You are on page 1of 16

Integrated resources

for everyone with cancer


Patient Navigation Services™ in Illinois
Annual Report 2010

77 31,200
Patient centers Patients and caregivers
statewide served in 2010

20%
Average yearly growth
in number of people
served since 2004
C

onsider the courage it takes

just to show up for another round


of chemotherapy – to bear up
with dignity through the fears and
physical challenges of a treatment
regimen – every morning, every night.

Is there anything in life more inspiring


than one who is willing to fight so hard
for it? Or more worthy of our total
support?


Thanks to your partnership,
no one facing cancer in Illinois
has to fight alone.
S
even years ago we envisioned a “circle of care” that would embrace
every individual touched by cancer in our state, delivering crucial
resources for patients, caregivers and families.

With the steadfast support of medical partners and leading donors like
you, we have worked to transform this vision into reality. Today our Patient
Navigation ServicesTM network offers caring, effective services for anyone
touched by cancer in Illinois.

In 2010, we continued to deliver integrated, hands-on services for tens


of thousands, with special emphasis on the uninsured and medically
underserved. Strong partnerships with hospitals, cancer clinics and
media partners statewide helped us reach a greater share of newly
diagnosed patients with timely, personalized services.

We are gratified to witness all we have achieved since our program’s


founding – yet we know there is much more to be done.

In the past 12 months alone, an estimated 65,200 people living in Illinois

122,000
have heard the devastating words, “You have cancer.” Please join us as we
recommit ourselves to the vital work of offering them the best possible
chance to get well.
patients and caregivers
have been assisted
since 2004.

Nearly

2/3
of uninsured and Medicaid Katherine L. Griem, Mary E. Pierce, Steven M. Derks
MD, FACR SPHR Chief Executive Officer
patients with cancer in President Chair of the Board
Illinois received free resources
through our program
in 2010.
Comprehensive resources
for those with cancer
Our patient service program
What we provide:
follows these principles:

Timeliness Reliable cancer information


Working closely with medical caregivers, we seek to reach patients immediately
• Clear, accurate answers for
after diagnosis in order to give them the best possible chance to get well. questions about cancer

Patient focus • Helpful explanations that


We begin by listening and identifying the unique needs of each patient and overcome language and
literacy barriers
caregiver. We then respond with carefully chosen resources to reduce stress
and remove barriers to quality treatment. • Clinical trials matching service

Partnership Day-to-day help


We foster close relationships with medical professionals to deliver effective
services. Society staff members work as a team to ensure access to resources • Transportation to and from
for all patients, regardless of where they live. treatment appointments

• Lodging assistance for those


Ease of access needing treatment far from
In addition to our Web site and our 24/7 cancer information call center, we home
have resource centers conveniently located inside the hospitals and clinics
• Links to financial resources for
where Illinois patients receive their medical care. This comprehensive approach patients in need
ensures that patients and caregivers can find help anytime, day or night.
• Prescription program to provide
pain and nausea medications for
those who cannot afford them

• Free wigs, hats and temporary


prostheses

Emotional support
• Outreach programs pairing
patients with survivors of the
same diagnosis

• Classes helping patients restore


appearance and self-confidence
following treatment

• Case management and psychosocial


counseling for patients and
caregivers

2
Service highlights
for 2010
0

72,000 61,000
Rides to and from treatment
Total number of requests provided for patients
for information and resources in need

3,000 2,600
Patients who attended free
Patients who received
classes to help restore their
free wigs, hats, scarves and
appearance and self-esteem
temporary prostheses
following cancer treatment

$800,000 6,000
Direct assistance to patients Patients who received in-depth
to reduce barriers to case management services
effective treatment through Society social workers

3
Difference makers
2010
Helping us reach every new patient, every day

Roger Crawford
Director, Radiation Oncology, OSF St. Francis Hospital, Peoria

“Cancer patients don’t do well when they face extra burdens. I’ve seen the
difference a free ride or a caring, personal conversation can make. So we
refer 100% of our new patients to the American Cancer Society on the first
day they come in. We value the Society’s role in helping our patients feel
confident and engaged in their own healing.”

A new resource center opens in Chicago

Stephanie Logan
Cancer Survivor and Volunteer, Chicago

“I was honored to speak at the opening of the new patient center at the
University of Illinois Cancer Center. When I first heard the words ‘you have
breast cancer’ in 2009, I had no idea how I could fight my disease and still
provide for myself and my son. Diane, my Society navigator, made me feel
she would move heaven and earth to find the resources I needed. Now I am
cancer-free … and I am thankful to the Christopher Family Foundation for
the generous gift that has helped this invaluable program grow at UIC.”

