waiver Services better integrate children in their
communities. This waiver provides services
78 people served to children between ages two and six with an
Non-Medicaid waiver services help people with Autism Spectrum Disorder (ASD) diagnosis.
intellectual disabilities or related conditions,
acquired brain injuries, or physical disabilities who
are not eligible for federal Medicaid funding.
These services provide supports for people of all
ages.
10 Year Historic Count of People Served
and Waiting for Services
7,000
6,000 5,650
5,000
4,000
3,000 2,752
2,000
1,000
2008 2009 2010 2011 2012 2013 2014 2015 2016 2017
Served Waiting
* Note: 105 people are transitioning into services, and have not yet had eligibility determined.

Demographics
85
Total In Services: 5,650 Average Age: 33.8
Distribution of People Receiving Home Gender:

and Community-Based Services
Female 38.6%
Male 61.4%
Age:
17 & Under 15.5%
18-29 29.6%
30-39 20.6%
40-49 15.5%
50+ 18.8%
Disability Type: Race/Ethnicity:
77.3% 85.3%
2.3% 1.3%
2.6% 1.6%
61.4%
1.7%
17.8% 2.1%
8.0%
Intellectual Disabilities Acquired Brain Injury White Hispanic/Latino
Related Conditions Physical Disabilities Asian/Pacific Islander American Indian
Other Black/African American
LEARN MORE! Find more information on demographics of the population that the Division serves, and those
who are waiting for services, on our interactive dashboard: www.dspd.utah.gov/dspd-demographics/

Diagnoses
To be eligible for Division services, people must have at least one qualifying diagnosis, reported
below. The qualifying diagnosis, or multiple diagnoses, must cause the individual to have at
least three substantial functional limitations (mental or physical impairments) that impact major
life activities such as self-care, language, mobility, capacity for independent living, and economic
self-sufficiency.
Intellectual Disabilities Related Condition

4,367 PEOPLE 1,005 PEOPLE
Mild Autism Spectrum

43.0% 59.3%
Spina Bifida
1.3%
Congenital
Anomalies
Unspecified 2.0%
Injury
2.9% 2.4%
Moderate
Epilepsy
26.8%
Profound 3.0% Other
10.7% 4.2%
Pervasive Cerebral Palsy
Severe Development Chromosomal 15.5%
4.5% Anomolies
16.6%
7.9%
Acquired Brain Injuries Physical Disabilities

148 PEOPLE 130 PEOPLE
Quadriplegia
Head Injury 50.0%
30.4%
Other
23.0%
Stroke Paraplegia
2.7%
6.2%
Laceration Other
4.7%
Multiple 15.4%
Disease Schlerosis
8.1% Concussion 7.7%
18.2% Cerebral Muscular
Hemorrhage Palsy Dystrophy
12.8%
9.2% 11.5%

New Service Recipients
People are brought off the waiting list and into services either through Appropriated, Attrition, or
Other funding sources. Appropriated funds are allocated by the Utah Legislature annually and divided
with 85% going to people with the most critical needs and 15% to those whose only immediate need is
respite services. Attrition funding is leftover budgets from individuals leaving services and is strictly
used to bring people with the most critical needs into services. Other funds are for those whose
funding is from DCFS/DJJS under a cooperative agreement with DSPD, or people transitioning from
an intermediate care facility (ICF) with Department of Health appropriations. The Division was not
appropriated any new funds to bring people into services in FY 2017. Ongoing funding was given to the
Division for the waiting list, but it was used to support individuals brought into services during FY
2015 and FY 2016 with one-time funds. In total, 278 people were brought into services during FY
2017 using attrition and other funds.
Average Budget
Funding Source People % State Total

Most Critical 0 0% $0 $0
Appropriated
Respite Only 0 0% $0 $0
Attrition Most Critical 104 37.4% $ 9,036 $ 30,106

Crisis 80 28.8% $ 20,018 $ 66,693
Court Order 3 1.1% $ 23,221 $ 77,331
Other DCFS 77 27.7% $ 26,938 $ 89,749

