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AJCC, the American Journal of Critical Care, is the official peer-reviewed research
journal of the American Association of Critical-Care Nurses (AACN), published
bimonthly by The InnoVision Group, 101 Columbia, Aliso Viejo, CA 92656.
Telephone: (800) 899-1712, (949) 362-2050, ext. 532. Fax: (949) 362-2049.
Copyright © 2003 by AACN. All rights reserved.
• BACKGROUND Increasingly, patients’ families are remaining with them during cardiopulmonary
resuscitation and invasive procedures, but this practice remains controversial and little is known about
the practices of critical care and emergency nurses related to family presence.
• OBJECTIVE To identify the policies, preferences, and practices of critical care and emergency nurses
for having patients’ families present during resuscitation and invasive procedures.
• METHODS A 30-item survey was mailed to a random sample of 1500 members of the American
Association of Critical-Care Nurses and 1500 members of the Emergency Nurses Association.
• RESULTS Among the 984 respondents, 5% worked on units with written policies allowing family presence
during both resuscitation and invasive procedures and 45% and 51%, respectively, worked on units that
allowed it without written policies during resuscitation or during invasive procedures. Some respondents
preferred written policies allowing family presence (37% for resuscitation, 35% for invasive procedures),
whereas others preferred unwritten policies allowing it (39% for resuscitation, 41% for invasive proce-
dures). Many respondents had taken family members to the bedside (36% for resuscitation, 44% for
invasive procedure) or would do so in the future (21% for resuscitation, 18% for invasive procedures),
and family members often asked to be present (31% for resuscitation, 61% for invasive procedures).
• CONCLUSIONS Nearly all respondents have no written policies for family presence yet most have done
(or would do) it, prefer it be allowed, and are confronted with requests from family members to be
present. Written policies or guidelines for family presence during resuscitation and invasive procedures
are recommended. (American Journal of Critical Care. 2003;12:246-257)
A
llowing patients’ family members to be pre- decade, however, the movement to allow family pres-
sent at the bedside (also termed “family pres- ence has steadily evolved because of the support of
ence”) during cardiopulmonary resuscitation professional organizations, attention of the media, and
(CPR) and invasive procedures is a controversial research on the topic. In 1993, the Emergency Nurses
practice in the United States. In less than a single Association (ENA) adopted a resolution to support the
option of having patients’ families present during
This article is being copublished with the Journal of Emergency CPR and invasive procedures. Two years later, an
Nursing, where it will appear in the June 2003 issue. educational program for implementing this practice
within institutions was developed by the ENA.1 This
To purchase reprints, contact The InnoVision Group, 101 Columbia, Aliso
Viejo, CA 92656. Phone, (800) 809-2273 or (949) 362-2050 (ext 532); fax, program was revised in 2001 to reflect updated guide-
(949) 362-2049; e-mail, reprints@aacn.org. lines and research.2 In addition, guidelines on family
246 AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3
AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3 247
248 AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3
AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3 249
Had taken
20
Would take
50
Had not taken
10
Percentage of respondents
40
0
Cardiopulmonary Invasive
resuscitation procedures 30
0
CPR, and 35% (347/984) preferred written policies for Cardiopulmonary Invasive
family presence during invasive procedures (Figure 2). resuscitation procedures
A total of 39% (386/984) of the nurses preferred allow- Figure 3 Percentages of respondents who had taken, would
ing the option of family presence for CPR but did not take, and had not taken patients’ family members to the
want a written policy (Figure 2). Also, 41% (407/984) bedside during cardiopulmonary resuscitation and invasive
preferred allowing the option of family presence during procedures.
invasive procedures without having a written policy.