Survivor-caregiver team eases the journey for others

Paul and Shirley Killinger


Patient Support Volunteers, Peoria

“We work as support volunteers at St. Francis Hospital and Methodist


Hospital,” Paul explains. “We introduce ourselves to patients, who are
often there with their caregivers, and ask them to share their stories with
us.” Compassionate listening, a warm hug and the encouragement of those
who have walked the same road can make a real difference, Shirley says.
“We find ways to offer Society services that we know will be helpful. We
hope other survivor-caregiver couples will consider volunteering … Paul
and I find it a rewarding way to share what we’ve learned with others.”

4
Meet some of the medical partners,
volunteers and supporters
who strengthened our program statewide.

Expanding our program’s effectiveness

K. Thomas Robbins, MD
Director, Simmons Cancer Center at Southern Illinois University,
Springfield

“As clinicians, we focus on delivering the best possible treatment for our
patients, yet we know they have needs that go beyond medical care. This
is where our Society navigator makes a critical difference. She works closely
with our 13 oncology teams to deliver services in a seamless, coordinated
way. We are so convinced of the value of Patient Navigation Services that we
have made a significant grant to support the program’s expansion at SIU.”

State-of-the-art software boosts call center efficiency

Kim Hammonds
Chief Information Officer, The Boeing Company, Chicago

“Boeing is an enthusiastic partner in the American Cancer Society’s


patient support efforts. Our information technology team has provided
software programs to enhance operations at the Society’s patient call
center in Chicago. It is our hope that the program will help navigators
track hundreds of service requests and dispatch resources in the most
efficient way for the benefit of patients.”

Creative partnership links patients with our services

Luke Eimerman
Manager, Secure Start Program, Hollister, Inc., Libertyville

“As a manufacturer of ostomy products, we provide call-in support for our


customers. When we learn that a customer has undergone cancer surgery,
we actively share information about Patient Navigation Services. This is
just one of the ways we’re spreading the word about your valuable services
among our customers and employees.”

5
Through the eyes
of patients and caregivers
New home, new hope
Cancer had uprooted the life of a Rockford area woman who came to the Society
in search of support. While battling her illness, she had lost her job and was
living with her daughter while struggling to care for her own aging mother.

A Society navigator made a timely referral that helped her find a new
apartment. The navigator also fitted her with an attractive new wig and
enrolled her in a Look Good…Feel Better® session. Volunteers provided free
rides to treatment, reducing the pressures felt by her daughter, who served
as her sole caregiver. “Thank you for providing so many helpful services for
me and my family,” the patient said.

“I was so glad to learn I could call the Society’s


‘800’ number anytime. They are there to help with
any problem relating to my dad’s cancer, or just
when I need someone to talk to.”
– Caregiver, central Illinois

Finding financial solutions


A central Illinois man came to the Society carrying a sheaf of medical
bills and insurance statements, which he was struggling to organize.
Five-day-a-week cancer treatments had made it impossible for him to
work. His employer had recently changed hands, and as a result, the
disability benefits he had counted on were no longer available.

A Society navigator helped him sort through the papers and identify
ways to manage his expenses. She helped him apply for grants that would
provide income during treatment. “You have no idea how much you’ve
helped me … not only with my bills but in coping with my diagnosis.
I am forever grateful,” the patient said.

“My volunteer driver was wonderful. I consider


him a friend for life.”
– Patient, southwestern Illinois

6
Every day, we receive heartfelt notes, calls and e-mails
from people touched by our program.
Here are the words and stories of some we helped in 2010.

