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Family Presence During Cardiopulmonary Resuscitation and Invasive

Procedures: Practices of Critical Care and Emergency Nurses


Susan L. MacLean, Cathie E. Guzzetta, Cheri White, Dorrie Fontaine, Dezra J. Eichhorn,
Theresa A. Meyers and Pierre Désy
Am J Crit Care 2003;12:246-257
© 2003 American Association of Critical-Care Nurses
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AJCC, the American Journal of Critical Care, is the official peer-reviewed research
journal of the American Association of Critical-Care Nurses (AACN), published
bimonthly by The InnoVision Group, 101 Columbia, Aliso Viejo, CA 92656.
Telephone: (800) 899-1712, (949) 362-2050, ext. 532. Fax: (949) 362-2049.
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FAMILY PRESENCE DURING CARDIOPULMONARY
RESUSCITATION AND INVASIVE PROCEDURES:
PRACTICES OF CRITICAL CARE AND EMERGENCY NURSES
By Susan L. MacLean, RN, PhD, Cathie E. Guzzetta, RN, PhD, HNC, Cheri White, RN, PhD, CCRN, Dorrie
Fontaine, RN, DNSc, Dezra J. Eichhorn, RN, MS, CNS, PMHNP, Theresa A. Meyers, RN, BSN, CCRN, and Pierre
Désy, BSc. From Emergency Nurses Association, Des Plaines, Ill (SLM, PD), Holistic Nursing Consultants and
Children’s Medical Center of Dallas, Dallas, Tex (CEG), Sutter Roseville Medical Center, Roseville, Calif
(CW), School of Nursing, University of California, San Francisco, Calif (DF), North Arkansas Human
Services System, Batesville, Ark (DJE), and Memorial Hospital, Colorado Springs, Colo (TAM).

• BACKGROUND Increasingly, patients’ families are remaining with them during cardiopulmonary
resuscitation and invasive procedures, but this practice remains controversial and little is known about
the practices of critical care and emergency nurses related to family presence.
• OBJECTIVE To identify the policies, preferences, and practices of critical care and emergency nurses
for having patients’ families present during resuscitation and invasive procedures.
• METHODS A 30-item survey was mailed to a random sample of 1500 members of the American
Association of Critical-Care Nurses and 1500 members of the Emergency Nurses Association.
• RESULTS Among the 984 respondents, 5% worked on units with written policies allowing family presence
during both resuscitation and invasive procedures and 45% and 51%, respectively, worked on units that
allowed it without written policies during resuscitation or during invasive procedures. Some respondents
preferred written policies allowing family presence (37% for resuscitation, 35% for invasive procedures),
whereas others preferred unwritten policies allowing it (39% for resuscitation, 41% for invasive proce-
dures). Many respondents had taken family members to the bedside (36% for resuscitation, 44% for
invasive procedure) or would do so in the future (21% for resuscitation, 18% for invasive procedures),
and family members often asked to be present (31% for resuscitation, 61% for invasive procedures).
• CONCLUSIONS Nearly all respondents have no written policies for family presence yet most have done
(or would do) it, prefer it be allowed, and are confronted with requests from family members to be
present. Written policies or guidelines for family presence during resuscitation and invasive procedures
are recommended. (American Journal of Critical Care. 2003;12:246-257)

A
llowing patients’ family members to be pre- decade, however, the movement to allow family pres-
sent at the bedside (also termed “family pres- ence has steadily evolved because of the support of
ence”) during cardiopulmonary resuscitation professional organizations, attention of the media, and
(CPR) and invasive procedures is a controversial research on the topic. In 1993, the Emergency Nurses
practice in the United States. In less than a single Association (ENA) adopted a resolution to support the
option of having patients’ families present during
This article is being copublished with the Journal of Emergency CPR and invasive procedures. Two years later, an
Nursing, where it will appear in the June 2003 issue. educational program for implementing this practice
within institutions was developed by the ENA.1 This
To purchase reprints, contact The InnoVision Group, 101 Columbia, Aliso
Viejo, CA 92656. Phone, (800) 809-2273 or (949) 362-2050 (ext 532); fax, program was revised in 2001 to reflect updated guide-
(949) 362-2049; e-mail, reprints@aacn.org. lines and research.2 In addition, guidelines on family