How Often Nurses Bring Patients’ Families to the
Bedside. For CPR, a total of 36% (345/968) of the in the preceding year. In addition, 18% (176/968) said
respondents had taken a patient’s family member to a they had not taken families to the bedside during
invasive procedures but would do so if the opportunity
arose. The effects of actual experience on preferences
that support family presence also were evaluated. A
50 Written policy
significantly greater percentage of respondents who
Unwritten policy preferred policies (written or unwritten) allowing
Percentage of respondents
250 AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3
40
Percent of respondents
30
20
10
0
Cardiopulmonary resuscitation Invasive procedures
Prefer written policy Prefer unwritten policy Prefer written policy Prefer unwritten policy
Figure 4 Respondents’ policy preferences and experience in taking patients’ families to the bedside during cardiopulmonary
resuscitation and invasive procedures.
allowing the option. Nurses’ preferences for a written First nurse: I was able to get an ER physician to allow
policy allowing the option of taking families to the parents in the room during CPR on their child. I
bedside were closer to the percentages of nurses received a letter from the parents stating how much
who said families asked to go to the bedside. they appreciated us allowing them to be with their
Nurses’ Comments About Family Presence. child in the last minutes of his life. They said they had
Many respondents (436/984; 44%) wrote about their been with the child since he was born and wanted to
experiences of bringing families to the bedside in be with him at death. They said their grieving process
the section for comments on the survey. These com- was faster because we allowed them in the room.
ments indicated the following benefits of family
Second nurse: I once was traumatized during a pedi-
presence:
atric cardiac arrest (during an outpatient procedure)
• provides emotional support for patients and
where the father witnessed the arrest (of his daugh-
patients’ families,
ter) and was not allowed in during CPR. He asked
• provides a positive experience for patients’
repeatedly to come in and “say goodbye” while she
families, patients, and staff,
was still alive. He wanted to hold her hand. Not only
• provides guidance and increases family under-
was he kept from the room, but security was called
standing of the patient’s situation,
to keep him out. The child did not survive. She was 6.
• helps patients’ families make decisions about
No one would ever keep me from seeing my child.
resuscitation,
He just wanted to be with her when she died, and we
• helps patients’ families know that everything
took that away from him. How unfortunate that writ-
was done to save their loved one, and
ten policies are needed in this area.
• facilitates closure and healing.
A small sample of the nurses’ comments on the Third nurse: Prior to becoming a nurse, I was a
benefits of bringing patients’ families to the bedside paramedic for 13 years in NYC. When called to a car-
are presented in the following. Three nurses shared diac arrest in the home, the family was always there
contrasting experiences: before us and I never felt right about asking them to
AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3 251
60
50
Percentage of respondents
40
30
20
10
0
Written policy Nurse’s preference for Family taken Family asked to be
allows written policy allowing taken
Figure 5 Comparison of written policies on family presence, respondents’ policy preferences, respondents’ experience
taking patients’ families to the bedside, and requests from patients’ family members to be present during cardiopulmonary
resuscitation and invasive procedures.
leave. I frequently utilized significant others, if rea- comfort, impeding work, extra work and burden, and
sonably calm, to move furniture or even bag an intu- inadequate staffing;
bated patient. I never regretted this decision. They • environmental issues such as limited space and
frequently thanked me for this opportunity to help. staff, chaos and confusion, and lack of privacy; and
The same opportunity should be an option in the ER. • legal issues such as lawsuits and family com-
plaints.
Many nurses commented on the need to assess One nurse wrote: “My experience tells me that
each situation, case by case, and described the impor- families are not prepared for the traumatic events that
tance of educating and preparing patients’ families are occurring before their eyes. When people learn CPR
for what the families would experience. The nurses or view it on TV, we have a tendency to sanitize it as if
thought that it was important to have a designated staff it were a ‘clean’ procedure.” Another commented:
member with the family to guide, coach, and support “Unfortunately, it seems that there is never enough time
the family. The respondents wrote that “the policy to evaluate education level and sensibilities of families
would provide equal access to all we serve” and that it before an invasive procedure. Certainly there isn’t
was important to “have a policy in place to think and enough support staff to allow for in-depth teaching
decide ahead of time how to handle requests.” with those families.”
