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research-article2015
ISP0010.1177/0020764015621942International Journal of Social PsychiatryAker et al.

E CAMDEN SCHIZOPH

Original Article

International Journal of

Can renaming schizophrenia reduce Social Psychiatry


2016, Vol. 62(4) 311­–315
© The Author(s) 2015
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Turkey? DOI: 10.1177/0020764015621942


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Servet Aker1, Ömer Böke2 and Gülay Oğuz3

Abstract
Aim: To determine the perception of the term schizophrenia among university students.
Methods: This cross-sectional study was performed in April 2015 with students from Canik Başarı University (Samsun/
Turkey). A patient history was first established. We then investigated to what extent students agreed with 10 statements
based on that patient history. Three separate questionnaire forms (versions A, B and C), differing only in terms of
the diagnosis in the patient in the history, were prepared. The three diagnoses were ‘Schizophrenia’ (version A),
‘A psychiatric disease by the name of Bleuler’s syndrome’ (version B) and ‘Brain tumor’ (version C). The questionnaires
were administered in a class environment. In all, 771 students participated.
Results: Statistically significant differences between the forms were determined in only two statements (‘A.’s disease will
represent a problem in A.’s future career’ and ‘A. will in all probability have problems with the law in the future’). While
no difference was determined between versions A and B at two-way comparisons, a statistically significant difference was
observed between versions A and B and version C.
Conclusion: No difference was determined between students’ attitudes toward a diagnosis of ‘schizophrenia’ and one
of ‘a psychiatric disease known as Bleuler’s syndrome’. The focus in preventing stigmatization of schizophrenia should
not concentrate on a name change alone. Changing the name schizophrenia may be of no use unless public ignorance
and fear of psychiatric diseases can also be overcome.

Keywords
Schizophrenia, stigma, renaming, Turkey

Introduction
Schizophrenia is a complex psychiatric disorder that can debate is the stigmatization of schizophrenia patients.
be seen in all communities and at all socioeconomic levels Stigmatization is the negative evaluation of an individual
and that exhibits variation in terms of diagnosis, clinical or group on the basis of characteristics such as mental dis-
symptoms and course. Schizophrenic disorders are ease, ethnic group or physical disability (King et al., 2007).
reported to affect 26 million people worldwide (Lora et al., Although many groups and diseases are exposed to stig-
2012). The number of patients with schizophrenia in matization, individuals with any psychological disease are
Turkey is uncertain. However, according to one systematic particularly subjected to branding and labeling (Marshall,
review, the lifetime incidence of schizophrenia in Turkey 1998).
is 8.9/1,000 (Binbay, Ulas, Elbi, & Alptekin, 2011).
Due to its high treatment costs, sufferers’ loss of ability
to work and the fact that it causes severe despair and 1Canik Community Health Center, Public Health Directorate, Samsun,
depression in patients and in families, the costs of schizo- Turkey
2Department of Psychiatry, School of Medicine, Ondokuz Mayıs
phrenia to society exceed the material resources spent on
University, Samsun, Turkey
patients. From that perspective, rather than being a ‘dis- 3Department of Psychology, Canik Başarı Üniversity, Samsun, Turkey
ease’ concerning only patients, their relatives and mental
Corresponding author:
health workers, schizophrenia is a public health problem.
Servet Aker, Canik Community Health Center, Public Health
Various theoretical and practical problems concerning Directorate, Gaziosmanpaşa Mah. Alaca Sok. No. 31, Canik, Samsun,
the early diagnosis, treatment and rehabilitation of schizo- Turkey.
phrenia are under discussion in the world. One subject of Email: servetaker@gmail.com

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312 International Journal of Social Psychiatry 62(4)