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presence have been integrated into the ENA curricu- lies traditionally have been excluded from such events
lum for the trauma nursing core course3 and the emer- because of a myriad of concerns,** including fears
gency nursing pediatric course.4 The guidelines5 of the that the families might lose emotional control and
American Heart Association for CPR and emergency interrupt care, 53-56 lack of staff to meet families’
cardiovascular care also recommend that providers needs,30,54,57-59 insufficient room at the bedside,30,54,57-59
offer patients’ family members the option of remain- increased risk of litigation,54,57 family-imposed limita-
ing with the patients during resuscitative efforts. tions to the training of medical residents,60 violation
Family presence has attracted considerable inter- of patients’ confidentiality and privacy rights,54 and
est in publications devoted to healthcare profession- the potential that providers’ technical skills would be
als6-11 and consumers.12-17 This attention ignited debate affected because the providers were uncomfortable
on the issue among healthcare professionals and with the families’ presence.30,53,57
heightened awareness of the topic among consumers. On the other hand, providers with experience with
Recent research 1 8 - 2 5 and public opinion polls 2 6 , 2 7 family presence reported that having patients’ families
revealed that most consumers think that patients’ present provided an opportunity to educate the families
family members would want to be and should be about the patients’ condition,20 facilitated family partici-
allowed to be present while emergency procedures pation in caring for patients19,20,43 (eg, supporting the
were performed on the patients and at the time of patient, positioning the patient, translating), reminded
death. Several studies indicated the multiple benefits staff of patients’ personhood,20,31 encouraged professional
of this practice for patients’ family members: It behavior and conversations at the bedside,20 and helped
removes doubt about what is happening to the patient parents in the bereavement process.61 Moreover, the
and reinforces that everything possible was done18,20,28-32; presence of a patient’s family did not increase anxiety
it reduces anxiety and fear31,33-36; it engenders feelings levels of healthcare providers during invasive proce-
of supporting and helping the patient*; it sustains dures36 or increase their perceived stress during resusci-
patient-family connectedness and bonding18,20; it pro- tations.62 On the basis of studies indicating the benefits
vides a sense of closure on a life shared together20,30; of family presence for both family members and
it facilitates the grief process19,24,28-32,39; and it engen- patients, it has been recommended repeatedly that to
ders feelings of being helpful to healthcare staff.20,34 meet the needs of patients and their families, programs
Nearly all families involved in such an experience should be developed to offer patients’ families the
reported that they would make the same choice option of being at the bedside during CPR and invasive
again.20,29,30,34,39 Despite the fears of healthcare providers procedures.2-5,20,29,31,50,63,64 However, little is known about
that patients’ families might become emotionally the practices of critical care and emergency nurses
upset and interfere with care, researchers found no related to family presence. Therefore, the purposes of
disruptions in the operations of the healthcare team, this study were to determine the following:
no adverse outcomes during events at which patients’ • the frequency of formal and informal hospital
families were present,19,20,23,28-31,36,39 and no adverse psy- policies on family presence in critical care units and
chological effects among family members who par- emergency departments,
ticipated at the bedside.20,31,39 • the preferences of critical care and emergency
From the patients’ perspective, studies have indi- nurses for having patients’ family members present
cated that almost all children preferred to have their during CPR and invasive procedures,
parents present during stressful medical proce- • the practice of critical care and emergency nurses
dures33,36,40-44 and that the children thought that parental related to family presence,
presence was the most beneficial intervention in man- • the preferences of patients’ families, and
aging the children’s pain.41 The experiences of adult • the common themes of nurse respondents
patients were considered in only 1 study45 and 2 anec- regarding their experiences with family presence.
dotal accounts.31,39 The patients reported that having
their family members present provided comfort and Methods
help, reminded healthcare providers of the patients’ Study Design and Sample
personhood, and maintained the patient-family bond. A survey design was used to determine the family
For healthcare providers, allowing the presence of presence practices of critical care and emergency nurses.
patients’ families is a paradigm shift. Patients’ fami- The survey was mailed to a random sample of 1500
critical care nurses who were members of the American
*References 18-20, 29, 30, 33-35, 37, 38 Association of Critical-Care Nurses and 1500 emer-
**References 19, 20, 28, 29, 31, 32, 39, 46-52 gency nurses who were members of the ENA. All 3000