Easing a survivor’s pain From patients to


volunteers: survivors
Following surgery and chemotherapy for Stage 4 breast cancer, a
Chicago area woman continued to suffer chronic pain. Doctors prescribed
pay it forward
a drug that gave her substantial relief. In 2010 she learned her Medicaid A central Illinois man fighting
benefits would no longer cover her prescription. Stage 4 cancer felt called to
help others. He joined our
A Society navigator arranged a special grant to pay for the needed medication Road to Recovery® program as
and arranged for an immediate refill through a pharmacy near her home. an active volunteer, recruiting
other drivers and promoting
Patient Navigation Services in
“Thank you for listening to me cry. So many
conversations with local media,
people told me I would be OK, but with cancer, church and retiree groups.
no one really knows for sure. You gave me the
Though cancer eventually
emotional space I needed at a difficult time.” claimed his life, his good work
– Patient, northern Illinois continues through the many
new volunteers he brought to
the Society, who provide rides
Embracing life for patients and, as their friend
did, seek to engage even more
A DuPage County man had just finished treatment for esophageal cancer.
patient volunteers to keep the
Doctors had declared him cancer-free, but he continued to worry about his
momentum going.
health. He called his Society navigator for perspective. She sent him her
favorite book on survivorship and offered support groups – but mostly,
she says, “what he needed was someone to listen. By the end of our
conversation he told me, ‘I feel better already.’ ”

200+
“Even though it hurts so much to realize my
cancer has spread, I am glad I found someone
I could really talk to. I am determined to fight Illinois volunteers work
and I believe I can win.” every day with Society
– Patient, Chicago staff to help patients
and caregivers.

7
A statewide resource
for everyone with cancer
77 convenient locations in Illinois

Rockford

Chicago

Rock Island -
Moline

Peoria

Champaign
Right where patients and caregivers
Springfield need us most
The distribution of Patient Navigation Services in Illinois
follows population patterns and the incidence of cancer
cases across the state.

Maryville Our Comprehensive Navigation Centers are located at


major medical centers and are staffed full-time by licensed
social workers or registered nurses.

Our Patient Resource Centers are located at hospitals


Marion and cancer clinics and staffed part-time by Society-
trained patient service specialists and volunteers.

Our American Cancer Society Regional Offices


serve as resource centers and wig banks to meet patient
and caregiver needs in Illinois communities.

8
Comprehensive Navigation Centers Illinois CancerCare, Pekin
Iroquois Memorial Hospital, Watseka
Illinois CancerCare, Peoria
Kishwaukee Community Hospital, DeKalb*
John H. Stroger, Jr. Hospital of Cook County, Chicago
Lake Forest Hospital, Lake Forest
Loyola University Medical Center, Maywood
Little Company of Mary Hospital, Evergreen Park
Northwestern Memorial Hospital, Chicago
Medical & Surgical Specialists, Galesburg
Rush University Cancer Institute, Chicago
Medical Arts Associates, Ltd., Moline
Simmons Cancer Institute at Southern Illinois
Memorial Medical Center, Springfield
University, Springfield
Mercy Hospital & Medical Center, Chicago
University of Chicago Medical Center, Chicago
Methodist Medical Center of Illinois, Peoria*
University of Illinois Medical Center at Chicago,
Mid Illinois Hematology & Oncology Associates, Pontiac
Chicago
OSF Saint Anthony Medical Center, Rockford
OSF Saint Francis Medical Center, Peoria
Patient Resource Centers OSF Saint Joseph Medical Center, Bloomington-Normal
Perry Memorial Hospital, Princeton*
Adventist Hinsdale Hospital, Hinsdale* Provena Saint Joseph Hospital, Elgin*
Adventist La Grange Memorial Hospital, La Grange Resurrection Center for Cancer Care, River Forest
Advocate Christ Medical Center, Oak Lawn Rockford Memorial Hospital, Rockford*
Advocate Condell Medical Center, Libertyville Rush-Copley Medical Center, Aurora*
Advocate Good Samaritan Hospital, Downers Grove Saint Alexius Medical Center, Hoffman Estates
Advocate Illinois Masonic Medical Center, Chicago SwedishAmerican Medical Group, Rockford
Advocate Lutheran General Hospital, Park Ridge* Swedish Covenant Hospital, Chicago
Alexian Brothers Medical Center, Elk Grove Village* Trinity Cancer Center, Moline
Alton Memorial Hospital, Alton Vista Medical Center, Waukegan
Anderson Hospital, Maryville Weiss Memorial Hospital, Chicago
Blessing Cancer Center, Quincy West Suburban Medical Center, Oak Park
Cancer Care & Hematology Specialists of Chicagoland,
Arlington Heights*
Cancer Care & Hematology Specialists of Chicagoland, American Cancer Society Regional Offices
Winfield
CDH Delnor Hospital, Geneva* Chicago Regional Office
Center for Comprehensive Cancer Care, Mount Vernon DuPage Regional Office, Oak Brook Terrace
DuPage Medical Group, Naperville* Eastern Regional Office, Champaign
Edgar County Health Department, Paris Fox Valley Regional Office, Batavia
Edward Cancer Center, Naperville Lake County Regional Office, Lincolnshire
Edward Hines, Jr. VA Hospital, Hines* Metro East Regional Office, Maryville
Edward Hospital, Naperville* North Shore Regional Office, Evanston
Elmhurst Memorial Center for Health, Elmhurst Northern Regional Office, Rockford
Evanston Hospital, Evanston Northwest Regional Office, Rock Island
Glenbrook Hospital, Glenview Northwest Suburban Regional Office, Arlington Heights
Gottlieb Memorial Hospital, Melrose Park Prairie Land Regional Office, Tinley Park
Hematology-Oncology Associates of Illinois, Berwyn Southern Regional Office, Marion
Hematology-Oncology Care Center of the Quad Cities, West Central Regional Office, Peoria
Moline West Cook Regional Office, Riverside
Highland Park Hospital, Highland Park* Western Regional Office, Springfield
Illinois CancerCare, Macomb
*New in 2010

