keep their essence and spirit, although many will experience major personality changes. A sweet, gentle person may behave sweeter after the on-set of Alzheimer’s, while the “bossy” kind may become even more controlling. Those affected with fronto-temporal dementias may show more drastic and sudden personality changes. Lewy Body, which is another dementia causing disease, may things that are completely uncharacteristic cause hallucinations affecting behaviors. of the person you have come to know in California Central Chapter your years together as a family or friend. In the early stages of Alzheimer’s disease Examples of this could be impulsiveness, Santa Barbara County patients may experience behavior and 1528 Chapala St., Ste 204 swearing, sexual advances and general personality changes such as increased social inappropriateness. Santa Barbara, CA 93101 Tel: 805.892.4259 irritability, anxiety and depression. Often times these changes are the motive why Common personality changes include: 120 E. Jones Ave., Ste 113 families decide to seek out medical help. Santa Maria, CA 93454 Apathy Tel: 805.636.6432 Alzheimer’s patients can experience Loss of interest in activities they San Luis Obispo County fluctuating personality changes, becoming previously enjoyed 3232 S. Higuera Ste 101A extremely confused, suspicious, fearful or San Luis Obispo, CA 93401 dependent on a family member. We all Insensitivity to others Tel: 805.547.3830 become sad or moody from time to time. Paranoia The difference with Alzheimer’s is that Ventura County Delusional thinking 145 Holdencamp Road, your loved one can show rapid mood Ste 205 swings from calm to tears to anger, for no Social withdrawal Thousand Oaks, CA 91360 apparent reason. Inability to make decisions Tel: 805.494.5200 As your loved one enters the middle stages Lack of initiative Kern County of Alzheimer’s you may notice more 201 New Stine Road, Ste 350 behavioral symptoms. These include For many relatives and caregivers, changes Bakersfield, CA 93309 aggression, agitation and paranoia. There in behavior and personality are the most Tel: 661.794.6948 may be a fear that family members are challenging and distressing part of 24-Hour Helpline: stealing or hiding things from them, and Alzheimer’s disease. often times their purse or wallet is the 800.272.3900 frequently “stolen” item. With the loss of Keep in mind that these changes come as a www.alz.org/CaCentral control and inhibitions patients may also do result from the progressive deterioration of Continues on next page CAREGIVER Tips & Tools Page 2
the patient’s brain. The disease
Caregiver Tips continuously damages cells in multiple Four Handy Helpers areas of the brain, affecting different 1 - Do not argue cognitive abilities. When a part of the brain fails to do its job, after being If she thinks her husband is damaged by the disease, a person may still alive, that is her reality. Arguing with her will exhibit an “odd behavior.” encourage frustration, confusion, fear, anger and a The brain is a vast complex organ and the difficult time for both of you. source of our thoughts, feelings, emotions and personality. With dementia the person step to dealing with the personality This is not about being changes. correct, may feel lost, worried, anxious, vulnerable this is about helping a person and helpless, affecting how they react to On a positive note try to enjoy the with a serious disability. situations. As dementia progresses the moments when your loved one is filled 2 - Use finesse, person’s ability to navigate through day-to with humor and in the present moment. and do not be afraid to -day situations decreases. The person Laugh with them when a funny fudge the truth becomes more susceptible to outside spontaneous moment presents itself. Join influences, such as crowds, noises and Finesse: To be delicate, them in watching an old television environment, which became major factors subtle, skillful and strategic program that they find funny. These simple when handling a difficult in what behaviors will be shown. moments will help them feel safe and situation. Card players use secure. At the end of the day, moment to finesse to bluff their Reminding yourself that “this is the disease and not my loved one” and moment contentment is the goal. opponents in a game. When he is upset, apologize understanding that these behaviors are Caregivers will experience stress and to diffuse the situation, even caused by the disease may help you cope anxiety when confronted with challenging though you are not at fault. with possible personality changes. personality changes. It is important to 3 - Make up a story remember to give yourself a stress- to help them relax As a caregiver you must develop your own set of coping skills and ways to deal relieving break. Make sure you find time If he wants to drive the car, with these changes in your loved one. for the activities you enjoy. Ask a friend to you can say: It is broken. Arguing with them or reminding them of sit with your loved one for an hour, while Wait till the store brings the what they are forgetting is not going to you take a break. They will be glad you part this afternoon. asked for help. Take a walk, meditate, improve the situation. Often times this Or if he wants to fix the TV, will only set them off or anger them more. pray, eat, exercise, read or attend a support say: I’ve already called a Accepting that this is the disease and not group. This is a journey of changes, but it repairman. He’ll be here on is also a time to care for yourself. your loved one’s fault is a very crucial Saturday. If she is asking for her daddy, say: Oh, Dad went on a business trip this week. Tools: 4 - Re-direct What Now? A Caregivers Guide and Resource Manual Created by our own staff at the Alzheimer’s Association California Central Chapter, this Change the subject or book includes comprehensive information on dementia care, including strategies to deal activity: OK, but first we with behavioral changes. Available for free download at alz.org/cacentral/documents/ need to eat some lunch. wn_web.pdf or for purchase ($15) at your local office. Let’s wait and call your Support Groups can be a great source of practical information on what to expect in sister after we’ve had a nap, terms of behavioral and personality changes, and skills on how to deal with them. Check Mom. She is probably taking out the listing of support groups in your area on page 5. a nap now, too. Care Specialists are available 24/7 to help guide you through any changes you notice in your loved one with dementia: 800.272.3900 - Keep that number handy!