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were registered nurses. The American Association of the completed survey, and a guarantee of anonymity.
Critical-Care Nurses, ENA, and the institutional review The cover letter contained no value statements about
board at one of the investigators’ (CEG) medical centers the ENA guidelines on family presence.
approved the study. To maintain the anonymity of the To establish the content validity of the tool, a
subjects, we included no identifying information on the national panel of experts consisting of 3 critical care
surveys. Informed consent was implied by the partici- nurses, 3 emergency nurses, and 1 physician rated the
pant’s response to the questions and return of the survey. relevance and clarity of the survey. All experts rated
100% of the items and the overall survey as relevant
Instrument in measuring family presence practices. No items
A 30-item survey (see Appendix) was developed. were deleted, but 7 items were revised on the basis of
The survey included questions about the demographic the panel members’ suggestions (eg, change “permit”
characteristics of the respondents (20 items); ques- to “allow” and “code” to “CPR”). Before the study,
tions about the respondents’ practices, preferences, the survey was tested on 4 separate occasions, with a
and hospital policies related to family presence dur- total of 113 critical care and emergency nurses. After
ing CPR and invasive procedures (9 items); and the each pretest, items on the survey were reordered for
option to share any comments about the respondents’ clarity. The mean time for completing the survey was
personal or professional experiences with family 15 minutes.
presence. Definitions of family presence developed
for the study (Table 1) were sent to all potential par- Procedure
ticipants along with the survey, a cover letter that The final version of the survey was mailed to
explained the purpose of the study, a request to return potential participants. They were asked to return the
completed survey in an enclosed postage-paid return
Table 1 Definitions for study on family presence practices envelope. A postcard was sent to potential partici-
pants after the initial mailing to remind them to return
Term Definition the surveys.
Option of family Offering the choice to a patient’s
presence family member to be present in Statistical Analyses
a location that affords visual Data analysis was completed by using SPSS
and/or physical contact with the Version 10.1 (SPSS Inc, Chicago, Ill). Descriptive
patient during an invasive
procedure or cardiopulmonary
statistics were used to characterize the sample and
resuscitation each of the survey items. In addition, χ2 tests were used
Families Relatives or significant others with to determine differences in the effects of actual expe-
whom a patient shares an rience on preferences that support family presence.
established relationship
Invasive procedure Any intervention that involves
Significance was set at P < .01. Written responses and
manipulation of the body or comments were qualitatively analyzed by one of us
penetration of the body’s (SLM) by using content analysis. The constant com-
natural barriers to the external parison technique was used; segments of data were
environment (eg, endotracheal
intubation, placement of a
coded, grouped, clustered, and linked, and primary
central catheter, lumbar themes were identified and interpreted to discern the
puncture, insertion of a chest experiences of respondents. A final document of
tube, orthopedic reduction) themes, categories, and direct quotations was sent to
Cardiopulmonary Artificial breathing and cardiac
resuscitation chest compression initiated to
each of us for validation.
sustain life
Emergency Nurses An educational program that Results
Association’s includes intervention guidelines Characteristics of the Sample
Presenting the to assist professionals in A total of 984 surveys were returned, for a
Option for developing and implementing
Family Presence programs to provide patients’
response rate of 33%. Surveys were completed by 473
families the option to be critical care nurses, 456 emergency nurses, and 55
present at the bedside during nurses who either practiced in both areas or who did
invasive procedures and not provide work information. Nurses practiced in all
cardiopulmonary resuscitation
50 states and the District of Columbia. The mean age
Adapted with permission from the Emergency Nurses of the respondents was 42 years, 90% of them were
Association.1
women, and 50% had a baccalaureate degree (Table 2).