Transition 14 5.0% $ 26,650 $ 88,789
Age Distribution Gender
278 Under 18 42.4% Male 65.6%
NEW RECIPIENTS
18 and Over 57.6% Female 34.4%
Services Received
Day Supports 223
Behavior Consultation 184
Transportation 165
Respite 124
People
Supported Living 106

Residential Supports 97
Fiscal Management Services 69
Host Home/Professional Parent 65
Supported Employment 53
Chore/Companion Services 2
0 50 100 150 200 250

Waiting for Services
The Division does not have enough funding to provide services to all Utahns with qualifying
disabilities. At the end of FY 2017 there were 2,752 people waiting for services. The Division uses
the needs assessment tool to determine the needs of those waiting for services and to gauge
whose needs are most critical. The Division then uses appropriated funds from the Legislature and
other available funds from people leaving services (attrition) to provide services to as many
people waiting as possible.
Waiting for Services
3,000
2,752
2,000
1,000
2008 2009 2010 2011 2012 2013 2014 2015 2016 2017
Average Gender Average Years

Age Waiting
Male 57.4%
23.5 Female 42.6%
5.8
Disability Type Percent Age 6.4% 5.6%
Intellectual Disability 49.8%

37.8% 33.2% 16.9%
Related Condition 45.7%
Acquired Brain Injury 3.4%
17 & under 18-29
Physical Disability 1.1% 50+
30-39 40-49
Service Needs Percent

Day 19.9% Supported Living/
Supports
Personal Assistance 47.7%
In Home Supports/ 45.0%

Respite
Supported 25.0% Residential Services 6.6%
Employment
Host Home/ 0.7%
Professional Parent
* The remaining 55.1% are not waiting for either
supported employment or day supports

Short-Term Services
While waiting for ongoing service funding, people may receive short-term services through the
Division. These services include the Supported Work Independence (SWI) program, one-time
respite services, and community service brokering. SWI is funded by ongoing appropriated
general fund dollars, while one-time respite and community service brokering are funded through
one-time, non-lapsing funds. People may be eligible to receive one or a combination of any of the
short-term limited services while waiting for ongoing services.
Percent of People Waiting for Ongoing Services

Receiving Limited Services
16.3%
7.3%
4.5%
r k n g s
o i t y e ri i c e
d W e u n rok r v
t e n c m B S e
o r de m ice it e
p p en o
C rv s p
Su d ep S e R e
In
Supported Work Independence

449 people served
Supported Work Independence is designed to assist persons with disabilities to obtain
and maintain competitive employment in an integrated setting, earning minimum wage
or higher, while waiting for ongoing services.
Community Service Brokering

125 people served
Community Services Brokering utilizes a skilled adviser who assists people with
disabilities and connects them to resources in the community.
Respite Services
201 people served
Respite services provide relief to the person's caregiver and helps to alleviate some of
the burden the caregiver feels while caring for their family member with a disability.

Service Groupings
Services within the Division fall into five primary categories: 1) residential supports, 2) host home
and professional parent, 3) supported living, 4) in-home self-administered services, and 5) in-
home provider based services. Additional services include supported employment and day
supports. Participation and service costs vary greatly within these categories. Through an
assessment process, the Division is able to provide services that are uniquely tailored to each
person and family, and are designed to allow persons with disabilities to lead self-determined lives
and be full participants in their communities.
Service Groupings
2,000
1,500 Residential
Supports
In-Home Self-
Administered
1,000 In-Home Provider-
Based
Host Home/
Professional Parent
500 Supported Living
2013 2014 2015 2016 2017
Supported Employment
vs. Day Supports
3,000
2,000 Day Supports
1,000
2013 2014 2015 2016 2017

