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IPTS: Part of Joint Research Centre of the EC: 7 Research Institutes across Europe Mission: to provide customerdriven support to the EU policymaking process by developing science-based responses to policy challenges that have both a socio-economic as well as a scientific/technological dimension
ICT-enabled services for carers and care: lessons from policy and innovation
Stephanie Carretero, James Stewart & Clara Centeno Joint Research Centre (JRC) Institute for Prospective Technological Studies The European Commissions Research-Based Policy Support Organisation
28 June 2012
CARICT (2011)
1) how ICT can support the creation of a sufficient number of available (motivated) and skilled informal caregivers and family employed care workers? 2) how technology-enabled services can allow above caregivers to: - better engage with care recipient, - improve their quality of life and - improve quality and efficiency of care?
Funded by DGINFSO and JRC Research team: IPTS and European Centre
Research Methodology
12 Countries: UK, IE AU, FR, DE SE, FI - IT, ES HU, CZ, SI European Center for Social Welfare policy and Research + 4 National research organisations: CIRCLE (UK), INRCA (IT),
Institute of Sociology of Academy of Sciences (HU), Swedish National Family Care Competence Centre, and Eurocarers
Geographical coverage Beyond pilot status
Research methods:
1) 2) 3) 4) Mapping of initiatives in 12 MS through a literature review Development of an Multi-Level Impact Assessment Methodology (QT, QL) In depth analysis of innovation processes and impact through interviews with initiative coordinators and documents analysis Expert (June 2011) and policy (Nov 2011) validation workshops with 42 experts
Types of ICT:
Independent living, Information and learning, Personal support and social integration for carers, and care coordination
EVALUATION OF: Cross analysis of impact, success factors, drivers and challenges
Main findings
1.- A first analysis of 52 ICT based initiatives for informal care in this research pointed to the existence of a wide range of successful examples of ICT-based support for caregivers across Europe.
Care regime
Mapped initiatives 3 7 10
Anglo-Saxon (liberal)
4 6 6 16
Continental (corporatist)
5 3 8
Scandinavian (Nordic)
5 4
Mediterranean
5 2 2
Eastern European
Total
52
UK Leeds City Council Telecare Service Carers UK online forum: HFT (formerly Home Farm Trust) Book Your Own Breaks Telecare Scotland Just Checking Nottingham Community Housing Association Ireland Fold Group Try It Emergency Response Ltd
France Cyber France Salveo Maison Vill'age Forum aidants Web-napperon Open and distance learning Germany SEKIS Pflege Wiki Vitaphone SOPHIA PAUL Alzheimer Blog
Sweden My Joice TV ACTION Family Care Support Portal (Anhrigstdsportalen) GAPET IPPI & AMIGO Hungary Skype care Emergency alarm MOHANET letvonal 24 Body Guard Czech Republic Seniors' Telephone Crisis Helpline (Zivot 90) Careion Emergency Care
Slovenia Red button telecare My healthcare personal reminder Italy CAMPUS E-CARE C.A.S.A. (Care Assistants Search Agency) Ring Project (Transferring supports for caregivers) T-Seniority Project Spain Andalusian Telecare Service Un cuidador, dos vidas (A caregiver, Two lives) Ser Cuidador (Being a caregiver) Tele-gerontologia
Austria Hilfswerk Notruf Alzheimer Website n@tzwerk pflege Plattform fr pflegende Angehrige
Independent living
TELECARE SCOTLAND
One of a range of national initiatives to improve health and care services (JIT, with 70m GBP budget; 20m investment in on Telecare) Replacement of institutional care with housing including various sensors and alarms, and mobile care staff. Part of a range of ICT-based services to dependents and carers Partnership with carer organisations and local authorities Service rolled out over 17 regions and now integrated into NHS24service (new change funding programme on aging in place) Considerable innovation and learning over 5 year period. 2007 onwards, over 43,000 people accessed a telecare service, with more than 30,000 still receiving one in March 2011 . The value of benefits arising from telecare expenditure from 2006 -2011 approx. 79m. Most savings split between avoidance of care home admissions, and avoiding hospital inpatient stays.
SOPHIA (DE)
SOziale Personenbetreuung Hilfen Im Alltag After State funded R&D phase (1.5m EURO) SOPHIA founded in 2005 by CUP 2000 in partnership with Northern Bavarian housing company (THS Wohnen GmbH) and operates in five German states Service to elderly with limited mobility with low-moderate care need Package of telecare,safety wristband with monitoring function, GPS monitoring, PC-TV terminal to service centre. SOPHIA Franken involves about 100 staff inc 85 volunteers in service centres who are godparents of the users Development of a platform of services to older people Co-payment financing, with basic insurance cover. Reduced demands and stress on family members who often live at a distance
Carers UK run a carers web and phone support service Total charity budget 3.5m GBP from donations and consultancy
Caring with Confidence National (NHS) initiative seeking to provide training to 10.000 carers over 3 years Linked to national Carers Direct help line (cost 2.7m GBP)
Local group sessions Workbooks for self-study Online study sessions Content/courses for BME carers
City & Guilds Learning for Living Online Learning Programme for carers: (1) Learning resource (2) nationally recognised (level 2) qualification: Certificate in Personal Development & Learning for Unpaid Carers since 2004, around 700 participants in 2009
Care coordination
Many services to enable families friends and volunteers to share and coordinate caring responsibilities i.e. private social networking tools for families of dependent people: ShareCARE Netherlands Caring Bridge,Carecentral, SharetheCare, Lotsa Helping Hands - USA Low cost or free to end users (0-30 euros/month)
2.- Positive impact on health of informal carers and the care system
ICT based services for domiciliary care : Increase the quality of life for older people and carers, Increase the access to qualified long- term care, Allow the integration of health and social care services, empowering carers, to ensure adequate informal long term care, and Help to generate direct savings that contribute to the sustainability of the system.
Conclusions
1.- Social innovation for informal care is taking place. Existence of running and successful initiatives of ICT based initiatives for domiciliary care across Europe that serves as good practices to stress and support the role of informal carers. 2.- Impact on the quality of life, of care and sustainibility of the systems. 3.- The involvement of end-users in all the phases of the development of the ICT services is central for the success of the initiatives. 4.- Policy leadership with the combination of already existing and new funding and supporting programmes is the main role to be taken by policy-makers 5.- The third sector and volunteers are acquiring a main role for the sustainability of these services.
CARICT: Analysis and Mapping of 52 ICT-based initiatives for caregivers, Deliverable 2.3 (2011) CARICT: Final report containing case-by-case detailed description and analysis of selected 12 Good practices (2012) Forthcoming Final Policy Report (2Q2012) http://is.jrc.ec.europa.eu/pages/EAP/eInclusion.html
Stephanie.carretero-gomez@ec.europa.eu
http://is.jrc.ec.europa.eu/pages/EAP/eInclusion.html