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The respondents were experienced registered nurses; Table 3 Characteristics of institutions where emergency
74% had more than 10 years of experience. A total of nurses and critical care nurses employed
74% worked full-time, 80% were staff nurses, and
78% spent more than 75% of their time providing Characteristic* No. %†
direct care to patients. The characteristics of the
respondents’ institutions are given in Table 3. Only Hospital location (n=920)
Rural/suburban 366 40
4% of the respondents cared for children; 56% worked
Urban/small urban 554 60
with both adults and children. A few (5%) worked at Type of facility (n=919)
institutions that used the ENA guidelines for the Not for profit 717 78
option of family presence,1,2 but most (73%) did not For profit 202 22
know these guidelines were available. University affiliation
(n=925)
Yes 358 39
No 567 61
Table 2 Demographic characteristics of emergency nurses Physician residents on unit
and critical care nurses (n=926)
Yes 484 52
Characteristic* No. %† No 442 48
Type of patients cared for
Age, years (n=912) (n=929)
<30 66 7 Adults 377 41
30-39 264 29 Children 33 4
40-49 390 43 Both adults and children 519 56
50-59 173 19 Use Emergency Nurses
≥60 19 2 Association guidelines
Sex (n=928) for the option of family
Female 839 90 presence (n=713)
Male 89 10 Yes 38 5
Highest degree in nursing No 152 21
(n=927) Did not know about 523 73
Graduate 94 10 guidelines
Baccalaureate 462 50
Diploma/associate 371 40 *Values for n vary because of missing data.
Years of experience as a †Percentages may not equal 100% because of rounding.
registered nurse
(n=929)
≤3 43 5
4-5 50 5 Survey Results
6-10 147 16 Family Presence Policies. Only 5% of the respon-
11-15 183 20 dents worked on units that had written policies allow-
16-20 172 19
ing the option of family presence during CPR (51/969)
>20 334 36
Work hours (n=929) and invasive procedures (48/961; Figure 1). Written
Full-time 692 74 policies prohibiting family presence were rare for
Part-time (>0.5 full-time 164 18 CPR (12/953; 1%) and invasive procedures (15/946;
equivalents) 2%). Although their institutions did not have a written
As needed 73 8
policy allowing or prohibiting family presence, 45%
Primary position
held (n=929) (422/943) of the nurses stated that their unit allowed
Direct care/staff nurse 741 80 family presence during CPR. Similarly, 51% (483/940)
Manager/administrator 130 14 of the nurses worked in units that had no written policy
Advanced practice nurse 29 3 but allowed family presence during invasive proce-
Other 29 3
dures (Figure 1). However, about one fourth of the
Direct care of patients, % of
time (n=928) nurses reported that family presence was prohibited
>75 720 78 for CPR (260/905; 29%) and invasive procedures
25-75 112 12 (224/910; 25%) although their units had no written
<25 85 9 policy prohibiting the option.
0 11 1
Policy Preferences for Allowing Family Presence.
*Values for n vary because of missing data.
†Percentages
A total of 37% (365/984) of the nurses preferred a writ-
may not equal 100% because of rounding.
ten policy allowing the option of family presence during

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Written policy patient’s bedside (Figure 3) a mean of 3 times (SD 4,
60
range 0-51) in the preceding year. A total of 21%
Unwritten policy
(207/968) said they had not taken family members to
50
the bedside during CPR but would do so in the future
if the opportunity arose. For invasive procedures,
Percentage of respondents

40 44% (423/968) had taken a family member to the bed-


side (Figure 3) a mean of 9 times (SD 12, range 0-100)
30

Had taken
20
Would take
50
Had not taken
10

Percentage of respondents
40
0
Cardiopulmonary Invasive
resuscitation procedures 30

Figure 1 Percentages of respondents who work in units or


departments with written or unwritten policies allowing the 20
option of family presence during cardiopulmonary
resuscitation and invasive procedures.
10

0
CPR, and 35% (347/984) preferred written policies for Cardiopulmonary Invasive
family presence during invasive procedures (Figure 2). resuscitation procedures
A total of 39% (386/984) of the nurses preferred allow- Figure 3 Percentages of respondents who had taken, would
ing the option of family presence for CPR but did not take, and had not taken patients’ family members to the
want a written policy (Figure 2). Also, 41% (407/984) bedside during cardiopulmonary resuscitation and invasive
preferred allowing the option of family presence during procedures.
invasive procedures without having a written policy.
How Often Nurses Bring Patients’ Families to the
Bedside. For CPR, a total of 36% (345/968) of the in the preceding year. In addition, 18% (176/968) said
respondents had taken a patient’s family member to a they had not taken families to the bedside during
invasive procedures but would do so if the opportunity
arose. The effects of actual experience on preferences
that support family presence also were evaluated. A
50 Written policy
significantly greater percentage of respondents who
Unwritten policy preferred policies (written or unwritten) allowing
Percentage of respondents