Service Groupings
Residential Supports
Residential supports provide 24-hour services in People: Avg Age:
supervised apartments and group homes to assist the 1,757 41.5
person obtain and/or maintain independent living skills in
a community setting. Provider staff supervise and assist Avg Annual Avg Annual
people with activities such as toileting, eating, bathing, Total Cost: State Cost:
and dressing. Residential supports offer habilitation, $89,188 $26,769
supervision, and assistance as an alternative to
placement in an institutional setting. Other supports Total Cost: Total State Cost:
often offered with residential services include behavior
$156.7 M $47.0 M
consultation, prescription monitoring, and extended
living supports.
Residential 71.8% 20.0% 8.2%

Supports
Day Supports Supported Employment Neither
Host Home and Professional Parent

Host Home and Professional Parent services provide People: Avg Age:
supports in a private home where the person does not 410 30.1
live with an immediate family member. These services
also offer support, supervision, and assistance to Avg Annual Avg Annual
maintain health, safety, and other life activities. These Total Cost: State Cost:
services often assist people who have exceptional care $71,885 $21,576
needs, thereby enhancing their ability to live as
independently as possible, fully participate in a Total Cost: Total State Cost:
community setting of their choice, and avoid isolation.
$29.5 M $8.8 M
Host
Home/Professional 62.4% 19.3% 18.3%
Parent Services

Service Groupings
Supported Living
Supported Living services are hourly and intermittent People: Avg Age:
care for those who live alone or in their own home with a 397 47.2
roommate, spouse, parents, or another related caregiver.
Supported Living providers maintain the person's health Avg Annual Avg Annual
and safety, provide transportation, assist with personal Total Cost: State Cost:
care, homemaking, chores, attendant care, observation of $27,719 $8,320
medication administration, advocacy, assistance with
communication, and other activities of daily living. Total Cost: Total State Cost:
$11.0 M $3.3 M
Supported Living 17.9% 46.9% 35.3%
In-Home Self-Administered Services

In-Home Self-Administered Services (SAS) enable people People: Avg Age:
with disabilities and their families to choose to have 1,669 27.7
services provided in their own home. This allows the
family to hire, train, and supervise the employees Avg Annual Avg Annual
providing the services. A fiscal management agent Total Cost: State Cost:
provides payroll services and financial information to $21,826 $6,551
help the family manage their employees and budgets.
Some of the services commonly associated with the SAS Total Cost: Total State Cost:
model are respite, homemaker, chore, companion, and
$36.4 M $10.9 M
personal assistance.
In-Home Self- 31.8% 7.1% 61.1%

Administered
Services

Service Groupings
In-Home Provider-Based
In-Home Provider-Based services are intended to assist People: Avg Age:
families while caring for a family member with 1,046 33.5
disabilities in the home. Families select from a list of
contracted providers to meet their service needs. The Avg Annual Avg Annual
services provided help to maintain the person's health Total Cost: State Cost:
and safety, assist with personal care, self-advocacy $19,143 $5,746
activities, communication, and daily living, and provide
transportation to community events. Common services Total Cost: Total State Cost:
provided in the home are respite, chore, homemaker,
$20.0 M $6.0 M
personal assistance, and transportation.
In-Home Provider- 19.8% 22.4%

Based 57.8%
Average Cost by Service Grouping

In General Fund Dollars
$30,000
$20,000
$10,000
8.2%
$0
Residential Host Home/ Supported Living In-Home Self- In-Home Provider

Supports Professional Parent Administered Based
Day Supports Supported

Employment Neither

Additional Services
Supported Employment helps adults with disabilities People: Avg Age:
obtain, maintain, and advance in competitive 938 38.8
employment in integrated settings (paying minimum
wage or more) or in self-contained business locations. Avg Annual Avg Annual
These services are provided with a job coach or co- Total Cost: State Cost:
worker supports in groups or individually. Supported $46,812 $14,051
Employment is designed to be flexible enough to
accommodate for both the needs of the employer and the Total Cost: Total State Cost:
needs of the person. It can be arranged on a full or part-
$43.9 M $13.2 M
time basis, during traditional or non-traditional work
hours, and takes place in settings where the person has
the opportunity to work with co-workers that do not
have a disability.
Day Supports
Day Supports include daytime supervision and services People: Avg Age:
to develop and maintain self-help, community living, 2,724 36.8
social, and communication skills. These services are
intended to provide a structured programmatic setting Avg Annual Avg Annual
where people can gather during the day. This service is Total Cost: State Cost:
offered either as a group or one-on-one. $61,436 $18,440
Total Cost: Total State Cost:

