Professional Documents
Culture Documents
DOI 10.1007/s10826-008-9191-4
ORIGINAL PAPER
Abstract Psychoeducation is often used for family members of adult patients with
mood disorders. An increase in family’s knowledge of the patient’s illness course
and outcome is thought to improve treatment compliance and may reduce relapse
rates through identification of early symptoms and risks. While studies on family-
based psychoeducation of adult patients with mood disorders have been reviewed, a
similar review has not been conducted in patients who are children and adolescents.
We conducted a systematic review of studies published between 1980 and 2006
on independently standing psychoeducation programs for families with children
suffering from mood disorders. Results revealed eight treatment and preventive
psychoeducation studies for families of affectively ill children or children at risk for
depression. Findings indicate that psychoeducation models typically adopt a
workshop approach incorporating didactic teachings and interactive discussion
sessions, with or without specific skills training. Given the paucity of randomized
controlled trials and lack of comparability between psychoeducation models, con-
clusions about the true efficacy of each program as a treatment or an adjunct to the
treatment of mood disorders in children and adolescents cannot be made. Further
research into psychoeducation for families of children with mood disorders is
warranted.
S. H. Ong (&)
Department of Child & Adolescent Psychiatry, Child Guidance Clinic,
Health Promotion Board Building, 3 Second Hospital Avenue, #03-01,
Singapore 168937, Singapore
e-mail: say_how_ONG@imh.com.sg
A. Caron
Department of Psychiatry, Genetic and Clinical Epidemiology,
New York State Psychiatric Institute, New York, NY, USA
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Introduction
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J Child Fam Stud (2008) 17:809–822 811
causes and maintenance factors of depressive and bipolar illness, thereby possibly
serving to decrease blame and negative familial interaction patterns (e.g., high
expressed emotion) associated with slower recovery. The efficacy of psychoeduca-
tion for family members of adult patients with affective disorders has been reviewed
(e.g., Colom and Vieta 2004; Rothbaum and Astin 2000; Rouget and Aubry 2007). In
contrast, psychoeducational programs for childhood affective disorders are less
studied.
There are several different definitions of psychoeducation. We limited it to
educating patients and families on facts of the illness, its symptoms and signs,
clinical course, treatment options, and prognosis, including improving coping and
communication skills to assist in recovery (Fristad et al. 1996). The purpose of
psychoeducation is to enable family members make informed treatment decisions
with the patient; reduce anxiety about the illness; and help families and patients cope
with the illness and its complications. The definition has been derived from several
sources, one of which was Goldman’s (1988, p. 666) definition that described
psychoeducation as ‘‘…education or training of a person with a psychiatric disorder
in subject areas that serve the goals of treatment and rehabilitation, e.g., enhancing
the person’s acceptance of his illness, promoting active cooperation with treatment
and rehabilitation, and strengthening the coping skills that compensate for
deficiencies by the disorders’’. Psychoeducation thus provides a theoretical and
practical approach toward understanding and coping with consequences of an illness.
Psychoeducation is frequently included as a component of empirically-supported
therapies such as cognitive behavioral therapy (CBT). For example, the ‘‘Child- and
Family-Focused Cognitive-Behavioral Therapy (CFF-CBT)’’ (Pavuluri et al. 2004), the
‘‘Penn Prevention Program (PPP)’’ (Jaycox et al. 1994) and the ‘‘Adolescent Coping
with Depression Course’’ (Clarke et al. 1990; Lewinsohn et al. 1985) utilized
psychoeducation as part of their treatment approach, but also included an extensive
use of other cognitive and behavioral therapy techniques. Two of the programs (Jaycox
et al. and Lewinsohn et al.) had adolescents as sole recipients, without the involvement
of families or parents. Although these programs did contain a psychoeducation
component, there were other important CBT treatment foci such as cognitive
restructuring and social problem solving. Our goal was to review the potential effects
of independently standing psychoeducation programs (i.e., not with other CBT
components), and see how that affects treatment outcome for children and families. A
review of CBT programs, although important, would address a different goal than our
review. This paper will review trials and efficacy data for psychoeducation programs
used as both intervention and prevention for childhood depression and bipolar mood
disorder, followed by a discussion of their delivery formats.