40 family presence during CPR or invasive procedures


had experience taking patients’ families to the bedside
(P < .01; Figure 4).
30 How Often Patients’ Family Members Asked to Be
Present. Among the respondents, 31% (296/964) said
20 that patients’ families had asked them whether the
families could be present during CPR a mean of 3
times (SD 5, range 0-40) during the preceding year.
10 Likewise, 61% (593/966) indicated that patients’
family members had asked them about being present
during invasive procedures a mean of 9 times (SD 13,
0
Cardiopulmonary Invasive range 0-100) during the preceding year.
resuscitation procedures As seen in Figure 5, we found striking differ-
Figure 2 Respondents’ preferences for written or unwritten ences between the percentages of families who asked
policies allowing the option of family presence during be present during CPR and invasive procedures and
cardiopulmonary resuscitation and invasive procedures.
the number of work settings that have written policies

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60 Had taken
Would take
Had not taken
50

40
Percent of respondents

30

20

10

0
Cardiopulmonary resuscitation Invasive procedures

Prefer written policy Prefer unwritten policy Prefer written policy Prefer unwritten policy
Figure 4 Respondents’ policy preferences and experience in taking patients’ families to the bedside during cardiopulmonary
resuscitation and invasive procedures.

allowing the option. Nurses’ preferences for a written First nurse: I was able to get an ER physician to allow
policy allowing the option of taking families to the parents in the room during CPR on their child. I
bedside were closer to the percentages of nurses received a letter from the parents stating how much
who said families asked to go to the bedside. they appreciated us allowing them to be with their
Nurses’ Comments About Family Presence. child in the last minutes of his life. They said they had
Many respondents (436/984; 44%) wrote about their been with the child since he was born and wanted to
experiences of bringing families to the bedside in be with him at death. They said their grieving process
the section for comments on the survey. These com- was faster because we allowed them in the room.
ments indicated the following benefits of family
Second nurse: I once was traumatized during a pedi-
presence:
atric cardiac arrest (during an outpatient procedure)
• provides emotional support for patients and
where the father witnessed the arrest (of his daugh-
patients’ families,
ter) and was not allowed in during CPR. He asked
• provides a positive experience for patients’
repeatedly to come in and “say goodbye” while she
families, patients, and staff,
was still alive. He wanted to hold her hand. Not only
• provides guidance and increases family under-
was he kept from the room, but security was called
standing of the patient’s situation,
to keep him out. The child did not survive. She was 6.
• helps patients’ families make decisions about
No one would ever keep me from seeing my child.
resuscitation,
He just wanted to be with her when she died, and we
• helps patients’ families know that everything
took that away from him. How unfortunate that writ-
was done to save their loved one, and
ten policies are needed in this area.
• facilitates closure and healing.
A small sample of the nurses’ comments on the Third nurse: Prior to becoming a nurse, I was a
benefits of bringing patients’ families to the bedside paramedic for 13 years in NYC. When called to a car-
are presented in the following. Three nurses shared diac arrest in the home, the family was always there
contrasting experiences: before us and I never felt right about asking them to

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70 Cardiopulmonary resuscitation
Invasive procedures

60

50
Percentage of respondents

40

30

20

10

0
Written policy Nurse’s preference for Family taken Family asked to be
allows written policy allowing taken
Figure 5 Comparison of written policies on family presence, respondents’ policy preferences, respondents’ experience
taking patients’ families to the bedside, and requests from patients’ family members to be present during cardiopulmonary
resuscitation and invasive procedures.