$167.4 M $50.2 M

Employment
The Division recognizes the important role community employment plays for all people to live
self-determined lives. Employment creates endless opportunity and the Division is committed
to helping the people we serve obtain and maintain meaningful employment.
In 2011, the Utah Legislature passed House Bill 240 which requires the Division to prioritize
"providing services that assist an eligible person in obtaining and retaining meaningful and
gainful employment." Those changes are codified in Section 62A-5-103.5. To view the contents
of the Utah Employment First Priority Bill, you can visit the Utah State Legislature website at
http://le.utah.gov/~2011/bills/static/HB0240.html
Historic Counts of Individuals Receiving

Supported Employment Services
1,500
1,000 938
500
193
2013 2014 2015 2016 2017

Waiting List In-Services
Historic Supported Employment Expenditures

Fiscal Year State Dollars Total Dollars
2017 $2,563,830 $7,372,080
2016 $2,469,305 $6,883,596
2015 $1,948,971 $5,493,916
2014 $1,735,488 $4,963,303
2013 $1,667,487 $4,930,655

Supported Work Independence
Supported Work Independence (SWI) is a program designed to assist persons with disabilities
obtain and maintain competitive employment (earning minimum wage or above) through skill
development and job coaching while waiting for Division services. The program is funded by
ongoing appropriated general fund dollars. Participants in the program receive support from
privately contracted supported employment agencies. These supports include access to an
employment specialist who provides on the job support to ensure the person performs well and
meets supervisor's expectations, in addition to acting as an advocate for the person if an issue
arises. SWI is a low cost program that has a high impact on the lives of those waiting for services.
Percent Average
Employed Hourly Wage
48.8% $7.98
Average Hours Average SWI

Worked per Week Expense (DSPD)
15.3 $1,239
Supported Work Independence Participation

FY2011-FY2017
489
500
449
409
400
300 277
264
183
200
129
100
0
2011 2012 2013 2014 2015 2016 2017

Employment Stories
Brandon's Story
Brandon was a participant in a pilot program with Easter Seals and
Employment First. The pilot was meant to support families as they
go through both the discovery process and job development, while using
self-administered service employees as the job developers and coaches.
Brandon has several barriers to employment, so there were a lot of things to
work on. However, his staff helped find many skills that he had that could be
developed through the program and be applied to job skills.
After several months of informational interviews, discovery activities, and

coaching from Easter Seals, Brandon's aide started job development. They
began by approaching possible employers about what they look for in
employees and asking about hiring practices. Cinemark Theater
interviewed him and Brandon was hired in May. Brandon continues to enjoy
going to work and being involved in the movie theater.
Austin's Story
Austin has never had a steady job, however, he has always been motivated
and willing to work hard. One day, Austin spoke with staff about applying for
a job. There was a restaurant in town that Austin loved, so he got up the
courage and went to apply. With a little help from staff, Austin was able to
accept his first job ever. Throughout the application process, Austin learned
many skills including interviewing, the importance of appearance, and time
management. Austin is more responsible for washing his clothes to make
sure he is clean and ready every day he works. He has also focused on
having appropriate behavior with his job coach so he can continue working
at the restaurant and receive more hours. Overall, Austin's life has been
positively impacted since he began his job.
Jon's Story
Jon is a fun loving guy that enjoys going out and everything involved with
sports. He hasn't worked much, however, this recently changed when Jon
expressed a desire to be employed. Through his own effort and persistence,
Jon was able to get a job interview, which resulted in him getting hired at a
local Wendy’s. Anyone who knows Jon can see a positive change in his
demeanor since beginning his job. He always talks about how excited he is
to work. Additionally, being employed has helped him behave more
appropriately. Jon's work gives him a sense of pride and a way to be involved
in the community. He is also able to earn money for fun activities that he
enjoys doing.