Methods
Literature Search
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812 J Child Fam Stud (2008) 17:809–822
used a search strategy with MeSH (Medline Subject Heading) terms ‘‘Psychoeduca-
tion’’ and ‘‘Mood Disorders’’ with MeSH terms ‘‘Child’’ or ‘‘Adolescent’’. Included are
other MeSH terms and keywords: ‘‘Patient Education’’, ‘‘Family Education’’, ‘‘Health
Education’’, ‘‘Evaluation’’, ‘‘Efficacy’’, ‘‘Effectiveness’’, ‘‘Major Depressive Disor-
der’’, ‘‘Bipolar Disorder’’ and ‘‘Dysthymia’’. Other relevant bibliographies examined
included articles from books, chapters and dissertations.
Results
There are seven studies on the use of psychoeducation as a treatment modality for
children and adolescents already diagnosed to have mood disorders. Fristad et al.
(2002, 2003) and Goldberg-Arnold et al. (1999) separately conducted 3 series of
randomized controlled trials on Multi-Family Parent Group (MFPG), a 8-week
psychoeducational program, using a similar cohort of children and adolescents aged
8–12 years, from a predominantly Caucasian population, with BPD and MDD/
Dysthymic Disorder. They compared immediate MFPG + Treatment-as-usual
(TAU) with a 6-month waiting list + TAU control group. After the parents and
children were introduced in the first session, they were separated into different
rooms. The parents attended slide presentations and received workbooks that
allowed for note-taking as part of didactic information. The information covered
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Table 1 Overview of studies on psychoeducation as treatment and prevention for childhood and adolescent mood disorders
Authors/year/design Format/mode of delivery Outcome measures Results
Brent et al. (1993) Survey on acceptability One 2-h psychoeducation session. Covers Survey questionnaire Significant improvement in knowledge in
and efficacy information on diagnosis, course, and consisting of 21 questions at least 8 questions out of 21 but with a
treatment of affective illness assessing family members’ decline in one
knowledge about depression
and suicide
Goldberg-Arnold et al. (1999) RCT, 1st 3 sessions: Symptoms, medications, Survey comprising open-ended Immediate outcome: Increased knowledge
simultaneous parent and child groups interpersonal and family issues. 2nd 3 questions and verbatim and perceived social support. 6-month
running in weekly program sessions: Communication skills, problem accounts. No child outcome FU: Shift in attitude toward child and
J Child Fam Stud (2008) 17:809–822
solving, general family issues, review measures examined illness became more prominent in 2/3
and termination of families
Fristad et al. (2002) RCT, quasi-masked. 1st 3 sessions: slide presentation of ChIPS/P-ChIPS; DSM-IV MDD/DD benefited more from intervention
(1) Immediate MFPG + TAU: 6-week diagnosis, Tx modalities, and common diagnoses; CDRS-R; MRS; than BPD. Both groups gained
program. (2) Wait-list (6-month wait for issues faced. 2nd 3 sessions: open-ended MSI; C-GAS; UMDQ; knowledge, skills, support and positive
MFPG) + TAU discussions on typical problems families EEAC; FAD; CASA attitudes at immediate and 4-month
encountered post-Tx
Fristad et al. (2003) RCT, Longitudinal. Parents: 1st 3 sessions—didactic (slides, ChIPS/P-ChIPS; CDRS-R; Increase in: parental knowledge on
(1) Immediate MFPG + TAU: 6 sessions, workbooks), Q&A, skills building; MRS; C-GAS administered childhood mood symptoms; positive
led by group leaders, separate parent and 2nd 3 sessions—role-playing, ‘‘family at baseline. UMDQ; EEAC; family interactions; children’s perceptions
children groups followed by rejoining of projects’’. Children: interactive group; SSS; CASA of parental support and utilization of
family. (2) 6-month wait-list + TAU materials given; role play, anger appropriate services by families. No
management, social skills building, reduction in negative family interactions
affect regulation
Beardslee et al. (2003) RCT, Longitudinal, Family-based, manualized approach Parents: SADS-L; SLICE; Significant change in child-related attitudes
medical-center based. (1) Lecture group: Materials given on mood disorders, risks, C-GAS; SII. Children: and behaviors; increased understanding of
2 parents-only meetings. (2) Clinician- resilience and decreased blame in children K-SADS-E-R; K-SLICE; parental illness in children; decreased
facilitated group: 6–11 sessions, separate to both groups. For clinician-facilitated YSR; SCI; self-reports internalizing scores for all children with