leave. I frequently utilized significant others, if rea- comfort, impeding work, extra work and burden, and
sonably calm, to move furniture or even bag an intu- inadequate staffing;
bated patient. I never regretted this decision. They • environmental issues such as limited space and
frequently thanked me for this opportunity to help. staff, chaos and confusion, and lack of privacy; and
The same opportunity should be an option in the ER. • legal issues such as lawsuits and family com-
plaints.
Many nurses commented on the need to assess One nurse wrote: “My experience tells me that
each situation, case by case, and described the impor- families are not prepared for the traumatic events that
tance of educating and preparing patients’ families are occurring before their eyes. When people learn CPR
for what the families would experience. The nurses or view it on TV, we have a tendency to sanitize it as if
thought that it was important to have a designated staff it were a ‘clean’ procedure.” Another commented:
member with the family to guide, coach, and support “Unfortunately, it seems that there is never enough time
the family. The respondents wrote that “the policy to evaluate education level and sensibilities of families
would provide equal access to all we serve” and that it before an invasive procedure. Certainly there isn’t
was important to “have a policy in place to think and enough support staff to allow for in-depth teaching
decide ahead of time how to handle requests.” with those families.”
Several nurses expressed concern about allowing
the option of family presence. They raised questions Discussion
about the following: To our knowledge, no other studies have been
• patient-related issues such as privacy and lim- done on the family presence practices of critical care
ited benefits; and emergency nurses in the United States. Nearly all
• family-related issues such as family behaviors, of the nurses in our study worked in units that had no
lack of education and understanding, emotional written policies addressing the option of family pres-
reactions, and family-staff relationships; ence during CPR and invasive procedures. Although
• staff-related issues such as staff stress and dis- the units had no written policies, almost half of the

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respondents reported that their units allowed the tice for patients’ families. In addition, in the study by
option of family presence. This informal practice may Meyers et al,20 the nurses who supported family pres-
be a result of changes in practice that reflect family- ence had had experience with family presence during
centered care and the desire to meet the holistic needs CPR and invasive procedures, a finding that lends
of patients and patients’ family members,65 the increas- further support to the positive effect of actual experi-
ing attention paid to family presence in the professional ence with family presence on attitudes toward it.
and public literature, or increases in the assertiveness Education can also favorably affect attitudes about
of patients’ families. family presence. An educational class on family pres-
Most critical care and emergency nurses in our ence given to 46 critical care and emergency nurses
study supported family presence. The large number changed the percentage of nurses who would offer the
of written comments supplied by the respondents fur- option from 11% to 79%.69
ther validates this finding. More than one third of the An important f inding in our study was that
respondents preferred a written policy allowing family patients’ family members often ask to be present dur-
presence during CPR and invasive procedures (37% ing invasive procedures (reported by 61% of the
and 35%, respectively), and more than one third pre- respondents), although the request to be present is
ferred an unwritten policy (39% and 41%, respec- lower for CPR (reported by 31% of respondents).
tively). Thus, nearly 75% of the respondents favored Although it is unclear why families ask to be present
some type of option for allowing family presence. less during CPR than during invasive procedures,
This percentage is lower than but consistent with the families may be influenced by the invasiveness of the
percentages found by Meyers et al,20 who reported interventions involved in CPR or they may not know
that 96% of emergency nurses supported family pres- to ask. Our findings differ from those of Helmer et
ence during CPR and 88% supported it during inva- al,54 who reported that 66% of 818 emergency nurses
sive procedures. In addition, nurses are more likely and 40% of 140 trauma surgeons had encountered
than physicians to support family presence.54 In a requests from family members to be present during a
survey by McClenathan et al,66 43% of nurses and trauma resuscitation. In addition, in that study,54 sig-
20% of physicians favored family presence during nificantly more nurses than physicians had experi-
CPR, and in a study by Meyers et al,20 96% of the ence with family presence and with being asked by
nurses and 79% of the attending physicians supported patients’ family members if the families could be
family presence. Likewise, the degree of invasive- present (P < .01 for both analyses), suggesting that
ness of the procedure may influence the provider’s family presence is often driven by nurses rather than
level of support for family presence. In a study67 of by physicians.
more than 600 emergency nurses and physicians, for In the study by Meyers et al,20 the intervention
example, nearly all of the respondents thought that protocol for family presence used the ENA guide-
the parents of children being treated should be pre- lines,1,2 and after the study, this protocol was approved
sent for procedures such as insertion of intravenous for hospital-wide use. The impact of this standardized
catheters and repair of lacerations, but when CPR was protocol suggests the benefits of a formal family
considered, less than half of the respondents supported presence program in heightening awareness and
family presence. changing clinical practice. However, 73% of our
Most of the respondents in our study had taken or respondents did not know that this ENA resource was
would consider taking a patient’s family to the patient’s available. Moreover, our data revealed a large dispar-
bedside during CPR and invasive procedures. Moreover, ity between the number of written policies on family
the majority who supported policies allowing family presence and the number of requests by patients’
presence had previous experience with having patients’ families to be present. Consequently, nurses who
family members present. These findings add to the work in units that do not support family presence or
mounting evidence that providers who have experi- do not have clearly delineated protocols for the prac-
ence with family presence tend to support the practice. tice may be in a difficult position when confronted
Sacchetti et al68 reported that previous experience with a request by a patient’s family to be at the
with family presence was the most important predic- patient’s bedside.
tor of acceptance among emergency department
providers. This finding was verified by Robinson et Implications for Practice and Research
al, 31 who terminated a randomized trial of family Our findings have several important implica-
presence before the study was completed because tions for practice and research. Because many nurses
they became convinced of the benefits of this prac- receive requests from patients’ families to be present