Utah State Developmental
Center
Mission Statement
The Utah State Developmental Center (USDC) is dedicated to providing an array of resources
and supports for people with disabilities in Utah who have complex or acute needs.
Average Age Gender Total People Served
47.3
Male 61.7%
206
Female 38.3% Arrivals: Closures:
17 18
Age Distribution Intellectual Disability

Diagnosis
Age People Percent 12.6% 58.4%
17 and younger 5 2.4%

14.6%
18-64 178 86.4%
65 and older 23 11.2%
11.1%
1.4% 1.9%
Borderline Mild
Moderate Severe
USDC Respite Days per Month Profound Unknown
30
USDC provides respite services for

15
people already in the Division's
services. This service has been a
valuable resource for families as
they continue to care for their
family member.
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Utah State Developmental
Center
Success Stories
Tracy & Cheryl's Story

Tracy has been in speech group in the past, but was discharged because he
was lethargic and wouldn't participate. Lately, staff at USDC noticed he was
more alert so they requested he start attending speech group again. From
the first day, he has been popular with the three others in the group. He and
the other members of the group carried on a conversation about birthdays,
with only a simple prompt of, "Tracy, do you have a birthday coming up?"
Following which, Tracy asked Cheryl, "Your birthday?" She then sang the
Happy Birthday song, after which another in the group shared their
birthday month. This is a great example of appropriate social
communication that happens in speech group!
Gordon's Story
Gordon is an awesome singer! He knows many nouns and colors, and can
combine signs into phrases such as, "I want green shoes please." Staff at
USDC have been targeting functional verb phrases as well, such as "walk to
the laundry" or "go to work." He has made such great progress on the 14
verb phrases they have been working on, that staff added six more. These
new phrases were selected after consulting Gordon's staff to determine
what would be helpful for him to communicate better. New phrases include
things like "watch for cars" and "wait your turn."
Brian's Story
Brian has been working with the employment program at USDC, focusing
on the discovery process and job skill development. He has been working on
doing tasks correctly, being dependable, and discovering which tasks he
does and does not enjoy. Some of the jobs he has done at USDC to grow his
skills including contract work, box recycling, shredding, vacuuming, metal
recycling, landscaping, and many others. Currently, he is working at
Clementine Farms where he is cleaning up after 10 horses daily. He has built
a relationship with some of the horses and enjoys bringing them apples to
eat while he cleans their areas. Brian also works at the USDC service station
where he cleans around the gas pumps, pulls weeds, and takes out the trash.
He enjoys this environment and does a great job keeping the place looking
nice. Brian has a goal of having a community-based job one day and is
working hard to achieve this.

Additional
Information and
Resources

Providers
The Division has contracts with providers across the state, so people can receive the supports
they need to live self-determined lives. Our providers work hard to provide healthy, safe,
integrated, educational, and self-determined environments for the people we serve.
158 54 3
Traditional Provider Support Coordination Fiscal Agent
Companies Companies Providers
Provider Transformation
Provider Transformation is the process of shifting services away from segregated, sheltered work and
non-work programs towards competitive integrated employment in inclusive settings. It
encompasses attitude changes, financing, services, and staffing that is necessary for agencies to
support competitive integrated work. The Division has been working with providers for the past two
years on Transformation, which has been largely successful. This is still in pilot stages, so only two
providers are chosen each year to participate over a two year period.
During the first year of the transformation process, providers go through a self-assessment that helps
demonstrate the agency's readiness, resources, and orientation to transformation. In the second year,
providers implement action items identified in self-assessment, measure data and outcomes, and
continue to receive technical assistance from experts. After completing both years, the providers can
act as advisers to other provider agencies going through the transformation process.
Year 1 Participants
Community Treatment Alternative (CTA)
Work Activity Center (WAC)
Year 2 Participants
Chrysalis
Pioneer Adult Rehabilitation Center (PARC)
Year 3 Participants
Cache Employment & Training Center
North Eastern Services (NES)
North Eastern Services (NES) Participating Staff