Negative attitudes toward and branding of psychiatric messages via the television. He or she suspected his or
patients can have various direct or indirect effects. These her brother and mother of involvement in this and
may involve the early diagnosis or treatment of diseases, attacked his or her brother verbally and physically and
the determination with which patients apply to physicians threatened him or her. He or she heard voices giving
for treatment, whether they comply with the treatment rec- him or her orders. He or she sometimes spoke with
ommended, whether they are willing to be hospitalized for these voices and reacted to them. He or she stopped
treatment, whether they take part in rehabilitation services leaving the house, never spoke with anyone, was unable
and their ability to resume their former functioning to sleep and walked around indoors all night, in a trou-
(Corrigan, 2004; Heginbothom, 1998; Ozmen & Taşkın, bled state of mind. Seven months previously A. was
2004; Schomerus & Angermeyer, 2008; Thara & Srinivian, taken to a doctor, who admitted him or her to hospital
2000). with a diagnosis of (Schizophrenia, a psychiatric dis-
The fact that the word schizophrenia means ‘split mind’ ease known as Bleuler’s syndrome or brain tumor). A.
leads to fear in society, to various problems associated with has been using medicinal drugs for 6 months, attends
the use of the word and therefore to discrimination against monthly medical check-ups, appears to have recovered,
patients (Van Os, 2009). Some patients, relatives and health attends school and is capable of living without
professionals therefore suggest that the name should be problems.
changed (Lasalvia, Penta, Sartorius, & Henderson, 2015).
The first country to change the name of schizophrenia in No information was provided about the gender of the
that context was Japan. The name change was introduced as patient known as A. out of a concern that specifying a gen-
part of a campaign against prejudices attendant on the con- der might influence attitudes. Three separate questionnaires
cept of schizophrenia. A decrease in negative attitudes were prepared (versions A, B and C). These contained the
toward schizophrenia has been reported following that same histories and comments regarding the histories and
campaign and name change (George & Klijn, 2013). There differed solely in terms of the diagnosis. The three diagno-
have been no studies to date of the probable effects of ses were ‘Schizophrenia’ (version A), ‘A psychiatric dis-
renaming schizophrenia n Turkey. ease by the name of Bleuler’s syndrome’ (version B) and
The purpose of this study was to determine the percep- ‘Brain tumor’ (version C). Bleuler’s syndrome was named
tion of the term ‘schizophrenia’ among university students. after Eugen Bleuler, the psychiatrist who first described the
concept of schizophrenia. Students were given only one of
the three questionnaire forms containing exactly the same
Method histories but different diagnoses. The students were asked
to indicate to what extent they agreed or disagreed with
This cross-sectional study was performed between 15 and
statements concerning the history described and the diag-
30 April 2015, with students from the Canik Başarı
nosis reported. The first diagnosis given was ‘schizophre-
University, Samsun, Turkey. Canik Başarı University ethi-
nia’. This is a disease of which everyone has heard. The
cal committee approval was obtained before the study
second diagnosis was a known psychiatric disease, the
commenced.
cause, treatment and prognosis of which are unknown. The
A patient history was established based on the authors’
third diagnosis was brain tumor, an organic disease. The
professional experience and real patients.
reason for the inclusion of these three diagnoses in the
study was to determine whether the term schizophrenia has
Patient: any further load burden in addition to being a psychiatric
A. is an unmarried, 22-year-old university student liv- disease and to identify any differences between attitudes
ing with his or her family. A. enjoyed academic success toward diseases of organic and psychiatric origins.
and a harmonious family/social life until 1 year previ- The first part of the question inquired into students’ age,
ously. Approximately 1 year previously A. began turn- sex and faculty attended. The second part contained 10
ing away from his or her family and friends, becoming statements used to measure attitudes toward the patient
introverted and missing school. The subject was reluc- described in the history. These statements were based on
tant to wash and personal hygiene levels decreased. He those used in previous similar studies (Arıkan & Uysal,
or she began smoking two packs of cigarettes a day. His 1999; Arıkan, Uysal, & Çetin, 1999; Arkar & Eker, 1992;
or her family noticed this, but assumed he or she had Tranulis, Lecomte, El-Khoury, Lavarenne & Brodeur-
school-related problems and did not follow it up. Eight Cote, 2013). The extent to which students agreed with
months previously A. began becoming suspicious of these statements was assessed using a 5-point Likert-type
people around him or her and was unwilling to trust scale. The scale covered a range from strong agreement
anyone. A. believed that his or her former partner was (−2) to strong disagreement (+2).
checking up on him or her, was aware of everything The questionnaires were administered in a class envi-
happening in the house and was sending him or her ronment. Students were informed about the study before

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Aker et al. 313

Table 1.  Characteristics of the students in the study.