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during CPR and invasive procedures and because care, our data suggest that the discrepancy between
nurses often facilitate the families’ presence, critical the requests of patients’ families to be present at the
care units and emergency departments need to patients’ bedside and the actions of nurses who are
decide where they stand on the issue. Most units not facilitating these requests should be explored.
probably do not have formal policies on family pres- Researchers should target this group of nurses to bet-
ence because it is a controversial practice and histor- ter understand the nurses’ reasons for not taking
ically families have always been banned from the patients’ families to the bedside; reasons may include
bedside during such events. Soon, however, other personal preference, comfort level in dealing with
professional organizations most likely will join with patients’ families, lack of formal guidelines to direct
the ENA and the American Heart Association in rec- the process, and peer pressure in an environment that
ommending family presence during CPR and inva- does not support family presence. If the culture of a
sive procedures. As a result of the influence exerted unit or department does not support family presence,
by both consumers and professional organizations, for example, dissension among staff members is likely
most critical care and emergency departments will when the practice is supported and implemented by a
need to determine whether the departments support minority of the healthcare providers. In our study, the
the practice and whether formal or informal guide- respondents reported that twice as many patients’
lines are needed. families requested to be taken to the patients’ bedside
Because our results indicate that nearly all criti- for invasive procedures than for CPR. Invasive proce-
cal care and emergency departments have no written dures and CPR are 2 extremely different experiences
policies or guidelines for family presence, research for all involved. Our results suggest that practitioners
is needed to explore the implications of these find- and researchers need to identify the most effective
ings. For example, studies are needed to compare interventions and explore difference in preparing and
institutions with and without formal, written policies supporting patients’ family members during CPR and
on family presence to determine differences in provider invasive procedures. Differences in the families’ per-
support for family presence, how often patients’ fami- ceptions and concerns during these 2 events, the fam-
lies are brought to the bedside, and desired outcomes ilies’ needs during the experience, and what helps and
of family presence such as uninterrupted care for what does not help during CPR and during invasive
patients and meeting the needs of patients’ families procedures need to be better understood.
(eg, satisfaction, comfort, and closure).70 Practitioners
need to consider and researchers need to explore dif- Limitations
ferences between formal and informal policies in Our study has several limitations. Although the
promoting a family-centered care environment or in survey was evaluated by a panel of content experts
supporting a delivery of care that focuses on what and underwent extensive pilot testing, it did not
works best for the institution. To date, we do not undergo reliability testing and has no established
know if formal or informal policies provide stability construct validity. In addition, because only one third
to work units and promote consistent approaches in of the sample returned surveys, the generalizability of
carrying out family presence practices. For example, the findings is limited to this group. Possibly, those
what are the effects of informal versus formal policies nurses who did not respond have different preferences
on both staff and patients’ families? for and experiences with family presence. Only
The implications of nurses’ differences about members of the American Association of Critical-Care
whether a written policy is needed may reflect discom- Nurses and ENA were surveyed, and their responses
fort with family presence or resistance to changing may not represent the preferences and experiences of
long-standing practice. A policy on family presence critical care and emergency nurses across the United
could be beneficial if it detailed the responsibilities States. We did not directly examine the preferences of
of nurses during family presence. Nevertheless, patients’ families for being present during CPR and
researchers should explore the reasons nurses support invasive procedures; rather, we relied on the memory
formal or informal policies on family presence and and reports of the respondents.
what the nurses think are the benefits and problems
with each approach. Conclusions
We found that 40% of our respondents had not Nearly all of the respondents to our survey worked
taken patients’ family members to the bedside. Because on units that had no written policy on family presence,
of the current mandate for partnership with patients and yet three quarters of the respondents preferred that
their families in an environment of family-centered family presence be allowed. Despite the lack of writ-