meetings for parents and children; tel. group, clinicians linked materials to time; more total change in clinician-
contacts or refresher meetings every family’s unique illness experience facilitated group due to linking cognitive
6–9 months info presented to family’s illness
experience
813
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Table 1 continued
814
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Miklowitz et al. (2004) Open Tx trial. 21 Outpatient sessions—educate, K-SADS-PL, CBCL, Cham. Improvements in depression symptoms,
Family-focused treatment (FFT-A) with communication enhancement, problem- Fam. Int. Cod mania symptoms and behavior problems
ongoing mood stabilizer medication solving skills training. Sessions set at over 1 year
weekly for 12 weeks, biweekly for
12 weeks and monthly for 3 months
Fristad (2006) RCT, Longitudinal. 16 50-min sessions, individual families. ChIPS/P-ChIPS, CDRS-R, Changes in IFP group with improvements
(1) Immediate IFP + TAU: Alternating Educational materials similar to MFPG MRS, MSI, EEAC, in children’s mood immediately following
parent-only and child-primary sessions group. One session for crisis management Medication Usage Grids, treatment and sustained over 12 months
with parental ‘‘check-in’’ and ‘‘check- or review of topics. Additional unit on Mental Health Grids post-IFP, better family climate and
out’’ segments. (2) 12-month wait- Healthy Habits (sleep, nutrition, exercise) possible treatment utilization
list + TAU
Sanford et al. (2006) Unblinded, RCT. Twelve 90-min sessions, individual K-SADS-P, RADS, FAD Near significant improvements in depressive
(1) Experimental: Usual Tx + FPE. adolescent and family at home. Structured general functioning, ACL, symptoms and MDD remission rate.
(2) Control: Usual Tx and interactive. Session 1–4: Patient SSAI, C-GAS, CSQ Significant improvement in certain
education, Session 5–7: Communication domains of social and family functioning
skills training Session 8–11: Family and higher parent satisfaction with Tx
problem-solving skills training with services
homework
Note: ACL = Adjective Checklist; BL = Baseline; FU = Follow-up; MDD = Major Depressive Disorder; DD = Dysthymic Disorder; BPD = Bipolar Disorder; BPD-
NOS = Bipolar Disorder, Not Otherwise Specified; CASA = Child and Adolescent Services Assessment; CBCL = Child Behavior Checklist; CDRS-R = Children’s
Depression Rating Scale-Revised; C-GAS = Children’s Global Assessment Scale; Cham. Fam. Int. Cod. = Chamberwell Family Interview and Coding; ChIPS/P-
ChIPS = Children’s Interview for Psychiatric Syndromes-Child and Parent Forms. CRI-Y = Coping Response Inventory-Youth; CSQ = Client Satisfaction Question-
naire; EEAC = Expressed Emotion Adjective Checklist; FAD = The Family Assessment Device; FPE = Family Psychoeducation; GAS = Global Assessment Scale;
IFP = Individual family psychoeducation; K-SADS-E-R = Schedule for Affective Disorders and Schizophrenia for School-Age Children, Epidemiologic Version
Revised; K-SADS-PL = Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime; K-SLICE = Kiddie-Streamlines Longitudinal Interval
Continuation Evaluation; MRS = Mania Rating Scale; MSI = Mood Severity Index; RADS = Reynolds Adolescent Depression Scale; SADS-L = Schedule for
Affective Disorder and Schizophrenia-Lifetime Version; SCI = Semi-structured Child Interview; SII = Semi-structured interview about intervention;
SLICE = Streamlined Longitudinal Interval Continuation Evaluation; SSAI = Structured Social Adjustment Interview; SSS = Social Support Scale; Tx = Treatment;
UMDQ = The Understanding of Mood Disorders Questionnaire; YSR = Youth Self-Report
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There is only one randomized controlled study that focused on family psychoed-
ucation as a prevention strategy. The recipients are children and adolescents who
had been identified as at risk of developing a mood disorder by virtue of their
parents’ mood disorder or that they may have symptoms that did not meet diagnostic
criteria for a mood disorder. Beardslee et al. (2003) studied a family-based
psychoeducation approach to the prevention of depressive symptoms in 121
children, aged 8–15 years, who were at risk for depression by virtue of their parent’s
depression status. The trial was performed longitudinally to study whether
enhancing children’s self-understanding would reduce onset of mood disorder.