9
Campaign of Hope
fuels program growth
L
aunched in 2006 with a visionary Illinois, encouraging support for a wider The American Cancer Society extends
matching grant from The network of care in all communities. its sincere gratitude to the many
Duchossois Family Foundation, leadership donors whose gifts have
the Campaign of Hope sought to These matching gifts meant that helped build the strongest cancer
gather critical support for Patient campaign supporters could double support network of its kind in the
Navigation Services. and even triple the value of their nation.
donations, moving us closer to our
The campaign gained even greater goal. In December 2009, a generous With the continued support of our
momentum when the Coleman gift from the John and Editha Kapoor donors throughout the state, we
will reach an even greater share of
Foundation pledged matching funds Charitable Foundation carried the
those who urgently need our help.
for all gifts received in rural areas of campaign to its successful conclusion.

Coleman Foundation

The Duchossois Family Foundation John Kapoor, PhD

10
Noble Laureate Maureen Beal Cecile Gagan
($1,000,000+) Anna and Greg Brown Gary Garrabrant
The Duchossois Family Foundation Debra and Ira Cohen Mark MacDonald
Andrew Dick H&M Machining Inc.
Barry Eccleston John Hauser
Leadership Laureate
Richard Fitzgerrell Health Care Service Corporation
($500,000 - $999,999)
Hospira Inc. Hussey Foundation
AstraZeneca Pharmaceutical Company
Irene L. Eagleston Foundation Lavin Family Foundation
Anonymous (1)
James McWethy Foundation Ronald Limbrick
Murray Johnson Lorelei Foundation
Distinguished Laureate Max Goldenberg Foundation Luster Products Black Heritage
($100,000 - $249,999) Sue McWilliams Foundation
Advocate Lutheran General Hospital National Van Lines Inc. Dora McDonald
Coleman Foundation Edward Schreck Peter McDonald
Community Memorial Foundation Phyllis Trostrud Richard Owens
John and Editha Kapoor Charitable United Airlines Corporate Giving Paine Family Foundation
Foundation Program Linda Pavel
Judith and Robert Sack Wendy Larks Foundation Peggy Klein Trust
Westlake Health Foundation Pfizer Inc.
Grand Laureate Anonymous (1) Rags for Riches Foundation
($50,000 - $99,999) Red Lodge Foundation
A.G. Cox Charity Trust Katherine Sawyer
Laureate
Austin E. Stoll Foundation Scheck Family
($10,000 - $24,999)
Annette Bacola and Robert Cummings John Seffrin
Richard Almeida
Mary Jo and John Boler Frank Shisler
Anne and Mead Montgomery Family
Bowman C. Lingle Trust Foundation Sanford Shkolnick
Crown Family Philanthropies Susan and Ermilo Barrera Seattle Sutton
Laura and Steven Derks Andrew Berlin John Tague
Natel and Nick Gouletas Nathan Brown Takeda Pharmaceuticals
North America Inc.
Grant Healthcare Foundation Cardinal Health Inc.
The Hartford
Healthcare Foundation of Northern Central DuPage Hospital
Lake County The Illini 4000 for Cancer
Robert Clarke
Stuart Townsend Jacqueline and Glenn Tilton
Deloitte & Touche LLP
Uline Inc.
Washington Square Health Foundation Demetrick Coleman
Uplift Inc.
E. Thomas Collins
Anonymous (1)
Honorable Laureate Concord Asset Management
($25,000 - $49,999) Byron Deneberg
A.E. Staley Foundation Mark Faber
Alfred Bersted Foundation Zachary Fortsch
Barnes Foundation Frederica Herriman Pederson Trust