Provider Reviews
Common measures of success include compliance with contract standards (either fiscal or non-fiscal)
and number and severity of plans of correction needed. If a provider is issued a plan of correction, they
have a designated time to complete the plan and be in compliance with their contract. All items found
to be outside of contractual requirements are remediated according to the Division's corrective action
process; resulting in the requirement that each contractor end a review cycle by coming into
compliance and/or developing a plan on reaching compliance within a designated time-frame. In FY
2017, the Division conducted 227 provider contract reviews.
98.6% 98.2%
Fiscal Compliance of Contract Non-Fiscal Compliance of Contract
Plan of Correction Needed Severity of Corrections
71.6%
Minor
81.0%
28.4%
Significant
17.7%
Major
1.3%
Yes No
Plan of Correction
Minor:
Issues do not negatively impact client wellbeing or jeopardize funding. Minor corrective
actions are typically related to poor documentation or late reporting. In these cases, the issues are
immediately addressed for the person, but documentation is lacking or turned in after deadlines
have passed.
Significant:
Issues, in general, are non-compliance with directives, contract requirements, or
rules, that result in inadequate treatment or that have the potential to jeopardize the well-being of
a person. This could be the result of failure to implement plans of correction for minor contract
issues. Significant issues do not put the person in immediate danger.
Major:
Issues pose an imminent danger to the person's health and safety, or an imminent risk to
the person or other people. Major issues become sanctions if not resolved within a specified
timeframe.

National Core Indicators
The Division contracts with the National Core Indicators (NCI) to perform quality and service
recipient satisfaction surveys focused on target outcome measures. Core indicators are
standard measures used across participating states that assess outcomes of services provided
to families. Core indicators measure areas such as employment, health and safety, community
inclusion, choice, and service delivery.
* Data is from the Adult Consumer Survey
LEARN MORE! You can find out more information about National Core Indicators and how Utah
ranks against the nation through our NCI dashboard: www.dspd.utah.gov/dashboard/

Awards
The Division recognizes providers and support coordinators that exemplify the highest quality
of services and supports for the people it serves. Every year, the Division selects recipients for
the Ila Marie Goodey Award and the Sandra Ashbury Employment Opportunity Award based on
community nominations.
Ila Marie Goodey Award

This award, named after the late Dr. Ila Marie Goodey, a psychologist formerly at the University of Utah,
is given to those that respect individuality, promote independence, and honor self-determination. Dr.
Goodey is recognized nationally and locally as a passionate advocate for people with disabilities, and has
been described as representing "the ideal of selfless service to others with an uncompromising
insistence on the right of all people to experience a high quality of life, especially those who are unable
to fully represent themselves."
Amy Edwards, Director of Journey Advocacy and Support Services

Amy is an outstanding example of what it means to be a support coordinator. She directs her
company with a high level of precision, competence, honesty, and commitment to the people
they serve. She willingly spends extra time with her clients, is aware of all the aspects of their
lives, and is able to navigate difficult situations with confidence and thoroughness. She not
only helps motivate people to accomplish goals, but also encourages them to push the
boundaries of their own perceived capabilities. Amy spends extra time ensuring each person
has the opportunity to find meaningful employment and the success they deserve. She is an
honest and trustworthy business owner, but what makes Amy unique is her ability and
willingness to invest her whole heart into this wonderful work. If anyone deserves to be
recognized for going above and beyond what is expected and showing a high level of
devotion, it is Amy Edwards.
Kim Butterfield, Host Home Parent
Kim and Cody Butterfield support and advocate for two young men living in their household
as their host home parents. During this past year, one of the son's had serious health
complications that required hospitalization and surgery. Kim was an incredible advocate to
ensure the best medical care for her host home son during his 11-day hospital stay. She had
opportunities during this stay to educate medical professionals on his right to life, specific
medical care needs and showed a love for him that was undeniable. The doctors helping soon
realized Kim knew what she was talking about and even wrote in his chart that staff should
listen to, and respect her input. What could have been a traumatic or fatal event resulted in
an amazing recovery and improved emotional health. Kim is always very detailed and
organized during annual person-centered planning meetings and truly demonstrates what it
means to be an exemplary host home parent.
Sandra Asbury
Employment Opportunity Award
The Sandra Asbury Employment Opportunity Award recognizes providers or support coordinators who are
innovators in employment opportunities for people with disabilities.
Dustin Erekson, Director of Community Treatment Alternatives (CTA)