Families were randomized into a lecture group format (without clinician’s presence)
or a clinician-facilitated group format. The former group had 2 separate ‘‘parents-
only’’ group meetings involving several families while the latter group involved
6–11 sessions with individual families in addition to separate meetings with parents
and children, family meetings, and telephone contacts or refresher meetings at
6–9 month intervals. Both groups were given similar psychoeducational materials
about mood disorders, risk and resilience. Efforts were made to decrease guilt
feelings and self-blame in children. In addition, parents were assisted in helping
their children to forge relationships both within and outside the family facilitating
independent functioning. However, in the clinician-facilitated group, the clinicians
linked materials taught to the family’s unique experience of the illness. The results
of the study found that both child and parents groups reported experiencing a
significant change in child-related attitudes and behaviors. Besides an increase in
understanding the parental illness, the internalizing scores for all children also
decreased over time. However, more total change was noted in the clinician-
facilitated group, which the authors postulated as possibly due to linking cognitive
information presented to family’s illness experience. This study had the largest
sample of adolescents (N = 121).
Discussion
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participation level and enthusiasm. Only one study had psychoeducation delivered
in a home setting which included the adolescent and his/her family members
together (Sanford et al. 2006). When applied to multiple families groups (Miklowitz
and Hooley 1998), psychoeducation may have an added advantage of increasing
sharing and support among various families and enhancing the families’ coping
abilities. Running multi-family groups is a relatively cost-effective way of
delivering psychoeducation, as each session could comprise a few families at one
time. Conversely, individual family psychoeducation could be particularly useful
for certain community-based practices set in the more remote localities, when
scheduling flexibility for sessions is needed and when families do not feel
comfortable sharing personal information in a group setting.
The commonly used format in the reviewed psychoeducation models comprised
both didactic and interactive ‘‘workshop’’ approach supplemented with oral
presentations and printed materials on facts about mood disorders. Specific skills
training, in the form of communication enhancement and problem solving, during
dedicated sessions of the psychoeducation program is widely used in several of the
reviewed models, e.g. FFT-A and FPE, and serves as practical additions to the core
psychoeducational materials. These skills were also taught indirectly through family
projects and role-playing in MFPG and IFP. Different media and teaching formats,
such as video and slide presentations and role-playing, have been used to engage the
younger children and to improve their understanding of difficult concepts. Many
children, including those who are preliterate, might understand unfamiliar medical
concepts and respond well to modeling through visual demonstration instead of the
written words. Family projects during joint sessions were further used to enhance
family cohesion and communication. Linking didactic materials to family’s unique
illness experience has been found to be particularly beneficial in one study
(Miklowitz et al. 2004). The absence of cross-comparisons between different multi-
family psychoeducation programs and the lack of proper control groups greatly limit
the generalizability of our findings. Overall, the psychoeducation programs described
in our current review are ‘‘probably efficacious’’ in bringing about changes in
attitudes and behavior of parents on their children and their mood disorders, as well
as reduction of mood symptoms in the short and intermediate term. Two
psychoeducation programs (MFPG and Brent et al.) however have demonstrated
actual knowledge learned about the illness. During our review of the available
literature, we noted the paucity of robust studies examining psychoeducation use
in treating childhood mood disorders. There was also a lack of comparable study
methodologies, outcome measures and efficacy data. Consequently, a narrative
approach was adopted in our review as opposed to a meta-analysis, which would be
premature at this point in the development of psychoeducation literature.