Diagnosis p Totala

  Schizophrenia Bleuler’s Brain  


syndrome tumor
Sexa
 Male 102/39.5 119/47.4 114/43.5 >.05 335/43.5
 Female 156/60.5 132/52.6 148/56.5 436/56.5
Departmenta
  Faculty of Education 39/15.1 36/14.3 39/14.9 >.05 114/14.8
  Faculty of Arts and Sciences 76/29.5 63/25.1 71/27.1 210/27.2
  Faculty of Administrative Sciences 49/19.0 55/21.9 55/21.0 159/20.2
  Engineering Faculty 94/36.4 97/38.6 97/37.0 288/37.4
Ageb 20.8 ± 0.1 20.8 ± 0.1 20.7 ± 0.1 >.05 20.8 ± 0.1
Totala 258/100.0 251/100.0 262/100.0 771/100.0
aN/percentage.
bMean ± standard error.

the questionnaires were applied, and verbal consent was Discussion


obtained. In all, 771 students participated.
The data from the questionnaires were analyzed on Positive changes in negative attitudes toward patients with
SPSS for Windows 13.0 software. Responses to the state- schizophrenia have been reported following a name change
ments were expressed as percentage and mean ± standard in Japan (Koike et al., 2015; Sato, 2006; Sugiura, Sakamoto,
deviation. The chi square test was used to compare grouped Tanaka, Tomoda & Kitamura, 2001; Sugihara & Takei,
data. Analysis of variance was employed to test whether 2013; Takahashi et al., 2009). In addition, several studies
responses to statements varied depending on the diagnosis. have reported that public education and the renaming of
The Bonferroni corrected t-test was used in two-way com- schizophrenia are effective in overcoming stigma (George
parisons if a difference was observed between the three & Klijn, 2013; Kavanagh & Banyard, 2013; Lasalvia et al.,
groups. 2015; Van Os, 2009).
Seven of the 10 statements in this study concerned dis-
tance in social environments and work. No statistically
significant difference was determined in these statements
Results between three diagnoses with the same history. Similarly,
Women constituted 56.5% of the 771 students in the study. Tranulis et al. (2013) observed no difference in statements
Mean age of students was 20.8 ± 0.1 years. Various charac- assessing social distance between two distinct diagnoses
teristics of students are given in Table 1. (schizophrenia and salience syndrome).
The students were given one of the three different ques- Similar attitudes were determined between all three
tionnaire forms involving the same history but different diagnoses in terms of the domains of social distance at
diagnoses. They were then asked to indicate the extent to work or school and in social interactions (such as house
which they agreed or disagreed with statements concern- meetings). In our opinion, this is due to the history being
ing the patient whose history was described. Students’ the same in all three diagnoses and due to the presence in
responses are shown in Table 2. that history of the patient resorting to violence. We think
Students’ levels of agreement with the statements given that if the clinical picture is poor, then the name of the
were compared. The only statistically significant differ- patient’s disease is unimportant in attitudes involving areas
ence between the three diagnoses was determined between requiring social interaction with patients.
the statements ‘A.’s disease will represent a problem in A’s In order to account for this, we need to look at the his-
future career’ and ‘A. will in all probability have problems toric origins of stigma. Throughout the course of history,
with the law in the future’ (p < .05). The three diagnoses individuals with inexplicable symptoms have been a cause
were subsequently compared in a two-way manner in of fear. They have therefore been excluded from society in
terms of agreement with these two statements. While no order to ensure its survival (Arıkan & Akman, 2002). One
difference was determined between ‘schizophrenia’ and ‘a of mankind’s most basic instincts is to avoid irregular and
psychiatric disease known as Bleuler’s syndrome’, statisti- unexpected phenomena, a desire for all things to be known
cally significant differences were identified between ‘brain beforehand and the wish to know what will follow. People
tumor’ and both schizophrenia’ and ‘a psychiatric disease have the same expectations in their relations with other
known as Bleuler’s syndrome’ (p < .05) (Table 2). individuals. No matter what the diagnosis, unpredictable

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314 International Journal of Social Psychiatry 62(4)

Table 2.  Distribution of responses to the statements in the questionnaires (mean ± standard error).