Under Dustin's leadership, CTA has demonstrated a real commitment to Employment First
over the past few years. Since the first year of getting involved in the Office of Disability
Employment Policy (ODEP) provider transformation process, they have made a significant
investment in staff training specific to employment and community inclusion. They have also
built relationships with Vocational Rehabilitation (VR), became a "ticket to work" partner,
and helped people in their services get employed through customized and supported
employment practices. CTA is making employment everyone's business within their
organization and raising expectations for all.

Resources
Individuals and Family
For more information on:
- Eligibility
- Intake Process
- The Waiting List
- Medicaid Waivers
- Service Delivery Models
- Support Coordination
- Employment Data and Information
- Employment First Initiative
- Partnership in Employment Program
- Additional Resources
Visit www.dspd.utah.gov/individuals-families/
Data and Research

- DSPD Demographics
- Number of People Entering Services
- People Receiving Ongoing and Waiting List
Services
- Performance Measures
- Annual Reports
- National Core Indicator Data
- Internal Evaluations and Reports
Visit www.dspd.utah.gov/dashboard/
Policy, Rules, and Budget

- DSPD Mission
- DSPD Organizational Chart
- DSPD Staff Phone and Email List
- GRAMA Requests
- Legislative Information
- Current Legislative Budget
- Internal Policy Directives
- The HCBS Settings Rule
- System Improvements
Visit www.dspd.utah.gov/about-dspd/

Appendix
Historic Expenditures
Fiscal Community State Service Acquired Brain Physical Disabilities Non-Waiver
Year Supports USDC Delivery Administration Injury Waiver Waiver Services
2017 $236,236,366 $40,382,688 $6,213,779 $4,647,833 $5,842,967 $2,124,300 $2,521,138
2016 $212,458,884 $36,897,372 $5,852,778 $4,538,809 $5,126,232 $2,223,191 $3,781,003
2015 $185,719,068 $38,681,819 $5,591,211 $4,368,207 $4,104,347 $2,101,230 $3,208,990
2014 $172,380,192 $36,135,233 $5,123,116 $4,160,894 $3,618,221 $2,183,704 $1,757,426
2013 $165,524,036 $33,954,309 $4,843,478 $3,641,922 $3,400,537 $2,140,212 $1,410,602

2012 $155,056,008 $32,309,979 $5,721,921 $2,817,394 $3,058,319 $1,961,484 $1,195,094
Historic Service Counts

Host Home/ Supported In-Home Case Management
Fiscal Year Residential Professional Parent Living In-Home (SAS) (Provider) Only
2017 1,757 410 397 1,669 1,046 105
2016 1,686 374 425 1,690 1,054 35
2015 1,629 347 434 1,757 1,020 57
2014 1,567 312 452 1,552 1,023 -

2013 1,522 296 468 1,481 992 -
2012 1,480 273 480 1,488 1,014 -
Historic Service/Waiting List Counts

Status 2008 2009 2010 2011 2012 2013 2014 2015 2016 2017
In Services 4,834 4,825 4,694 4,805 4,778 5,061 5,285 5,606 5,559 5,650
Waiting List 1,675 1,990 1,953 1,825 1,940 1,892 1,923 2,012 2,510 2,752
Historic Supported Employment Counts

Fiscal Year In Services Waiting List
2017 938 193
2016 1,011 203
2015 812 157
2014 689 115