There are no randomized controlled trials to compare the efficacy or examine the
different effects of psychoeducation administered by different health practitioners,
i.e. mental health professionals, primary care physicians, registered nurses or allied
health staff. However, Hauenstein (2003) illustrated how the school nursing staff
could be used to deliver psychoeducation to a group or adolescents diagnosed with
depression. The usefulness of nurses in general practice for purpose of rendering
support and patient education has also been documented in CBT intervention
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programs such as ‘‘Teaching Kids to Cope’’ (Puskar et al. 1997, 2003) and ‘‘Coping
with Depression’’ course (Clarke et al. 1990; Lewinsohn et al. 1985). So far, no
studies were done to look at advantages and disadvantages or differences between
psychoeducation delivered by various health or teaching professionals. Given the
relative lack of child-focused psychologists and psychiatrists, examination of the
implementation of mood disorder psychoeducation programs by nurses and other
professionals could serve a great need.
Psychoeducation offers itself as part of a multi-modal approach to treating
childhood mood disorders. Engaging parents and other key adult caregivers into
family psychoeducation may enhance the rehabilitative and recovery processes of
mood disorders. Psychoeducation for the parents of children with mood disorders is
even more relevant for pediatric patients, given children’s physical and emotional
reliance on them. The goal is for parents of affectively ill children to become more
involved in the treatment process of their children and learn to be advocates for
themselves as parents and for the needs of their children. A psychoeducational
program for children and adolescents can therefore be similar to that used in adults
as the basic assumptions—connecting with families and patients, information giving
and ongoing psychosocial interventions—still hold (Holder and Anderson 1990).
The present trend is for psychoeducation to be blended with other treatment
modalities such as CBT, which would entail more expertise, time and training of
staff. Psychoeducation alone therefore may be a more viable and cost-effective
option for treating children and adolescents with mood disorders. In a way,
psychoeducational interventions have been seen also to possess the ability to change
or shift cognitions for depressed patients and their families. Though definite
conclusions about the true efficacy of psychoeducation programs could not be
drawn presently, the generalizability of psychoeducational principles should aid
general clinicians and allied health workers in delivering effective patient education,
specific skills training and supportive counseling in other non-psychiatric settings.
With an increased trend of incorporating other treatment modalities, specific skills
training and forms of self-help activities into psychoeducation, the value and long-
term effects of these integrations need to be explored. Given the promising results of
symptom reduction with the use of psychoeducation in some reviewed studies (e.g.,
Miklowitz et al. 2004), future research should evaluate psychoeducation alone as a
treatment approach compared to other existing empirically-supported treatments,
particularly when there are therapist or client-related barriers to implementing the
latter treatments. However, it is imperative to recognize that while psychoeducation
could serve as an invaluable treatment option, it may often not be sufficient as a
stand-alone treatment for childhood mood disorders.
Due to the paucity of studies done on psychoeducational programs for children
and adolescents with mood disorders and a lack of clear definition as to what
psychoeducation is for childhood psychiatric disorders, direct comparisons between
individual programs is difficult. It is also hard to determine whether any
improvement made during psychoeducation delivered in a workshop format for
treatment or for prevention of mental illnesses is due to the knowledge gained or
due to the unique situation of a group-setting environment. One needs to consider
the many factors which exist in therapeutic group settings e.g. group support and
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cohesion, group sharing, modeling from other group members and other non-
specific interactions etc., that could possibly have an impact on outcome effects. A
suitable research design, e.g. group psychoeducation versus support group or group
activity (without psychoeducation given) would perhaps help to address this query.
Further studies involving component analyses that examine different active
components of psychoeducation could help determine the effect of group variables
that bring about change in attitude and behavior toward disease. To answer the
question on which format of psychoeducation works best, there is a need for future
research to analyze the various psychoeducation delivery methods, such as parent-
only, child-only, single-family or multiple-families formats, and to incorporate
major findings from adult literature. Further examinations of psychoeducation
programs by independent investigatory groups in various clinical settings and
populations would help elucidate their true efficacy in the treatment of mood
disorders in children and adolescents.
Acknowledgments This work was funded by Advanced Center for Intervention and Services Research
(ACISR) grant number 5P30-MH071478, from NIMH and Columbia University, NY, USA. The first
author would like to also acknowledge National Healthcare Group (Singapore) for funding a research
fellowship in New York State Psychiatric Institute.
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