Several nurses expressed concern about allowing
the option of family presence. They raised questions Discussion
about the following: To our knowledge, no other studies have been
• patient-related issues such as privacy and lim- done on the family presence practices of critical care
ited benefits; and emergency nurses in the United States. Nearly all
• family-related issues such as family behaviors, of the nurses in our study worked in units that had no
lack of education and understanding, emotional written policies addressing the option of family pres-
reactions, and family-staff relationships; ence during CPR and invasive procedures. Although
• staff-related issues such as staff stress and dis- the units had no written policies, almost half of the
252 AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3
AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3 253
254 AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3
WRITTEN POLICIES
1. Does your unit have a written policy that allows the option of family presence during
NO WRITTEN POLICIES
3. Does your unit allow (but has no written policy) the option of family member presence during
b. an invasive procedure? ____Yes ____No ____No, but would do so if the opportunity arose
____Yes ____No ____Do not know about these ENA intervention guidelines
Continued
AMERICAN JOURNAL OF CRITICAL CARE, May 2003, Volume 12, No. 3 255
7. In your unit, how would you prefer that the option of family presence be managed? (choose from a, b, c, OR d)
a. Prefer a written policy allowing the option of family presence for
____CPR
____invasive procedures
b. Prefer a written policy prohibiting the option of family presence for
____CPR
____invasive procedures
c. Prefer no written policy but want the unit to allow the option of family presence for
____CPR
____invasive procedures
d. Prefer no written policy but want the unit to prohibit the option of family presence for
____CPR
____invasive procedures
FAMILY MEMBER PREFERENCES
8. In the past year, have you been asked by family members if they could be present during
COMMENTS
10. Is there anything you would like to share with us about family presence during CPR and invasive procedures related
to your unit or on a professional or personal note? (please add additional pages if needed)
CPR indicates cardiopulmonary resuscitation; ENA, Emergency Nurses Association. Reproduced with permission. © 2002 Emergency Nurses
Association.
ACKNOWLEDGMENTS 9. Shelton D. Being there. American Medical News. November 17, 1997:19-22.
We thank Marianne Chulay, RN, DNSc, Lori Hendrickx, RN, EdD, CCRN, James B. 10. Nelson V. Nurses think families should be present in the emergency
Richmann, RN, BS, CEN, Alfred Sacchetti, MD, and Elizabeth H. Winslow, RN, PhD, department. Nursing and Allied Healthweek-Dallas/Fort Worth.
for their thoughtful review of the manuscript. This study was funded in part November 4, 1996;22.
by the Emergency Nurses Association, Des Plaines, Ill, and the American 11. Farella C. When kin and crash cart collide. Nurs Spectr (Wash D C).
Association of Critical-Care Nurses, Aliso Viejo, Calif. Metro edition, January 2001;2:14-16.
12. Davis R. Bedside in the ER: hospitals allowing family member access.
USA Today. March 7, 2000:1A-2A.
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Presence. 2nd ed. Des Plaines, Ill: Emergency Nurses Association; 2001. July 30, 1999.
(www.ena.org). 16. Tuller D. A debate over loved ones in the ER. New York Times. May 15,
3. Jacobs BB, Hoyt KS, eds. Trauma Nursing Core Course: Provider 2001;D6 Science.
Manual. 5th ed. Park Ridge, Ill: Emergency Nurses Association; 2000. 17. Jennings P. Family presence. “World News Report.” ABC television.
4. Eckle N, Haley K, Baker P, eds. Emergency Nursing Pediatric June 13, 2001.
Course: Provider Manual. 2nd ed. Park Ridge, Ill: Emergency Nurses 18. Bauchner H, Waring C, Vinci R. Parental presence during procedures in
Association; 1998. an emergency room: results from 50 observations. Pediatrics.
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Cardiovascular Care. The American Heart Association in collaboration 19. Sacchetti A, Lichenstein R, Carraccio CA, et al. Family member presence
with the International Liaison Committee on Resuscitation. Circulation. during pediatric emergency department procedures. Pediatr Emerg Care.
2000;102(8 suppl):I1-I374. Theme issue. 1996;12:268-271.
6. Solovitch S. Pulling back the curtain: nurses allow patients’ loved ones 20. Meyers TA, Eichhorn DJ, Guzzetta CE, et al. Family presence during
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