2013 707 78
2012 708 42

Appendix
National Core Indicator Data Points
Measure Utah Nation Utah Nation Utah Nation Utah Nation
2013 2013 2014 2014 2015 2015 2016 2016
Has a paid job in the community 21% 15% 20% 16% 17% 17% 19% 19%
Likes their paid community job 89% 92% 91% 93% 92% 92% 84% 92%
Doesn't have but would like a
paid job in the community 44% 49% 62% 49% 55% 49% 56% 47%
Attends a day program or

regular activity 66% 72% 61% 71% 61% 71% 63% 57%
Likes their day program or 89% 90% 82% 88% 86% 90% 63% 57%
regular activity
Staff come when they are
supposed to 94% 93% 90% 94% 93% 94% 96% 93%
Staff treat person with respect 92% 93% 89% 93% 92% 93% 93% 92%
Staff have adequate training to 94% 92% 93% 93% 91% 92% 94% 90%
meet person's needs
Person uses a self-directed 22% 11% 20% 8% 26% 10% 23% 10%
supports option
Always has a way to get places
they want to go 84% 83% 82% 84% 80% 84%% 82% 83%
Person helped make service 91% 85% 91% 87% 87% 87% 91% 75%
plan
Average Service Cost by Grouping Data Points

Host Home/
Professional Supported Self- In Home
Type Residential Parent Living Administered Provider Based
Supported $27,961 $22,362 $10,639 $6,591
Employment $8,445
Day Services $23,034 $20,627 $8,693 $7,148 $5,218

Neither $25,433 $19,932 $6,648 $5,497 $4,027

2017 Annual Report For The Utah Division of Services For People With Disabilities

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2017 Annual Report For The Utah Division of Services For People With Disabilities

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2017

Division of Services for

Message from the Director 2

Highlights of Fiscal Year 2017 3

Division Organization 4-5

Community We Serve 8-21

The mission of the Division of

1 DSPD 2017 Annual Report

DSPD 2017 Annual Report 2

5,650 1,757 1,131

2,752 2,724 807

278 449 98.6%

3 DSPD 2017 Annual Report

Resource Research and

DSPD 2017 Annual Report 4

RESEARCH AND UTAH STATE

5 DSPD 2017 Annual Report

Total Budget in FY 2017

$2.5 M (0.8%) Support Coordination

$5.8 M (2.0%) $212.7 M (86.3%)

2013 2014 2015 2016 2017

Total Budget by Fiscal Year

DSPD 2017 Annual Report 6

One-Time Transitioning Out Ongoing Direct Care

Ongoing Mandated Additional Ongoing Funds to Transition

7 DSPD 2017 Annual Report

DSPD 2017 Annual Report 8

9 DSPD 2017 Annual Report

Community Supports Waiver Acquired Brain Injury Waiver

DSPD 2017 Annual Report 10

Distribution of People Receiving Home Gender:

17 & Under 15.5%

Disability Type: Race/Ethnicity:

Intellectual Disabilities Acquired Brain Injury White Hispanic/Latino

Related Conditions Physical Disabilities Asian/Pacific Islander American Indian

Other Black/African American

11 DSPD 2017 Annual Report

Intellectual Disabilities Related Condition

Mild Autism Spectrum

Acquired Brain Injuries Physical Disabilities

DSPD 2017 Annual Report 12

Funding Source People % State Total

Attrition Most Critical 104 37.4% $ 9,036 $ 30,106

Other DCFS 77 27.7% $ 26,938 $ 89,749

Age Distribution Gender

278 Under 18 42.4% Male 65.6%

Supported Living 106

0 50 100 150 200 250

13 DSPD 2017 Annual Report

Average Gender Average Years

Disability Type Percent Age 6.4% 5.6%

Intellectual Disability 49.8%

Service Needs Percent

In Home Supports/ 45.0%

DSPD 2017 Annual Report 14

Percent of People Waiting for Ongoing Services

Supported Work Independence

Community Service Brokering

15 DSPD 2017 Annual Report

500 Supported Living

2013 2014 2015 2016 2017

2013 2014 2015 2016 2017

17 DSPD 2017 Annual Report