Statements Diagnosis p

  Schizophrenia Bleuler’s syndrome Brain tumor  


A.’s disease will represent a problem in his or her future −0.78 ± 0.11 −0.66 ± 0. 11 −0.25 ± 0.12 <.05a
career
I would not wish to be left alone with A. under any 0.06 ± 0.12 0.21 ± 0.13 0.45 ± 1.90 >.05
circumstances
A. will in all probability have problems with the law in the 0.16 ± 0.10 0.23 ± 0.11 0.62 ± 0.11 <.05b
future
I would have nothing to do with A. even if he or she were my 0.58 ± 0.12 0.86 ± 0.12 0.82 ± 0.12 >.05
brother/sister
I would be uneasy if A. were my next-door neighbor in my 0.69 ± 0.12 0.73 ± 0.12 0.74 ± 0.12 >.05
university lodgings
A. should be under constant police surveillance 1.32 ± 0.10 1.49 ± 1.55 1.53 ± 0.10 >.05
I would be uneasy at taking part in a house meeting if A. were 1.34 ± 0.11 1.17 ± 0.10 1.23 ± 0.11 >.05
present
I would not talk to A. if I met him or her in the school canteen 1.54 ± 0.10 1.56 ± 0.09 1.59 ± 0.09 >05
I would be uneasy at attending the same school as A. 1.55 ± 0.10 1.60 ± 0.10 1.64 ± 1.46 >.05
I would not buy anything from A. if he or she ran a sandwich 1.82 ± 0.10 1.68 ± 0.10 1.73 ± 0.10 >.05
and coffee stall opposite my school or lodgings

0 is neutral, negative scores ‘likely’ and positive scores ‘unlikely’.


Two-way comparisons:
aA–B p > .05; A–C p < .05; B–C p < .05.
bA–B p > .05; A–C p < .05; B–C p < .05.

behaviors damage the perception of order in society and that stigmatization revolves around the concept of psychi-
give rise to anxiety. That anxiety then triggers a process of atric diseases. Found and Duarte’s (2011) study supports
exclusion and alienation of the patient in order for socie- that idea.
ty’s need for order to be re-established. The absence of any difference between the three diag-
Three of the statements put to the students investigated nosis in terms of the statement ‘A. should be under con-
attitudes to the history without involving social interac- stant police surveillance’, an expression of social isolation,
tions. A statistically significant difference between the one of the most severe forms of stigmatization, is very
groups was determined in two of these. No difference was important. The fact that this stage has not yet been reached
determined at two-way comparison between ‘schizophre- in the stigmatization of psychiatric disease is grounds for
nia’ and ‘a psychiatric disease known as Bleuler’s syn- optimism.
drome’ (p > .05), but a difference was observed between Schizophrenia patients and their families favor the
these two diagnoses and ‘brain tumor’. One study in which renaming of the disease (Tranulis et al., 2013). However,
the same statements were put to students observed no dif- we think that a name change alone should not be the sole
ference between ‘schizophrenia’ and ‘salience syndrome’ focus in the prevention of stigmatization of psychiatric dis-
(Tranulis et al., 2013). eases, and schizophrenia in particular. Unfortunately,
In a study performed in China, Found and Duarte (2011) renaming schizophrenia may not be useful in overcoming
observed that negative attitudes toward the labels ‘Jing- popular ignorance and fear of psychiatric diseases (Chung
shen-bin’ (mental illness) and ‘Jing-shen-fen-lie-zheng’ & Chan, 2004; Lieberman & First, 2007). Therefore,
(schizophrenia) differed significantly compared to the unless renaming schizophrenia is supported by other meas-
label ‘illness’ but determined no difference between the ures, such as psychoeducation, any new name may also be
labels ‘Jing-shen-bin’ (mental illness) and ‘Jing-shen-fen- employed as a term of stigma.
lie-zheng’ (schizophrenia).
We observed greater agreement with statements con-
cerning ‘schizophrenia’ compared to ‘Bleuler’s syndrome’,
Conclusion
although the difference was not statistically significant. No difference was determined in this study between
We think that so long as the individual’s clinical picture is university students’ attitudes toward diagnoses of
the same, the diagnosis is not particularly important. ‘schizophrenia’ and ‘a psychiatric disease known as
Bleuler’s syndrome was a diagnosis that students were Bleuler’s syndrome’. In order for stigmatization of sub-
hearing for the first time, and we simply described it as a jects with psychiatric disease, and particularly schizo-
psychiatric disease. On the basis of our findings, we think phrenia, to be eliminated, we think that wide-ranging

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Aker et al. 315

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