254 AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3

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ten policies to support the practice, nearly half of the published studies indicating the multiple benefits of
respondents worked on units that allow family pres- family presence for both patients and families, nurses
ence, more than half have brought (or would bring) working in critical care and emergency departments
patients’ families to patients’ bedside during CPR and should consider developing written policies or guide-
invasive procedures, and many have been confronted lines on family presence to meet the needs of patients
with requests from patients’ families to be present. and their families and provide consistent, safe, and car-
Because of these findings and those of previously ing practices for patients, patients’ families, and staff.

Appendix A Family presence practice survey

WRITTEN POLICIES

1. Does your unit have a written policy that allows the option of family presence during

a. CPR? ____Yes ____No ____Do not know

b. an invasive procedure? ____Yes ____No ____Do not know

⇒ If “Yes” to a and b, then skip to question 5


2. Does your unit have a written policy that prohibits the option of family presence during

a. CPR? ____Yes ____No ____Do not know

b. an invasive procedure? ____Yes ____No ____Do not know

⇒ If “Yes” to a and b, then skip to question 5

NO WRITTEN POLICIES
3. Does your unit allow (but has no written policy) the option of family member presence during

a. CPR? ____Yes ____No ____Do not know

b. an invasive procedure? ____Yes ____No ____Do not know

⇒ If “Yes” to a and b, then skip to question 5


4. Does your unit prohibit (but has no written policy) the option of family presence during

a. CPR? ____Yes ____No ____Do not know

b. an invasive procedure? ____Yes ____No ____Do not know

BRINGING FAMILY TO THE BEDSIDE


5. In the past year, have you ever taken a family member to the patient’s bedside during

a. CPR? ____Yes ____No ____No, but would do so if the opportunity arose

⇒ How many times? __________

b. an invasive procedure? ____Yes ____No ____No, but would do so if the opportunity arose

⇒ How many times? __________


6. In the past year, if you have taken family members to the bedside during a CPR or invasive procedure, did you use the
intervention guidelines developed by the Emergency Nurses Association based on their education program “Presenting the
Option for Family Presence”?

____Yes ____No ____Do not know about these ENA intervention guidelines
Continued

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Appendix A Continued
YOUR PREFERENCES

7. In your unit, how would you prefer that the option of family presence be managed? (choose from a, b, c, OR d)
a. Prefer a written policy allowing the option of family presence for
____CPR
____invasive procedures
b. Prefer a written policy prohibiting the option of family presence for
____CPR
____invasive procedures
c. Prefer no written policy but want the unit to allow the option of family presence for
____CPR
____invasive procedures
d. Prefer no written policy but want the unit to prohibit the option of family presence for
____CPR
____invasive procedures
FAMILY MEMBER PREFERENCES
8. In the past year, have you been asked by family members if they could be present during

a. CPR? ____Yes ____No

b. an invasive procedure? ____Yes ____No


9. If you answered “Yes” to question 8, how many times in the past year have families asked you if they could be
present during

a. CPR? _______ times in the past year

b. an invasive procedure? _______ times in the past year

COMMENTS
10. Is there anything you would like to share with us about family presence during CPR and invasive procedures related
to your unit or on a professional or personal note? (please add additional pages if needed)

CPR indicates cardiopulmonary resuscitation; ENA, Emergency Nurses Association. Reproduced with permission. © 2002 Emergency Nurses
Association.

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