11
Sustaining Donors Bob Stanojev Glenn Lefkowitz
($5,000 - $9,999) UPS Foundation Inc. Matching Grant Edward Liddy
Amateur Bowlers Tour Jeff Vilker Edward Lorgeree
Keith Bank Karen Virnoche-Brown Ruth Lucera
Howard Bernick David Vitale Jean Maddrell
Kevin Buggy Greg Ward Alan McNally
Circle of Hope Bracelets Lisa Weier Brian Meister
Citigroup Wohlers Family Foundations Miners Charity
Thomas Cole Heidi and Jim Mitchell
Community Foundation of Donors Mary Molo
Central Illinois ($2,500 - $4,999) Morgan Stanley Smith Barney
Heidi Dalenberg Global Impact Fund
Ashley Furniture
Linda and Dennis Myers
Dellora A. and Lester J. Norris Anjan Asthana
Foundation Susan Noyes
Aurora Employee Club
Delta Tau Delta Martin Ozinga
Cheryl Beebe
Jennifer Downey David Peterschmidt
Terry Belian
Dayle Duchossois-Fortino Prior Family Trust
Lori Bonelli
Evelyn C. Carter Foundation Stuart Reed
James Borders
Rita and Brian Forden Allegra Rich
Manny Brown
Gerhard and Patricia Weiler Family Rockford Health System
Donald Byus
Foundation Timothy Romenesko
Charles Foundation
Dennis Greenspan Ronald McDonald House Charities
James Claxton
William Hartsell Rotary Club of Carol Stream
Greg Cook
Kazma Family Foundation Linda Saulnier
Carl Demasi
Thomas Liebman Schwab Fund for Charitable Giving
Mike Flannery
Gerry Lopez Maria and Bill Smithburg
June and Fred Gold
Barbara Luce-Turner Barry Stoughton
Greater Springfield Chamber
Thomas Marano TAP Pharmaceutical Products Inc.
of Commerce
Don Morrissey Jeff Taylor
Heart of Experian Foundation
Nexstar Broadcasting Inc. The Pampered Chef
Phoebe Helm
Gregory Pacelli Richard Townzen
James Hofmockel
Ronald Paul Weiler Family Foundation
Hometown Huddle
Pomeroy IT Solutions Ellen and Boniface Wittenbrink
John W. and Barbara A. Dant
Punch Grafix Americas Inc. Charitable Fund Inc. John Yanney
Suzannah Ragen Timothy Keating
Roman Cultural Society of John Klacking
Central Illinois
Knights of Columbus No. 11091
Jasper Sanfilippo An additional 1,974 donors have
Doug Kreuzkamp each invested up to $2,499 toward
Schneider Electric Lancaster Family Foundation our patient services program.
Smith Barney Steven Lanzer

12
Actively growing in
2011 and beyond
A
s we move toward 2015, n We will work to expand enrollment in n We will make continuous
we want to be the first clinical trials by providing information improvements to our program
resource people reach for and hands-on support for patients by gathering critical data and
after they hear the words, “You have considering this form of cancer care. measuring the effectiveness of
cancer.” our outreach efforts.
n We will work closely with medical
Our goal in the year ahead is to serve caregivers to create a uniform method n We will address the needs of cancer
33,000 new patients and caregivers, for assessing the non-medical needs survivors by linking them with
including a larger share of those of newly diagnosed patients as resources to help them stay well and
fighting cancer without insurance recommended by the American enjoy the best possible quality of life.
or sufficient financial resources. College of Surgeons.

Patient Navigation Services™


Having cancer is hard. Finding help isn’t.

For free patient or caregiver resources anytime:


1.800.227.2345
IllinoisCancerHelp.org

For health professionals seeking more information:


Cathy Galligan
Director, Health Initiatives
Illinois Division, Inc.
1.312.279.7364

To make a gift:
Fred Greenberg
Director, Major Gifts
Illinois Division, Inc.
1.312.279.7203
cancer.org
IllinoisCancerHelp.org 1.800.227.2345

Illinois Division, Inc.


@2011 American Cancer Society, Inc.

You might also like